I have stopped using Neupro patches, but still have to take 3 x 100 mg Levodopa/Carbidopa because I also have Parkinson.
For the first time I took 100 mg Gabapentin at 8 pm. It made me feel dazed.
I went to bed at 11 pm. My legs didn't realy feel calm. At about 1 am RLS started to kick in and it is almost more intensiv than it used to be (it is 3.30 am now.
My question: IS THIS NORMAL IN THE BEGINNING ??
This is not what I had expected!
Who can give me advice?
Written by
wayoveryonder
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I would like to add to my contribution: The contractions in my legs don't cause pain, so I don't need tramadol. Should I wait to take gabapentin? I only stopped taking the Neupro patches three days ago and didn't realise that the body takes a long time to break them down.
If you stopped Neupro patches cold turkey- you'll go straight into RLS withdrawal. That causes 4 to 5 nights of severe RLS and no sleep.Go back on the Neupro Patch and reduce as per RLS-UK schedule. It's on the website under Useful resources.
I gave you advice on taking gabapentin and coming off Neupro in response to your last post at healthunlocked.com/rlsuk/po... RLS-UK says to cut them in fourths, but that is too much. I advise cutting them in sixths as it equals the amount that even RLS-UK says you should reduce ropinirole.
In the meantime I followed the recommendation of RLS-UK and switched to Ropinirol, since I had some left from before I has started Neupro Patches. - Thank you for your advice!
So far RLS has become much milder - actually after that one intake of Gabapentin it had been gone for 3 days!
8 days ago you were on the Neupro patch. You apparently stopped it cold turkey which is not advised. This causes big withdrawal symptoms and is probably what you are experiencing. My advice would to be to go back on it and reduce as I advised in your previous post.
I see that you live in Germany.German neurologists are still prescribing levodopa for RLS. The rest of the world stopped that a long time ago because of the high rate of drug-induced worsening.
As you also have Parkinson's, you will need to find a forward thinking neurologist.
Bart's Hospital here in the UK no longer prescribe dopamine agonists for PD.
I think you need to have a full discussion with your PD neurologist.
RLS can be worse than PD when it's severe. Ask if there are alternative drugs in Germany that are NOT dopamine agonists or levodopa.
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