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Need Sjogren's advice
Hello everyone, UPDATE! I was able to get an appointment with a rhuemetologist at the Mayo Clinic in Jacksonville!!! Thank you everyone for sharing your information and experiences with me. Just knowing we are not alone helps so much ♡♡♡♡ I live in the US and I am currently away from my home and taking
Hello everyone, UPDATE! I was able to get an appointment with a rhuemetologist at the Mayo Clinic in Jacksonville!!! Thank you everyone for sharing your information and experiences with me. Just knowing we are not alone helps so much ♡♡♡♡ I live in the US and I am currently away from my home and taking
Piscesdreamer
in
LUPUS UK
3 years ago
Need APS Specialist in Daytona Beach FL USA area
Hello everyone, I am up in the Daytona Beach/ New Smyrna Beach, Florida area caring for my 80 year old mother who injured her back. Can anyone recommend an APS Specialist in this area? I have new symptoms where my body is not producing enough saliva. I can only eat liquid foods, and losing weight,
Hello everyone, I am up in the Daytona Beach/ New Smyrna Beach, Florida area caring for my 80 year old mother who injured her back. Can anyone recommend an APS Specialist in this area? I have new symptoms where my body is not producing enough saliva. I can only eat liquid foods, and losing weight,
Piscesdreamer
in
LUPUS UK
3 years ago
Aps Specialist near Daytona Beach FL?
UPDATE: I was able to get an appointment with a rhuemetologist at the Mayo Clinic in Jacksonville! Hello everyone, I am up in the Daytona Beach/ New Smyrna Beach, Florida area caring for my 80 year old mother who injured her back. Can anyone recommend an APS Specialist in this area? I have new symptoms
UPDATE: I was able to get an appointment with a rhuemetologist at the Mayo Clinic in Jacksonville! Hello everyone, I am up in the Daytona Beach/ New Smyrna Beach, Florida area caring for my 80 year old mother who injured her back. Can anyone recommend an APS Specialist in this area? I have new symptoms
Piscesdreamer
in
Hughes Syndrome APS Forum
3 years ago
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ICU Recovery
Hello, I am 27 years old. I’ve had brain tumor surgery, because of a surgical complication i stayed in the icu for almost 4 weeks mechanically ventilated, and then 2 more weeks in the ward, its been almost two months since i left the hospital at first i could barely sit on the bed now i can walk independently
Hello, I am 27 years old. I’ve had brain tumor surgery, because of a surgical complication i stayed in the icu for almost 4 weeks mechanically ventilated, and then 2 more weeks in the ward, its been almost two months since i left the hospital at first i could barely sit on the bed now i can walk independently
Abbas1
in
ICUsteps
3 years ago
Update to my recent post re bleed behind eye
I had retinal surgery today for a vitreous haemorrhage which caused a detached retina. I dont think it is related to taking anticoagulants but next week I will contact my GP to discuss, hospital thinks it was wear and tear and age related. So relieved I decided to seek help from Moorfields, they were
I had retinal surgery today for a vitreous haemorrhage which caused a detached retina. I dont think it is related to taking anticoagulants but next week I will contact my GP to discuss, hospital thinks it was wear and tear and age related. So relieved I decided to seek help from Moorfields, they were
Jeans1234
in
AF Association
3 years ago
Tsh level 8.4
Hi I’m a newbie here, my 19 year old son had not been well for over 8 months now , he’s very tired , bad eye floaters, feeling out of it all the time .we got eyes checked and all good , had bloods done and everything perfect apart from his tsh level was 8.3 . Doc wants to wait 3 months to check but his
Hi I’m a newbie here, my 19 year old son had not been well for over 8 months now , he’s very tired , bad eye floaters, feeling out of it all the time .we got eyes checked and all good , had bloods done and everything perfect apart from his tsh level was 8.3 . Doc wants to wait 3 months to check but his
Vincent512
in
Thyroid UK
3 years ago
Eye pain
To all GCA people! In my determination to get fitter, I’m having problems with pain behind my eyes when I try to push myself a bit further. Do others have the same body-response when trying to increase their fitness? I can walk, briskly, up hills for about 20 minutes and then a further 20 mins on
To all GCA people! In my determination to get fitter, I’m having problems with pain behind my eyes when I try to push myself a bit further. Do others have the same body-response when trying to increase their fitness? I can walk, briskly, up hills for about 20 minutes and then a further 20 mins on
PuttyPenguin
in
PMRGCAuk
3 years ago
Amsler Grid, lack of self-confidence, and reading tips
When I use the grid, I cannot see changes from day to day. I worry that I am missing something. The fear is made worse because I feel my reading ability is deteriorating. I live in the States and do not have to wait two weeks for an appointment. When I call and say I think I see a change, I am seen
When I use the grid, I cannot see changes from day to day. I worry that I am missing something. The fear is made worse because I feel my reading ability is deteriorating. I live in the States and do not have to wait two weeks for an appointment. When I call and say I think I see a change, I am seen
oldoakowl
in
Macular Society
3 years ago
Dry eyes
For the past 12 months my eyes have become quite dry so as many people I use eye drops daily to keep them hydrated. I did some research and found a supplement bought through Amazon called ‘Sea Buckthorn oil capsules’ with omega7 the make is Nature’s. Aid. I have taken these for about a month and my dry
For the past 12 months my eyes have become quite dry so as many people I use eye drops daily to keep them hydrated. I did some research and found a supplement bought through Amazon called ‘Sea Buckthorn oil capsules’ with omega7 the make is Nature’s. Aid. I have taken these for about a month and my dry
Annsandra13
in
Macular Society
3 years ago
Possibility of discontinuing Lucentis injections
I was diagnosed with wet AMD in my left eye 2 years ago, since then I’ve been receiving regular (4/5/6) weekly injections and scans. This morning I had a sight test and scan at the eye clinic and was told that my eye sight had got worse. The doctor explained that it was marginal that I would be able
I was diagnosed with wet AMD in my left eye 2 years ago, since then I’ve been receiving regular (4/5/6) weekly injections and scans. This morning I had a sight test and scan at the eye clinic and was told that my eye sight had got worse. The doctor explained that it was marginal that I would be able
buttercup1
in
Macular Society
3 years ago
Eye light therapy for dry eyes, does it help?
Eye light therapy,does it help for dry eyes, blinking a lot, meibomian gland dysfunction? Please reply and give me some info about this treatment if possible. Millions of people are suffering, there must be something that can help us. I tried this already: Fish oil-flaxeed All eyedrops and gels. Honey
Eye light therapy,does it help for dry eyes, blinking a lot, meibomian gland dysfunction? Please reply and give me some info about this treatment if possible. Millions of people are suffering, there must be something that can help us. I tried this already: Fish oil-flaxeed All eyedrops and gels. Honey
Sandee007
in
Fibromyalgia Action UK
3 years ago
Steroids for a relapse
Hi Group, I would like to ask you if you would share your experience with steroids. I know we are all different and will react differently but what i want to know is did it work? If your doc put you on steroids did it stop the relapse? My experience is mixed: 1st time, oral steroids worked great. 2nd
Hi Group, I would like to ask you if you would share your experience with steroids. I know we are all different and will react differently but what i want to know is did it work? If your doc put you on steroids did it stop the relapse? My experience is mixed: 1st time, oral steroids worked great. 2nd
Sandydemop
in
My MSAA Community
3 years ago
Phantom smell
Hello all, My sense of smell is present, but for the last 6 weeks I have been smelling a foul scent that is not really there. It is almost like a pungent soap. Originally I thought it was coming from the clothes that were washed and may have had too much soap or something, but after this long it is
Hello all, My sense of smell is present, but for the last 6 weeks I have been smelling a foul scent that is not really there. It is almost like a pungent soap. Originally I thought it was coming from the clothes that were washed and may have had too much soap or something, but after this long it is
Missy0202
in
Cure Parkinson's
3 years ago
EMDR
Hi everyone New here but I just wanted to share my experience of treatment with EMDR for anyone considering it or potentially struggling with it. I have been having EMDR since October and I won't lie, it is draining and it takes a lot of work. But I really have started to see a difference in myself
Hi everyone New here but I just wanted to share my experience of treatment with EMDR for anyone considering it or potentially struggling with it. I have been having EMDR since October and I won't lie, it is draining and it takes a lot of work. But I really have started to see a difference in myself
BunnyBean
in
Heal My PTSD
3 years ago
Fibro and Sjogrens
Hi everyone, has anyone been diagnosed with sjogrens as well as fibromyalgia? I am struggling at the minute and wondering if I should ask my GP to be feferred back to a rhumatologist as the only treatment is eyedrops I buy myself. Any info would be appreciated. Thanks
Hi everyone, has anyone been diagnosed with sjogrens as well as fibromyalgia? I am struggling at the minute and wondering if I should ask my GP to be feferred back to a rhumatologist as the only treatment is eyedrops I buy myself. Any info would be appreciated. Thanks
Daisy4444
in
Fibromyalgia Action UK
3 years ago
First Appointment after Diagnosis
Hi went for first appointment after diagnosis yesterday. So stressed. Lovely doctor though. Obviously asked would I go blind didn’t get yes or no answer he just said we have to keep pressures under control. Pressures were 20 and 24 so I wasn’t happy. He’s gave me a combination drop of Lantanprost and
Hi went for first appointment after diagnosis yesterday. So stressed. Lovely doctor though. Obviously asked would I go blind didn’t get yes or no answer he just said we have to keep pressures under control. Pressures were 20 and 24 so I wasn’t happy. He’s gave me a combination drop of Lantanprost and
Hidden
in
Glaucoma UK
3 years ago
Is this a flare?
Sorry this is so late, I just wondered if any of you might be around to give me a word or two of your wisdom at short notice... GCA since last August, at which time I had a 6th nerve palsy and double vision, but luckily I kept the sight. 7 months later, Prednisolone down from 60 mg to 12.5 as advised
Sorry this is so late, I just wondered if any of you might be around to give me a word or two of your wisdom at short notice... GCA since last August, at which time I had a 6th nerve palsy and double vision, but luckily I kept the sight. 7 months later, Prednisolone down from 60 mg to 12.5 as advised
Frewen1
in
PMRGCAuk
3 years ago
The glaucoma treatment that only takes seconds
Belkin Laser’s Eagle device delivers healing laser beams quickly and without touching the patient; any ophthalmologist can use it. By Brian Blum MARCH 10, 2021 One hundred and forty million people suffer from glaucoma, a degenerative eye disease that can lead to blindness. It is most prevalent among
Belkin Laser’s Eagle device delivers healing laser beams quickly and without touching the patient; any ophthalmologist can use it. By Brian Blum MARCH 10, 2021 One hundred and forty million people suffer from glaucoma, a degenerative eye disease that can lead to blindness. It is most prevalent among
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
3 years ago
Severe headache and pain after lucentis injections?
Can anyone advice please. My husband has macular degeneration and has been receiving injections for the past 4 years with no problems. He had his injections in both eyes today as usual and was fine when we returned home but after 3 hours has been unable to open his eyes due to pain and very sensitive
Can anyone advice please. My husband has macular degeneration and has been receiving injections for the past 4 years with no problems. He had his injections in both eyes today as usual and was fine when we returned home but after 3 hours has been unable to open his eyes due to pain and very sensitive
welshkaren
in
Macular Society
3 years ago
Has anyone noticed cloudy vision after injection of eylea in eye, this has got gradually worse
Have had three eylea injections in eye which has had a cnv, the destortion experience is better but have noticed a darkening cloudy vision in this eye. Has anyone else experienced any thing similar. I have bought some yellow anti glear glasses but an still aware of cloudy vision.
Have had three eylea injections in eye which has had a cnv, the destortion experience is better but have noticed a darkening cloudy vision in this eye. Has anyone else experienced any thing similar. I have bought some yellow anti glear glasses but an still aware of cloudy vision.
PHILhr
in
Macular Society
3 years ago
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