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Mantle cell lymphoma (MCL)
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What is a non chemotherapy treatment regimen to treat CLl
I have just had my regular 6 week visit to my oncologist/haematologist .My readings have jumped after being stable since last November. ALC 84. Has been at 69 since last April. Dx 2016 Alc 21 has gradually increased . However my eGFR has dropped to 44 reference no is > 59. Creatinine is 139.above the
I have just had my regular 6 week visit to my oncologist/haematologist .My readings have jumped after being stable since last November. ALC 84. Has been at 69 since last April. Dx 2016 Alc 21 has gradually increased . However my eGFR has dropped to 44 reference no is > 59. Creatinine is 139.above the
Joffre1
in
CLL Support
5 years ago
Looking for CLL specialist in Denver, CO
Hi, so my hematologist has said I need to start chemo , undergoing lymph node biopsy tomorrow to make sure its CLL and not lymphoma since I was dx only on blood work, but before I actually start chemo was thinking I should see a CLL specialist (esp. because you all have recommended it). Does anyone
Hi, so my hematologist has said I need to start chemo , undergoing lymph node biopsy tomorrow to make sure its CLL and not lymphoma since I was dx only on blood work, but before I actually start chemo was thinking I should see a CLL specialist (esp. because you all have recommended it). Does anyone
jgamberg
in
CLL Support
5 years ago
Arzerra for Marginal Zone B Cell Lymphoma
My grandmother was diagnosed with marginal zone B cell lymphoma and unable to tolerate Rituxan due to infusion reactions. She is now trying Arzerra. Wondering if anyone has had Arzerra as a treatment for this as what I read shows it as a treatment for CLL.
My grandmother was diagnosed with marginal zone B cell lymphoma and unable to tolerate Rituxan due to infusion reactions. She is now trying Arzerra. Wondering if anyone has had Arzerra as a treatment for this as what I read shows it as a treatment for CLL.
Hidden
in
Non Hodgkin's Lymphoma Friends
5 years ago
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Bit of waffle
Just treading water waiting for another set of PET scans and psychometry - see if any change. Bradycardia - autonomic unit at National hospital have referred me to cardiology at Uclh. Beverley Thomas did a new set of bloods -my b12 is now low and TSH is 6 - has asked gp to reheat them. So possibly
Just treading water waiting for another set of PET scans and psychometry - see if any change. Bradycardia - autonomic unit at National hospital have referred me to cardiology at Uclh. Beverley Thomas did a new set of bloods -my b12 is now low and TSH is 6 - has asked gp to reheat them. So possibly
Fusch
in
Hughes Syndrome APS Forum
5 years ago
Supporting my grandmother
Hello! My grandmother is 82 and was just diagnosed with marginal zone B cell lymphoma. She did not tolerate Rituxan so she is now taking Arzerra which, from what I can tell, is a CLL treatment. She had been fatigued and having bouts of nausea and vomiting along with lack of appetite and upon exam,
Hello! My grandmother is 82 and was just diagnosed with marginal zone B cell lymphoma. She did not tolerate Rituxan so she is now taking Arzerra which, from what I can tell, is a CLL treatment. She had been fatigued and having bouts of nausea and vomiting along with lack of appetite and upon exam,
Hidden
in
CLL Support
5 years ago
Impact of CT and pet scan on chemo drugs
I am under chemo immunotherapy of Bendsmustin and Rituximab. Finished 4 cycles and next one due on 6th March. My doctor wants me to have whole body CT and pet scan to see whether lymph nodes shrank and start the 5th Cycle Infusion. My doubt is whether the dye injected in my body while CT and pet
I am under chemo immunotherapy of Bendsmustin and Rituximab. Finished 4 cycles and next one due on 6th March. My doctor wants me to have whole body CT and pet scan to see whether lymph nodes shrank and start the 5th Cycle Infusion. My doubt is whether the dye injected in my body while CT and pet
venk_46
in
CLL Support
5 years ago
reduced intensity transplant
If your over 50 and need a stem cell transplant it most likely will be low intensity. It also goes by mini-transplant or RIC transplant. It is NOT a standard stem cell transplant. all your cells are not replaced. you keep most of your own blood cells and have donor cells added to fight your cancer cells
If your over 50 and need a stem cell transplant it most likely will be low intensity. It also goes by mini-transplant or RIC transplant. It is NOT a standard stem cell transplant. all your cells are not replaced. you keep most of your own blood cells and have donor cells added to fight your cancer cells
Hidden
in
CLL Support
5 years ago
New to site
Diagnosed with Marginal Zone Lymphoma 10/18. Received 12 radiation treatments. Follow up Pet scan to be completed 2/23
Diagnosed with Marginal Zone Lymphoma 10/18. Received 12 radiation treatments. Follow up Pet scan to be completed 2/23
gardenFAIRY
in
Non Hodgkin's Lymphoma Friends
5 years ago
Venetoclax plus Rituximab
Hi, I'm new to this forum and am wondering if anyone knows of any trials of Venetoclax plus Rituximab for MZL Lymphoma ?? Can only find data from the Murano Trial for CLL. I've been offered BR treatment after Rituximab monotherapy failed, and am not so keen on starting on chemo road. Andrew
Hi, I'm new to this forum and am wondering if anyone knows of any trials of Venetoclax plus Rituximab for MZL Lymphoma ?? Can only find data from the Murano Trial for CLL. I've been offered BR treatment after Rituximab monotherapy failed, and am not so keen on starting on chemo road. Andrew
greenvert
in
CLL Support
5 years ago
So done with this
Hi everyone.. I was diagnose with Giant Cell Arteritis in Sep 2018 so I haven't had it for long it feels longer I hate the headaches,tiredness,body akes,and the weight gain from the prednisone ugh! đŸ˜¢đŸ˜¢
Hi everyone.. I was diagnose with Giant Cell Arteritis in Sep 2018 so I haven't had it for long it feels longer I hate the headaches,tiredness,body akes,and the weight gain from the prednisone ugh! đŸ˜¢đŸ˜¢
vicky561
in
PMRGCAuk
5 years ago
Clinical trial for Imbruvica/Ibrutinib , Gazyva/Obinutuzumab +/- Venclexta/Venetoclax at 97 sites USA
A Randomized Phase III Study of the Addition of Venetoclax to Ibrutinib and Obinutuzumab Versus Ibrutinib and Obinutuzumab in Untreated Younger Patients With Chronic Lymphocytic Leukemia (CLL) https://clinicaltrials.gov/ct2/show/NCT03701282 Per Dr. Furman: "This is a large, cooperative group study.
A Randomized Phase III Study of the Addition of Venetoclax to Ibrutinib and Obinutuzumab Versus Ibrutinib and Obinutuzumab in Untreated Younger Patients With Chronic Lymphocytic Leukemia (CLL) https://clinicaltrials.gov/ct2/show/NCT03701282 Per Dr. Furman: "This is a large, cooperative group study.
lankisterguy
Volunteer
in
CLL Support
5 years ago
Stem Cell Treatment
A little while ago I mentioned that liver transplants could one day become a thing of the past. Day by day the use stem cell treatment and research brings us closer to finding a cure for liver disease. HIV positive man in London becomes second person ever to be cleared of virus after stem cell transplant
A little while ago I mentioned that liver transplants could one day become a thing of the past. Day by day the use stem cell treatment and research brings us closer to finding a cure for liver disease. HIV positive man in London becomes second person ever to be cleared of virus after stem cell transplant
Hidden
in
British Liver Trust
5 years ago
CoQ10 Benefits?
Has anyone heard of beneficial effects of CoQ10 on CLL? I had to start taking Crestor (5mg 4 times a week) and am taking 400 mg mg of CoQ10 daily at the advice of phy. After 4 months my hmg. went from 12.0 to 12.8 and my cholesterol dropped from 260 to 202. WBC went up some but everything else pretty
Has anyone heard of beneficial effects of CoQ10 on CLL? I had to start taking Crestor (5mg 4 times a week) and am taking 400 mg mg of CoQ10 daily at the advice of phy. After 4 months my hmg. went from 12.0 to 12.8 and my cholesterol dropped from 260 to 202. WBC went up some but everything else pretty
Elam
in
CLL Support
5 years ago
DHEA supplements?
Advice please! As I have frequently moaned about here, the last 3 years have resulted in a steadily increasing disability for me, especially with regards to fatigue and effort intolerance. I'm now at the point where I am more or less housebound and spend most of the day in my armchair. Neither my rheumy
Advice please! As I have frequently moaned about here, the last 3 years have resulted in a steadily increasing disability for me, especially with regards to fatigue and effort intolerance. I'm now at the point where I am more or less housebound and spend most of the day in my armchair. Neither my rheumy
whisperit
in
LUPUS UK
5 years ago
Why is this necessary?
Diagnosed GCA, on Pred , however Consultant has recommended an Endoscopy and Colonoscopy. I do not have any symptoms and feel bad enough, so I declined?
Diagnosed GCA, on Pred , however Consultant has recommended an Endoscopy and Colonoscopy. I do not have any symptoms and feel bad enough, so I declined?
Seagu11
in
PMRGCAuk
5 years ago
Hot Flushes increasing
I reduced my prednisolone from 10mg to 9mg at the beginning of February and just about coping with the soreness but have noticed an increase in facial hot flushes and night sweats. Has anyone else felt these side effects have got worse as you reduce?
I reduced my prednisolone from 10mg to 9mg at the beginning of February and just about coping with the soreness but have noticed an increase in facial hot flushes and night sweats. Has anyone else felt these side effects have got worse as you reduce?
Godrevy1960
in
PMRGCAuk
5 years ago
Outstanding third opinion.
I had to get a third opinion because the first doc said at the first visit no treatment until see symptoms. When I went back after bone marrow and lymph node taken out she said I needed treatment but I feel great. I didnt feel comfortable with that so found a cll specialist. Much more knowledgable. Told
I had to get a third opinion because the first doc said at the first visit no treatment until see symptoms. When I went back after bone marrow and lymph node taken out she said I needed treatment but I feel great. I didnt feel comfortable with that so found a cll specialist. Much more knowledgable. Told
showdog
in
CLL Support
5 years ago
World Health Organization lists "vaccine hesitancy" as a global health threat
[i]"Vaccine hesitancy, where people are reluctant or refuse to have themselves or their children vaccinated, is a growing trend among those fearing negative health outcomes from immunizations, such as the (non-existent) risk of autism. This collective uncertainty has now gathered such momentum that the
[i]"Vaccine hesitancy, where people are reluctant or refuse to have themselves or their children vaccinated, is a growing trend among those fearing negative health outcomes from immunizations, such as the (non-existent) risk of autism. This collective uncertainty has now gathered such momentum that the
AussieNeil
Partner
in
CLL Support
5 years ago
Donating bone marrow to cure sickle cell anaemia
A bone marrow transplant is the only complete cure for treating sickle cell anaemia. This is a kind of treatment in which the patient’s bone marrow is changed to new healthy bone marrow. This is done either by collecting the patient’s own bone marrow or that of a donor. In the case of sickle cell disease
A bone marrow transplant is the only complete cure for treating sickle cell anaemia. This is a kind of treatment in which the patient’s bone marrow is changed to new healthy bone marrow. This is done either by collecting the patient’s own bone marrow or that of a donor. In the case of sickle cell disease
anjana_indheal
in
Living with Sickle Cell Disease
5 years ago
MCL
My father is being treated with ibrutinib for
mantle
cell
lymphoma
. His platelets are very low and don’t pick up after transfusion. They have stopped his 4 tablets/day of ibrutinib as he now has an infection. Has anyone else experienced this?
My father is being treated with ibrutinib for
mantle
cell
lymphoma
. His platelets are very low and don’t pick up after transfusion. They have stopped his 4 tablets/day of ibrutinib as he now has an infection. Has anyone else experienced this?
Ibrut
in
Lymphoma Canada
6 years ago
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