Experiences with

Lung transplant

I had my biopsy surgery and just got the results. It is pulmonary sarcoidosis. I have been told that my pulmonologist will be calling me to start treatment. Most likely - steroids :( Steroids and organ transplants are the only treatment options I am 90% certain I will have my breast implants removed.

Consultant thought I would have a better chance of a transplant by accepting a single lung. Today I received a copy of the letter that went to my GP and read that I’m not suitable for a single transplant because of pulmonary hypertension.

What more can they do for hepatic encephalopathy. My relative is on rifaxim twice a day and lactose 3 times a day but still has symptoms. Some days are better than others. Sadly he can’t have a liver transplant as he has cancer and has been told he has months there for want to make sure that he has

Immunosuppressed Patients Respond to Booster Shots: Hope for a COVID Booster Vaccine for Lupus and Other Autoimmune Disease Patients? [Updated 8/12/21] August 11, 2021 TABLE OF CONTENTS 1) Will a COVID Booster Vaccine for Lupus Patients Increase Response Rates? 2) The COVID Booster Vaccine Study

Hello all In the last year we have expanded our virtual support services. As part of our Lung Cancer Connect services we are providing sessions for groups of people including "Managing during treatment" and "Caring for someone with lung cancer" as well as sessions for people with genetic mutation cancers

hi there everyone! im 9 year post liver transplant and 6 years ago i was diagnosed with PTLD and recurrent PBC was put on ursodiol which within a few months lowered levels almost to normal but unfortunately my most recent blood work showed ALP of 196 and ALT of44 AST 44 all very elevated. due to gastrointestinal

Hi, Sorry If this reply to this post is too long First I would just like to say that my wife had a chronic needle phobia and would be the first to say she that she didn't help herself and others when trying to have blood taken, but after many attempts over some years no one seemed to listen to her

Hi, Sorry If this reply to this post is too long First I would just like to say that my wife had a chronic needle phobia and would be the first to say she that she didn't help herself and others when trying to have blood taken, but after many attempts over some years no one seemed to listen to her

What are your stories regarding finding a kidney donor? Are you guys having difficulty finding a kidney donor ? I'm doing my research on kidney transplant donation rate. Thank you.

Join us on Wednesday 22 September at 4pm for the last of our 60th birthday special editions - Live & Ticking – The Heart Transplant Story Professor Sir Nilesh Samani, BHF Medical Director, will be celebrating 60 years of BHF-funded research and shining a light on some of our achievements over the last

Kidney transplant caregiver

As divine timing would have it, earlier this year, a 3 part course on ‘Building Sangha’ popped into my inbox. The call of my inner knowing found me signing up without hesitation via ‘Alternatives’ for this trio of 90 minute virtual sessions with Malcom Stern. Malcolm is a psycho-therapist of 30 years

I was diagnosed with stage 4 metastatic Adenocarcinoma of my left lung In summer 2020.which was treated with chemotherapy and immunotherapy, got a good response to treatment however immunotherapy has been stopped due to combination of mild renal impairment, diarrhoea, skin toxicity and thyroid immune

Hubby had major lung surgery in may , he had been wait6months for cataract surgery 1st appointment 8th july cancelled due to the consultant self isolating then went on annual leave next appointment 20th August went to that told he had to have a scan to measure the lens after 2 weeks phoned up to be told

The International Association for the Study of Lung Cancer (IASLC) is a global network of doctors, researchers, and other professionals that have dedicated their lives to preventing and curing lung cancers. Patent education and advocacy are important to their mission. The IASLC conferences are held

My husband was diagnosed with small cell lung cancer in 2020. He has had chemo with immunotherapy, which worked. Then immunotherapy alone which didn’t so was stopped. Then he had a 2nd cycle of same chemo which hasn’t worked and the tumour is still growing! Is anyone further along the line and can give

Following a month or so of anxiety over my neck lump and the implications re lung transplant etc.. i am delighted to report the offending item is no longer and as a few of you kind souls suggested it was probably a cyst .

Hi - my dad received a kidney transplant about 4 months ago and at first everything looked great. But recently it showed he had the BK virus. First they lowered his CellCept dose and two weeks later the virus had increased. So they removed CellCept completely and his virus levels were coming down. However

Let me explain. I was on dialysis for 5 and 1/2 year’s when I received a kidney transplant. For about 3 months after surgery it seemed my rls had almost gone. Then because I have a neurogenic bladder I started getting uti that required hospitalization and even got sepsis so the last time the infectious

Some have likely seen this study. I looked into it some more today and realize it's a neat pre-clinical result. This is just FYI right now but it's an example of potential good things to come. (I just noticed Manouche posted on this last year, anyway maybe some new details here) "JAK2V617F myeloproliferative