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Lynch syndrome
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Small sores that will not go!
Just want some advice please. It’s my third month on Ibrutinib and all going really well. However, I have a few small sores on my hands, one on my nose and one on a buttock that just will not heal up. Saw a GP on Friday, never met anyone so bored by what I was saying 😠 and he prescribed Fusidic Acid
Just want some advice please. It’s my third month on Ibrutinib and all going really well. However, I have a few small sores on my hands, one on my nose and one on a buttock that just will not heal up. Saw a GP on Friday, never met anyone so bored by what I was saying 😠 and he prescribed Fusidic Acid
Jooby59
in
CLL Support
5 years ago
update on my Homeopathic remedy treatment
I was diagnosed with PMR in March this year (2019), took Prednison ( 20mg) until August, tried to taper down slowly, but had to start over because of flair ups. Had an appointment -- consultation with a Homeopathic Doctor for 3 sessions and intensive interview. Took one pellet of Causticum, which was
I was diagnosed with PMR in March this year (2019), took Prednison ( 20mg) until August, tried to taper down slowly, but had to start over because of flair ups. Had an appointment -- consultation with a Homeopathic Doctor for 3 sessions and intensive interview. Took one pellet of Causticum, which was
km5yx7
in
PMRGCAuk
5 years ago
Do you need expert fertility information and face-face support from others trying to conceive?
Join the fertility group meeting in Swansea TONIGHT.. Thursday 7th November A senior Consultant and specialist in Male and Female infertility will be discussing all aspects of Reproductive Medicine/ IVF Services. As well as expert knowledge and practice in Fertility and Assisted conception techniques
Join the fertility group meeting in Swansea TONIGHT.. Thursday 7th November A senior Consultant and specialist in Male and Female infertility will be discussing all aspects of Reproductive Medicine/ IVF Services. As well as expert knowledge and practice in Fertility and Assisted conception techniques
AliceMatthews
Fertility Network UK
in
Fertility Network UK
5 years ago
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Does Neupogen wash help thin lining?
Hi, I was hoping someone could help me. I am doing my 7th cycle of ivf. I had 3 at argc and they all failed. I then moved on to donor eggs in Spain. Two of the cycles were cancelled as the lining did not get past 7mn. On the third where the lining was 7.3 there were no embryos to implant as we were doing
Hi, I was hoping someone could help me. I am doing my 7th cycle of ivf. I had 3 at argc and they all failed. I then moved on to donor eggs in Spain. Two of the cycles were cancelled as the lining did not get past 7mn. On the third where the lining was 7.3 there were no embryos to implant as we were doing
Bagpuss07
in
Fertility Network UK
5 years ago
Need face-face expert information & support?
Join the fertility group meeting on Thursday 7th November A senior Consultant and specialist in Male and Female infertility will be discussing all aspects of Reproductive Medicine/ IVF Services. As well as expert knowledge and practice in Fertility and Assisted conception techniques, Mrs Gordon has
Join the fertility group meeting on Thursday 7th November A senior Consultant and specialist in Male and Female infertility will be discussing all aspects of Reproductive Medicine/ IVF Services. As well as expert knowledge and practice in Fertility and Assisted conception techniques, Mrs Gordon has
AliceMatthews
Fertility Network UK
in
Fertility Network UK
5 years ago
Itchy rash more
Folliculitis continues - wash fom Doctor doesn’t clear aloe vera savlon hydrocortisone Aveeno don’t work - using ice packs at night and will try oatmeal bath tonight - any ideas please?
Folliculitis continues - wash fom Doctor doesn’t clear aloe vera savlon hydrocortisone Aveeno don’t work - using ice packs at night and will try oatmeal bath tonight - any ideas please?
Daffodilia
in
PMRGCAuk
5 years ago
Do you need expert fertility information and face-face support from others trying to conceive?
Join the fertility group meeting on Thursday 7th November in Swansea. A senior Consultant and specialist in Male and Female infertility will be discussing all aspects of Reproductive Medicine/ IVF Services. As well as expert knowledge and practice in Fertility and Assisted conception techniques, Mrs
Join the fertility group meeting on Thursday 7th November in Swansea. A senior Consultant and specialist in Male and Female infertility will be discussing all aspects of Reproductive Medicine/ IVF Services. As well as expert knowledge and practice in Fertility and Assisted conception techniques, Mrs
AliceMatthews
Fertility Network UK
in
Fertility Network UK
5 years ago
Lynch Syndrome Information Morning SVUH 13th September 2019: All Welcome
Cancers associated with
Lynch
syndrome
include colorectal, endometrial, ovarian, stomach, hepatobiliary (liver and bile), urinary and kidney, small bowel, brain/central nervous system and sebaceous.
Cancers associated with
Lynch
syndrome
include colorectal, endometrial, ovarian, stomach, hepatobiliary (liver and bile), urinary and kidney, small bowel, brain/central nervous system and sebaceous.
lsirl
in
OvaCare
5 years ago
Does Plaquenil Hydroxychloroquine) help with Sjorgens
I was recently diagnosed with Sjogrens, my rheumatologist prescribed Plaquenil (Hydroxychloroquine) I read some studies that seem to suggest that there is no evidence Plaquenil helps with Sjogrens like it does with Lupus. I'm now doubting whether or not to take it. Has Plaquenil helped your Sjogrens?
I was recently diagnosed with Sjogrens, my rheumatologist prescribed Plaquenil (Hydroxychloroquine) I read some studies that seem to suggest that there is no evidence Plaquenil helps with Sjogrens like it does with Lupus. I'm now doubting whether or not to take it. Has Plaquenil helped your Sjogrens?
Miamigirl305
in
The Australian Sjögren's Syndrome Association
5 years ago
Sjogrens
My blood tests were negative for sjogrens. My doctor said the lip biosy was unnecessary but I pushed him to order it. I'm glad I did because the lip biospy was positive for Sjogrens. My rheumatologist confirmed the diagnosis and now put me on plaquenil.
My blood tests were negative for sjogrens. My doctor said the lip biosy was unnecessary but I pushed him to order it. I'm glad I did because the lip biospy was positive for Sjogrens. My rheumatologist confirmed the diagnosis and now put me on plaquenil.
Miamigirl305
in
Hughes Syndrome APS Forum
5 years ago
Methadone
Hi Everyone. Has anyone living in the U.K. with severe restless legs been prescribed methadone.? If so what are the results.? I ask because I've been on Tramadol for about 2 years (4x 20mg at night ) and they seem to be losing their efficacy now. Any other advice gratefully received.
Hi Everyone. Has anyone living in the U.K. with severe restless legs been prescribed methadone.? If so what are the results.? I ask because I've been on Tramadol for about 2 years (4x 20mg at night ) and they seem to be losing their efficacy now. Any other advice gratefully received.
bedith6
in
Restless Legs Syndrome
5 years ago
Magnesium deficiency, PPIs & RLS - shock revelation!
I only found out today, quite by accident, that PPI's can, and do, cause magnesium deficiency. Magnesium deficiency, in turn, can then cause cramps, muscle twitches and RLS. Holy hell! I've been taking PPIs for years - literally years - and despite mentioning that I have RLS to several doctors, not ONE
I only found out today, quite by accident, that PPI's can, and do, cause magnesium deficiency. Magnesium deficiency, in turn, can then cause cramps, muscle twitches and RLS. Holy hell! I've been taking PPIs for years - literally years - and despite mentioning that I have RLS to several doctors, not ONE
Chancery
in
Restless Legs Syndrome
5 years ago
I'm New - Boyfriend has EDS
Hello all! I do not know much about EDS other than what I've read online or what my boyfriend has told me about it. His EDS has always concerned me and it makes me sad because he believes his life expectancy is super short because some doctor told him this... It bothers me because not enough doctors
Hello all! I do not know much about EDS other than what I've read online or what my boyfriend has told me about it. His EDS has always concerned me and it makes me sad because he believes his life expectancy is super short because some doctor told him this... It bothers me because not enough doctors
Usako
in
Ehlers-Danlos Support UK
5 years ago
Started Buprenorphine 😴
Hello from NYC So far it has been really worth the long hall flight I have seen an amazing doctor in NYC I am seeing him again on Tuesday - I will seek his permission before popping his name up. He was lovely older man , hugged me when I left gave me his personal Mobile / cell number He reached
Hello from NYC So far it has been really worth the long hall flight I have seen an amazing doctor in NYC I am seeing him again on Tuesday - I will seek his permission before popping his name up. He was lovely older man , hugged me when I left gave me his personal Mobile / cell number He reached
Shumbah
in
Restless Legs Syndrome
5 years ago
Rls
Hi everyone I’ve been suffering with restless legs for many years it is a bad disease I just hope I can find something natural that really works for me KRATOM seems to be working pretty well Requip is something That works but put you to sleep I can’t watch a movie without twitching my legs it’s just
Hi everyone I’ve been suffering with restless legs for many years it is a bad disease I just hope I can find something natural that really works for me KRATOM seems to be working pretty well Requip is something That works but put you to sleep I can’t watch a movie without twitching my legs it’s just
Applejacks95
in
Restless Legs Syndrome
5 years ago
Big thank you
I can't remember who to thank (Madlegs, maybe?) I've taken gabapentin for close to 30 years for unrelated nerve pain. About 5 years ago I was hospitalized and in the course of things, told that I had a magnesium deficiency and to supplement. So I have been taking magnesium. No one ever even mentioned
I can't remember who to thank (Madlegs, maybe?) I've taken gabapentin for close to 30 years for unrelated nerve pain. About 5 years ago I was hospitalized and in the course of things, told that I had a magnesium deficiency and to supplement. So I have been taking magnesium. No one ever even mentioned
Whippetmama
in
Restless Legs Syndrome
5 years ago
How long do L-dopa withdrawal symptoms last?
I took an over the counter L-dopa supplement (Macuna puriens) for a few months for my restless legs and then experienced augmentation and rebound. I stopped cold turkey a week ago and am experiencing withdrawal effects in the form of nervous system pain. Wondering how long it takes for the withdrawal
I took an over the counter L-dopa supplement (Macuna puriens) for a few months for my restless legs and then experienced augmentation and rebound. I stopped cold turkey a week ago and am experiencing withdrawal effects in the form of nervous system pain. Wondering how long it takes for the withdrawal
RoDomHarr
in
Restless Legs Syndrome
5 years ago
Bowel problems
Almost a year since ltx, bile duct blockage so another mri. My question to all you warriors is, has anyone having bowel problems?
Almost a year since ltx, bile duct blockage so another mri. My question to all you warriors is, has anyone having bowel problems?
Yuiop
in
British Liver Trust
5 years ago
Update Dr Winkleman- Buprenorphine
Hi Everyone My appointment with Dr Winkleman update Just saying I would recommend a 7 day trail to anyone interested in Buprenorphine you can start and stop with no issues . I side stepped the 6 month wait at the Massachusetts General Hospital. I saw him as a private patient at his home $1000 cash
Hi Everyone My appointment with Dr Winkleman update Just saying I would recommend a 7 day trail to anyone interested in Buprenorphine you can start and stop with no issues . I side stepped the 6 month wait at the Massachusetts General Hospital. I saw him as a private patient at his home $1000 cash
Shumbah
in
Restless Legs Syndrome
5 years ago
Stuck on ropinirole
Hi everyone it’s been a while since I was last on here, if anyone can remember I was taking 3 2mg Ropinirole in 24 hours and I tried my best to come off them! It was torture. Anyway I had a week where I got fed up with everything and I stopped all my medication apart from ropinirole, I discovered stopping
Hi everyone it’s been a while since I was last on here, if anyone can remember I was taking 3 2mg Ropinirole in 24 hours and I tried my best to come off them! It was torture. Anyway I had a week where I got fed up with everything and I stopped all my medication apart from ropinirole, I discovered stopping
Rish
in
Restless Legs Syndrome
5 years ago
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