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Mantle cell lymphoma (MCL)
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Is there a better test for F1 antibodies?
Hi, I've been (blood) tested for F1 antibodies and the results were negative, but I've heard the test is notoriously unreliable - does anyone know of a better test that I could request or is the standard blood test the only one out there? I'm going to ask for a parietal cell antibody test, and possibly
Hi, I've been (blood) tested for F1 antibodies and the results were negative, but I've heard the test is notoriously unreliable - does anyone know of a better test that I could request or is the standard blood test the only one out there? I'm going to ask for a parietal cell antibody test, and possibly
Chancery
in
Pernicious Anaemia Society
10 years ago
MPN Voice Patients’ Forums 2015
We are pleased to announce that we have 2 patients’ forums confirmed for 2015, Colchester and Cardiff. Colchester – Wednesday 4th February 2015, 4 pm – 6 pm, (registration from 3.45 pm) in Room 2, Post Graduate Medical Centre, Villa 8, Colchester General Hospital, Turner Road, Colchester, Essex, CO4
We are pleased to announce that we have 2 patients’ forums confirmed for 2015, Colchester and Cardiff. Colchester – Wednesday 4th February 2015, 4 pm – 6 pm, (registration from 3.45 pm) in Room 2, Post Graduate Medical Centre, Villa 8, Colchester General Hospital, Turner Road, Colchester, Essex, CO4
Mazcd
MPNVoice
in
MPN Voice
10 years ago
Fast Chemo (Bendamustine in 10 minutes)
Eagle Pharmaceuticals have just announced the success of a Phase 1 trial of 81 patients, which has shown that a 50ml admixture of Bendamustine HCl delivered in ten minutes (their rapidly infused product) was found to be bioequivalent to the Treanda 500mL admixture, which requires a 60-minute infusion
Eagle Pharmaceuticals have just announced the success of a Phase 1 trial of 81 patients, which has shown that a 50ml admixture of Bendamustine HCl delivered in ten minutes (their rapidly infused product) was found to be bioequivalent to the Treanda 500mL admixture, which requires a 60-minute infusion
AussieNeil
Partner
in
CLL Support
10 years ago
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Chemotherapy and placebos to control nausea
[i]"It’s unthinkable to give a placebo to someone to treat their cancer, but could we use one to treat chemotherapy’s well-known side effects? Unfortunately, we may never be able to answer this question because the biggest obstacle to finding out whether it would work is emotional rather than scientific
[i]"It’s unthinkable to give a placebo to someone to treat their cancer, but could we use one to treat chemotherapy’s well-known side effects? Unfortunately, we may never be able to answer this question because the biggest obstacle to finding out whether it would work is emotional rather than scientific
AussieNeil
Partner
in
CLL Support
10 years ago
Zoom Zoom, CAR-T Cells to Treat Myeloma
An exciting approach to refractory myeloma is the development of CAR-T cells to recognize and kill the malignant plasma cells which mutate and are responsible for recurrence. Chimeric Antigen Receptor - T cell therapy has now been used in hundreds of patients with recurrent leukemia (89% success) and
An exciting approach to refractory myeloma is the development of CAR-T cells to recognize and kill the malignant plasma cells which mutate and are responsible for recurrence. Chimeric Antigen Receptor - T cell therapy has now been used in hundreds of patients with recurrent leukemia (89% success) and
Janstafl
in
Myeloma America Support
10 years ago
New video - When clinical trials are discussed with patients as an option for CLL treatment
Gwyneth Stafford CLL & Lymphoma Nurse Specialist at Cambridge University Hospitals discusses how clinical trials may be first introduced to patients and if a trial is an option that should be considered. What, where, when and if patients fit trial criteria, How the Cambridge centre connects patients
Gwyneth Stafford CLL & Lymphoma Nurse Specialist at Cambridge University Hospitals discusses how clinical trials may be first introduced to patients and if a trial is an option that should be considered. What, where, when and if patients fit trial criteria, How the Cambridge centre connects patients
HAIRBEAR_UK
Administrator
in
CLL Support
10 years ago
Help with test results please
Hi I have finally got my test results from my GP. I was wondering if anyone could look at them and let me know what they think please. Sorry but have added everything as not sure what I could miss out. I cannot find my original B12 result as not sure what I am reading but know at the time I was
Hi I have finally got my test results from my GP. I was wondering if anyone could look at them and let me know what they think please. Sorry but have added everything as not sure what I could miss out. I cannot find my original B12 result as not sure what I am reading but know at the time I was
lal2502
in
Pernicious Anaemia Society
10 years ago
IP6+inositol for cll trisomy 12
Hello everyone One md recomended me to use medical suplement IP6+inositol. I am trisomy 12 muted IGHV, also have infections and viruses often. Law on neutrophils... Any expirience on this topic?
Hello everyone One md recomended me to use medical suplement IP6+inositol. I am trisomy 12 muted IGHV, also have infections and viruses often. Law on neutrophils... Any expirience on this topic?
vlada
in
CLL Support
10 years ago
OH NOES! Have I ruined my chances for parietal cell antibody testing?
For reasons that are too embarrassing to explain, I suspect I might have something wrong with my parietal cells. I've had the full blood tests, plus B12 serum, folate, and IF antibody tests - all 'normal' (i.e. B12 in the 'grey zone'), but I wasn't tested for Parietal Cell Antibody. Would anything have
For reasons that are too embarrassing to explain, I suspect I might have something wrong with my parietal cells. I've had the full blood tests, plus B12 serum, folate, and IF antibody tests - all 'normal' (i.e. B12 in the 'grey zone'), but I wasn't tested for Parietal Cell Antibody. Would anything have
Chancery
in
Pernicious Anaemia Society
10 years ago
The Koyal Group Info Mag - Prototype Paper Test Can Detect Ebola Strains
DNA-programmed blotting paper could soon be giving doctors a simple disease test that will reveal an infection in 30 minutes for just a few pence. Researchers have proved the technique works by developing a prototype Ebola test in just 12 hours, and using just $20 of materials. The smart diagnostics
DNA-programmed blotting paper could soon be giving doctors a simple disease test that will reveal an infection in 30 minutes for just a few pence. Researchers have proved the technique works by developing a prototype Ebola test in just 12 hours, and using just $20 of materials. The smart diagnostics
gordonsamuel2014
in
Hughes Syndrome APS Forum
10 years ago
Question
My dad has non Hodgkin and hodgkin cancer and is has just had stem cell transplant. I believe that it's not a gene related diesease but I've had enlarged lymphones under my arms previously and just worried incase, do I need to speak to anyone. Thanks
My dad has non Hodgkin and hodgkin cancer and is has just had stem cell transplant. I believe that it's not a gene related diesease but I've had enlarged lymphones under my arms previously and just worried incase, do I need to speak to anyone. Thanks
dora21
in
Lymphoma Canada
10 years ago
The latest expert lymphoma content on video
I am a new member, Andrew from PatientPower.info, and a leukemia survivor and patient advocate living in the US and most of the time in Spain. We recently produced many videos with experts on the latest in lymphomas. Please see www.patientpower.info and let me know if this is helpful. If it is, please
I am a new member, Andrew from PatientPower.info, and a leukemia survivor and patient advocate living in the US and most of the time in Spain. We recently produced many videos with experts on the latest in lymphomas. Please see www.patientpower.info and let me know if this is helpful. If it is, please
andrewschorr
in
Lymphoma Canada
10 years ago
You've hit a milestone! 300 of you now have joined the Sickle Cell Society HU community
Congratulations for building a true Sickle Cell Disorders health movement in HealthUnlocked! Whenever you write a post, ask a question or reply to someone, you are touching the lives of other people with Sickle Cell Disorders by spreading the benefit of shared, personal health experiences. And beyond
Congratulations for building a true Sickle Cell Disorders health movement in HealthUnlocked! Whenever you write a post, ask a question or reply to someone, you are touching the lives of other people with Sickle Cell Disorders by spreading the benefit of shared, personal health experiences. And beyond
HealthUnlocked
HealthUnlocked
in
Sickle Cell Society
10 years ago
Stem cell transplantation
Are there any myelofibrosis sufferers out there who are considering stem cell transplantation? If so, please get in touch. Thank you.
Are there any myelofibrosis sufferers out there who are considering stem cell transplantation? If so, please get in touch. Thank you.
daisystar
in
MPN Voice
10 years ago
Dr Sharman on Immunotherapy for Indolent (low grade) Lymphoma - includes SLL!
Dr Jeff Sharman has just posted a blog that will be of interest to anyone wishing to know more of the history of cancer treatment breakthroughs for low grade lymphomas
which specifically includes Small Lymphocytic Lymphoma (SLL) and by association, CLL
, plus it concludes with Dr Sharman's idea
Dr Jeff Sharman has just posted a blog that will be of interest to anyone wishing to know more of the history of cancer treatment breakthroughs for low grade lymphomas
which specifically includes Small Lymphocytic Lymphoma (SLL) and by association, CLL
, plus it concludes with Dr Sharman's idea
AussieNeil
Partner
in
CLL Support
10 years ago
Stem Cell Transplant
I'm celebrating three years of partial remission after two years of treatment with little or no change. I feel like I've been given the gift of three additional years of life. If the opportunity is given...take it and run. Still feeling well and back to being my very busy involved self.
I'm celebrating three years of partial remission after two years of treatment with little or no change. I feel like I've been given the gift of three additional years of life. If the opportunity is given...take it and run. Still feeling well and back to being my very busy involved self.
jc--rb--2--0
in
Myeloma America Support
10 years ago
Blood Stem Cell Transplant
Hi I m a 46 year old woman diagnosed with Cll in April 2014 with 17p deletion. I have been in watchful Waiting but now doctors have suggested I take Imbrivica and prepare to have a stem cell blood transplant because I am young and not showing symptoms. Has anyone had a stem cell blood transplant? What
Hi I m a 46 year old woman diagnosed with Cll in April 2014 with 17p deletion. I have been in watchful Waiting but now doctors have suggested I take Imbrivica and prepare to have a stem cell blood transplant because I am young and not showing symptoms. Has anyone had a stem cell blood transplant? What
Jameelah
in
CLL Support
10 years ago
Introducing Myself
Hi, My name is Kim Marrelli. I was diagnosed with Myeloma 4 years ago. I am considered high risk with t(4:14) (MMSET/FGFR/IGH). To be honest, I only partially understand what all that means. In the past, I have been teated with Revlimid, Velcade, Kyprolis, Pomalyst and the ever popular, Dexamethasone
Hi, My name is Kim Marrelli. I was diagnosed with Myeloma 4 years ago. I am considered high risk with t(4:14) (MMSET/FGFR/IGH). To be honest, I only partially understand what all that means. In the past, I have been teated with Revlimid, Velcade, Kyprolis, Pomalyst and the ever popular, Dexamethasone
KimMarr
in
Myeloma America Support
10 years ago
Benefits
My husband had a letter from the DWP today to say that his DLA is being stopped as he currently doesn't score a high enough mark on their points system for PIP. Along with losing DLA, he also has to send back his Blue Badge. FYI: My husband was diagnosed with Multiple Myeloma (blood cancer) in August
My husband had a letter from the DWP today to say that his DLA is being stopped as he currently doesn't score a high enough mark on their points system for PIP. Along with losing DLA, he also has to send back his Blue Badge. FYI: My husband was diagnosed with Multiple Myeloma (blood cancer) in August
Amanda1234
in
PMRGCAuk
10 years ago
What does this test involve?
Hi there, Has anyone had their 'anterior pituitary function' tested? I've got to spend a full morning in hospital on Friday having the test done and it sounds pretty comprehensive! Endo says he will be checking my GnRH, TRH, Short Synacthen. Does anyone know what kind of diagnoses or indications these
Hi there, Has anyone had their 'anterior pituitary function' tested? I've got to spend a full morning in hospital on Friday having the test done and it sounds pretty comprehensive! Endo says he will be checking my GnRH, TRH, Short Synacthen. Does anyone know what kind of diagnoses or indications these
Amalie105
in
Thyroid UK
10 years ago
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