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Longest bout of RLS 13 days of no sleep
I’m exhausted! I twitch and full body movements every night until 3AM then wake up at 6. On top of the RLS, I have now developed an upper respiratory infection. I was prescribed cough syrup with phenegran and it made me have the worst ever attack. I have called the doctor and he gave me gabapentin and
I’m exhausted! I twitch and full body movements every night until 3AM then wake up at 6. On top of the RLS, I have now developed an upper respiratory infection. I was prescribed cough syrup with phenegran and it made me have the worst ever attack. I have called the doctor and he gave me gabapentin and
Bulldogmom2003
in
Restless Legs Syndrome
8 months ago
Weaning off Topiramate and starting Rizatriptan
I saw my consultant today (it has been 3 months since I last saw him). I do not think I am seeing much benefit from the Topiramate, and after a long discussion he came to the conclusion that he thinks the Topiramate could be contributing to my severe insomnia and depression. Therefore he has decided
I saw my consultant today (it has been 3 months since I last saw him). I do not think I am seeing much benefit from the Topiramate, and after a long discussion he came to the conclusion that he thinks the Topiramate could be contributing to my severe insomnia and depression. Therefore he has decided
AMG26
in
Migraine Support
11 months ago
CLL W+W related(?) back/ leg pain
Folks, I realise I should have asked the extensive knowledge base here this question before now! I have hitherto not connected any of my current symptoms to CLL even though it can affect so much. My CLL does not bother me, I have zero symptoms and bloods are elevated but of no concern to my haematologist
Folks, I realise I should have asked the extensive knowledge base here this question before now! I have hitherto not connected any of my current symptoms to CLL even though it can affect so much. My CLL does not bother me, I have zero symptoms and bloods are elevated but of no concern to my haematologist
Belfastbees
in
CLL Support
1 year ago
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Therapulse - Do I really need to scale up slowly the way the maker says to?
I've had RLS for decades & currently take Horizant, methadone, and a small amount of Mirapex (I ran into trouble when I tried to drop the Mirapex completely so my specialist suggested leaving a small amount in for now). To help further lower my med doses, or to help with handling flareups without increasing
I've had RLS for decades & currently take Horizant, methadone, and a small amount of Mirapex (I ran into trouble when I tried to drop the Mirapex completely so my specialist suggested leaving a small amount in for now). To help further lower my med doses, or to help with handling flareups without increasing
UsableThought
in
Restless Legs Syndrome
8 months ago
Deep infiltrated Bowel Endo
Hey warriors! I have deep infiltrated bowel endo, mild adenomysis and a growth in my pouch of Douglas :( My main issues are having extreme pain the moment I need the loo! The pain subsides about 30 minutes after I go but I also get sharp pains in my abdomen so I’m looking at the best diet/ foods to
Hey warriors! I have deep infiltrated bowel endo, mild adenomysis and a growth in my pouch of Douglas :( My main issues are having extreme pain the moment I need the loo! The pain subsides about 30 minutes after I go but I also get sharp pains in my abdomen so I’m looking at the best diet/ foods to
Karen_92
in
Endometriosis UK
11 months ago
Advice on pain killers
Please can i have some suggestions on what pain killers to take which will not cause a reaction to my T. The noise of the T gives me such a bad headache. My heads feels like it will explode . Any advice on how to manage this flare up over the last two weeks been a huge struggle. In a dark place
Please can i have some suggestions on what pain killers to take which will not cause a reaction to my T. The noise of the T gives me such a bad headache. My heads feels like it will explode . Any advice on how to manage this flare up over the last two weeks been a huge struggle. In a dark place
Parrcj
in
Tinnitus UK
11 months ago
RLS regimen for occasional big flare-ups?
I’m in the process of switching from Pramipexole to Pregabalin. To help ease the transition - Just got a Rx today for buprenorphine/naloxone (2/.5mg); I intend to cut the strips into fourths. Assuming all goes well with the rest of the transition, I’m wondering what people do to manage flare-ups?
I’m in the process of switching from Pramipexole to Pregabalin. To help ease the transition - Just got a Rx today for buprenorphine/naloxone (2/.5mg); I intend to cut the strips into fourths. Assuming all goes well with the rest of the transition, I’m wondering what people do to manage flare-ups?
707twitcher
in
Restless Legs Syndrome
8 months ago
My Fibro specialist appointment - gut health
I posted last week about having an appointment with a pharmacist. My appointment was this morning and it was actually with a chronic pain specialist in fibromyalgia. He was really kind and listened to my history going back to migraines in primary school. He talked about genetic predisposition for my
I posted last week about having an appointment with a pharmacist. My appointment was this morning and it was actually with a chronic pain specialist in fibromyalgia. He was really kind and listened to my history going back to migraines in primary school. He talked about genetic predisposition for my
Brigga
in
Fibromyalgia Action UK
11 months ago
prednisone pain
recently there was discussion about prednisone pain when reducing the prednisone. Not sure how I can tell pred. Pain from pmr pain? Will pain medication help with prednisone pain? Thank you
recently there was discussion about prednisone pain when reducing the prednisone. Not sure how I can tell pred. Pain from pmr pain? Will pain medication help with prednisone pain? Thank you
Linny3
in
PMRGCAuk
11 months ago
what to do? Take .25mg Pramipexole and 7.5mg zopiclone for 2 or 3 nights? Or not?
Cannabis isnt effective atm so I need a 5 day break. Being sleep deprived from RL and insomnia just now is awful. I can't see my doctor to discuss methadone till after New Year. What to do? Doctor prescribed .25mg Pramipexole to try, but I'm too worried about augmentation to take these. BUT....I'm exhausted
Cannabis isnt effective atm so I need a 5 day break. Being sleep deprived from RL and insomnia just now is awful. I can't see my doctor to discuss methadone till after New Year. What to do? Doctor prescribed .25mg Pramipexole to try, but I'm too worried about augmentation to take these. BUT....I'm exhausted
Rayme
in
Restless Legs Syndrome
8 months ago
Hydrocodone?
My doctor is prescribing hydrocodone for help with my restless legs during plane flights, in addition to my regular meds, ropinirole and pregabalin. Has anyone had experience with this? Thank you.
My doctor is prescribing hydrocodone for help with my restless legs during plane flights, in addition to my regular meds, ropinirole and pregabalin. Has anyone had experience with this? Thank you.
MountainWanderer
in
Restless Legs Syndrome
8 months ago
Any NICE guidelines?
Can anyone share UK treatment guidelines for psoriatic arthritis that doctors use? All I find when I look online at the NICE website is the guidelines for psoriasis which are no help. I want to know at what stage I should get more than painkillers (currently on etoricoxib as needed which does help and
Can anyone share UK treatment guidelines for psoriatic arthritis that doctors use? All I find when I look online at the NICE website is the guidelines for psoriasis which are no help. I want to know at what stage I should get more than painkillers (currently on etoricoxib as needed which does help and
SecondAngel
in
Beyond Psoriasis
11 months ago
45 days post adult circumcision
got circumcised 6 weeks ago adult in 60s Low and medium cut not too loose not too tight , it was done in Melbourne Australia Very simple procedure in and out in 35 minutes as had the consolation earlier No pain whatsoever no pain killers needed Most uncomfortable part taking the bandage off healing
got circumcised 6 weeks ago adult in 60s Low and medium cut not too loose not too tight , it was done in Melbourne Australia Very simple procedure in and out in 35 minutes as had the consolation earlier No pain whatsoever no pain killers needed Most uncomfortable part taking the bandage off healing
Spiral123
in
Men's Health Forum (Penis Health)
11 months ago
PMR again ?
I stopped pred on 8th October after 4 years and was OK until now. I have developed stiffness and aching in hips down to knees and am wondering whether the PMR has come again due to stress. I was diagnosed with breast cancer on 11th October and am currently on Letrozole to (hopefully !) shrink the tumour
I stopped pred on 8th October after 4 years and was OK until now. I have developed stiffness and aching in hips down to knees and am wondering whether the PMR has come again due to stress. I was diagnosed with breast cancer on 11th October and am currently on Letrozole to (hopefully !) shrink the tumour
Retallack
in
PMRGCAuk
8 months ago
Advice needed
On my final week of slow taper 1mg to 1/2mg then I am going to do another 5weeks to get me from half to zero.Last Tuesday I woke up fine but by mid morning I started with what felt like a trapped nerve pain in my neck. The pain increased my neck, stiffened and my headache was dreadful. I took pain killers
On my final week of slow taper 1mg to 1/2mg then I am going to do another 5weeks to get me from half to zero.Last Tuesday I woke up fine but by mid morning I started with what felt like a trapped nerve pain in my neck. The pain increased my neck, stiffened and my headache was dreadful. I took pain killers
Deneez99
in
PMRGCAuk
11 months ago
Does anyone take pantoprazole with MtX?
During this weekend I have had a bad pain in my esophagus. I get that from time to time, probably due reflux caused by the prednisolone and PMR, as it is worse during a flare. I usually take pantoprazole a couple of days and it heals up fast (doctor's prescription). However - now I am on MtX since
During this weekend I have had a bad pain in my esophagus. I get that from time to time, probably due reflux caused by the prednisolone and PMR, as it is worse during a flare. I usually take pantoprazole a couple of days and it heals up fast (doctor's prescription). However - now I am on MtX since
krillemy
in
PMRGCAuk
11 months ago
post ablation groin/leg
Since then
pain
has extended downn the
leg
and through the foot. Anyone experienced this? thanks
Since then
pain
has extended downn the
leg
and through the foot. Anyone experienced this? thanks
Kalven
in
Atrial Fibrillation Support
4 months ago
Anyone with similar symptoms to help with lap decision?
I came off the pill after 14 years and have had a few months of heavy periods, crippling stomach and lower back pain in first 24-48 hours of my period, with IBS like symptoms in the same time period. When I was in my early teens up until going on the pill, I had the same including nausea and feeling
I came off the pill after 14 years and have had a few months of heavy periods, crippling stomach and lower back pain in first 24-48 hours of my period, with IBS like symptoms in the same time period. When I was in my early teens up until going on the pill, I had the same including nausea and feeling
AllieLW
in
Endometriosis UK
11 months ago
buprenorphine study
Just wondering what people think about the recent study below? Study population was people with opioid use disorder (OUD) who are taking buprenorphine to manage it. Apparently an unusually high percentage of participants had RLS symptoms. I thought Bup alleviated symptoms? I’m in the process of getting
Just wondering what people think about the recent study below? Study population was people with opioid use disorder (OUD) who are taking buprenorphine to manage it. Apparently an unusually high percentage of participants had RLS symptoms. I thought Bup alleviated symptoms? I’m in the process of getting
707twitcher
in
Restless Legs Syndrome
8 months ago
Restless Leg Syndrome, neuromodulation..
Treatment was well tolerated, and no adverse events were reported. Our case series shows a potential role for self-administered taVNS in patients with severe pharmacoresistant RLS. Hartley S, Bao G, Russo A, Zagdoun M, Chevallier S, Lofaso F, Leotard A, Azabou E. Self-administered non-invasive vagus
Treatment was well tolerated, and no adverse events were reported. Our case series shows a potential role for self-administered taVNS in patients with severe pharmacoresistant RLS. Hartley S, Bao G, Russo A, Zagdoun M, Chevallier S, Lofaso F, Leotard A, Azabou E. Self-administered non-invasive vagus
House2
in
Restless Legs Syndrome
8 months ago
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