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Give me my personality back
I’ve been resisting levodopa replacement therapy for two years but, no matter what I try (including diet, supplements, exercise and B1), the old me is fading away. All the things I enjoy doing are impacted. It’s not depression, as such, because part of me says “pull yourself together and live with the
I’ve been resisting levodopa replacement therapy for two years but, no matter what I try (including diet, supplements, exercise and B1), the old me is fading away. All the things I enjoy doing are impacted. It’s not depression, as such, because part of me says “pull yourself together and live with the
Hidden
in
Cure Parkinson's
6 years ago
Can Rytary make your anxiety worse or not work at all? Does anyone else suffer from severe anxiety? Experienced Dystonic type attacks?
I was diagnosed on my 28th BDay as having PD and I will be 45 this year. I used to not question it too much but this past year has been more than difficult and I am having new issues that make me wonder if I have PD or some type of anxiety disorder. It all started with a tremor that started in my right
I was diagnosed on my 28th BDay as having PD and I will be 45 this year. I used to not question it too much but this past year has been more than difficult and I am having new issues that make me wonder if I have PD or some type of anxiety disorder. It all started with a tremor that started in my right
Darkflower
in
Cure Parkinson's
6 years ago
I'm new here
Just a short note to say hello - Vietnam Vet. Sept makes 5 years having PD. So far all I've been taking for it is Carbidopa 25 / Levodopa 100mg Got to go for now...
Just a short note to say hello - Vietnam Vet. Sept makes 5 years having PD. So far all I've been taking for it is Carbidopa 25 / Levodopa 100mg Got to go for now...
PDinFLA
in
Cure Parkinson's
6 years ago
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Baricella 2016 levodopa diet
Baricella 2016 levodopa diet Dietary habits and neurological features of Parkinson's disease patients: Implications for practice. https://www.ncbi.nlm.nih.gov/pubmed/27406858 Abstract. BACKGROUND & AIMS: Parkinson's disease (PD) patients can benefit considerably from appropriate nutritional care
Baricella 2016 levodopa diet Dietary habits and neurological features of Parkinson's disease patients: Implications for practice. https://www.ncbi.nlm.nih.gov/pubmed/27406858 Abstract. BACKGROUND & AIMS: Parkinson's disease (PD) patients can benefit considerably from appropriate nutritional care
aspergerian
in
Cure Parkinson's
6 years ago
Ensure plus - too much protein ?
I have been drinking 3 to 5 Ensuring plus per day. I seem stuffed. Is Eplus interfering with Levodopa \ dopamine and motor function?
I have been drinking 3 to 5 Ensuring plus per day. I seem stuffed. Is Eplus interfering with Levodopa \ dopamine and motor function?
aspergerian
in
Cure Parkinson's
6 years ago
Nausea sluggish heated no motivation
So I’ve had PD for 5 years. I’m 58. I wake up nauseas and feel if I move around too much when I wake up I feel worse. I take two C/L and one entacapone at 8 on an empty stomach then go to work and have banana apple and or protein shake. Sometimes I just have crackers cause I’m trying to get rid of nausea
So I’ve had PD for 5 years. I’m 58. I wake up nauseas and feel if I move around too much when I wake up I feel worse. I take two C/L and one entacapone at 8 on an empty stomach then go to work and have banana apple and or protein shake. Sometimes I just have crackers cause I’m trying to get rid of nausea
Blake0488
in
Cure Parkinson's
6 years ago
the ability to detect on-off states using the REMPARK system.
A "HOLTER" for Parkinson's disease: Validation of the ability to detect on-off states using the REMPARK system. Bayés À, et al. Gait Posture. 2018. https://www.ncbi.nlm.nih.gov/m/pubmed/28963889/?i=5&from=/29456046/related Abstract. The treatment of Parkinson's disease (PD) with levodopa is very effective
A "HOLTER" for Parkinson's disease: Validation of the ability to detect on-off states using the REMPARK system. Bayés À, et al. Gait Posture. 2018. https://www.ncbi.nlm.nih.gov/m/pubmed/28963889/?i=5&from=/29456046/related Abstract. The treatment of Parkinson's disease (PD) with levodopa is very effective
aspergerian
in
Cure Parkinson's
6 years ago
Can you.take to much Carbidopa l-dppa
And what is the most can take
And what is the most can take
nicp1234
in
Cure Parkinson's
6 years ago
Mucuna Pruriens-Varying Amounts of L-dopa Confusing
I bought mucuna Kapikakacchu powder first and have no idea the content of L-dopa but it works. I took 1 tbsp. 2x a day. The whole powder doesn't seem as smooth when I come off of it but is supposed to have beneficial ingredients. Just not sure how much to take but once a day to replace another dose of
I bought mucuna Kapikakacchu powder first and have no idea the content of L-dopa but it works. I took 1 tbsp. 2x a day. The whole powder doesn't seem as smooth when I come off of it but is supposed to have beneficial ingredients. Just not sure how much to take but once a day to replace another dose of
rideabike
in
Cure Parkinson's
6 years ago
Hello
Hello. My name is Jese. I was diagnosed 10.2017 with Parkinson’s. I had been dealing with symptoms of extreme fatigue, balance problems, tiredness and dystonia on my right foot for almost 7 years and going back and forth with neurologists until I finally got my 4th diagnosis and began Carbidopa the same
Hello. My name is Jese. I was diagnosed 10.2017 with Parkinson’s. I had been dealing with symptoms of extreme fatigue, balance problems, tiredness and dystonia on my right foot for almost 7 years and going back and forth with neurologists until I finally got my 4th diagnosis and began Carbidopa the same
procaffeinator
in
Cure Parkinson's
6 years ago
A randomised, double-blind, placebo-controlled clinical trial of Zishenpingchan granules
Results demonstrated that Zishenpingchan granules significantly reduced the occurrence of motor complications, and were useful for mitigating dyskinesia and non-motor symptoms of Parkinson’s disease. This combination of Chinese and Western medicine has the potential to reduce levodopa dosages, and no
Results demonstrated that Zishenpingchan granules significantly reduced the occurrence of motor complications, and were useful for mitigating dyskinesia and non-motor symptoms of Parkinson’s disease. This combination of Chinese and Western medicine has the potential to reduce levodopa dosages, and no
Farooqji
in
Cure Parkinson's
6 years ago
How far apart Vitamin B1 and Carbidopa Levadopa
Hello everyone, i just received my B1 Vitamin 500mg, Do you know if i can take it with my Carbidopa pills? or how far apart? I am supposed to take 8 day but I will start with 4 for now. Thank you so much for the advice.
Hello everyone, i just received my B1 Vitamin 500mg, Do you know if i can take it with my Carbidopa pills? or how far apart? I am supposed to take 8 day but I will start with 4 for now. Thank you so much for the advice.
Menchita1017
in
Cure Parkinson's
6 years ago
Mucana pruriens question
is 700 mg of 20% L dopa in mucana pruriens the same as 140 mg? I’m thinking of swiping from 50-200 sinemet xr to mucana. I see my neurologist tomorrow
is 700 mg of 20% L dopa in mucana pruriens the same as 140 mg? I’m thinking of swiping from 50-200 sinemet xr to mucana. I see my neurologist tomorrow
1953bullard
in
Cure Parkinson's
6 years ago
Sinemet: factors affecting variability - gastric emptying
Sage et al 1994 summarily present factors which affect availability of levodopa. Roos et al 1993 compare C/L levels after empty-stomach ingestion with C/L levels after C/L has been ingested with a meal. Chen et al 2012 describe a newer form of controlled release Sinemet: gastric-retentive extended-release
Sage et al 1994 summarily present factors which affect availability of levodopa. Roos et al 1993 compare C/L levels after empty-stomach ingestion with C/L levels after C/L has been ingested with a meal. Chen et al 2012 describe a newer form of controlled release Sinemet: gastric-retentive extended-release
aspergerian
in
Cure Parkinson's
6 years ago
More Than 1 Million Cases of Parkinson’s Predicted in the US by 2030, Study Reports
Good news for Pharmaceutical companies manufacturing L-dopa based medicines https://parkinsonsnewstoday.com/2018/07/12/1-2-million-cases-parkinsons-predicted-2030-united-states-study/
Good news for Pharmaceutical companies manufacturing L-dopa based medicines https://parkinsonsnewstoday.com/2018/07/12/1-2-million-cases-parkinsons-predicted-2030-united-states-study/
Farooqji
in
Cure Parkinson's
6 years ago
The 5 WHYs and Parkinson’s
This is an edited version of this post. Unfortunately I appear to have deleted the whole thread apologies to all🤭 5 why’s and Parkinson’s There is a problem solving technique known as the 5 WHYs it’s used in manufacturing industry and cognitive behavioural therapy. You’re meant to be able to get
This is an edited version of this post. Unfortunately I appear to have deleted the whole thread apologies to all🤭 5 why’s and Parkinson’s There is a problem solving technique known as the 5 WHYs it’s used in manufacturing industry and cognitive behavioural therapy. You’re meant to be able to get
Hidden
in
Cure Parkinson's
6 years ago
I can not take any extender that is used for Carbidopa-Levodopa.
This includes any extender one that is added to Carbidopa-Levodopa or any that are stand alone. This includes For me Rytary, Sinemet time release. If i take any extended release Carbidopa-Levodopa i have bouts of depression , i cry for no reason. I get angry i cuss and fuss. [i] [/i] I can not think
This includes any extender one that is added to Carbidopa-Levodopa or any that are stand alone. This includes For me Rytary, Sinemet time release. If i take any extended release Carbidopa-Levodopa i have bouts of depression , i cry for no reason. I get angry i cuss and fuss. [i] [/i] I can not think
Bailey_Texas
in
Cure Parkinson's
6 years ago
Syncope, orthostatic hypotension, levodopa.
https://rarediseases.org/rare-diseases/orthostatic-hypotension/ Affected individuals may experience a temporary loss of consciousness or “blackout,” a condition known as syncope. There may be a gradual build up to an episode of syncope or it can occur suddenly. A serious complication of OH is the
https://rarediseases.org/rare-diseases/orthostatic-hypotension/ Affected individuals may experience a temporary loss of consciousness or “blackout,” a condition known as syncope. There may be a gradual build up to an episode of syncope or it can occur suddenly. A serious complication of OH is the
aspergerian13
in
Cure Parkinson's
6 years ago
Stop B6
"This because vitamin B6 is a facilitator of the peripheral decarboxylase and in PwP may interfere with the amount of L-dopa that reaches the brain and thus worsen the symptoms".
"This because vitamin B6 is a facilitator of the peripheral decarboxylase and in PwP may interfere with the amount of L-dopa that reaches the brain and thus worsen the symptoms".
Hidden
in
Cure Parkinson's
6 years ago
tremor
dr c told me with the thiamine treatment you are taking (3000mg)which keep your cerebral cells normal there is no possibility it can give you long term damage"has anyone been taking l-dopa and thiamine for tremors with no side effects?
dr c told me with the thiamine treatment you are taking (3000mg)which keep your cerebral cells normal there is no possibility it can give you long term damage"has anyone been taking l-dopa and thiamine for tremors with no side effects?
football10
in
Cure Parkinson's
6 years ago
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