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My response to the AASM Guidelines For RLS
I am posting this in the hope that it helps in forming your own response and if you agree with some of them, including them in your own response might help them pay more attention to them. ---------------------------------------------------------------------------------------------------------------
I am posting this in the hope that it helps in forming your own response and if you agree with some of them, including them in your own response might help them pay more attention to them. ---------------------------------------------------------------------------------------------------------------
SueJohnson
in
Restless Legs Syndrome
4 months ago
Healthy gut and APS
Three days after it subsided she complained of
leg
pain
. I mean, it could have been something else, who knows, it’s just a hunch. Been reading about the importance of a healthy gut microbiome, perhaps that’s why I’m leaning there. A few questions: 1) is anyone on daily probiotics? Recommend any?
Three days after it subsided she complained of
leg
pain
. I mean, it could have been something else, who knows, it’s just a hunch. Been reading about the importance of a healthy gut microbiome, perhaps that’s why I’m leaning there. A few questions: 1) is anyone on daily probiotics? Recommend any?
FiguringThingsOut
in
Hughes Syndrome APS Forum
11 months ago
Lexapro and RLS
Has anyone with RLS started taking Lexapro for anxiety? If yes, did it have any affects on your RLS? My RLS is pretty well controlled at this time with minimal drugs (100 mg Gabapentin) after finally getting off Pramipexole. I also use Melatonin, Valarian Root, and CBN. But most helpful, I think,
Has anyone with RLS started taking Lexapro for anxiety? If yes, did it have any affects on your RLS? My RLS is pretty well controlled at this time with minimal drugs (100 mg Gabapentin) after finally getting off Pramipexole. I also use Melatonin, Valarian Root, and CBN. But most helpful, I think,
Crazilegs
in
Restless Legs Syndrome
4 months ago
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Anti-epileptic drug
Hi! I have epilepsy since 2002. I use anti-epileptic drugs. I have T too for 3 years. Sometimes it is better sometimes worse. The interesting thing is that it is far better when I take in the "Cosim" (lacosamide). Do anybody have experience like this? The bad thing is that it's effect is lower now..
Hi! I have epilepsy since 2002. I use anti-epileptic drugs. I have T too for 3 years. Sometimes it is better sometimes worse. The interesting thing is that it is far better when I take in the "Cosim" (lacosamide). Do anybody have experience like this? The bad thing is that it's effect is lower now..
kchrisX
in
Tinnitus UK
8 months ago
NHS Rheumatology Appointment
Update on my trials and tribulations regarding a diagnosis for my bilateral shoulder and hip pain...... Still haven't had any treatment or been given any medication bar pain killers and NSAIDs.... Got my referral letter for the NHS Rheumatology referral......Feb 24th 2024..... Absolutely devastated
Update on my trials and tribulations regarding a diagnosis for my bilateral shoulder and hip pain...... Still haven't had any treatment or been given any medication bar pain killers and NSAIDs.... Got my referral letter for the NHS Rheumatology referral......Feb 24th 2024..... Absolutely devastated
Paulx222
in
PMRGCAuk
9 months ago
bloated stomach
hi last year had so many problems with uti that became resistant to antibiotics. I think finally infection are gone. Also I have extremely large floppy bowel (which doctors keep saying never seen one so bad. Just to give info on what my bowel is like) I use to have diahorrea but then went to constipation
hi last year had so many problems with uti that became resistant to antibiotics. I think finally infection are gone. Also I have extremely large floppy bowel (which doctors keep saying never seen one so bad. Just to give info on what my bowel is like) I use to have diahorrea but then went to constipation
Nerissa
in
IBS Network
9 months ago
Pain from knee to hip
Now I am getting shooting
pain
up the
leg
after walking 5/10000 steps and wonder if it could be permeating from the knee. I have PMR but only take 2mg per day. Thx Tony
Now I am getting shooting
pain
up the
leg
after walking 5/10000 steps and wonder if it could be permeating from the knee. I have PMR but only take 2mg per day. Thx Tony
KCRoyals
in
PMRGCAuk
5 days ago
Does anyone have any direct experience of Targinact?
Hi Everyone, this is my first post but I've been reading everything on this forum for a while now. I'm in real trouble with augmentation after taking ropinirole for 11 years. I successfully tapered off and was completely free of it by April 2023, however the RLS remained severe, and in October I decided
Hi Everyone, this is my first post but I've been reading everything on this forum for a while now. I'm in real trouble with augmentation after taking ropinirole for 11 years. I successfully tapered off and was completely free of it by April 2023, however the RLS remained severe, and in October I decided
Claire_lc
in
Restless Legs Syndrome
7 months ago
Travelling with opioids
Hello everyone, Last May I flew to Chicago with gabapentin & low dose oxycodone in my hand luggage with prescription attached with no problems. In 2 weeks I will be flying to Phoenix, Arizona & now am on low dose buprenorphine instead of oxycodone. Has anyone had problems flying to the US carrying low
Hello everyone, Last May I flew to Chicago with gabapentin & low dose oxycodone in my hand luggage with prescription attached with no problems. In 2 weeks I will be flying to Phoenix, Arizona & now am on low dose buprenorphine instead of oxycodone. Has anyone had problems flying to the US carrying low
Simkin
in
Restless Legs Syndrome
5 months ago
Cramps 32 weeks pregnant
Hi lovely people. I am currently experiencing fairly severe cramps that have been going on for about 24 hours. The cramps are low down front and back and basically continues. I have called the maternity triage this evening and she said it sounds like braxton hicks and to take some painkillers. I am kind
Hi lovely people. I am currently experiencing fairly severe cramps that have been going on for about 24 hours. The cramps are low down front and back and basically continues. I have called the maternity triage this evening and she said it sounds like braxton hicks and to take some painkillers. I am kind
Hidden
in
Fertility Network UK - Pregnancy Support
9 months ago
Dipyridamole working great
I started taking gabapentin 900mg at bedtime 15 yrs ago, recently switched to 600mg at 9pm and midnight. Not much benefit. Probably developed a tolerance over the years. Started tramadol 50-100mg at bedtime a month ago, some relief but was concerned about addiction with long term use. Showed the dipyridamole
I started taking gabapentin 900mg at bedtime 15 yrs ago, recently switched to 600mg at 9pm and midnight. Not much benefit. Probably developed a tolerance over the years. Started tramadol 50-100mg at bedtime a month ago, some relief but was concerned about addiction with long term use. Showed the dipyridamole
joemomma
in
Restless Legs Syndrome
5 months ago
Any last advice before I embark on the battle to try Buprenorphine? Should I increase my pregabalin dose?
I'd be really grateful for any thoughts on remaining treatment options before I start waging war with my GP practice to try Buprenorphine. I took my last ropinirole tablet in May 2023 (after augmentation after 11 years), and have since been taking 300mg pregabalin (150mg at 8pm, 150mg at 10.30pm), together
I'd be really grateful for any thoughts on remaining treatment options before I start waging war with my GP practice to try Buprenorphine. I took my last ropinirole tablet in May 2023 (after augmentation after 11 years), and have since been taking 300mg pregabalin (150mg at 8pm, 150mg at 10.30pm), together
Claire_lc
in
Restless Legs Syndrome
5 months ago
Adenomyosis, should I have hysterectomy?
The short version is that I have adenomyosis. I've always had heavy periods with period pains that make my thighs numb and require prescription painkillers. At the age of 44 I had some symptoms of perimenopause and tried HRT. After two years I came off and that seems to have triggered a strong reaction
The short version is that I have adenomyosis. I've always had heavy periods with period pains that make my thighs numb and require prescription painkillers. At the age of 44 I had some symptoms of perimenopause and tried HRT. After two years I came off and that seems to have triggered a strong reaction
mavenmi
in
Endometriosis UK
9 months ago
Getting No Help and feeling desperate
I have severe restless legs and am going around in circles with my doctor and neurologist. Being waiting months for a CPAP machine but now my doctor wants me to do another sleep study. I have been using kratom for years but now it's not really working for me and am close to packing it all in. I live
I have severe restless legs and am going around in circles with my doctor and neurologist. Being waiting months for a CPAP machine but now my doctor wants me to do another sleep study. I have been using kratom for years but now it's not really working for me and am close to packing it all in. I live
Jezee
in
Restless Legs Syndrome
5 months ago
painkillers for toothache
I have ET and am on Pegasys Interferon. Hello My question is, I have very bad toothache and can’t see a dentist for a couple of weeks ! I want to take a painkiller stronger than paracetamol? Has anyone been in a similar situation and was able to take something stronger ? Thank you for reading this
I have ET and am on Pegasys Interferon. Hello My question is, I have very bad toothache and can’t see a dentist for a couple of weeks ! I want to take a painkiller stronger than paracetamol? Has anyone been in a similar situation and was able to take something stronger ? Thank you for reading this
Abrams
in
MPN Voice
9 months ago
Looking for some guidance please
Hello I have been following the group for a number of months and have learned a lot about my condition, so thankyou to everyone here. I am now reaching out for guidance and help as I have been struggling a lot over the last couple of year or so. As background/history, I am a 65 year male and live
Hello I have been following the group for a number of months and have learned a lot about my condition, so thankyou to everyone here. I am now reaching out for guidance and help as I have been struggling a lot over the last couple of year or so. As background/history, I am a 65 year male and live
Bikerguy1
in
Restless Legs Syndrome
5 months ago
Headaches with GCA
Do you get headaches anywhere in your head or just in a certain place? And painkillers don't work.
Do you get headaches anywhere in your head or just in a certain place? And painkillers don't work.
Caulkhead63
in
PMRGCAuk
9 months ago
Sleep apnea and PMR
Over the last year my sleep has been poor, and finally I had an overnight sleep study, which revealed severe apnea. I'm pretty sure this is new to me and I did some reading. Apparently there is a nasty connection between apnea and PMR (and RA). One source: "The co-existence of sleep apnoea in rheumatic
Over the last year my sleep has been poor, and finally I had an overnight sleep study, which revealed severe apnea. I'm pretty sure this is new to me and I did some reading. Apparently there is a nasty connection between apnea and PMR (and RA). One source: "The co-existence of sleep apnoea in rheumatic
papadapadoo
in
PMRGCAuk
5 months ago
Rectal fissure - healed!
I'm not sure if this is the correct group to post in as I do not have IBS, however for 10+ years, I had a rectal fissure that just wouldn’t go away. I live in the Caribbean, have a healthy lifestyle and diet. Years ago, when first diagnosed with the fissure, I was prescribed Lidoprocto suppositories
I'm not sure if this is the correct group to post in as I do not have IBS, however for 10+ years, I had a rectal fissure that just wouldn’t go away. I live in the Caribbean, have a healthy lifestyle and diet. Years ago, when first diagnosed with the fissure, I was prescribed Lidoprocto suppositories
StogStog
in
IBS Network
9 months ago
Poor communication or misunderstanding?
I saw my NHS Consultant on Monday about my
leg
pain
and inability to walk when flaring and we discussed my surgery etc and I left the appointment feeling pretty deflated.
I saw my NHS Consultant on Monday about my
leg
pain
and inability to walk when flaring and we discussed my surgery etc and I left the appointment feeling pretty deflated.
endo_the_stigma
in
Endometriosis UK
7 months ago
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