CLL Support Association Cambridge CLL Meeting/conference - Sat 21st June 2014:

[HAIRBEAR_UK]

Sat 21st June 2014: 10.30am – 4.00pm

Cambridge City Hotel

20 Downing St, Cambridge

England CB2 3DT

cambridgecityhotel.co.uk

The CLL Support Association is a patient-lead charity whose purpose is to provide support to CLL patients and their carers by keeping them informed of recent and relevant developments in CLL treatment and research. Members’ meetings allow all affected by CLL to spend time together and share their experiences, with opportunities provided to learn from each other and expert speakers.

We are pleased to invite you to a FREE meeting at the Cambridge City Hotel conference facility.

Dr George A Follows MA PhD BM BCh MRCP FRCPath, will headline an educational programme with a talk that provides an overview of current CLL management, treatment & care. This will explore the changing CLL treatment horizon and the landscape of CLL clinical trials. How UK CLL is approaching the opportunities and challenges this is creating .and what this means for CLLSA members now and into the future? How members can better live with the challenges that their own CLL pathway presents. Dr Follows will be joined by members of his team, CLL advocates and patients sharing their knowledge and experience.

Dr Follows is: Consultant Haematologist, Addenbrooke′s Hospital Cambridge. Clinical Lead for lymphoma, Hodgkin′s Disease, CLL / Chronic lymphoid leukaemias and Clinical Trials. National Cancer Research Network West Anglia Network Clinical Research Lead. Chairman, UK CLL Forum and guidelines panel. Chairman, Anglia Cancer Network Haematology Group and Chair of the Anglia Cancer Network lymphoma / CLL group. BCSH Hodgkin guidelines panel. Member of the National Lymphoma Trials High / Low Grade Lymphoma subgroups, Mantle Cell Lymphoma national trials committee, Leukaemia Research Fund National Clinical Trials Advisory Panel.

The day will begin with coffee and registration between 10 &10.30am and is broken with lunch and afternoon tea, these are provided without charge. A more detailed programme and travel details will be forwarded very soon.

This is the first meeting of the CLLSA in Cambridge and the Anglia region we hope this will attract many from this area and much wider afield who wish to meet with us and enjoy Cambridge in June.

To register for the meeting:

E-mail Sarah at [e-mail]

Telephone [phone] and leave a message

Or write to CLL Support Association, 39-40 Eagle Street, London, WC1R 4TH.

If you are not already a member, membership is free of charge. Please register as a member at cllsupport.org.uk/php_files... before applying for a place at the meeting.

We look forward to seeing you at the meeting on the 21st of June.

CLL Support Association

Registered Charity No 1113588

cllsupport.org.uk

“Nestled in the very heart of one of Britain’s most iconic and historic cities, the smart “Cambridge City Hotel”, prides itself on its prime location.”

Location and directions: cambridgecityhotel.co.uk/lo...

Additional info:

There is a park and ride facility adjacent to the Hotel and the landmark is John Lewis store which is next door. The City is served by 4 or 5 park and rides with a cost of £2.60 return with no extra parking costs. Parking in the Hotel car park is £10 per day for the conference and £18 for overnight 24 hours. City centre car parks are £22 once exceeding the first 4 hours.

You can catch a bus from the station to the hotel .Taxis cost around £6 from the station. Walking takes around 15/20 minutes,( A volunteer did this in the rain, bus time tables will accompany the programme).

We are in the process negotiating a conference rate for Cambridge City Hotel rooms (details to follow). Cambridge offers an extensive range of accommodation types to suit budgets and requirements.

Visit Cambridge website: visitcambridge.org/accommod...

Out of town, Holiday Inn Express is brand new and next to Whittlesford train station. The fare into the city is £5.50 return, there is also a large station car park. There is a very good pub and restaurant, Red Lion, attached to the Holiday Inn Express which also has rooms available.

Travel Bursary

Please be aware that financial help can be given towards travel costs for those Members requiring financial assistance with travel costs. These allowances are available for CLL Patients and Carers. For more information and an application form please:

E-mail Sarah at [e-mail]

Telephone [phone] and leave a message

Or write to CLL Support Association, 39-40 Eagle Street, London, WC1R 4TH.

[HAIRBEAR_UK Founder Admin]

Andrew Schorr will be joining us at the Cambridge meeting June 21st as a guest speaker and partner. Outside the meeting Andrew will also be video interviewing experts, patient advocates and partners to produce educational material for the on-line community.

Without doubt meeting others with CLL and learning together has helped me with my own CLL journey , just spending time with others who do understand made the greatest difference.

Please join us, Cambridge in June is one of the UK's jewels in the crown. a great setting to meet with fellow CLLers from all areas; UK and overseas.

Just remember to register as CLLSA cllsupport.org.uk/php_files... ahead of securing your free place.by email with Sarah at: [e-mail]

You can also leave a message by telephone to secure a place at the meeting if you are already a CLLSA member on 0800 977 4396

Looking forward to meeting up with on-line friends and sharing time together

Nick

, .

[Mijoed]

Looking forward to this one. May even be tempted to make a weekend out of it.

[pitbull]

Nick, I sent an email asking for a place but had no acknowledgement, is this the norm or has my email gone astray?

[HAIRBEAR_UK Founder Admin in reply to pitbull]

Hi Pitbull

This could be the norm? as currently acknowledgements have to be manually actioned by admin, this may not have happened. We are presently implementing automated systems within the new website being designed for CLLSA for future,

Could you drop a line to [e-mail] or PM me with your email address and I will look into this for you,

Understand your concern as the website confirms meeting now full. If your registration has gone astray don't stress we are working to expand numbers

For those who have not registered we are keeping a waiting list,

Please contact Sarah at [e-mail] to be put onto this waiting list.

[Calopteryx]

Hi, I applied for a place at the conference some time ago, but there were none left, although I'm on the waiting list. Will there be reports/papers from the conference posted on here so that those of us who couldn't make it can benefit? Must book earlier next time!

[HAIRBEAR_UK Founder Admin]

Hi Calopteryx

There will be an official report covering the events over the Cambridge weekend, This will be posted here in the community and on our website,. Also we are producing video of talks and one to one interviews at the event, these will also be available on the website which is currently being developed in a new design to better accommodate and support them.

For information our next meeting is in set up for Glasgow September 30th, invites will go out and be posted here soon.

We are also returning to London for a winter meeting which is in planning for December.

Will keep you posted

best Nick

[Gartshore in reply to HAIRBEAR_UK]

Great. I'll definitely get to Glasgow!

[bkoffman CLL CURE Hero in reply to HAIRBEAR_UK]

Nick, Exciting. Remember that ASH will be in early December, so it would make sense to meet after due to the updated news. Please let me know how I can help from California. Stay strong. Brian

[bkoffman CLL CURE Hero]

Friends, So glad this is all happening. Would love to be there. Maybe Glasgow? Stay strong. Brian

[HAIRBEAR_UK Founder Admin in reply to bkoffman]

Brian It would be great if you can join us in Glasgow or London in December ?? Galsgow is now in set up for September, the date has changed it is no longer the 30th , will confirm new date and update.

This year's December meeting is planned for Brentford London on December 16th (after Ash when Dr Claire Dearden Head of the CLL Unit at The Royal Marsden will be supporting the event and able to provide latest updates she brings back from ASH, , if you can't make Glasgow we'd love to join us in London?

Really looking forward to meeting up with everyone this weekend at Cambridge . There will be quite a gathering, with members, guests and partners from across Europe and all parts of the UK coming together over the weekend. For a European CLL development workshop on the Friday and the Saturday members meeting.

Talks and interviews will be recorded on video for sharing with those unable to attend.

There will be a lot of great information provided by inspiring patients and carers, research projects, latest initiatives, Dr George Follows and Cambridge Universities, also latest updates from this weekends EHA conference in Milan, and a video presentation with messages from Drs, Hillman, Gribben and Saull at Milan .

Looking forward to hooking up with everyone

Best

nick

[bkoffman CLL CURE Hero in reply to HAIRBEAR_UK]

Nick. Sounds brilliant. I recommended some CLL friends from Ireland and Spain to attend. I will see if I can swing Glasgow or London. It will depend on my finances and my treatment and my lecture schedule. I would love to share what I have learned about self advocacy as I have done for CLLPAG and LLS in the USA and Canada. Stay strong. Brian