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Cold Turkey Update
Some of you are familiar with my story so far so I will make this brief. Three years ago I was taking 6mg Pramepexole. It took me nearly three years to taper the dose down to 1.25. My idiotic Neurologist said he would no longer treat me unless I stoped taking Pramipexole. He writes my prescriptions
Some of you are familiar with my story so far so I will make this brief. Three years ago I was taking 6mg Pramepexole. It took me nearly three years to taper the dose down to 1.25. My idiotic Neurologist said he would no longer treat me unless I stoped taking Pramipexole. He writes my prescriptions
welschrispy
in
Restless Legs Syndrome
7 months ago
Raynauds and Hypermobility
Hello, I've been diagnosed with primary Raynauds which is getting worse. I've had blood tests to rule out other conditions, but they've all been negative. Should I be pushing for a nailfold capillorthingy (technical term...)? I've also got colitis, irritable bladder, some joint hypermobility so I'm
Hello, I've been diagnosed with primary Raynauds which is getting worse. I've had blood tests to rule out other conditions, but they've all been negative. Should I be pushing for a nailfold capillorthingy (technical term...)? I've also got colitis, irritable bladder, some joint hypermobility so I'm
Boudica78
in
Scleroderma & Raynaud's UK (SRUK)
7 months ago
How much more can I take ?
Its a year now since I started the worst journey of my life getting off Ropinrole but I did it and Im proud . Yes daytime and evenings are much better but nights are still pure hell . I have had one nights sleep in a year and that was 1til 6am .Interestingly I was out that evening and only had 600 mgs
Its a year now since I started the worst journey of my life getting off Ropinrole but I did it and Im proud . Yes daytime and evenings are much better but nights are still pure hell . I have had one nights sleep in a year and that was 1til 6am .Interestingly I was out that evening and only had 600 mgs
Huntingleroy
in
Restless Legs Syndrome
7 months ago
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taking trazodone with Gabapentin
First of all, I am so thankful for this community and the information I have found on here. I am finally getting relief from my RLS by taking gabapentin. My doctor has been way too conservative, starting me at 100mg and only increasing 100mg every week or two weeks. I am finally at a dosage of 1200mg
First of all, I am so thankful for this community and the information I have found on here. I am finally getting relief from my RLS by taking gabapentin. My doctor has been way too conservative, starting me at 100mg and only increasing 100mg every week or two weeks. I am finally at a dosage of 1200mg
Tbone87
in
Restless Legs Syndrome
7 months ago
vimpat / lacosamide stopped fully working
the Vimpat stopped working to completely resolve my RLS. Recent MRIs showed multiple Tarlov cysts on my spine, which is possibly causing the left leg pain and movement. It is positional and separate from the RLS in both legs in my arms and body. I see a new neurosurgeon next week. I’ve had multiple
the Vimpat stopped working to completely resolve my RLS. Recent MRIs showed multiple Tarlov cysts on my spine, which is possibly causing the left leg pain and movement. It is positional and separate from the RLS in both legs in my arms and body. I see a new neurosurgeon next week. I’ve had multiple
SleeplessinNC
in
Restless Legs Syndrome
4 months ago
PLMD and withdrawal
Three weeks ago I stopped (after tapering slowly) gabapentin. I have also been reducing morphine sulphate from 8mg by .01mL every 5 days for the last three weeks. PLMD off the charts. I take 2mg lunesta every 3 nights -- and not more -- in the hopes of not getting addicted. Those nights are better
Three weeks ago I stopped (after tapering slowly) gabapentin. I have also been reducing morphine sulphate from 8mg by .01mL every 5 days for the last three weeks. PLMD off the charts. I take 2mg lunesta every 3 nights -- and not more -- in the hopes of not getting addicted. Those nights are better
wantokporo
in
Restless Legs Syndrome
7 months ago
Pregabalin doseage
Hi, so i have now been on 150mg/day and i'm still experiencing very acute pain in my legs (quads mostly and calves) I have to get up and take ibruprofen plus co-codamol. As I am a PT and train a lot, it can be hard to separate what might be RLS vs training soreness. I first went on Ropinirole after
Hi, so i have now been on 150mg/day and i'm still experiencing very acute pain in my legs (quads mostly and calves) I have to get up and take ibruprofen plus co-codamol. As I am a PT and train a lot, it can be hard to separate what might be RLS vs training soreness. I first went on Ropinirole after
bluffpt
in
Restless Legs Syndrome
7 months ago
What am I doing wrong!
Well you know me ! only on here when I am in a pickle !! am boy I am in that pickle.! Cut a long story short have had slow transit bowel all my life but since last August off the scale with impaction after impaction ,trips to A &E and shed loads of movicol ( was going to say something else then !)
Well you know me ! only on here when I am in a pickle !! am boy I am in that pickle.! Cut a long story short have had slow transit bowel all my life but since last August off the scale with impaction after impaction ,trips to A &E and shed loads of movicol ( was going to say something else then !)
Shopnow1
in
IBS Network
4 months ago
Repost results
Im taking teva levothyroxine 100mcgThybon t3, 15mcg, split 3 x 5mcg dose Magnesium glycinate 650mg Vit D3,k2 mk-7, 5000iu Any advice very much appreciated 🌸🌸🌸🌸🌸🌸🌸
Im taking teva levothyroxine 100mcgThybon t3, 15mcg, split 3 x 5mcg dose Magnesium glycinate 650mg Vit D3,k2 mk-7, 5000iu Any advice very much appreciated 🌸🌸🌸🌸🌸🌸🌸
Geegee777
in
Thyroid UK
7 months ago
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: the biology of a neglected disease
This is, of course, a thyroid forum. But all too many members mention Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and other disorders. I'm posting this paper very largely for the [i]Treating comorbidities [/i]section which, though short, is [i]
highly
[/i] relevant to a considerable
This is, of course, a thyroid forum. But all too many members mention Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and other disorders. I'm posting this paper very largely for the [i]Treating comorbidities [/i]section which, though short, is [i]
highly
[/i] relevant to a considerable
helvella
Thyroid UK
in
Thyroid UK
4 months ago
Weird leg pain
Hi everyone, I'm hoping someone can shed some light on this weird symptom! For almost 10 years now I have had pain in my outer calf about two inches up from my ankle on both sides. It comes on with the slightest exertion but is not there all the time. The achy pain builds and builds until I feel like
Hi everyone, I'm hoping someone can shed some light on this weird symptom! For almost 10 years now I have had pain in my outer calf about two inches up from my ankle on both sides. It comes on with the slightest exertion but is not there all the time. The achy pain builds and builds until I feel like
Womble84
in
Endometriosis UK
4 months ago
How to switch from pramipexole to pregabalin?
How to switch from pramipexole to pregabalin?I have been taking 0.7 mg of pramipexole 2 hours before bedtime for a long time without it helping particularly well. Now so plagued by augmentation that I actually can't sleep at night. Is plagued by both pain and restlessness in the legs and feet. During
How to switch from pramipexole to pregabalin?I have been taking 0.7 mg of pramipexole 2 hours before bedtime for a long time without it helping particularly well. Now so plagued by augmentation that I actually can't sleep at night. Is plagued by both pain and restlessness in the legs and feet. During
Gibbel
in
Restless Legs Syndrome
7 months ago
Horizant
Hi everyone and Sue Johnson. I'm wondering if Horizant is the same as Pregabalin? I guess it is a stronger version of gabapentin. I have tried it and it seems to work pretty good for me.
Hi everyone and Sue Johnson. I'm wondering if Horizant is the same as Pregabalin? I guess it is a stronger version of gabapentin. I have tried it and it seems to work pretty good for me.
DocCookie
in
Restless Legs Syndrome
4 months ago
When should I take gabapentin and buprenorphine ?
I am planning on starting to withdraw from pramipexole. I have been prescribed gabapentin on a daily dose of 3 x 600mg daily to start taking as I withdraw off pramipexole. Should I start with 600mg for a few days, then add another 600mg dose say a week later, and then an additional 600mg a week after
I am planning on starting to withdraw from pramipexole. I have been prescribed gabapentin on a daily dose of 3 x 600mg daily to start taking as I withdraw off pramipexole. Should I start with 600mg for a few days, then add another 600mg dose say a week later, and then an additional 600mg a week after
Kejimkujik
in
Restless Legs Syndrome
7 months ago
Newbie 0
Hi, I've recently been diagnosed with Gilbert's syndrome/disease. It was picked up via blood tests. I'm waiting to have a liver scan but the GP hasn't come up with any other plan. My main question at the minute is does anyone suffer with itching. Its not put down as one of the main symptoms but it's
Hi, I've recently been diagnosed with Gilbert's syndrome/disease. It was picked up via blood tests. I'm waiting to have a liver scan but the GP hasn't come up with any other plan. My main question at the minute is does anyone suffer with itching. Its not put down as one of the main symptoms but it's
HomerJSimpson
in
British Liver Trust
9 months ago
Update on first visit with Neurologist
Well, finally landed on my feet with this neurologist. Her name is Dr.Phillips, she is in Dartmouth, Nova Scotia, Canada for anyone out here seeking a neurologist. For those not familiar with the health system structure in Canada, one can ONLY get in to see a Neurologist with a referral form a first
Well, finally landed on my feet with this neurologist. Her name is Dr.Phillips, she is in Dartmouth, Nova Scotia, Canada for anyone out here seeking a neurologist. For those not familiar with the health system structure in Canada, one can ONLY get in to see a Neurologist with a referral form a first
Kejimkujik
in
Restless Legs Syndrome
7 months ago
Has the Pulsed Field Ablation technique increased success rate?
Although Flecainide 50mg bid has kept AF episodes to a much lower frequency, 6 in ‘23, I’d like to hear from a few more of you who have undergone this new procedure. What are the results; is the blanking period shorter; anyone had it done at Royal Bournemouth Hospital? I hear reports that it’s much
Although Flecainide 50mg bid has kept AF episodes to a much lower frequency, 6 in ‘23, I’d like to hear from a few more of you who have undergone this new procedure. What are the results; is the blanking period shorter; anyone had it done at Royal Bournemouth Hospital? I hear reports that it’s much
Racquet
in
Atrial Fibrillation Support
7 months ago
ropinirole for travel?
Until last July I had been taking 1mg of ropinirole 3 x daily. Since then I have successfully weaned myself off 2 mg during the day and only take 1 mg at night. Three months ago I began seeing a specialist and she has me on 75 mg 3x a day. My question: I am taking a trip to Europe in May and am worried
Until last July I had been taking 1mg of ropinirole 3 x daily. Since then I have successfully weaned myself off 2 mg during the day and only take 1 mg at night. Three months ago I began seeing a specialist and she has me on 75 mg 3x a day. My question: I am taking a trip to Europe in May and am worried
MountainWanderer
in
Restless Legs Syndrome
7 months ago
Completely lost
I’m 72 & in general good health (I think) except for Osteopenia and that I inherited Restless Legs from my mum. I started on .25mg Ropinirole 7 years ago which was like magic but it’s slowly increased to 3x.25mg per night. Perhaps not a big dose but I learned via this site it’s best to switch from Ropinirole
I’m 72 & in general good health (I think) except for Osteopenia and that I inherited Restless Legs from my mum. I started on .25mg Ropinirole 7 years ago which was like magic but it’s slowly increased to 3x.25mg per night. Perhaps not a big dose but I learned via this site it’s best to switch from Ropinirole
BoojaBooja
in
Restless Legs Syndrome
7 months ago
Pregabalin
Could someone please provide me with a link for the Mayo Clinic for up to date information on RLS. I have found one Mayo Clinic document that uses Pramipexole and Ropinirole as treatment for RLS. I thought these meds were not used anymore? Thank you.
Could someone please provide me with a link for the Mayo Clinic for up to date information on RLS. I have found one Mayo Clinic document that uses Pramipexole and Ropinirole as treatment for RLS. I thought these meds were not used anymore? Thank you.
Keith1231
in
Restless Legs Syndrome
7 months ago
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