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medication and supplements for MSA?
what medication are people taking ? Are you taking sinemet or mucuna? Do they help? I was diagnosed with Parkinson’s in2020.””and MSAP in December 2022. My main problem is heavy very unsteady legs!painful pins and needles in the toes . Thanks for any suggestions Chin
what medication are people taking ? Are you taking sinemet or mucuna? Do they help? I was diagnosed with Parkinson’s in2020.””and MSAP in December 2022. My main problem is heavy very unsteady legs!painful pins and needles in the toes . Thanks for any suggestions Chin
Trudy2020
in
Multiple System Atrophy Trust
1 year ago
Switch to cheaper drugs leaves Parkinson’s patients suffering ‘devastating effects’
Parkinson’s UK put out a warning when a 65-year-old man who had been successfully managing the condition for 17 years suddenly needed help eating and getting dressed. This happened after his branded medication Sinemet was changed to a cheaper form of the drug. https://www.independent.co.uk/news/health
Parkinson’s UK put out a warning when a 65-year-old man who had been successfully managing the condition for 17 years suddenly needed help eating and getting dressed. This happened after his branded medication Sinemet was changed to a cheaper form of the drug. https://www.independent.co.uk/news/health
Farooqji
in
Cure Parkinson's
1 year ago
Requested help for further training of neurologist
My introduction to the new neurologist was rather disappointing. Apart from the fact that he did not even make any attempt to come across as somewhat understanding and social, this person again lacked constructive thinking about possible improvements to the PD and PN (peripheral neuropathy) situation
My introduction to the new neurologist was rather disappointing. Apart from the fact that he did not even make any attempt to come across as somewhat understanding and social, this person again lacked constructive thinking about possible improvements to the PD and PN (peripheral neuropathy) situation
Esperanto
in
Cure Parkinson's
1 year ago
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dystonia question
My symptom that started my PD journey was dystonia in my right foot after walking for 10 minutes. This eventually led toPD diagnosis. Sinemet solved the problem for a few years. But eventually it started again but both feet would become dystonic. Sinemet increased, problem resolved! Now I only get dystonia
My symptom that started my PD journey was dystonia in my right foot after walking for 10 minutes. This eventually led toPD diagnosis. Sinemet solved the problem for a few years. But eventually it started again but both feet would become dystonic. Sinemet increased, problem resolved! Now I only get dystonia
forest1
in
Cure Parkinson's
1 year ago
New member
Morning, my name is Sarah and I look after my mother who has Parkinsons and found this site looking for an answer to taking Sinemet with Setraline and Levothyroxine. My mother took her sinement approx 30 mins before her other drugs and was wondering if she could take them all together. I have now read
Morning, my name is Sarah and I look after my mother who has Parkinsons and found this site looking for an answer to taking Sinemet with Setraline and Levothyroxine. My mother took her sinement approx 30 mins before her other drugs and was wondering if she could take them all together. I have now read
tankie14
in
Cure Parkinson's
1 year ago
Minimum of 70 mg Carbidopa daily???
In France the 1:10 ratio for carbidopa - levodopa is often used. My neurologist idem with Sinemet 10/100 IR. Sinemet 25/100 CR is prescribed only for the night. My daily carbidopa intake due to dose reduction is currently total only about 45 to 55 mg. Now I read in the patient information that “At
In France the 1:10 ratio for carbidopa - levodopa is often used. My neurologist idem with Sinemet 10/100 IR. Sinemet 25/100 CR is prescribed only for the night. My daily carbidopa intake due to dose reduction is currently total only about 45 to 55 mg. Now I read in the patient information that “At
Esperanto
in
Cure Parkinson's
1 year ago
side effects
what is Sinemet actually meant to do? I have stopped taking it because of the side effects
what is Sinemet actually meant to do? I have stopped taking it because of the side effects
TinkerTod
in
Cure Parkinson's
2 years ago
Fast acting Levodopa?
I recall that somebody had written about making a quick acting levodopa by grinding up a tab of Sinemet or dissolving it in carbonated water or.... ? My memory is bad on this because I had no need for it at the time. My understanding is that levodopa needs to reach and be absorbed in the small intestine
I recall that somebody had written about making a quick acting levodopa by grinding up a tab of Sinemet or dissolving it in carbonated water or.... ? My memory is bad on this because I had no need for it at the time. My understanding is that levodopa needs to reach and be absorbed in the small intestine
Zardoz
in
Cure Parkinson's
2 years ago
rytary
my doctor just gave me these to try. I’m taking sinemet now, 25/100 3 times a day. I haven’t started the rytary yet because it’s only a 5 day supply until it’s approved by my insurance. How do I switch to it from my other medicine and what should I expect? I’m 2 yrs into my diagnosis and I’m not really
my doctor just gave me these to try. I’m taking sinemet now, 25/100 3 times a day. I haven’t started the rytary yet because it’s only a 5 day supply until it’s approved by my insurance. How do I switch to it from my other medicine and what should I expect? I’m 2 yrs into my diagnosis and I’m not really
Paulaandamy
in
Cure Parkinson's
2 years ago
Opicrapone
Hello. My (new) neurologist has suggested Opicrapone, which he says prevents spme protein from interferring with the usage of Dopamine, and therefore I should be able to decrease my Sinemet dosages. Has anyone else tried this, and if so, what was the outcome? Were you able to decrease the C/L, and
Hello. My (new) neurologist has suggested Opicrapone, which he says prevents spme protein from interferring with the usage of Dopamine, and therefore I should be able to decrease my Sinemet dosages. Has anyone else tried this, and if so, what was the outcome? Were you able to decrease the C/L, and
willowone123
in
Cure Parkinson's
2 years ago
Meds on empty stomach
Does anyone suffer with stomach pains and or diarrhea when taking meds on an empty stomach? I take amantadine and sinemet and selegine?? Thanks
Does anyone suffer with stomach pains and or diarrhea when taking meds on an empty stomach? I take amantadine and sinemet and selegine?? Thanks
Hoffman123
in
Cure Parkinson's
2 years ago
Best approach to reducing Dyskinesia
I was diagnosed with PD 6 years ago. I'm currently taking 6 Stalevo 100mg each day at 6am, 8am, 10am, 1pm, 4pm, and 6pm. I also take Resageline 1mg.Over the last 18 months I have seen an increase in Dyskinesia, mainly later in the day and usually worse as the meds wear off. My Neurologist suggests
I was diagnosed with PD 6 years ago. I'm currently taking 6 Stalevo 100mg each day at 6am, 8am, 10am, 1pm, 4pm, and 6pm. I also take Resageline 1mg.Over the last 18 months I have seen an increase in Dyskinesia, mainly later in the day and usually worse as the meds wear off. My Neurologist suggests
gingerj
in
Cure Parkinson's
2 years ago
neupro patch: I’m currently on 4mg of neupro. Started at 1 then 2 for a month, 3 for two weeks and now4. Nausea is increasing at 2 weeks
any others with experiences with the patch. I’m prepared to tolerate the nausea for 2 more weeks with the hope it will subside . Stopped sinemet in March (anxiety And depression) Started neupro in September 1st. Will the nausea subside? Energy, mood and anxiety have improved with antidepressant (30
any others with experiences with the patch. I’m prepared to tolerate the nausea for 2 more weeks with the hope it will subside . Stopped sinemet in March (anxiety And depression) Started neupro in September 1st. Will the nausea subside? Energy, mood and anxiety have improved with antidepressant (30
Hidden
in
Cure Parkinson's
2 years ago
Statins
BWP takes 3 sinemet, has been prescribed statins. Does anyone have any experience to offer please on any side effects, are other PWP taking them please? Thank you
BWP takes 3 sinemet, has been prescribed statins. Does anyone have any experience to offer please on any side effects, are other PWP taking them please? Thank you
Jo692
in
Cure Parkinson's
2 years ago
opicapone
Hi everyone, my name is Axter and I live in Italy. These days my doctors have prescribed me opicapone in combination with levodopa. I currently take 600mg of Sinemet, 10mg of selegiline and 3 grams of Vitamin B1 per day. I wanted to ask who takes opicapone their experience in this regard. Any suggestion
Hi everyone, my name is Axter and I live in Italy. These days my doctors have prescribed me opicapone in combination with levodopa. I currently take 600mg of Sinemet, 10mg of selegiline and 3 grams of Vitamin B1 per day. I wanted to ask who takes opicapone their experience in this regard. Any suggestion
Axter
in
Cure Parkinson's
2 years ago
Can Xadago be taken together with sinemet and mucuna?
Xadago 50mg 1\2 sinemet 25\250 and a mucuna capsule with 60mg of levadopa. Thanks.
Xadago 50mg 1\2 sinemet 25\250 and a mucuna capsule with 60mg of levadopa. Thanks.
Paralelo
in
Cure Parkinson's
2 years ago
Coping with heat
I need your advice my friends. We live in the north of England and rarely get a heatwave but this summer we had 2 and my HWP, who is in his 29th year of diagnosis, really suffered. I looked on HU and saw this can be a problen in PD. I told him what I had read and dealt with it with fans and cold packs
I need your advice my friends. We live in the north of England and rarely get a heatwave but this summer we had 2 and my HWP, who is in his 29th year of diagnosis, really suffered. I looked on HU and saw this can be a problen in PD. I told him what I had read and dealt with it with fans and cold packs
JeanieBeanie
in
Cure Parkinson's
2 years ago
pregabolin - phew!
On August 11th I began taking 25mg of pregabolin an hour or so before bedtime, increasing by 25mg every few days. I weaned myself off sinemet during the first few weeks. I have gradually felt less RLS and am now on 275mg. There is still room for improvement, but I am sleeping better than I have done
On August 11th I began taking 25mg of pregabolin an hour or so before bedtime, increasing by 25mg every few days. I weaned myself off sinemet during the first few weeks. I have gradually felt less RLS and am now on 275mg. There is still room for improvement, but I am sleeping better than I have done
Flora-Rose
in
Restless Legs Syndrome
2 years ago
Has anybody had dyskinesia symptoms from Sinemet?
I wanted to get a better understanding of first the conditions one got the dyskinesia symptoms. What was the dosage of Sinemet (or other Carbidupa/Levidupa based med). How long were you on this dosage before experiencing symptoms? Also I wanted to get a better understanding of the symptoms? Are they
I wanted to get a better understanding of first the conditions one got the dyskinesia symptoms. What was the dosage of Sinemet (or other Carbidupa/Levidupa based med). How long were you on this dosage before experiencing symptoms? Also I wanted to get a better understanding of the symptoms? Are they
checkmat
in
Cure Parkinson's
2 years ago
Mucuna Pruriens
I would appreciate some advice on the following. I recently started giving Mucuna Pruriens to my wife hoping to start reducing her usual dopamine medication and replace this with the natural L-Dopa that Mucuna has as this should have far less side effects. However, after the third day, I stopped
I would appreciate some advice on the following. I recently started giving Mucuna Pruriens to my wife hoping to start reducing her usual dopamine medication and replace this with the natural L-Dopa that Mucuna has as this should have far less side effects. However, after the third day, I stopped
Rafiki2
in
Cure Parkinson's
2 years ago
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