New member: Morning, my name is Sarah and I... - Cure Parkinson's

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tankie14 profile image
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Morning, my name is Sarah and I look after my mother who has Parkinsons and found this site looking for an answer to taking Sinemet with Setraline and Levothyroxine. My mother took her sinement approx 30 mins before her other drugs and was wondering if she could take them all together. I have now read that some people do but if you take vitamin B that may affect the sinemet. My other query is - Loss of taste. She is frequently saying she wouldnt know what she was eating and that food has no taste except citrus' foods/drinks and highly spiced foods. Is this a common effect from having Parkinsons? She is having a bad day today, involuntary movement of right leg and arm and rocking which i havent seen to this degree before.

Any help/advice re taking Sinemet with levothyroxine and setraline and vit B and timings of would be much appreciated.

Also loss of taste. Any comments on that would also be welcome

many thanks

Sarah

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tankie14 profile image
tankie14
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9 Replies
wifeofparky profile image
wifeofparky

There are a lot of symptoms associated with Parkinson's. I suggest you go to Parkinson.org and scroll all the way down to the bottom of the home page. Click on online store and you can order or download informational booklets covering a variety of issues. They are free.

park_bear profile image
park_bear

B6 interferes the absorption of levodopa because most prescription levodopa meds include carbidopa, which is important for absorption. If B6 meets up with carbidopa in the digestive tract, they form a complex disabling both, which causes levodopa to be poorly absorbed. It is also the case that carbidopa greatly increases the body's utilization of B6. B6 is essential for a vast array of biochemical processes. A person should be supplementing B6 in an amount similar to the daily consumption of carbidopa, and separate taking B6 from carbidopa/levodopa, by an interval of 2 hours, or if this is not possible, by a meal.

When supplementing B6 it is important to use P5P (pyridoxal-5-phosphate). The cheap inactive form of B6, pyridoxine, is toxic in quantity.

Additional writing by me on this subject:

healthunlocked.com/cure-par...

The cause of B6 toxicity:

healthunlocked.com/cure-par...

MarionP profile image
MarionP in reply topark_bear

Well I certainly should consider on Park bear has an opinion, Park is pretty doggone knowledgeable and reasonable.

ddmagee1 profile image
ddmagee1

For me, loss of taste is a PD symptom, that I’ve had for many years. It was one of my first symptoms, nearly 12 years ago. My ability to taste varies. Sometimes, my wife tells me food tastes so good, and I think the food tastes crummy. Other times, my taste is somewhat OK. So, it fluctuates, and I deal with it!

Ponieboy profile image
Ponieboy

Hi Sarah. I have on and off issues with my sense of smell. I laugh because I am able to still work and my boss makes me use a gas moniter because he knows this and wants me to be able to know if I am around any hydrogen sulfide gas when working. ( it burns your olfactory out really quick when exposed to it). It seems the Drs all vary on what meds they give their patients. I take Rytary 4x a day. Also if you can keep your mom moving via what ever exercise she is able to do, be it even in a chair. That is the big one. Good luck on your journey through this and remember we are here to support you and each other.

HekateMoon profile image
HekateMoon

Hi Sara. Welcome to the site. Im a bit in a rush today so i cant look up all your questions. Just to give you a warm welcome and stick around. We have very knowledgeable and wise members. Highly recommend to read the answer of Park bear above re. Vit B6. Keep coming back!

MUCU profile image
MUCU

I Sarah nice to have you on board

The 3 diferente medicine that your mother is taken I only can say that I’ve taken sinemet I could handle the secondary effects of this medicine it made me feel bad with tremor’s my body was rocking so think sinemet muito be a problem for your mother, that the only thing that I can say. I hope some answer’s for your? All the best wishes

Rui De Sousa

PeggyDay profile image
PeggyDay

Levothyroxine should be taken on an empty stomach by itself.

JohnPepper profile image
JohnPepper

Hi Sarah

Welcome to the Parkys section.

Are you aware that NO MEDICATION CAN CURE PD?

To the best of my knowledge, only one type of PD MEDICATION CAN SLOW DOWN THE PROGRESSION OF PD.

THERE IS ONLY ONE WAY TO REVERSE THE MOVEMENT SYMPTOMS OF PD!

The Mayo Clinic report on HIGH INTENSSITY AEROBIC EXERCISE PRODUCES BDNF AND GDNF, WHICH REPAIRS OR REPLACES THE GLIAL CELLS WHICH PRODUCE DOPAMINE IN THE BRAIN, WHICH REPAIRS OR REPLACES DAMAGED GLIAL CELLS, WHICH MANAGE THE PRODUCTION OF DOPAMINE. MORE DOPAMINE MEANS LESS PD MOVEMENT SYMPTOMS.

I was diagnosed with PD in 1992 and in 1994 I started doing high intensity aerobic walking, which is the only way to reverse the movement symptoms.

A patient may feel that he/she is unable to do fast walking, but that is not true.

I have taken several wheelchair-bound PD patients and within five minutes I have them walking unaided around a hall.

Unless the patient has some other health-problem which prevents them from walking then there is nothing stopping them from slowly starting to do fast walking.

Get hold of me for mot information, which will be sent free of charge.

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