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Liver failure
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After 15 + months on the transplant list, I've had my transplant!
Just letting the forum know of my change of status. On my second call to QE, Birmingham, there was an instantly more positive vibe about the possible transplant, and the operation took place about 12 hours after arriving at QE on 24/9/22. Surgeons very pleased with outcome. I have been in little-
Just letting the forum know of my change of status. On my second call to QE, Birmingham, there was an instantly more positive vibe about the possible transplant, and the operation took place about 12 hours after arriving at QE on 24/9/22. Surgeons very pleased with outcome. I have been in little-
taar
in
British Liver Trust
2 years ago
Liver cirrhosis
Hi all, Long story short my farther has liver cirrhosis caused by excessive alcohol which was diagnosed some years ago. Unfortunately he will not discuss it and has said in the past some bizzare stuff about it being misdiagnosed that it’s only 0.01% damaged and so on. It’s blatantly clear he has
Hi all, Long story short my farther has liver cirrhosis caused by excessive alcohol which was diagnosed some years ago. Unfortunately he will not discuss it and has said in the past some bizzare stuff about it being misdiagnosed that it’s only 0.01% damaged and so on. It’s blatantly clear he has
Hidden
in
British Liver Trust
2 years ago
Liver Transplant consent letter & liver types
hi, my partner has just been accepted onto the transplant list with a UKELD of 56 and blood group A (this is relevant as have been told the wait for this group is shorter). He has just had the consent form and agonised for ages over which boxes to tick in terms of what livers to accept. It seems so ungrateful
hi, my partner has just been accepted onto the transplant list with a UKELD of 56 and blood group A (this is relevant as have been told the wait for this group is shorter). He has just had the consent form and agonised for ages over which boxes to tick in terms of what livers to accept. It seems so ungrateful
Rshc
in
British Liver Trust
2 years ago
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Desserts
does any know if desserts are all right to eat with a de compensated liver i have one every night custard choc bun - sweet cakes, read something about there not that good for your the sugar levels in them don't want to waste the hard work i put in with low salt diet every night
does any know if desserts are all right to eat with a de compensated liver i have one every night custard choc bun - sweet cakes, read something about there not that good for your the sugar levels in them don't want to waste the hard work i put in with low salt diet every night
lonmallin50
in
British Liver Trust
2 years ago
IS HE GOING TO SLIDE OUT OF THIS ONE?!
My friends may remember that in June 2021 I went to have a pacemaker inserted. During the procedure I suffered a pneumothorax which was not acted on for 3 hrs. In consequence I went into collapse and respiratory failure and my children were summoned because they gave me 10 mins to live. Due to my b.
My friends may remember that in June 2021 I went to have a pacemaker inserted. During the procedure I suffered a pneumothorax which was not acted on for 3 hrs. In consequence I went into collapse and respiratory failure and my children were summoned because they gave me 10 mins to live. Due to my b.
Hidden
in
Lung Conditions Community Forum
2 years ago
high liver enzymes from blood test
hi. I recently had routine blood tests done and when I went for the results the nurse said my liver enzymes were high at 125. She asked me if I drank alcohol and I told her I have about 2 bottles of beer 4 nights a week. She said high liver enzymes are caused by too much alcohol. I was quite taken aback
hi. I recently had routine blood tests done and when I went for the results the nurse said my liver enzymes were high at 125. She asked me if I drank alcohol and I told her I have about 2 bottles of beer 4 nights a week. She said high liver enzymes are caused by too much alcohol. I was quite taken aback
Patdoyle
in
British Liver Trust
2 years ago
Trying to understand tests
I just had a positive antibody test for hep C. However, the PCR did not detect antibodies. I think this means I had hep C in the past (though I didn't know it), but don't have now. Do I still need treatment?
I just had a positive antibody test for hep C. However, the PCR did not detect antibodies. I think this means I had hep C in the past (though I didn't know it), but don't have now. Do I still need treatment?
Sky1927
in
Hepatitis C Trust
2 years ago
SPIRONOLACTONE . WHEN CAN I STOP TAKING IT?
I'm eager to know others experience and advice about Spironolactone. I was prescribed it 2 years ago when I had Ascites. I have never had a repeat of Ascites since that time, have undergone surgery successfully unrelated to liver issues and had no problems post General Anaesthetic. In short I have been
I'm eager to know others experience and advice about Spironolactone. I was prescribed it 2 years ago when I had Ascites. I have never had a repeat of Ascites since that time, have undergone surgery successfully unrelated to liver issues and had no problems post General Anaesthetic. In short I have been
bcsurfer
in
British Liver Trust
2 years ago
Sad News
I had just finished reading Better Off Bald over the weekend so I suspected it was lack of oxygen and that he was in
liver
failure
. While waiting for the nurse, Jimmy was praying and then told me that he didn't think he was going to make it to our New Years Eve Date.
I had just finished reading Better Off Bald over the weekend so I suspected it was lack of oxygen and that he was in
liver
failure
. While waiting for the nurse, Jimmy was praying and then told me that he didn't think he was going to make it to our New Years Eve Date.
DancingEyes63
Caregiver
in
Blue Faery Liver Cancer
2 years ago
thanks to all who responded to Gazyva as monotherapy
A big THANK YOU to everyone who responded to my question about the gazyva as a mono therapy .. it is really helpful to learn of your experience of when you were diagnosed and whether you are deleted , or unmutated , etc. ..... when you started treatment and with what you were treated with .and how
A big THANK YOU to everyone who responded to my question about the gazyva as a mono therapy .. it is really helpful to learn of your experience of when you were diagnosed and whether you are deleted , or unmutated , etc. ..... when you started treatment and with what you were treated with .and how
craterlake
in
CLL Support
2 years ago
falling off the wagon
I have been diagnosed with cirrhosis and have been off alcohol since diagnosed 2 moths ago I was never a heavy drinker but did have a few bottles of beer the other day feeling bad about this now as have been told never to drink again have I just signed my death sentence ?
I have been diagnosed with cirrhosis and have been off alcohol since diagnosed 2 moths ago I was never a heavy drinker but did have a few bottles of beer the other day feeling bad about this now as have been told never to drink again have I just signed my death sentence ?
Tim12
in
British Liver Trust
2 years ago
Dexa scan
I had to have a Dexa scan last Wednesday, arranged by Endocrinologist I’ve only seen once and discharged at conclusion of the appointment. Saw GP yesterday (appt made nearly a month ago after Endo appt) who said I would need medication if osteoporosis identified in scan (as TSH suppressed!). The side
I had to have a Dexa scan last Wednesday, arranged by Endocrinologist I’ve only seen once and discharged at conclusion of the appointment. Saw GP yesterday (appt made nearly a month ago after Endo appt) who said I would need medication if osteoporosis identified in scan (as TSH suppressed!). The side
Lottyplum
in
Thyroid UK
2 years ago
F3 liver fibrosis newly diagnosed
hi, I was just diagnosed with F3 liver fibrosis severe scarring and and concerned. kPa is 9.7 and CAP is 303 fatty liver steatosis / steato hep and elevated LFTs. Doc said I won’t die from it and is reversible but Google has me concerned.
hi, I was just diagnosed with F3 liver fibrosis severe scarring and and concerned. kPa is 9.7 and CAP is 303 fatty liver steatosis / steato hep and elevated LFTs. Doc said I won’t die from it and is reversible but Google has me concerned.
qa3181
in
Liver4Life
2 years ago
help with changing hospitals
hi, I’ve been listed for liver transplant in Birmingham. I’m currently being treated for cancer in Liverpool Aintree. They have made so many mistakes it’s unbelievable… They didn’t do bloods for hepatitis and after 16 months of cancer Birmingham discover this is the primary cause. They ruptured
hi, I’ve been listed for liver transplant in Birmingham. I’m currently being treated for cancer in Liverpool Aintree. They have made so many mistakes it’s unbelievable… They didn’t do bloods for hepatitis and after 16 months of cancer Birmingham discover this is the primary cause. They ruptured
Zechariah123
in
British Liver Trust
2 years ago
DLA renewal
Hi wondering if anyone has had a successful DLA claim for their child post liver transplant? Daughter was born with Biliary atresia and had a liver transplant a year and a half ago.
Hi wondering if anyone has had a successful DLA claim for their child post liver transplant? Daughter was born with Biliary atresia and had a liver transplant a year and a half ago.
Ducks123
in
Children's Liver Disease Foundation
2 years ago
It's spread to liver and bones. Any advice?
Good morning friends. @I was two treatments in to a clinical trial but the CAT scan yesterday discovered lesions in the liver, bone metestases and some adenopathies. I have been referred back to my own oncologist but in the meantime I am in limbo, wondering if this is the end of the line or if there
Good morning friends. @I was two treatments in to a clinical trial but the CAT scan yesterday discovered lesions in the liver, bone metestases and some adenopathies. I have been referred back to my own oncologist but in the meantime I am in limbo, wondering if this is the end of the line or if there
Riverflo
in
My Ovacome
2 years ago
Raised liver enzymes
I have had raised alt ast and ggt for a year now no diagnosis. I'm on levothyroxine could that affect readings?
I have had raised alt ast and ggt for a year now no diagnosis. I'm on levothyroxine could that affect readings?
Kristina60
in
British Liver Trust
2 years ago
PBC/AIH1 Positive
Just as I was wrapping my head around my April PBC diagnosis and taking Urso (which does seem to me improving my liver enzyme levels) a liver biopsy also confirmed that I am also positive for autoimmune hepatitis type 1 (AIH1). I know PBC and other autoimmune conditions tend to run in packs. Does anyone
Just as I was wrapping my head around my April PBC diagnosis and taking Urso (which does seem to me improving my liver enzyme levels) a liver biopsy also confirmed that I am also positive for autoimmune hepatitis type 1 (AIH1). I know PBC and other autoimmune conditions tend to run in packs. Does anyone
lovesoccer
in
PBC Foundation
2 years ago
Diagnosing early cirrhosis / fibrosis / ALD
I apologise for the long post but I am finding myself in a really difficult position. I am 32 years old and have drank heavily over the past ten years, mostly binge drinking during weekends and holidays (4-5 weeks per year). Other than this I have been generally fit and healthy. In the past six months
I apologise for the long post but I am finding myself in a really difficult position. I am 32 years old and have drank heavily over the past ten years, mostly binge drinking during weekends and holidays (4-5 weeks per year). Other than this I have been generally fit and healthy. In the past six months
Hidden
in
British Liver Trust
2 years ago
Increased aminoacids ... Could this be my gut issue
hi ive had amino acids profile tests done and there are increased levels of glycine;hydroproline; nithene; asparagine. Does anyone know what this means and could this be related to my gut pain? Thank you
hi ive had amino acids profile tests done and there are increased levels of glycine;hydroproline; nithene; asparagine. Does anyone know what this means and could this be related to my gut pain? Thank you
Waiting_for_godo
in
IBS Network
2 years ago
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