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Interesting info if you haven’t seen it
From the NRAS coronavirus update “From the evidence so far, there is no increased risk of catching coronavirus for those taking conventional DMARDs such as methotrexate,
leflunomide
, sulfasalazine or hydroxychloroquine.
From the NRAS coronavirus update “From the evidence so far, there is no increased risk of catching coronavirus for those taking conventional DMARDs such as methotrexate,
leflunomide
, sulfasalazine or hydroxychloroquine.
KittyJ
in
NRAS
4 years ago
NRAS Corona Virus Advice
Can anyone please enlighten me on the NRAS advice where it says 'From the evidence so far, there is no increased risk of catching coronavirus for those taking conventional DMARDs such as methotrexate,
leflunomide
, sulphasalazine or hydroxychloroquine.'
Can anyone please enlighten me on the NRAS advice where it says 'From the evidence so far, there is no increased risk of catching coronavirus for those taking conventional DMARDs such as methotrexate,
leflunomide
, sulphasalazine or hydroxychloroquine.'
Jimminey
in
NRAS
4 years ago
Spike in Serum ALT level (Liver function) blood test
Hi my last 2 blood tests for Serum ALT have come back abnormal I am on
Leflunomide
& 12 weekly injection of ustekinumab (Stelara) - has anyone else experienced this?
Hi my last 2 blood tests for Serum ALT have come back abnormal I am on
Leflunomide
& 12 weekly injection of ustekinumab (Stelara) - has anyone else experienced this?
MrsSMC
in
NRAS
4 years ago
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Bronchiectasis and azathioprine info please
After being on a combination of methotrexate and
leflunomide
plus the usual hydroxychloroquine I suffered 3 bouts of pneumonia in 7 months causing bronchiectasis. Anyone else developed this? Medication was stepped down to just hydroxychloroquine and mepacrine.
After being on a combination of methotrexate and
leflunomide
plus the usual hydroxychloroquine I suffered 3 bouts of pneumonia in 7 months causing bronchiectasis. Anyone else developed this? Medication was stepped down to just hydroxychloroquine and mepacrine.
Purplebutterfly38
in
LUPUS UK
4 years ago
To fly or not to fly!!
I’m doing much better myself but still on 6mg pred,
leflunomide
, hydroxychloroquine and valacyclovir. Worst nightmare is one of us becomes ill and then we get stuck somewhere or worse. If it wasn’t a family wedding I wouldn’t go.
I’m doing much better myself but still on 6mg pred,
leflunomide
, hydroxychloroquine and valacyclovir. Worst nightmare is one of us becomes ill and then we get stuck somewhere or worse. If it wasn’t a family wedding I wouldn’t go.
Lochy
in
PMRGCAuk
4 years ago
Just been diagnosed with GCA
After having 3 days of steroids plus a drug called
Leflunomide
I am feeling fuzzy headed and trembly I hope that this will clear. Am also anxious about this coronavirus due to the added risk of compromised immunity.
After having 3 days of steroids plus a drug called
Leflunomide
I am feeling fuzzy headed and trembly I hope that this will clear. Am also anxious about this coronavirus due to the added risk of compromised immunity.
Creamtea
in
PMRGCAuk
4 years ago
Worried about going to appointments.
Obviously I have RD and I am on Mtx,
Leflunomide
, Hydroxy and Prednisolone which will lower my immune system, but I also have asthma, high blood pressure (among many other conditions) and am nearly 70. What bothers me is what to do about going for doctor's and hospital appointments.
Obviously I have RD and I am on Mtx,
Leflunomide
, Hydroxy and Prednisolone which will lower my immune system, but I also have asthma, high blood pressure (among many other conditions) and am nearly 70. What bothers me is what to do about going for doctor's and hospital appointments.
Hidden
in
NRAS
4 years ago
Steroid Injection in Knee - Mobility
My consultant was off for a year so I was seeing different doctors, they did give me a course of steroids and a couple of steroid injection put me on
leflunomide
. None of these worked, I already have been on all DMARDs with no success.
My consultant was off for a year so I was seeing different doctors, they did give me a course of steroids and a couple of steroid injection put me on
leflunomide
. None of these worked, I already have been on all DMARDs with no success.
Elizajane1
in
NRAS
4 years ago
All Change - out with the MTX / hydoxy... and in with ??
Leflunomide
was mentioned (sorry but a no go, I am not a teetotaller but happily keep to my 14 units with lovely red wine 4 days a week, my one weakness -huh hum!).
Leflunomide
was mentioned (sorry but a no go, I am not a teetotaller but happily keep to my 14 units with lovely red wine 4 days a week, my one weakness -huh hum!).
RosieA
in
NRAS
4 years ago
RISKS OF STEROID MEDICATION AND CORONAVIRUS
If you have to self-isolate and if you are on immunosuppressive medication besides steroids (methotrexate,
leflunomide
, azathioprine, tocilizumab), you must stop those (but not the steroids) when you develop those symptoms and urgently inform your doctor. 3.
If you have to self-isolate and if you are on immunosuppressive medication besides steroids (methotrexate,
leflunomide
, azathioprine, tocilizumab), you must stop those (but not the steroids) when you develop those symptoms and urgently inform your doctor. 3.
Hidden
in
PMRGCAuk
4 years ago
Rash
No change in routine, eating granola and felt myself becoming very hot, then raised rash on face, arms, hands and a little on chest. i'm on Humira,
Leflunomide
, prednisolone, omipazole. I had not taken those tablets before this came on. Has anyone else experienced this?
No change in routine, eating granola and felt myself becoming very hot, then raised rash on face, arms, hands and a little on chest. i'm on Humira,
Leflunomide
, prednisolone, omipazole. I had not taken those tablets before this came on. Has anyone else experienced this?
Endless
in
NRAS
4 years ago
First Post
qineine one . touch wood it seems to stabilise it for about 4 months then I had a major flare up on the knees so they have increased the
leflunomide
and I am in the 6 week period to see if it works otherwise she will increase the qunine one .
qineine one . touch wood it seems to stabilise it for about 4 months then I had a major flare up on the knees so they have increased the
leflunomide
and I am in the 6 week period to see if it works otherwise she will increase the qunine one .
listellor
in
NRAS
4 years ago
Leflunomide/Arava
I am relatively nervous about starting
leflunomide
because I know it can be hard on the liver and also I have read it can either induce or worsen interstitial lung disease and methotrexate has the same risks (I have nodules in my lungs). Thank you so much!
I am relatively nervous about starting
leflunomide
because I know it can be hard on the liver and also I have read it can either induce or worsen interstitial lung disease and methotrexate has the same risks (I have nodules in my lungs). Thank you so much!
searcher24
in
NRAS
4 years ago
Dry eyes
I take the following pills: sulfasalazine, hydroxychloroquine,
leflunomide
, prednisolone. Could this be a side effect of any of these drugs? Thankyou.
I take the following pills: sulfasalazine, hydroxychloroquine,
leflunomide
, prednisolone. Could this be a side effect of any of these drugs? Thankyou.
ma73jon
in
NRAS
5 years ago
Starting on Leflunomide and not feeling good.
I suppose I am just asking what other people's experiences are on
Leflunomide
and if anyone else takes both of these tablets.
I suppose I am just asking what other people's experiences are on
Leflunomide
and if anyone else takes both of these tablets.
Hidden
in
NRAS
5 years ago
Goodbye to prednisolone thanks to Leflunomide
I promised to report on how helpful
Leflunomide
was in tapering off pred. I was fortunate and didn't have any ill effects, in fact it helped remove many of the aches and feelings of illness which I had.
I promised to report on how helpful
Leflunomide
was in tapering off pred. I was fortunate and didn't have any ill effects, in fact it helped remove many of the aches and feelings of illness which I had.
43tripandskip
in
PMRGCAuk
5 years ago
Normal results but pain in joints
I was diagnosed with seronegative arthritis in September 2019 and was taking methatrexate, sulpasalazine and
leflunomide
with terrible side effects. But now consultant is saying that there is no inflammatory arthritis visible but I am waking up in agony with pain in my knees, elbows and hand.
I was diagnosed with seronegative arthritis in September 2019 and was taking methatrexate, sulpasalazine and
leflunomide
with terrible side effects. But now consultant is saying that there is no inflammatory arthritis visible but I am waking up in agony with pain in my knees, elbows and hand.
Ms-D
in
NRAS
5 years ago
neuropathy in feet?
On Prednisone and
Leflunomide
for a year, tapering Presnisone because of stress fractures [now on prolia].......this stuff is a constant battle, like whack a mole: one thing under control and another crops up.
On Prednisone and
Leflunomide
for a year, tapering Presnisone because of stress fractures [now on prolia].......this stuff is a constant battle, like whack a mole: one thing under control and another crops up.
composition
in
PMRGCAuk
5 years ago
Severe headaches.
I am on the following medication: Folic Acid, Hydroxychloroquine,
Leflunomide
, Prednisolone, Sulfasalazine.Arcoxia.
I am on the following medication: Folic Acid, Hydroxychloroquine,
Leflunomide
, Prednisolone, Sulfasalazine.Arcoxia.
ma73jon
in
NRAS
5 years ago
Explain methotrexate please.
Stopped taking
leflunomide
last week (my own decision as don’t think it’s doing much and only way to find out is to stop) I’d need to stop it if I started mtx. Any advice gratefully received. I’m on a mission as a new year starts and my 4 year PMR anniversary looms 🤬
Stopped taking
leflunomide
last week (my own decision as don’t think it’s doing much and only way to find out is to stop) I’d need to stop it if I started mtx. Any advice gratefully received. I’m on a mission as a new year starts and my 4 year PMR anniversary looms 🤬
Lochy
in
PMRGCAuk
5 years ago
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