F3 liver fibrosis newly diagnosed

[qa3181]

hi, I was just diagnosed with F3 liver fibrosis severe scarring and and concerned. kPa is 9.7 and CAP is 303 fatty liver steatosis / steato hep and elevated LFTs. Doc said I won’t die from it and is reversible but Google has me concerned.

[AyrshireK]

Fatty Liver is reversible with healthy diet and exercise - right up to it becoming F4 or full on cirrhosis you can take steps to stop progression and hopefully reverse damage done. Here in Britain the British Liver Trust have recently a new PDF leaflet which you can download from :- britishlivertrust.org.uk/wp...

Avoid Dr Google like the plague - a small niggly headache becomes a brain tumour on there - way too much scary stuff. More guidance about NAFLD at:- britishlivertrust.org.uk/in...

Sadly NAFLD is the fastest growing cause of liver disease in the Western World and in the USA has overtaken that caused by alcohol. Our diets are rubbish (generally) - too much fat, salt, sugar and often too little exercise and we can all do more to keep our livers healthy.

Hope those links help.

Katie

[qa3181 in reply to AyrshireK]

thanks you so much I got my fibroscan results online before I met with the doctor and I did google it. I thought I needed a liver transplant! Scared me so much. Doctor said I need to be concerned but it is not a death sentence and can be reversed but I wasn’t sure I believed it. Your response helps. Do you know if I can drink alcohol removed whiskey which has less than 0.5% alcohol by volume or de alcohol oxen wine with less than one half of one percent alcohol?ike one a week?

[AyrshireK in reply to qa3181]

It would be best not to take the no-lo drinks. In the UK these are very much frowned upon if alcohol has in any way contributed to a patients liver disease.

Plenty you can do to help your liver improve.

Best wishes

Katie

[Iro1]

great to meet you qa, by some fluke we appear to have almost identical scores. I was 9.8 and 308 in August 2020. This came down from 10.8 and 348 in May 2019. I went from a diagnosis of 'cusp of cirrhosis' in Autumn of 2019 to 'stabilised liver' 'dont come back for 3 years' the following year. This shows the liver responds.

Dr Google led me down a very dark path, one dramatic attempt on my life which led to me being a 'voluntary' patient, the next one led to section 2 and 3 under the Mental Health Act and spending an extended time in a secure institution. Once you are in it is very, very hard to get unsectioned, whatever life left could be in a dystopian hell.

Your figures and diagnosis indicate that you are already in a better position than me and many others on here. Lifestyle changes do work, enjoy life, put this out of your mind, perhaps accept that this 'thing' you have is something you will die with not from, there is a period of almost bereavemant you have to go through.

Please feel free to DM me anytime you need support.

Iro

[Iro1]

just spotted you are US 'sectioned' in the UK means you are committed to a secure mental hospital because you are considered a threat to yourself (in my case) and unable to make decisions for yourself.

[Hidden]

I was diagnosed F3 a year ago with a kpa of 11.5.

My last Fibroscan a month ago showed I am now f0 with a kpa of 6.5.

Cut out alcohol and eat clean with lots of veg - it does work.

FYI you're supposed to exercise too but I have other health concerns that mean I don't really like to, but it worked anyway, yay, lol.

Good luck

[Str8jacket]

Fibroscan measures liver stiffness, not fibrosis directly. It can estimate fibrosis based on stiffness, but measured stiffness can be impacted by many factors. Your CAP score suggests significant fattiness of the liver--if that or another issue is causing liver inflammation, your fibrosis may be overestimated. A biopsy is the gold standard to measure fibrosis, but it will not be ordered in the absence of symptoms, etc.

Treat this as a very serious wakeup call. F3 fibrosis is advanced, and you need to do everything you can now to ensure you slow or stop its progression. In rare cases, and depending on the cause of fibrosis, it may even reverse. If you don't have any symptoms and generally feel fine, there is no need to panic. But this is the time to make lasting lifestyle changes (better nutrition, exercise, no alcohol/smoking/other drugs).

[Herman7275]

I was diagnosed with very simular, 3 yrs ago and haved reversed fatty liver reduced fibrosis, with exercise and a low carb diet of 30g of carbs a