dystonia question

[forest1]

My symptom that started my PD journey was dystonia in my right foot after walking for 10 minutes. This eventually led toPD diagnosis. Sinemet solved the problem for a few years. But eventually it started again but both feet would become dystonic. Sinemet increased, problem resolved!

Now I only get dystonia in my left foot! Of course I have other PD symptoms, bradykinesia etc. but my question is - Why has my dystonia migrated to solely (no pun intended) my left side?

I am asking if anyone knows as the chances of seeing my neurologist is low, as I am in the UK!

[johntPM]

It is normal for PD to affect one side of the brain first. And, for the symptoms to show on the opposite (contralateral) side to the brain damage. So, for instance, you started with dystonia on the right side. This suggests problems on the left side of the brain. It is, then, over a period of years, normal for the PD to both worsen on the original side and to start on the other side, but they may progress at different rates. Eventually, the side with originally the least symptoms may overtake the other side. By this stage the original symptoms may be masked by the levodopa that you take.

[forest1 in reply to johntPM]

thank you JohntPM. So I guess the left side has broken through the Levadopa response that has worked with my right side. Thank you for your explanation..

[PDTom]

It started for me with dystonia in my left foot.

In December 2020, I received the diagnosis.

To this day, I do without medication and instead rely on alternative healing methods. These seem to bring success, because a few days ago I managed the impossible:

I ran 11 kilometers without cramping - something I hadn't managed in over two years.

Overall, I am very satisfied with my progress and I am happy to recommend the homepage of the Parkinson Club (parkinsonclub.de), where you can find a lot of useful information that helped me a lot in my case.

www.parkinsonclub.de

[JMSL in reply to PDTom]

The link to that website doesn't work.

[BonsaiKid in reply to JMSL]

Try this link: parkinsonclub.de/

[forest1]

Hank PDTom will check it out

[forest1]

Makes no difference what I am wearing! Tend to get it first thing when I get up from bed.

[estubbs79]

Mine is in my right leg and foot where are used to be my just my shoulder and lower back and upper back. Injections to help with that. I am too sensitive for medication orally and it’s toxic to my body. This is Less invasive option

[forest1]

what injections are they estubbs79? Botox? There are also a range of different medications out there that may have less affects for you. My worse medication was Apamorphine, could not get on with it. Luckily everything else has been ok, after the nausea has subsided!

[LindaP50]

parkinson.org/understanding...