I'm new here

[PDinFLA]

Just a short note to say hello - Vietnam Vet. Sept makes 5 years having PD. So far all I've been taking for it is Carbidopa 25 / Levodopa 100mg

Got to go for now...

[Hidden]

Hello and welcome. I of PD DX in 2012

[PixelPaul]

Welcome and thank you for your service.

[MBAnderson]

Welcome.

When were you there, where were you located, and what kind of unit where you with?

October 26, 1966 to October 27, 1967; Cu Chi, 1st Battalion, 27th Infantry.

[Kewlfox]

Welcome....

[Toogood]

Welcome.....

[JohnPepper]

Good Morning. I will pick up a lot of flak telling you this, probably because you did not ask for any advice as to what you can possibly do to help you deal with your Pd symptoms. Other than MAOb inhibitors, there are no medications on the market that do anything about slowing down or even reversing the progression of Pd. I would like you, and any other Pd sufferer know that there are other actions you can take to help you possibly GET BETTER. These actions do not cost you anything, which is probably why other people complain about me telling people this.

Yes, you can take action right now. Look at my PROFILE and look at my website, reverseparkinsons.net. Contact me, as many others have done and I will pass as much information as I can onto you, at not cost whatsoever.

[Tmarsella in reply to JohnPepper]

Forward your info to me please. Sr. Olympics track & Sr Mens Baseball participant age 77 with PD 2 yrs now.

[CplParkinson]

Welcome to the elite private special club with membership requirements of Parkinson's. Over here we have our tremble or shaking party, this side we have freezing, next on our tour is the memory loss, and so on so on.

[FMundo]

Do you think Agent Orange was a factor in your getting Parkinsons . . . or do you have a regular garden variety?

[MBAnderson in reply to FMundo]

Frank, Long time, no hear. You're probably asking PDinFLA? In my case, the VA acknowledges mine was probably caused by Agent Orange. They determine that having Parkinson's is a 20% disability. I just applied for a change of my disability status, but the veterans advocate I'm working with says it will be denied.

Is your PD from Agent Orange - the gift that keeps on giving?

What did you decide about N?

[FMundo in reply to MBAnderson]

I am in the Nilotinib Trial at Georgetown U. Been in it since May. 66% chance I'm on the real drug. June of next year I'll be on it 100% for 12 mos. How are you doing?

[MBAnderson in reply to FMundo]

Good, I'm glad you made it in.

I'm good, considering. Still not on PD drugs yet.

I hope it provides a noticeable benefit. Regrettably, I can't say it has for me, although I believe the underlying science makes sense, so it probably is helping me. I was taking 95 mg twice a day, but cut that down to 125 mg in the morning.

[DavDav in reply to MBAnderson]

I just received disability status and benefits. I was in Nam but never exposed to Agent Orange. I was told it did not matter. If you were in Vietnam and now have PD, you qualify. Don’t take no for an answer.

A proud disabled marine Vietnam vet!

[MBAnderson in reply to DavDav]

DavDav, what percent of disability did they allow for you? It seems to me, the 20% they allowed for me is pretty puny. I'm trying to get my hands on their disability definitions and guidelines for decisions.

[DavDav in reply to MBAnderson]

I also got 20% which I did not question since my symptoms were fairly mild. I have no idea how they decide the percentages.

[lce1 in reply to MBAnderson]

The MINIMU.M for Parkinson's is 30%, then you appeal and add the other symptoms/situations as they arrive. Incontinance, loss of taste/smell, sleep disorder, REM, depression, psychosis, ED, etc.etc. You may have to file for re adjusting based on new symptoms as you experience them.

[Erniediaz1018]

Welcome and thanks for serving.

[1182]

I live in Floirida and I have found many services. If you would like my email [e-mail]