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Recovery from laparoscopic removal of Stage 4 Endo - bowel surgery - removal of ovarian cyst.
Hi guys, Please sorry to pop up again . I’ve just had my stage 4 endo surgery which affected my bowel which was worked on and I had ovarian cysts taken out as well. today makes it one week. Recovery seems like hell for me especially the past few days. peeing is my worst nightmare, extremely painful
Hi guys, Please sorry to pop up again . I’ve just had my stage 4 endo surgery which affected my bowel which was worked on and I had ovarian cysts taken out as well. today makes it one week. Recovery seems like hell for me especially the past few days. peeing is my worst nightmare, extremely painful
Micasmum
in
Endometriosis UK
2 years ago
Painful hip and leg pain
Still waiting on results of bone marrow , after being newly diagnosed withET. Hip and leg ever painful, can anyone advise if this is a symptom of ET, or just a aging problem. Worse after getting up from sitting and in bed.I’m still only taking aspirin. I have a appointment with MPN Specialist, but
Still waiting on results of bone marrow , after being newly diagnosed withET. Hip and leg ever painful, can anyone advise if this is a symptom of ET, or just a aging problem. Worse after getting up from sitting and in bed.I’m still only taking aspirin. I have a appointment with MPN Specialist, but
Hannah2308
in
MPN Voice
2 years ago
New here - Advice for talking to GP - could it be endometriosis? Painful periods, irregular bleeding, bowel & fertility issues
Hi everyone, I've never spoken with a GP specifically about endometriosis, but after speaking with a few people I have been wondering if it could be. I have been multiple times to GP about issues relating to menstruation (pain, irregular bleeding/spotting), bowel issues, and fertility as have been
Hi everyone, I've never spoken with a GP specifically about endometriosis, but after speaking with a few people I have been wondering if it could be. I have been multiple times to GP about issues relating to menstruation (pain, irregular bleeding/spotting), bowel issues, and fertility as have been
birdnerd
in
Endometriosis UK
2 years ago
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flare up big style ,
i came off tachrolimus months back as migraine and headaches and tinnitus was bad. I was put on iberofen tabs and stayed on prednisolone. The ibuprofen didnt work so went back on tachrolimus and went on co codamol. Had phone call at my 70th party!! My liver results high so stop all meds. Apart frm
i came off tachrolimus months back as migraine and headaches and tinnitus was bad. I was put on iberofen tabs and stayed on prednisolone. The ibuprofen didnt work so went back on tachrolimus and went on co codamol. Had phone call at my 70th party!! My liver results high so stop all meds. Apart frm
Seashoreshanty
in
NRAS
2 years ago
What to take after Methadone
I have been on Methadone for about 3 years and though it works well the constipation was so bad, I finally came off of Methadone and want to go on a drug that isn't an opiod. Does anyone have any suggestion. Been on requip, Mirapex, gabapentin and wondering what will work? I just cracked my femur
I have been on Methadone for about 3 years and though it works well the constipation was so bad, I finally came off of Methadone and want to go on a drug that isn't an opiod. Does anyone have any suggestion. Been on requip, Mirapex, gabapentin and wondering what will work? I just cracked my femur
McClintok
in
Restless Legs Syndrome
2 years ago
Methadone vs buprenorphine/naloxone
Hello all. I am in the "fortunate" position of being offered either methadone or Suboxone (buprenorphine/naloxone) for my refractory RLS. I have been taking a very low dose of methadone --1/4 of a 5mg tab once daily--for only 3-1/2 weeks and I fall asleep quickly and sleep uninterrupted about 5
Hello all. I am in the "fortunate" position of being offered either methadone or Suboxone (buprenorphine/naloxone) for my refractory RLS. I have been taking a very low dose of methadone --1/4 of a 5mg tab once daily--for only 3-1/2 weeks and I fall asleep quickly and sleep uninterrupted about 5
Doctorplacebo
in
Restless Legs Syndrome
2 years ago
I added Mucinex to my list of DO NOT TAKE over the counter meds.
Well, I finally got IT... yes, covid. My husband came home with it and four days later I came down with it. I was trying to get ahead of it by taking Mucinex the second night so I could prevent it spreading into my lungs as much as possible. My whole body jerked and thrashed all night long plus I
Well, I finally got IT... yes, covid. My husband came home with it and four days later I came down with it. I was trying to get ahead of it by taking Mucinex the second night so I could prevent it spreading into my lungs as much as possible. My whole body jerked and thrashed all night long plus I
Reb0013
in
Restless Legs Syndrome
2 years ago
Great RLS & Augmentation Articles (all available as PDFs)
I thought I’d share several articles that give, as far as I can tell, the best, evidence-based guidance for RLS and PLMD treatment + augmentation info. which can all be invaluable tools for understanding RLS, PLMD and augmentation. Note some of the authors names. 1)
Guidelines for the first-line
I thought I’d share several articles that give, as far as I can tell, the best, evidence-based guidance for RLS and PLMD treatment + augmentation info. which can all be invaluable tools for understanding RLS, PLMD and augmentation. Note some of the authors names. 1)
Guidelines for the first-line
ircam2112
in
Restless Legs Syndrome
2 years ago
Quitting Ropinirole ... Weeks 3 to 5
Hi all, It's now been 5 weeks since my last ropinirole. I'll quickly summarise my experience here and I have a couple of questions for those of you more experienced than I (questions at bottom) Week 1 and 2 can be found here Week 3 - RLS symptoms stayed the same but now have started experiencing waves
Hi all, It's now been 5 weeks since my last ropinirole. I'll quickly summarise my experience here and I have a couple of questions for those of you more experienced than I (questions at bottom) Week 1 and 2 can be found here Week 3 - RLS symptoms stayed the same but now have started experiencing waves
Hazuki
in
Restless Legs Syndrome
2 years ago
Celecoxib / Celebrex
Does anyone have experience with taking Celebrex longer term? I've found it seems to do a great job of controlling inflammation for me. I'm wondering how long I might be allowed to take it. A question for my doc of course, but my next appt is a month away so I thought I would turn to the seasoned
Does anyone have experience with taking Celebrex longer term? I've found it seems to do a great job of controlling inflammation for me. I'm wondering how long I might be allowed to take it. A question for my doc of course, but my next appt is a month away so I thought I would turn to the seasoned
CeeY
in
NRAS
2 years ago
Pramipexole vacations
I am currently completely off Pramipexole for 7 months, after being on it for 6 years. It was the only medication that gave me excellent relief and no side effects, except one sudden episode of augmentation . All the augmentation symptoms have resolved, but the symptoms of course are daily and last
I am currently completely off Pramipexole for 7 months, after being on it for 6 years. It was the only medication that gave me excellent relief and no side effects, except one sudden episode of augmentation . All the augmentation symptoms have resolved, but the symptoms of course are daily and last
Hidden
in
Restless Legs Syndrome
2 years ago
Muscles in lower back all rigid and locked up
Hi, the muscles around my lower back have been locked up for a few weeks now. I find using an electric blanket has helped. I also use "winter green' (methyl salicylate) sports rub, with limited effect. Taking a couple of Ibuprofen and a co-codamol help too, but it's still very immobile and limits
Hi, the muscles around my lower back have been locked up for a few weeks now. I find using an electric blanket has helped. I also use "winter green' (methyl salicylate) sports rub, with limited effect. Taking a couple of Ibuprofen and a co-codamol help too, but it's still very immobile and limits
cuppa69
in
NRAS
2 years ago
constant pain lower abdomen lower back and now mid thigh
hello ladies I have been diagnosed with endometriosis since 2013. I have been given danazol for six months and then after my daughter two years of yaz(combined oral contraceptive pill). Then I had to stop yaz as I was having some adverse effects. Now it’s been a year I’m off yaz but the pain is terrible
hello ladies I have been diagnosed with endometriosis since 2013. I have been given danazol for six months and then after my daughter two years of yaz(combined oral contraceptive pill). Then I had to stop yaz as I was having some adverse effects. Now it’s been a year I’m off yaz but the pain is terrible
Lovedsibling
in
Endometriosis UK
2 years ago
Cyst and possible rupture
Sorry a bit of a rant but i need to release it. I was diagnosed with endo 7 years ago following a cyst removal (although looking back, I had been suffering a lot longer). I have not been seen by gynea since. Around may this year I was sent for an ultrasound after repeatedly reporting an increase in
Sorry a bit of a rant but i need to release it. I was diagnosed with endo 7 years ago following a cyst removal (although looking back, I had been suffering a lot longer). I have not been seen by gynea since. Around may this year I was sent for an ultrasound after repeatedly reporting an increase in
Emilily
in
Endometriosis UK
2 years ago
A brief respite and now back with a vengeance
I suffer from restless legs syndrome and was prescribed pramipexole. I started a reduction program several months ago and by September I was down to half a tablet today. I was diagnosed with breast cancer and had to have a mastectomy 3 moths ago. Unbeknown to me the surgery temporarily raised my ferritin
I suffer from restless legs syndrome and was prescribed pramipexole. I started a reduction program several months ago and by September I was down to half a tablet today. I was diagnosed with breast cancer and had to have a mastectomy 3 moths ago. Unbeknown to me the surgery temporarily raised my ferritin
RestlessMe
in
Restless Legs Syndrome
2 years ago
Reduction of Ropinirole
Hello fellow sufferers where ever you are in the world. I have been reducing my Ropinirole dosage by 0.25mg every 2 to 3 weeks depending how it’s going and am now taking 4.75 mg / day a reduction of 1.25 mg / day from 24 October 2022 and am in for the long haul. I used to spread my dose out during the
Hello fellow sufferers where ever you are in the world. I have been reducing my Ropinirole dosage by 0.25mg every 2 to 3 weeks depending how it’s going and am now taking 4.75 mg / day a reduction of 1.25 mg / day from 24 October 2022 and am in for the long haul. I used to spread my dose out during the
HipHop1972
in
Restless Legs Syndrome
2 years ago
Knees (again...)
However, I have never had great knees, I broke my ACL many years ago and I have 2 plates and 12 pins in my left ankle and
leg
. The last few weeks I have really suffered with knee
pain
. Once I get warmed up I am better, and I take almost as long warming up and cooling down as the running.
However, I have never had great knees, I broke my ACL many years ago and I have 2 plates and 12 pins in my left ankle and
leg
. The last few weeks I have really suffered with knee
pain
. Once I get warmed up I am better, and I take almost as long warming up and cooling down as the running.
Alpha-Golf
in
Couch to 5K
11 months ago
please help. Desperate.
Last week I spent the whole night awake with the most horrific pain in my right shoulder that went all the way down my right
leg
. The
pain
was bad in my shoulder, but most worrying was the complete weakness in my leg. It kept giving way & buckling on me.
Last week I spent the whole night awake with the most horrific pain in my right shoulder that went all the way down my right
leg
. The
pain
was bad in my shoulder, but most worrying was the complete weakness in my leg. It kept giving way & buckling on me.
AshB66
in
LUPUS UK
2 years ago
please - can somebody help?
Last week I spent the whole night awake with the most horrific pain in my right shoulder that went all the way down my right
leg
. The
pain
was bad in my shoulder, but most worrying was the complete weakness in my leg. It kept giving way & buckling on me.
Last week I spent the whole night awake with the most horrific pain in my right shoulder that went all the way down my right
leg
. The
pain
was bad in my shoulder, but most worrying was the complete weakness in my leg. It kept giving way & buckling on me.
AshB66
in
Cloudy with a Chance of Pain
2 years ago
please somebody help me - I’m at a loss.
Last week I spent the whole night awake with the most horrific pain in my right shoulder that went all the way down my right
leg
. The
pain
was bad in my shoulder, but most worrying was the complete weakness in my leg. It kept giving way & buckling on me.
Last week I spent the whole night awake with the most horrific pain in my right shoulder that went all the way down my right
leg
. The
pain
was bad in my shoulder, but most worrying was the complete weakness in my leg. It kept giving way & buckling on me.
AshB66
in
Foggy's "Invisible Illness" Support
2 years ago
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