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Book is now available in print form
Hi everybody. Pleased to let you know that the book Polymyalgia Rheumatica and Giant Cell Arteritis: a survival guide, is now available in print form from PMRGCAuk. Unfortunately at the moment we don't have a way for you to pay for it online. Please write to BM PMRGCAuk, London, WC1N 3XX, enclosing a
Hi everybody. Pleased to let you know that the book Polymyalgia Rheumatica and Giant Cell Arteritis: a survival guide, is now available in print form from PMRGCAuk. Unfortunately at the moment we don't have a way for you to pay for it online. Please write to BM PMRGCAuk, London, WC1N 3XX, enclosing a
Polywotsit
PMRGCAuk team member
in
PMRGCAuk
10 years ago
Explainer: What is Cancer Immunotherapy?
Nial Wheate, Senior Lecturer in Pharmaceutical Chemistry at the University of Sydney, Australia, provides an introductory overview of the sophisticated ways we now use immunotherapy including vaccinations, antibodies (proteins that bind to foreign objects to mark them for destruction), cytokines (molecules
Nial Wheate, Senior Lecturer in Pharmaceutical Chemistry at the University of Sydney, Australia, provides an introductory overview of the sophisticated ways we now use immunotherapy including vaccinations, antibodies (proteins that bind to foreign objects to mark them for destruction), cytokines (molecules
AussieNeil
Partner
in
CLL Support
10 years ago
Hypothyroidism - advice on levels
Hi I asked for my thyroid levels to be tested again and once again they came back normal. I asked the nurse what the actual levels are and she told me 0.74. I know that here in the UK they can come back 'normal' and still be regarded as low by the standards of other countries eg in the US they can
Hi I asked for my thyroid levels to be tested again and once again they came back normal. I asked the nurse what the actual levels are and she told me 0.74. I know that here in the UK they can come back 'normal' and still be regarded as low by the standards of other countries eg in the US they can
Kirby
in
Fibromyalgia Action UK
10 years ago
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I contacted the Justice Department about Missing GP Notes.
I contacted the Justice department about missing GP notes. They say it's the Department for Health responsibility. Talk about passing the buck. There was a post about the Freedom of Information Act on thyroid UK a few days ago. GP's passing notes on to insurance companies. The NHS refusing to install
I contacted the Justice department about missing GP notes. They say it's the Department for Health responsibility. Talk about passing the buck. There was a post about the Freedom of Information Act on thyroid UK a few days ago. GP's passing notes on to insurance companies. The NHS refusing to install
carolr
in
Thyroid UK
10 years ago
Does anyone get meds for hair loss due to the meds like regaine I would think some ladies will but docs tend not to with blokes I think
Cos the cellcept seems to make it recede but the consultant is fobbing me off So would like some info to have a heated discuss with
Cos the cellcept seems to make it recede but the consultant is fobbing me off So would like some info to have a heated discuss with
glasgowguy
in
LUPUS UK
10 years ago
Is Chemotherapy necessary even when the tumor is small and not spread to Axillary lymph nodes?
My mother(53 years had lumptectomy and a tumor of about 3.5 x 3 cms was removed. The biopsy report says negative on the Axillary nodes.. so the cancer has not spread to other parts as I understand that Axillary lymph nodes are first which receive the drainage form the breast. The Onco surgeon has recommended
My mother(53 years had lumptectomy and a tumor of about 3.5 x 3 cms was removed. The biopsy report says negative on the Axillary nodes.. so the cancer has not spread to other parts as I understand that Axillary lymph nodes are first which receive the drainage form the breast. The Onco surgeon has recommended
fatehkhan
in
Breast Cancer India
10 years ago
The diagnosis and classification of giant cell arteritis
Tweeted this morning, so thought I would share it. http://www.sciencedirect.com/science/article/pii/S0896841114000201?np=y
Tweeted this morning, so thought I would share it. http://www.sciencedirect.com/science/article/pii/S0896841114000201?np=y
Suzym2u
Vasculitis UK
in
Vasculitis UK
10 years ago
ASH 2013: Dr. Jeff Sharman Discusses FCR versus BR in CLL
Hi Friends On my blog today http://bkoffman.blogspot.com I share my ASH interview with Dr. Sharman where we discussed the data on FCR versus BR. While this is less the exciting news it would have been a few years back before the emerging era of targeted therapies,, it is still important for a significant
Hi Friends On my blog today http://bkoffman.blogspot.com I share my ASH interview with Dr. Sharman where we discussed the data on FCR versus BR. While this is less the exciting news it would have been a few years back before the emerging era of targeted therapies,, it is still important for a significant
bkoffman
CLL CURE Hero
in
CLL Support
10 years ago
Blood work is back.. I have not talked to the doctor yet but. im guessing shes going to say i am fine
WBC4.2 RBC4.59 Hgb14.8 Hct43.9 MCV 95.8 MCH32.3 MCHC33.7 RDW12.6 Platelet Count218 MPV9.5 NEUTROPHILS %55.7 LYMPHOCYTES %37.3 MONOCYTES %5.3 EOSINOPHILS %0.9 BASOPHILS %0.8 NEUTROPHILS ABS2.3 LYMPHOCYTES ABS1.6 MONOCYTES ABSOLUTE0.2 EOSINOPHILS ABSOLUTE0.0 BASOPHILS ABS0.0
WBC4.2 RBC4.59 Hgb14.8 Hct43.9 MCV 95.8 MCH32.3 MCHC33.7 RDW12.6 Platelet Count218 MPV9.5 NEUTROPHILS %55.7 LYMPHOCYTES %37.3 MONOCYTES %5.3 EOSINOPHILS %0.9 BASOPHILS %0.8 NEUTROPHILS ABS2.3 LYMPHOCYTES ABS1.6 MONOCYTES ABSOLUTE0.2 EOSINOPHILS ABSOLUTE0.0 BASOPHILS ABS0.0
kkgirl
in
LUPUS UK
10 years ago
watch and wait
my 88yr old mother was diagnosed 3/2/2014 early stage cll.being sent for an ultrasound scan(abdomen).her blood readings are wcc14.2/ lymphocytes6.3 with monocytes 0.8.she suffers night sweats and has develped a cough(mucus).she will be sent for in 2/3 months.my question is ,if treatment is necessary,
my 88yr old mother was diagnosed 3/2/2014 early stage cll.being sent for an ultrasound scan(abdomen).her blood readings are wcc14.2/ lymphocytes6.3 with monocytes 0.8.she suffers night sweats and has develped a cough(mucus).she will be sent for in 2/3 months.my question is ,if treatment is necessary,
chrismac
in
CLL Support
10 years ago
Polymyalgia Rheumatica and Giant Cell Arteritis: A Survival Guide. This book is a must for your bookshelf or kindle
Just purchased and read Kate's book ... amazing! It should be on all our bookshelves or at least in our Kindle's at present. Although I'm an atypical PMR sufferer being a very fit and active 51 year old man when I got condition last year I found myself drawn into Kate's book and could not put it down
Just purchased and read Kate's book ... amazing! It should be on all our bookshelves or at least in our Kindle's at present. Although I'm an atypical PMR sufferer being a very fit and active 51 year old man when I got condition last year I found myself drawn into Kate's book and could not put it down
Skinnyjonny
in
PMRGCAuk
10 years ago
I am feeling worried about the possibility of having a bone marrow transplant with my sister as donor.
I have read all the hospital pamphlets and a transplant seems like a very difficult process with many long term side effects. One pamphlet said 'you will feel ill for a year after the bone marrow transplant and may never fully regain your health'. Another said it may cause cataracts a couple of years
I have read all the hospital pamphlets and a transplant seems like a very difficult process with many long term side effects. One pamphlet said 'you will feel ill for a year after the bone marrow transplant and may never fully regain your health'. Another said it may cause cataracts a couple of years
splashsplash
in
CLL Support
10 years ago
My husband, Rick 66 y, has refractory DLBC Lymphoma. He has had front line and salvage chemos: RCHOP, RICE, GEMOX, HC-VAD, Rituxan/Revlimid.
These chemos have kept the cancer at bay but none have been successful with remission or PR. Rick has just started Treanda/Rituxan. After a week enlarged nodes in armpit and groin areas are shrinking. Severe lymphodema in arm and leg is going down rapidly. Would welcome comments, feedback and experiences
These chemos have kept the cancer at bay but none have been successful with remission or PR. Rick has just started Treanda/Rituxan. After a week enlarged nodes in armpit and groin areas are shrinking. Severe lymphodema in arm and leg is going down rapidly. Would welcome comments, feedback and experiences
janj13
in
Lymphoma Canada
10 years ago
Book on PMR and GCA available now!
Dear forum friends, "Polymyalgia Rheumatica and Giant Cell Arteritis: a survival guide" is now available as an e-book on Amazon http://amzn.to/1ff8LA7. Online you can read the start of the book, including the whole of the introduction chapter. Unfortunately there are a few illustrations that have
Dear forum friends, "Polymyalgia Rheumatica and Giant Cell Arteritis: a survival guide" is now available as an e-book on Amazon http://amzn.to/1ff8LA7. Online you can read the start of the book, including the whole of the introduction chapter. Unfortunately there are a few illustrations that have
Polywotsit
PMRGCAuk team member
in
PMRGCAuk
10 years ago
Book on the way!
Hi there, Over the last few months I have been working on a book that puts together, for people with PMR and GCA, what I have learned over the years working with the people involved with PMRGCAuk, and the expert clinicians who are treating patients and researching the causes and courses of these illnesses
Hi there, Over the last few months I have been working on a book that puts together, for people with PMR and GCA, what I have learned over the years working with the people involved with PMRGCAuk, and the expert clinicians who are treating patients and researching the causes and courses of these illnesses
Polywotsit
PMRGCAuk team member
in
PMRGCAuk
10 years ago
CLL Support Association Cambridge CLL Meeting/conference - Sat 21st June 2014:
Member of the National
Lymphoma
Trials High / Low Grade
Lymphoma
subgroups,
Mantle
Cell
Lymphoma
national trials committee, Leukaemia Research Fund National Clinical Trials Advisory Panel.
Member of the National
Lymphoma
Trials High / Low Grade
Lymphoma
subgroups,
Mantle
Cell
Lymphoma
national trials committee, Leukaemia Research Fund National Clinical Trials Advisory Panel.
HAIRBEAR_UK
Administrator
in
CLL Support
10 years ago
Will this DNA checking technology enable us to kill cancerous cells while leaving healthy cells untouched?
We've heard of FISH (Fluorescence In Situ Hybridization) testing, where fluorescent probes are used to identify whether we have previously identified faulty (mutated) DNA sequences that are most likely responsible for us developing CLL. We also know that FISH prognostic testing can give us an indication
We've heard of FISH (Fluorescence In Situ Hybridization) testing, where fluorescent probes are used to identify whether we have previously identified faulty (mutated) DNA sequences that are most likely responsible for us developing CLL. We also know that FISH prognostic testing can give us an indication
AussieNeil
Partner
in
CLL Support
10 years ago
Dr Sharman on Relapsed Diffuse Large B Cell Lymphoma (DBLC)
Dr Sharman's latest blog looks at how R-CHOP became established as the most commonly used standard of care for DBLC (i.e. how patients fared better when rituximab was added to the existing CHOP therapy) and what options are available for relapsed DBLC patients. While not specifically relevant to CLL
Dr Sharman's latest blog looks at how R-CHOP became established as the most commonly used standard of care for DBLC (i.e. how patients fared better when rituximab was added to the existing CHOP therapy) and what options are available for relapsed DBLC patients. While not specifically relevant to CLL
AussieNeil
Partner
in
CLL Support
11 years ago
New research reveals more about Giant Cell Arteritis
New research has been revealed about how Giant Cell Arteritis (GCA) may be caused by a certain group of white blood cells called "neutrophils". GCA (also known as Temporal Arteritis TA ) is a condition which causes inflammation in the blood vessels and primarily affects the elderly. http://www.vasculitis.org.uk
New research has been revealed about how Giant Cell Arteritis (GCA) may be caused by a certain group of white blood cells called "neutrophils". GCA (also known as Temporal Arteritis TA ) is a condition which causes inflammation in the blood vessels and primarily affects the elderly. http://www.vasculitis.org.uk
Suzym2u
Vasculitis UK
in
Vasculitis UK
11 years ago
Dr Richard Furman reports on Idelalisib and Rituximab Phase III study outcomes at ASH2013
At the American Society of Hematology (ASH) 2003, Lead author Richard Furman, MD, reported that [i]"combination treatment with the PI3K-delta inhibitor idelalisib and rituximab (Rituxan) was associated with a >70% improvement in overall survival (OS) in patients with high-risk relapsed/refractory chronic
At the American Society of Hematology (ASH) 2003, Lead author Richard Furman, MD, reported that [i]"combination treatment with the PI3K-delta inhibitor idelalisib and rituximab (Rituxan) was associated with a >70% improvement in overall survival (OS) in patients with high-risk relapsed/refractory chronic
AussieNeil
Partner
in
CLL Support
11 years ago
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