My symptom that started my PD journey was dystonia in my right foot after walking for 10 minutes. This eventually led toPD diagnosis. Sinemet solved the problem for a few years. But eventually it started again but both feet would become dystonic. Sinemet increased, problem resolved!
Now I only get dystonia in my left foot! Of course I have other PD symptoms, bradykinesia etc. but my question is - Why has my dystonia migrated to solely (no pun intended) my left side?
I am asking if anyone knows as the chances of seeing my neurologist is low, as I am in the UK!
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forest1
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It is normal for PD to affect one side of the brain first. And, for the symptoms to show on the opposite (contralateral) side to the brain damage. So, for instance, you started with dystonia on the right side. This suggests problems on the left side of the brain. It is, then, over a period of years, normal for the PD to both worsen on the original side and to start on the other side, but they may progress at different rates. Eventually, the side with originally the least symptoms may overtake the other side. By this stage the original symptoms may be masked by the levodopa that you take.
thank you JohntPM. So I guess the left side has broken through the Levadopa response that has worked with my right side. Thank you for your explanation..
To this day, I do without medication and instead rely on alternative healing methods. These seem to bring success, because a few days ago I managed the impossible:
I ran 11 kilometers without cramping - something I hadn't managed in over two years.
Overall, I am very satisfied with my progress and I am happy to recommend the homepage of the Parkinson Club (parkinsonclub.de), where you can find a lot of useful information that helped me a lot in my case.
Mine is in my right leg and foot where are used to be my just my shoulder and lower back and upper back. Injections to help with that. I am too sensitive for medication orally and it’s toxic to my body. This is Less invasive option
what injections are they estubbs79? Botox? There are also a range of different medications out there that may have less affects for you. My worse medication was Apamorphine, could not get on with it. Luckily everything else has been ok, after the nausea has subsided!
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Does anyone have suggestions on how to manage dystonia?
Any other PD people out there...your major PD symptom is toes curling up on both feet 
Levodopa Induced Dystonia
Effective medication for dystonia as first symptom?
Dystonia
