Nourianz and Gocovori together

[pdpatient]

Anyone taking Nourianz and Gocovori together with Carbidopa /Levodopa?

I am following this regimen which has been largely benign. Just wanted to know if anyone else has experiences to share.

[Godiv]

hi PD patient. I liked Gocovri and didn’t have any issue with interactions. For a second I was thinking of another med.

but unfortunately my leg on the left kept swelling up. I was sorry to lose it because I think it helped.

[pdpatient in reply to Godiv]

Hi Godiv . Good to hear from you. How have you been?. Are you still on Rytary?

I might not have phrased my question properly. I am taking all those three medications together. I am getting good results but it's tricky sometimes. Nourianz and Gocovori do extend the off times and reduce the dyskinesia and dystonia. The tricky part is the Levodopa. Sometimes it is too much and sometimes it is too little. It's a little dependent on the day and unfortunately still too dependent on my food intake. Fasting still delivers the best results😢 and I yearn for the day that I can just take my medicine and go on with my life.

[caitilin in reply to pdpatient]

I also struggle with keeping my stomach empty to insure my levodopa is absorbed to the maximum possibly.

I’m curious if you’ve ever met someone who challenges your reason for the timing and/ or the content of your meals?

I run into people, more frequently than I care to; who question the validity of my feedback when they ask “ What’d ya mean, ‘protein interferes with the bioavailability of levodopa…’ ”.

It’s become a genuine annoyance. I don’t mind a sincere inquiry about PD’s oddities; however, I do resent it when someone participating in a conversation on that particular issue with the singular intent to discredit the information I’ve provided the person or people asking the question.

It usually starts out with a snicker; designed to put you on the defensive before they deliver a loud “… aw, c’mon; you’re making that up… I’ve never heard of that before…”. The antagonist continues firing slight insults, which later he calls “jokes” throughout the time it takes to answer others’ questions about the dynamics of eating food for those of us who carry the diagnosis.

I sometimes hear the twisted logic of a disrupter who asked the question in the first place, “Only the gullible would believe you Caitilin; and Bobby and Mary Anne are smart people. So, even though you live with PD, Bobby and Mary Anne here know what you’re saying is foolish enough to be a lie. Right Bobby?”

I honestly don’t know what attracts people to that sort of behavior; but I have reached the point where I shudder to hear, “….hey, what’s the deal; don’t you like double cheese on your pepperoni pizza….?

[ktbooks77 in reply to caitilin]

This guy is a jerk. Seems like it’s time to get him out of your life.

[pdpatient in reply to caitilin]

It takes a lot of awareness for someone without Parkinson's to understand what the disease is all about. It unfortunately comes across as cruel, even if they are intending to make light of the situation to "lessen the pain"

There is a need for more awareness and information. Until then, we just brush them off.

[Godiv in reply to pdpatient]

hi there ! I’ll probably message you that might be a little easier and spare the forum from my yakking L O L

[Myfatcat]

Sex therapy

[peminc]

In my case I take N and C/L but not the Goco. Been on for a half year. No problem. HOWEVER!!! I take my C/L in the form of long lasting Rytary.

[qazwsx11 in reply to peminc]

Any issues with constipation? Gocovry causes me strong constipation.

[caitilin]

true

[peminc]

Nope. Thank g0od nees. But I try to eat a "mediteranean" diet with roughage and brown rice and mixed grain bread. Meat no more than 40% of a plate. Plus exercise does help!