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Experiences with
Levodopa / Carbidopa / Entacapone
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Drug induced Dyskinesia - some measures to control
Dear all, My mom is 59 years old, diagnosed Parkinson's two years back post COVID, takes the below set of medications currently. Levodopa/Carbidopa
CR
100/25 mg - 1/2-1/4-1/4-1/2 (6.30am-11am-3.30pm-6.30pm) Ropinirole
CR
2mg 1-0-0-1 (10:00am - 8.00pm) Safinamide 100 mg (1-0-0-1) (
Dear all, My mom is 59 years old, diagnosed Parkinson's two years back post COVID, takes the below set of medications currently. Levodopa/Carbidopa
CR
100/25 mg - 1/2-1/4-1/4-1/2 (6.30am-11am-3.30pm-6.30pm) Ropinirole
CR
2mg 1-0-0-1 (10:00am - 8.00pm) Safinamide 100 mg (1-0-0-1) (
gdineshnathan
in
Cure Parkinson's
11 months ago
For People With Parkinson's Taking Levodopa Medication: The Danger of B6 Deficiency Is Dire and Vastly Outweighs the Danger of B6 Excess
Vitamin B6 is an essential cofactor for over 100 enzymatic reactions. We need abundant B6 to keep what is left of our dopaminergic neurons as healthy as possible, especially since they are already compromised by Parkinson's. Levodopa medication depletes vitamin B6. B6 is only present in foods in low
Vitamin B6 is an essential cofactor for over 100 enzymatic reactions. We need abundant B6 to keep what is left of our dopaminergic neurons as healthy as possible, especially since they are already compromised by Parkinson's. Levodopa medication depletes vitamin B6. B6 is only present in foods in low
park_bear
in
Cure Parkinson's
11 months ago
Withdrawal when trying to reduce Levodopa
I was wondering if PwP who have used Levodopa long term and in high doses have ever experienced withdrawal symptoms when tapering or stopping the treatment with Levodopa (L/C or Levodopa/Benzarazide).If you have, I would be grateful if you could describe the withdrawal symptoms you have had, and how
I was wondering if PwP who have used Levodopa long term and in high doses have ever experienced withdrawal symptoms when tapering or stopping the treatment with Levodopa (L/C or Levodopa/Benzarazide).If you have, I would be grateful if you could describe the withdrawal symptoms you have had, and how
Daisies22
in
Cure Parkinson's
8 months ago
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Riboflavin (b2) supplementation is a no-brainer for Parkinsons
Riboflavin (b2) is a complete no-brainer. 0 side effects and dirt cheap. Especially if your second and third toes any toenails are full of fungus/athletes foot. The Chinese believe that your second and third toe is a place where toxins leave the body. The Chinese believe PD is “stuck” in fight or
Riboflavin (b2) is a complete no-brainer. 0 side effects and dirt cheap. Especially if your second and third toes any toenails are full of fungus/athletes foot. The Chinese believe that your second and third toe is a place where toxins leave the body. The Chinese believe PD is “stuck” in fight or
38yroldmale
in
Cure Parkinson's
8 months ago
Vodobatinib
Anyone heard about this? Note on *SPARC's Vodobatinib* for *Parkinson's Disease*: SPARC, a pioneering force in the pharmaceutical arena, is making significant strides with its flagship *Neurological* program asset, Vodobatinib. Currently, Vodobatinib is undergoing trials for three critical indications
Anyone heard about this? Note on *SPARC's Vodobatinib* for *Parkinson's Disease*: SPARC, a pioneering force in the pharmaceutical arena, is making significant strides with its flagship *Neurological* program asset, Vodobatinib. Currently, Vodobatinib is undergoing trials for three critical indications
JayPwP
in
Cure Parkinson's
8 months ago
Under the tongue use of carbidopa/levodopa
Anybody out there have experience with sublingual use of carbidopa/levodopa tablets?
Anybody out there have experience with sublingual use of carbidopa/levodopa tablets?
brauncs
in
Cure Parkinson's
1 year ago
DIY Parkinson's Glove Users - How are you adjusting?
Hi I'm interested in anecdotal information from those who are using a DIY version of a vibrotactile glove specifically on how you have adjusted (or not adjusted) your medication over the course of your glove testing. I'm trying to see if there are any trends that would imply that this is replacing
Hi I'm interested in anecdotal information from those who are using a DIY version of a vibrotactile glove specifically on how you have adjusted (or not adjusted) your medication over the course of your glove testing. I'm trying to see if there are any trends that would imply that this is replacing
JacksMomTX
in
Cure Parkinson's
8 months ago
Citicoline Warning
Citicoline and choline contain the trimethylamine structure which can be detached by gut bacteria into standalone trimethylamine. Trimethylamine is toxic. Excessive intake of choline results in a dramatic increase in the risk of cardiovascular disease. My writing on this subject here: https://tinyurl.com
Citicoline and choline contain the trimethylamine structure which can be detached by gut bacteria into standalone trimethylamine. Trimethylamine is toxic. Excessive intake of choline results in a dramatic increase in the risk of cardiovascular disease. My writing on this subject here: https://tinyurl.com
park_bear
in
Cure Parkinson's
8 months ago
Easy-to-use inhaled levodopa system readying request for US approval
That’s according to results from a company-sponsored clinical trial (NCT06037590) comparing the pharmacological properties of Levodopa Cyclops against those of Inbrija, an approved inhaled powder formulation of levodopa developed by Acorda Therapeutics. “This randomized cross-over trial of Levodopa
That’s according to results from a company-sponsored clinical trial (NCT06037590) comparing the pharmacological properties of Levodopa Cyclops against those of Inbrija, an approved inhaled powder formulation of levodopa developed by Acorda Therapeutics. “This randomized cross-over trial of Levodopa
Farooqji
in
Cure Parkinson's
8 months ago
Guidance for RLS
Hi Everyone, I'm new to this forum and am so glad to have found you. I have suffered with RLS for years, and in the past year, it's become pretty severe. I get VERY little sleep. Currently, I'm taking Gabapentin and Magnesium Glycinate, but neither are helping--yet. I did take Carbidopa-Levodopa for
Hi Everyone, I'm new to this forum and am so glad to have found you. I have suffered with RLS for years, and in the past year, it's become pretty severe. I get VERY little sleep. Currently, I'm taking Gabapentin and Magnesium Glycinate, but neither are helping--yet. I did take Carbidopa-Levodopa for
PinkTLC
in
Restless Legs Syndrome
1 year ago
Seeking Advise
Hello fellow Parkies I am in dire need for some advise regarding the dosage of my medications. I am in my 7th year since diagnosed with Parkinson's and I have for most of the time been on Madopar (200mg of levodopa and 50mg of benserazide). I started of with half a tablet 3 x per day, later increased
Hello fellow Parkies I am in dire need for some advise regarding the dosage of my medications. I am in my 7th year since diagnosed with Parkinson's and I have for most of the time been on Madopar (200mg of levodopa and 50mg of benserazide). I started of with half a tablet 3 x per day, later increased
Mischl
in
Cure Parkinson's
8 months ago
Mayo Clinics' take on Levodopa
Read the article here : https://www.mayoclinicproceedings.org/article/S0025-6196(20)30152-X/fulltext
Read the article here : https://www.mayoclinicproceedings.org/article/S0025-6196(20)30152-X/fulltext
pdpatient
in
Cure Parkinson's
8 months ago
Interesting Article: Promising new remedies for Parkinson's disease
Update:
I read and researched as I was posting this. I am happy they put NR and PEA in their article, but I think they got a little over their skis stating they had found a "
A dynamic quartet
" [u]
Update Again! Please see Park Bear's Citicoline Warning
[/u] https://healthunlocked.com
Update:
I read and researched as I was posting this. I am happy they put NR and PEA in their article, but I think they got a little over their skis stating they had found a "
A dynamic quartet
" [u]
Update Again! Please see Park Bear's Citicoline Warning
[/u] https://healthunlocked.com
Bolt_Upright
in
Cure Parkinson's
8 months ago
MDDoctors
Do MDD have the time to look at the research that's going on in treating Parkinsons?Do they dismiss anything that's not peer reviewed. e.g My wife who's being treated for Parkinsons, has for the past year, suffered, leg/ calf cramp, wher she has to stop a few times and basically try and stretch it off
Do MDD have the time to look at the research that's going on in treating Parkinsons?Do they dismiss anything that's not peer reviewed. e.g My wife who's being treated for Parkinsons, has for the past year, suffered, leg/ calf cramp, wher she has to stop a few times and basically try and stretch it off
Allypally49
in
Cure Parkinson's
9 months ago
park_bear made a very compelling argument for taking P5P (active B6)
park_bear made a very compelling argument for taking P5P (active B6)(a). My comments are: 1) When I tried taking (his recommended) 2 hours after C/L, I started walking side to side and the problem didn’t clear until I took my C/L again. 2) I am afraid to take P5P before bed because I did not sleep
park_bear made a very compelling argument for taking P5P (active B6)(a). My comments are: 1) When I tried taking (his recommended) 2 hours after C/L, I started walking side to side and the problem didn’t clear until I took my C/L again. 2) I am afraid to take P5P before bed because I did not sleep
Gcf51
in
Cure Parkinson's
10 months ago
AbbVie announces EU availability of Parkinson's therapy
A cutting-edge skin patch, equipped with a miniature pump, administers a continuous 24-hour subcutaneous infusion of a therapy based on levodopa. My neurologist recommended this innovative approach as a more convenient alternative to managing our medication, eliminating the need for multiple pills throughout
A cutting-edge skin patch, equipped with a miniature pump, administers a continuous 24-hour subcutaneous infusion of a therapy based on levodopa. My neurologist recommended this innovative approach as a more convenient alternative to managing our medication, eliminating the need for multiple pills throughout
LuckyLuke
in
Cure Parkinson's
9 months ago
Restless foot
Hi ugly sick old men, lately I've had an annoying problem with my right foot, and especially in bed at night I can't keep it still. Definitely a form of dyskinesia caused by Levodopa. Tips for solving the problem? Thank you .
Hi ugly sick old men, lately I've had an annoying problem with my right foot, and especially in bed at night I can't keep it still. Definitely a form of dyskinesia caused by Levodopa. Tips for solving the problem? Thank you .
Axter
in
Cure Parkinson's
9 months ago
HELP finding my pills! 2 years on Carbidopa/Levadopa ER 25/100. My pharmacy changed from Accord (pink pills) to blue pills that don’t work.
i can’t find the Accord (generic) pills near me here in Orlando FL. I’m wondering if they are discontinued. There’s some rumblings in the internet of the 25/100 being discontinued I tried to contact Accord manufacturer in NC but I’ll need to call tomorrow. I have the prescription and pills for a
i can’t find the Accord (generic) pills near me here in Orlando FL. I’m wondering if they are discontinued. There’s some rumblings in the internet of the 25/100 being discontinued I tried to contact Accord manufacturer in NC but I’ll need to call tomorrow. I have the prescription and pills for a
Nikosmom
in
Cure Parkinson's
10 months ago
What kind of "unusual body movements" does stopping Levodopa cause?
"If you suddenly stop taking levodopa and carbidopa, you could develop a serious syndrome that causes fever, rigid muscles,
unusual body movements
, and confusion." https://medlineplus.gov/druginfo/meds/a601068.html#:~:text=Do%20not%20stop%20taking%20levodopa,probably%20decrease%20your%20dose%20gradually
"If you suddenly stop taking levodopa and carbidopa, you could develop a serious syndrome that causes fever, rigid muscles,
unusual body movements
, and confusion." https://medlineplus.gov/druginfo/meds/a601068.html#:~:text=Do%20not%20stop%20taking%20levodopa,probably%20decrease%20your%20dose%20gradually
Gcf51
in
Cure Parkinson's
10 months ago
Calling for B6 test results in PD: Unveiling the dosage dilemma
It is remarkable that there is no known study where guidelines are given on the degree of B6 supplementation while a good B6 balance is crucial in PD treatment. Through HU, I have gathered a database of B6 test results from PD patients. Some from PWP without supplementation, and some with. Preliminary
It is remarkable that there is no known study where guidelines are given on the degree of B6 supplementation while a good B6 balance is crucial in PD treatment. Through HU, I have gathered a database of B6 test results from PD patients. Some from PWP without supplementation, and some with. Preliminary
Esperanto
in
Cure Parkinson's
11 months ago
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