My husband was diagnosed with Parkinson’s in 2013. His symptoms varied with drooling, unable to turn in bed, slow movements, un-animated face,but no tremors. Over time more little symptoms crept in but nothing severe. On his latest visit to the docto, we discussed his visit with a movement disorder specialist who suggested upping his meds from 6 a day to 8 a day to help with difficulty walking. We tried that for a few weeks but in our discussion with the doctor he then wondered if my husband might have Parkinson’s Plus! He suggested we try reducing his meds one pill at a time to see if any changes.
There was a major change when down to 3! Not for the good. My husband the developed “Capgras Syndrome “! This is when the patient doesn’t recognize his own spouse or caregiver! Scariest thing ever! He thought I was an imposter! He was very agitated and want ed to know what had happened to his wife and where was she! It was quite an ordeal for me and him! We went back to the doctor each time he went into this syndrome and finally the doctor consulted with our neurologist who immediately said get him back on his levodopa/ carbidopa 6 a day!! We did that and he’s back to what we consider himself!! This was a very upsetting and scary experience for both of us. Just sharing this information in case the suggestion is given to anyone else and what our experience was.