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fed up š¢
hi everyone Iāve been on pred 60mg for a month with a few hospital stays. caught Covid for the first time on the ward the day before I came home and was blue lighted back to hospital 3 days later . 2 nights in and I had a stroke ( through Covid). I was very lucky I had the clot buster within the
hi everyone Iāve been on pred 60mg for a month with a few hospital stays. caught Covid for the first time on the ward the day before I came home and was blue lighted back to hospital 3 days later . 2 nights in and I had a stroke ( through Covid). I was very lucky I had the clot buster within the
Brittleasthma47
in
Asthma Community Forum
5 months ago
ICU recovery nightmare
Was in ICU for 6 days following a seizure due to low sodium (92) due they think to stomach virus though still having investigations for Addisons. 2 ambulances, helicopter , CPR , a stroke originally suspected. No ICU diary kept by hospital , no discharge help, no rehab , no advice on how I would feel
Was in ICU for 6 days following a seizure due to low sodium (92) due they think to stomach virus though still having investigations for Addisons. 2 ambulances, helicopter , CPR , a stroke originally suspected. No ICU diary kept by hospital , no discharge help, no rehab , no advice on how I would feel
downthemoor
in
ICUsteps
1 year ago
Low dose naltrexone for PMR?
Has anyone tried LDN for PMR? One of my doctors suggested it.
Has anyone tried LDN for PMR? One of my doctors suggested it.
emmamom
in
PMRGCAuk
9 months ago
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Feeling very unwell - do my blood results explain why? What to do next?
Hi Mid August My NDT was increased from 2.5 to 3 grains. By the last week in September I began to feel what I describe as a 'bit off' , these feelings come and go. My partner had covid , I tested negative a couple of times. I did have a bit of cough and sore throat but that lasted only a couple
Hi Mid August My NDT was increased from 2.5 to 3 grains. By the last week in September I began to feel what I describe as a 'bit off' , these feelings come and go. My partner had covid , I tested negative a couple of times. I did have a bit of cough and sore throat but that lasted only a couple
Divine1990
in
Thyroid UK
9 months ago
A List for Newly Diagnosed that My Wife did in 2022 please add to list if anything is missed or wrong or needs updating. TIA
I have to pack, moving trucks coming in AMā¦and Restā¦ She shared this on a farce book group page. This List Is Not Complete Please feel free to Message Chat Us with your Email as items on the listing example: ie: were deleted / removed by a healthunlocked admin. The original post keeps getting modified
I have to pack, moving trucks coming in AMā¦and Restā¦ She shared this on a farce book group page. This List Is Not Complete Please feel free to Message Chat Us with your Email as items on the listing example: ie: were deleted / removed by a healthunlocked admin. The original post keeps getting modified
Shorehousejam
in
Advanced Prostate Cancer
9 months ago
Gluten ataxia.
Just want to make it clear that having gluten ataxia and then going gluten free is not a cure. For many there is still no medication and only if you don't respond to a gluten free diet are you offered anything.A gluten free diet and a healthy eating approach along with regular exercise helps. I also
Just want to make it clear that having gluten ataxia and then going gluten free is not a cure. For many there is still no medication and only if you don't respond to a gluten free diet are you offered anything.A gluten free diet and a healthy eating approach along with regular exercise helps. I also
penelope2
in
Ataxia UK
10 months ago
Thyroid tests
I have Graves disease since 2007 and had thyroidectomy in 2019. I have felt fine for the last 4 years on levothyroxine (75mcg Monday to Saturday, 50mcg on Sundays). I've recently developed digestive issues with some indigestion and morning diarrhea or loose stool at best. Had FIT test which was negative
I have Graves disease since 2007 and had thyroidectomy in 2019. I have felt fine for the last 4 years on levothyroxine (75mcg Monday to Saturday, 50mcg on Sundays). I've recently developed digestive issues with some indigestion and morning diarrhea or loose stool at best. Had FIT test which was negative
Sophitje
in
Thyroid UK
10 months ago
B12 by injection š - first steps . . . š£
Hello All ! š About to embark on the path of trialing B12 by injection as there seems plenty to confirm that those who do not benefit from supplementation, do ( - often enough!) see improvements via šs! Don't yet know if this will be available via the NHS, even citing credible info, of which there
Hello All ! š About to embark on the path of trialing B12 by injection as there seems plenty to confirm that those who do not benefit from supplementation, do ( - often enough!) see improvements via šs! Don't yet know if this will be available via the NHS, even citing credible info, of which there
Sid_Arthur
in
Pernicious Anaemia Society
1 year ago
Hashimoto to Graves
Hi All, I have been lurking as a member for >8years following a diagnosis of Hashimoto's thyroiditis. I have been managed with varying doses of levothyroxine, follow a gluten-free diet and supplement with B12, Fe and Vit D oral sprays. Having gained weight during Covid, I decided to make a conscious
Hi All, I have been lurking as a member for >8years following a diagnosis of Hashimoto's thyroiditis. I have been managed with varying doses of levothyroxine, follow a gluten-free diet and supplement with B12, Fe and Vit D oral sprays. Having gained weight during Covid, I decided to make a conscious
Doodi1
in
Thyroid UK
10 months ago
PMR & Stage II Polycystic Kidneys
PCP determined PMR based on my ātinman stiffnessā and bloodwork showing crazy inflammation levels in late January, and started me on 20 mg of prednisone. An ultrasound and xray turned up polycystic kidneys with a too-large to pass stones. Iāve tapered to 15 mg of prednisone at this point, and am wondering
PCP determined PMR based on my ātinman stiffnessā and bloodwork showing crazy inflammation levels in late January, and started me on 20 mg of prednisone. An ultrasound and xray turned up polycystic kidneys with a too-large to pass stones. Iāve tapered to 15 mg of prednisone at this point, and am wondering
Eleanor0123
in
PMRGCAuk
1 year ago
Severe SOB
Hi all, This is my first post. I have been reading a lot on here over the past 48 hours and can see a caring and helpful community. I am currently suffering with really severe SOB I can't breathe out. This is my 3rd attack in 6 months. I have had asthma since birth and been on reliever and preventer
Hi all, This is my first post. I have been reading a lot on here over the past 48 hours and can see a caring and helpful community. I am currently suffering with really severe SOB I can't breathe out. This is my 3rd attack in 6 months. I have had asthma since birth and been on reliever and preventer
wildblueboy
in
Lung Conditions Community Forum
6 months ago
Incruse inhaler
has anyone had back pain while using this? Also, does Incruse Elipta increase peak flow? Iām new to using inhalers . Iāve been trying various ones out as I have very mild emphysema and very mild bronchiectasis. I have multiple blood clots in my lungs which were diagnosed 13 months ago but they aren
has anyone had back pain while using this? Also, does Incruse Elipta increase peak flow? Iām new to using inhalers . Iāve been trying various ones out as I have very mild emphysema and very mild bronchiectasis. I have multiple blood clots in my lungs which were diagnosed 13 months ago but they aren
130396
in
COPD Friends
6 months ago
Advice about results please. T3 prescription Portugal?
Thank you to all the admin and everyone on this great resource for your time and knowledge. Saw Endo a couple of weeks ago in Algarve, pretty depressing experience. He says not possible to get T3 prescription in Portugal. Says I need to lower my medication and wants to put me on statins. Can I please
Thank you to all the admin and everyone on this great resource for your time and knowledge. Saw Endo a couple of weeks ago in Algarve, pretty depressing experience. He says not possible to get T3 prescription in Portugal. Says I need to lower my medication and wants to put me on statins. Can I please
Bubydizer
in
Thyroid UK
1 year ago
Congestion and not the traffic kind!
Hi everyone I was diagnosed with fibromyalgia in 2018, however I believe it started years before. I have also gained 5 stone and I'm on waiting list for bariatric surgery. I've used a cpap machine as I have sleep apnoea diagnosed in 2016. Just wanted to ask if anyone has had similar issues with horrible
Hi everyone I was diagnosed with fibromyalgia in 2018, however I believe it started years before. I have also gained 5 stone and I'm on waiting list for bariatric surgery. I've used a cpap machine as I have sleep apnoea diagnosed in 2016. Just wanted to ask if anyone has had similar issues with horrible
Seascapes31
in
Fibromyalgia Action UK
6 months ago
Do I even have asthma?
I've struggled with breathing issues for years on and off, but part of me is now wondering if it's all just anxiety/ reflux related. I had lung function tests which all came back normal (FEV1/ FVC ratio 85%, Feno 10 at most, best peak flow is 500 and its never really different when I'm having a shortness
I've struggled with breathing issues for years on and off, but part of me is now wondering if it's all just anxiety/ reflux related. I had lung function tests which all came back normal (FEV1/ FVC ratio 85%, Feno 10 at most, best peak flow is 500 and its never really different when I'm having a shortness
Chocaholic29
in
Asthma Community Forum
6 months ago
asthma as chest tightness
is anyone's asthma (while on all the usual meds) presents as tightness in the chest? No wheeze no cough? Spirometry normal and mannitol test negative? Peak flow doesn't drop much when symptomatic unless severe like with chest infection? I'm just fed up with the severe asthma clinic I'm under : they
is anyone's asthma (while on all the usual meds) presents as tightness in the chest? No wheeze no cough? Spirometry normal and mannitol test negative? Peak flow doesn't drop much when symptomatic unless severe like with chest infection? I'm just fed up with the severe asthma clinic I'm under : they
sciencepotato
in
Lung Conditions Community Forum
6 months ago
Asthma or anxiety?
Feel like my chest is tight like I can't take a deep breath and a bit breathless. My peak flow is pretty much normal. I get anxiety around bedtime so I don't know if its that or my asthma!!
Feel like my chest is tight like I can't take a deep breath and a bit breathless. My peak flow is pretty much normal. I get anxiety around bedtime so I don't know if its that or my asthma!!
madhatter88
in
Asthma Community Forum
6 months ago
Advice
With asthma is it the peak flow dropping the first sign of an attack? I had a bad attack last November and have developed ptsd as a result. I now get awful panic attacks at night that leave me feeling like I can't breathe. I struggle to tell the difference between it neong apanic attack or asthma related
With asthma is it the peak flow dropping the first sign of an attack? I had a bad attack last November and have developed ptsd as a result. I now get awful panic attacks at night that leave me feeling like I can't breathe. I struggle to tell the difference between it neong apanic attack or asthma related
madhatter88
in
Asthma Community Forum
6 months ago
Chemotherapy or Pluvicto
I just completed Radium 223 treatment. PSA has been doubling since I failed Zytiga. Last scans show progression. I am offered chemo or a trial with Pluvicto. The cancer is throughout my bones. What should I do. I have had chemo at the beginning of this journey and it worked then.
I just completed Radium 223 treatment. PSA has been doubling since I failed Zytiga. Last scans show progression. I am offered chemo or a trial with Pluvicto. The cancer is throughout my bones. What should I do. I have had chemo at the beginning of this journey and it worked then.
Islandboy2021
in
Advanced Prostate Cancer
10 months ago
Silent reflux symptoms?
I've posted a few times in various places here about some symptoms which I can't work out. My GP can't either, and their final diagnosis is it must just be stress and I should take antidepressants or put up with it because they aren't going to investigate any further. I don't like the look of those antidepressant
I've posted a few times in various places here about some symptoms which I can't work out. My GP can't either, and their final diagnosis is it must just be stress and I should take antidepressants or put up with it because they aren't going to investigate any further. I don't like the look of those antidepressant
Rsukal
in
Acid Reflux Support
6 months ago
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