The first night with Gabapentin is te... - Restless Legs Syn...

Restless Legs Syndrome

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The first night with Gabapentin is terrible

wayoveryonder profile image
13 Replies

I have stopped using Neupro patches, but still have to take 3 x 100 mg Levodopa/Carbidopa because I also have Parkinson.

For the first time I took 100 mg Gabapentin at 8 pm. It made me feel dazed.

I went to bed at 11 pm. My legs didn't realy feel calm. At about 1 am RLS started to kick in and it is almost more intensiv than it used to be (it is 3.30 am now.

My question: IS THIS NORMAL IN THE BEGINNING ??

This is not what I had expected!

Who can give me advice?

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wayoveryonder
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13 Replies
wayoveryonder profile image
wayoveryonder

I would like to add to my contribution: The contractions in my legs don't cause pain, so I don't need tramadol. Should I wait to take gabapentin? I only stopped taking the Neupro patches three days ago and didn't realise that the body takes a long time to break them down.

Madlegs1 profile image
Madlegs1 in reply towayoveryonder

The fact that you have PD complicates the situation.

However, you are probably suffering withdrawals from giving up the Neupro patch.

Especially if you came off it quite quickly?

The tramadol should help relieve the RLS, if you can tolerate it.

I would take it pronto.

You need your sleep.😎💚

Joolsg profile image
Joolsg in reply towayoveryonder

If you stopped Neupro patches cold turkey- you'll go straight into RLS withdrawal. That causes 4 to 5 nights of severe RLS and no sleep.Go back on the Neupro Patch and reduce as per RLS-UK schedule. It's on the website under Useful resources.

wayoveryonder profile image
wayoveryonder in reply toJoolsg

Thank you for your reply. - can you post the link to RLS-UK schedule please.

Joolsg profile image
Joolsg in reply towayoveryonder

It's on the website under 'Useful resources'.But here's the link.

rls-uk.org/useful-resources

SueJohnson profile image
SueJohnson in reply towayoveryonder

I gave you advice on taking gabapentin and coming off Neupro in response to your last post at healthunlocked.com/rlsuk/po... RLS-UK says to cut them in fourths, but that is too much. I advise cutting them in sixths as it equals the amount that even RLS-UK says you should reduce ropinirole.

wayoveryonder profile image
wayoveryonder in reply toSueJohnson

In the meantime I followed the recommendation of RLS-UK and switched to Ropinirol, since I had some left from before I has started Neupro Patches. - Thank you for your advice!

So far RLS has become much milder - actually after that one intake of Gabapentin it had been gone for 3 days!

SueJohnson profile image
SueJohnson in reply towayoveryonder

Great!

SueJohnson profile image
SueJohnson

I agree with Madlegs

SueJohnson profile image
SueJohnson

8 days ago you were on the Neupro patch. You apparently stopped it cold turkey which is not advised. This causes big withdrawal symptoms and is probably what you are experiencing. My advice would to be to go back on it and reduce as I advised in your previous post.

Joolsg profile image
Joolsg

I see that you live in Germany.German neurologists are still prescribing levodopa for RLS. The rest of the world stopped that a long time ago because of the high rate of drug-induced worsening.

As you also have Parkinson's, you will need to find a forward thinking neurologist.

Bart's Hospital here in the UK no longer prescribe dopamine agonists for PD.

I think you need to have a full discussion with your PD neurologist.

RLS can be worse than PD when it's severe. Ask if there are alternative drugs in Germany that are NOT dopamine agonists or levodopa.

wayoveryonder profile image
wayoveryonder

"Ask if there are alternative drugs in Germany that are NOT dopamine agonists or levodopa."

What alternative drugs to dopamine agonists or levodopa are available in the UK?

I also take 2 x 50 mg Amantadin. Would it be an option to encrease the dose?

SueJohnson profile image
SueJohnson in reply towayoveryonder

That is also a dopamine agonist like Neupro.

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