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Weird tingling (not just peripheral neuropathy)
Happy New Year to fellow warriors - I hope for your continued good health as we engage in common cause against our common foe. I start the New Year with an odd query: I'm now on Day 21 of a Cabazitaxel/Carboplatin combination chemo. I was due to have infusion #2 today, but because of a bad reaction,
Happy New Year to fellow warriors - I hope for your continued good health as we engage in common cause against our common foe. I start the New Year with an odd query: I'm now on Day 21 of a Cabazitaxel/Carboplatin combination chemo. I was due to have infusion #2 today, but because of a bad reaction,
CrocodileShoes
in
Fight Prostate Cancer
6 months ago
Invasive Breast Cancer her 2 P+ E+1 lymph node Metastatic spread after chemo & Mastectomy
Hi Guys, I’m struggling here. . I was diagnosed with Invasive Breast Cancer her 2 , P+ E+ positive. I had docetaxel carboplatin and ohesgo and straight in for a single mastectomy and a couple of lymph nodes out. 1 came back with a 4mm Metastatic spread after chemo and 3 weeks ago I had a full
Hi Guys, I’m struggling here. . I was diagnosed with Invasive Breast Cancer her 2 , P+ E+ positive. I had docetaxel carboplatin and ohesgo and straight in for a single mastectomy and a couple of lymph nodes out. 1 came back with a 4mm Metastatic spread after chemo and 3 weeks ago I had a full
GillyGangGong
in
SHARE Metastatic Breast Cancer
6 months ago
B12 deficiency: a hidden trigger of inflammation?
This was posted on the Pernicious Anaemia Society forum - but I thought it might be of interest to the many here who have inflammation. [i]News Release 17-Oct-2023[/i] [i]
B12 deficiency: a hidden trigger of inflammation?
[/i] [i]Peer-Reviewed Publication[/i] [i]Society of Chemical Industry[
This was posted on the Pernicious Anaemia Society forum - but I thought it might be of interest to the many here who have inflammation. [i]News Release 17-Oct-2023[/i] [i]
B12 deficiency: a hidden trigger of inflammation?
[/i] [i]Peer-Reviewed Publication[/i] [i]Society of Chemical Industry[
helvella
Thyroid UK
in
Thyroid UK
2 months ago
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Other blood results
I now have more results Serum folate 14.3 (3.1-17.5) Ferritin 138 (13-150) Iron 14 (5-28) B12 280 (200-940) Since they are in the range ‘everything is normal’! The coeliac one was clear so I can now try gluten free for 3 months to see if it makes any changes. But I am still tired, muscle aches
I now have more results Serum folate 14.3 (3.1-17.5) Ferritin 138 (13-150) Iron 14 (5-28) B12 280 (200-940) Since they are in the range ‘everything is normal’! The coeliac one was clear so I can now try gluten free for 3 months to see if it makes any changes. But I am still tired, muscle aches
Purple450
in
Thyroid UK
2 months ago
B12 injections stopped by gp after 5 years treatment on nhs
I was diagnosed with chronic b12 deficiency years ago - my GP started giving me injections every 3 months and my nurse told me that it was for life. I’ve always eaten meat my whole life - so my deficiency was not caused by diet. They have stated that my deficiency is due to malabsorption, but my intrinsic
I was diagnosed with chronic b12 deficiency years ago - my GP started giving me injections every 3 months and my nurse told me that it was for life. I’ve always eaten meat my whole life - so my deficiency was not caused by diet. They have stated that my deficiency is due to malabsorption, but my intrinsic
LaraPA
in
Pernicious Anaemia Society
2 months ago
Genetic testing and Second Opinion – A result!
Following on from my post last week about docetaxel not working, I had a frank conversation with my MO during which I said I strongly believe that genetic testing of my liver biopsy sample should be the next step and after some debate, to my surprise, he agreed and has put through the request. It’s still
Following on from my post last week about docetaxel not working, I had a frank conversation with my MO during which I said I strongly believe that genetic testing of my liver biopsy sample should be the next step and after some debate, to my surprise, he agreed and has put through the request. It’s still
Benkaymel
in
Advanced Prostate Cancer
6 months ago
Thank you to all who helped ref Alendronic Acid
I am pleased to tell you, following my email to my Rheumatology Team, I had a telephone call from my Consultant who was very understanding relating to my unwillingness to take Alendronic Acid as prescribed and issued. Your repsonses gave me the courage I needed to continue objecting to it. He is
I am pleased to tell you, following my email to my Rheumatology Team, I had a telephone call from my Consultant who was very understanding relating to my unwillingness to take Alendronic Acid as prescribed and issued. Your repsonses gave me the courage I needed to continue objecting to it. He is
Knip
in
Bone Health and Osteoporosis UK
9 months ago
Prolia
I have just received an email from my GP who has arranged for a F2F appointment to see me beginning January to discuss me starting to take Prolia. My last Dexascan in 2021 did show that I have osteoporosis, and I did take Alendronic Acid for the first two years of having Polymyalgia. Since then I have
I have just received an email from my GP who has arranged for a F2F appointment to see me beginning January to discuss me starting to take Prolia. My last Dexascan in 2021 did show that I have osteoporosis, and I did take Alendronic Acid for the first two years of having Polymyalgia. Since then I have
Purplegloss
in
PMRGCAuk
6 months ago
Nagalase count
My nagalase count is declining. 1.55 -1.37 - 1.12 today. The Clioquinol +zinc +ivermicetin is still working on the way to zero. PSA is steady at 32 Nagalase is an enzyme that cancer cells produce to protect themselves from the immune system.
My nagalase count is declining. 1.55 -1.37 - 1.12 today. The Clioquinol +zinc +ivermicetin is still working on the way to zero. PSA is steady at 32 Nagalase is an enzyme that cancer cells produce to protect themselves from the immune system.
agnut
in
Fight Prostate Cancer
2 months ago
First treatment of Taxotere
I haven't posted in a long time. My husband is going to have his first chemo treatment of Taxotere in about a week. He has ben fighting metastatic stage 4 prostate cancer for five years. Thankfully it has stayed in the bones and not spread to any organs. For those who have had this treatment, can
I haven't posted in a long time. My husband is going to have his first chemo treatment of Taxotere in about a week. He has ben fighting metastatic stage 4 prostate cancer for five years. Thankfully it has stayed in the bones and not spread to any organs. For those who have had this treatment, can
MsHope
in
Advanced Prostate Cancer
6 months ago
My SCT journey continues
Hi all, not posted for a while but I am now at day+33 and finally starting to feel a bit normal again. I had very bad mucositis following sct and then problems with fluid retention due to all the IVs, mainly tpn as the ng feeding tube didn't stay in. Anyway looks like I'm going home on Friday so that's
Hi all, not posted for a while but I am now at day+33 and finally starting to feel a bit normal again. I had very bad mucositis following sct and then problems with fluid retention due to all the IVs, mainly tpn as the ng feeding tube didn't stay in. Anyway looks like I'm going home on Friday so that's
Flyingsteamer
in
MPN Voice
2 months ago
Repeat Lutetium/ Pluvicto treatment
Hello all, I am just curious if anyone has experience doing additional lutetium treatments. I did three lutetium treatments from September 2021 to January 2022. My Denver oncologist is concerned about bone marrow toxicity , but he does not have enough experience with this treatment to say for sure.
Hello all, I am just curious if anyone has experience doing additional lutetium treatments. I did three lutetium treatments from September 2021 to January 2022. My Denver oncologist is concerned about bone marrow toxicity , but he does not have enough experience with this treatment to say for sure.
Eugmn
in
Advanced Prostate Cancer
5 months ago
TSAT low but Ferritin fine/maybe high
Hi everyone, I do appreciate reading all of your posts and am sorry for how much suffering is connected to RLS. It's very encouraging to read about a number of people finding solutions to their RLS. I am seeing improvement but have some questions that I hope you can help me with: RLS has been a
Hi everyone, I do appreciate reading all of your posts and am sorry for how much suffering is connected to RLS. It's very encouraging to read about a number of people finding solutions to their RLS. I am seeing improvement but have some questions that I hope you can help me with: RLS has been a
b1interest
in
Restless Legs Syndrome
3 months ago
does anyone out there have histamine intolerance?
hi I’ve just changed from hydroxicarbamide to interferon. Seems ok, fingers crossed, but I also have histamine intolerance amd the absence of Hydroxicarbamide seems to be allowing my mast cells to have a high old time churning out histamine. Has anyone else experienced this? Louise
hi I’ve just changed from hydroxicarbamide to interferon. Seems ok, fingers crossed, but I also have histamine intolerance amd the absence of Hydroxicarbamide seems to be allowing my mast cells to have a high old time churning out histamine. Has anyone else experienced this? Louise
Loubprv
Volunteer
in
MPN Voice
3 months ago
Help with results!
Hi everyone! Hoping that I can get some advice here. I was diagnosed 3 years ago with endo via laparoscopy. Most of the endo was found on my pouch of douglas and ureteral sacral ligaments. Unfortunately the operation wasn’t done by an endo specialist! I recently got referred to an endo centre as
Hi everyone! Hoping that I can get some advice here. I was diagnosed 3 years ago with endo via laparoscopy. Most of the endo was found on my pouch of douglas and ureteral sacral ligaments. Unfortunately the operation wasn’t done by an endo specialist! I recently got referred to an endo centre as
LJC1416
in
Endometriosis UK
3 months ago
Lansoprazole /Prolia
In my Sunday newspaper today the usual GP column has a question put to the GP about Lansoprazole use. Following a mini stroke this lady was put on various tablets one of which was Lansoprazole, and she developed pains in her legs and hips, had a scan and was told she had early-stage osteoporosis. She
In my Sunday newspaper today the usual GP column has a question put to the GP about Lansoprazole use. Following a mini stroke this lady was put on various tablets one of which was Lansoprazole, and she developed pains in her legs and hips, had a scan and was told she had early-stage osteoporosis. She
Purplegloss
in
PMRGCAuk
3 months ago
Provider “B”-ware: Using Methylmalonic Acid Levels to Diagnose B12-deficiency Neuropathy
[i]"We present a patient with findings of subacute combined degeneration (SCD) in the setting of a mild B12 deficiency, with a normal methylmalonic acid level."[/i] https://www.neurology.org/doi/abs/10.1212/WNL.0000000000208306 Although this will not be news to old-timers here, it's important to note
[i]"We present a patient with findings of subacute combined degeneration (SCD) in the setting of a mild B12 deficiency, with a normal methylmalonic acid level."[/i] https://www.neurology.org/doi/abs/10.1212/WNL.0000000000208306 Although this will not be news to old-timers here, it's important to note
Technoid
in
Pernicious Anaemia Society
3 months ago
scheduled for Botox and tag removal. Possible hemrrhoidectomy
hey everyone! I’ve been dealing with anal fissures on and off ever since giving birth back in 2016. I used to be able to go months and months before having a retear. Then I started noticing I’d tear around my period. Then in 2023 I stopped working out and I noticed I got fissures every month!!! It’s
hey everyone! I’ve been dealing with anal fissures on and off ever since giving birth back in 2016. I used to be able to go months and months before having a retear. Then I started noticing I’d tear around my period. Then in 2023 I stopped working out and I noticed I got fissures every month!!! It’s
Sufferedtoolong
in
Pelvic Pain Support Network
3 months ago
House legislation aims to close a regulatory loophole to improve patient safety of nuclear medicine diagnostic tests in oncology&cardiology
[i]News to me, but something to think about the next time you go for a PET/CT scan or Pluvicto treatment. An issue that is definitely one our patient community should be aware of and legislation we should all support. Here is the final text of the proposed legislation:[/i] [i]
* * *
[/i] PRO-PATIENT
[i]News to me, but something to think about the next time you go for a PET/CT scan or Pluvicto treatment. An issue that is definitely one our patient community should be aware of and legislation we should all support. Here is the final text of the proposed legislation:[/i] [i]
* * *
[/i] PRO-PATIENT
cujoe
in
Fight Prostate Cancer
6 months ago
immunotherapy
anyone that been on Opdiva/Yervoy combo? May I know side-effects and whether it worked? It’s to control a tumor on my back psoas muscle, which was the spreading of OVCA clear cell 6 years after initial diagnosis. TIA.
anyone that been on Opdiva/Yervoy combo? May I know side-effects and whether it worked? It’s to control a tumor on my back psoas muscle, which was the spreading of OVCA clear cell 6 years after initial diagnosis. TIA.
Leniko
in
My Ovacome
6 months ago
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