Started Costentino/Bryant B1 Protocol 6 weeks ago, using the injection method. Utterly stunned after 3 days to already feel a considerable improvement. Can this be real?
Improvements continue over 4 weeks. My life has changed. Yes, Daphne is right, I felt at least 70% better. Time to up the dose to 2mL twice a week, and attack the remaining 30%.
After the third injection, I developed really nasty hiccups (!?). I've stopped the B jabs, but the hiccups remain and indeed have now become a series of seizures.
I was with my neurologiste last during an attack. Apparently, the classic meds for chronic hiccups interfere with the Levodopa meds. Hiccups can initiate in the Substantia Nigra area of ones brain.
I remain totally committed to the B1 Protocol. It's my only hope of leading a reasonable life from here on in. Daphne says in her book that finding the right dose is problematic, and that symptoms can worsen. Clearly the full 2mL jab is an overdose for me. I need to fix my hiccups so that I can get back on the half dose jab which I know works.
I live in Cannes in the South of France Explaining the B1 protocol to French medics is "interesting" to say the least. So my question is; has anyone out there had chronic hiccups following the B1 protocol, and if so how was it fixed? Any help, would be much appreciated.
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FoieGras
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Thanks for your reply. I do take Pramipexole since two years without any problems. My problem is very specific. I upped my dose from 1ml to 2ml jabs twice a week. Nothing else changed. After the third 2ml jab, the hiccups commenced. Now, two weeks later, the hiccups have become seizures. Not pretty at all. I saw my neurologist last Thursday, she prescribed Oméprazole which didn't work. She told me to try it and if it didn't work to try Gabapentine. This is a treatment for Epilepsy. I've taken 4 of these now, and fingers crossed, they seem to be working. I'll know this evening as the attacks appear with a vengeance after 16h00 .
I'm convinced I'm one of the few who has had a reaction to the higher dose of B1. The upshot of this is it has reinforced my belief in the B1 treatment. When I first started the effect was breath taking. Now, having stopped the jabs pending getting the hiccups sorted, many of my Parkinson's symptoms have returned. I'll take the gabapentine for 15 days and then go back on the 1ml dose of B1. After that I'll maybe try 1.5ml twice a week that will do it for me. More to follow......😃
If you are improving on b1 and still on the same dose of medications then perhaps you can slowly start weaning down the medication dose. Maybe the pramipexole is now overdosing you causing the hiccups? Given that it a side effect of that drug?
You could try what Dr Huberman calls the scientifically proven way to eliminate hiccup. Dr Huberman is a neuroscientist and associate professor of neurobiology at Stanford University School of Medicine. You have nothing to lose. It takes only 5 minutes to watch the video
That was a cool video! I look forward to trying it. Though unfortunately I suspect what Foiegras has are not regular hiccups and thus they would not respond to regular treatments.
It is convulsions, it happened to me many years ago on introducing other PD meds. Remember your injection is the route straight to the brain and the same effect as several thousand mg taken by pills orally. I think you are overdosing when you should be slowly getting used to it.
you need to stop the B1 injections for a week or two until you get back to where you where then restart with one injection per week of one ml.
do not increase for 6 weeks and only if you really have to . If convulsion restart again take another holiday with no injections until they stop and then do injections one ml every two weeks or 1/2 dose every two weeks.
This is typical starting method used on PD meds for many years. They are difficult to get used to and an insult to your body. We all want to eliminate all the PD symptoms but we can not . If you have an improvement , be satisfied and seize the opportunity to do more exercise, that is where you will increase the benefit.
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