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RLS and Kidney disease, also Mount Sinai doc
I am new to this group and to this level of info on RLS. I am very grateful to those posting for their level of knowledge and willingness to share their experience and resources.I am not new to RLS symptoms, I have childhood memories of falling asleep rocking and sliding my legs back and forth. I'm 60
I am new to this group and to this level of info on RLS. I am very grateful to those posting for their level of knowledge and willingness to share their experience and resources.I am not new to RLS symptoms, I have childhood memories of falling asleep rocking and sliding my legs back and forth. I'm 60
TreeSpirit
in
Restless Legs Syndrome
1 year ago
post lung transplant
I have recently been accepted on the lung transplant list (November). I would value any advise/experience on the subject. I apparently have a very good blood group thus estimated waiting 50% 6 months, 80% 12 months. Thank you in advance Paul.
I have recently been accepted on the lung transplant list (November). I would value any advise/experience on the subject. I apparently have a very good blood group thus estimated waiting 50% 6 months, 80% 12 months. Thank you in advance Paul.
Northernsaul
in
Lung Conditions Community Forum
1 year ago
MY DIAGNOSIS FROM TODAY'S VISIT
UPDATE FROM TODAYS APPOINMENT WITH KIDNEY DR. Chronic kidney disease, stage IV (severe) (HCC) - Primary Essential hypertension Hypervolemia associated with renal insufficiency Anemia of chronic renal failure, unspecified CKD stage Other iron deficiency anemias Secondary hyperparathyroidism (HCC
UPDATE FROM TODAYS APPOINMENT WITH KIDNEY DR. Chronic kidney disease, stage IV (severe) (HCC) - Primary Essential hypertension Hypervolemia associated with renal insufficiency Anemia of chronic renal failure, unspecified CKD stage Other iron deficiency anemias Secondary hyperparathyroidism (HCC
MSTAUF
in
Early CKD Support
1 year ago
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now joining the blood pressure meds gang
I’ll be 71 in May so think I’ve done extremely well to avoid having to go onto BP medication until now! I’ve been prescribed Indapamide & been told to have bloods redone in 2 weeks time to make sure it hasn’t affected my kidneys. ✌️It doesn’t as my kidney function is currently fine. My cholesterol
I’ll be 71 in May so think I’ve done extremely well to avoid having to go onto BP medication until now! I’ve been prescribed Indapamide & been told to have bloods redone in 2 weeks time to make sure it hasn’t affected my kidneys. ✌️It doesn’t as my kidney function is currently fine. My cholesterol
Doraflora
in
PMRGCAuk
1 year ago
4-th line of chemo
Hello brave ladies. I would appreciate your experience concerning chemo protocol: Gemzar+ Oxaliplatine. Unefortunately and despite the inhibitor PARP (NIraparib) taken from 7 weeks now, my marker goes up rapidly and I will be facing the 4-th round of chemo called "gemox". At the same time I've developped
Hello brave ladies. I would appreciate your experience concerning chemo protocol: Gemzar+ Oxaliplatine. Unefortunately and despite the inhibitor PARP (NIraparib) taken from 7 weeks now, my marker goes up rapidly and I will be facing the 4-th round of chemo called "gemox". At the same time I've developped
Reksio77
in
My Ovacome
1 year ago
Preventative Antibiotics
Hi all, I've been a GCA patient since AUG 2022 and am currently on 40 MG PRED (down from 60, then 50). My rheumy is concerned about my immune system and has prescribed a preventative course of atovaquone to protect me from pneumonia -- even though I've recently had the pneumonia vaccine, He prescribed
Hi all, I've been a GCA patient since AUG 2022 and am currently on 40 MG PRED (down from 60, then 50). My rheumy is concerned about my immune system and has prescribed a preventative course of atovaquone to protect me from pneumonia -- even though I've recently had the pneumonia vaccine, He prescribed
montebello
in
PMRGCAuk
1 year ago
new to Group
I have chronic
kidney
disease. I received a deceased donor
transplant
13 months ago. My transplant team has had real difficulty dealing with dangerously low white blood cell count. I’ve received numerous Neupogen injections.
I have chronic
kidney
disease. I received a deceased donor
transplant
13 months ago. My transplant team has had real difficulty dealing with dangerously low white blood cell count. I’ve received numerous Neupogen injections.
Jayhawker
in
CLL Support
5 months ago
interesting tweet on Lu-177
cycle 17 of Lu-177 in Australia and still benefitting! Like the socks too! Normal bloods and renal function too wow shows ‘one size fits all’ decision making on treatment protocols has to be challenged imo
cycle 17 of Lu-177 in Australia and still benefitting! Like the socks too! Normal bloods and renal function too wow shows ‘one size fits all’ decision making on treatment protocols has to be challenged imo
Brysonal
in
Fight Prostate Cancer
1 year ago
Tapering with new issues ongoing
Tapering while new issues arvine profile image arvine• 8 hours ago•1 Reply well I have told my story pretty well all along, including some family serious illnesses . In previous comments, I have mentioned my son, who has fought a battle actually since June 2017, beingdiagnosed with multiple myeloma
Tapering while new issues arvine profile image arvine• 8 hours ago•1 Reply well I have told my story pretty well all along, including some family serious illnesses . In previous comments, I have mentioned my son, who has fought a battle actually since June 2017, beingdiagnosed with multiple myeloma
arvine
in
PMRGCAuk
1 year ago
Tapering while new issues
well I have told my story pretty well all along, including some family serious illnesses . In previous comments, I have mentioned my son, who has fought a battle actually since June 2017, beingdiagnosed with multiple myeloma, having stem cell transplant in Jan 2018, as a mom, this was very hard to see
well I have told my story pretty well all along, including some family serious illnesses . In previous comments, I have mentioned my son, who has fought a battle actually since June 2017, beingdiagnosed with multiple myeloma, having stem cell transplant in Jan 2018, as a mom, this was very hard to see
arvine
in
Pain Concern
1 year ago
What do I ask kidney Dr. on next appointment ?
HI I see my kidney DR. again this Friday Jan 12 th. I had the lab work last Friday , I read the results on my chart on line today. I see many flags in the tests . I need to be asking questons what they all mean. My hemoglobin came up to 11,5 it is flaged ,creatinine external 37 mg . creatinine
HI I see my kidney DR. again this Friday Jan 12 th. I had the lab work last Friday , I read the results on my chart on line today. I see many flags in the tests . I need to be asking questons what they all mean. My hemoglobin came up to 11,5 it is flaged ,creatinine external 37 mg . creatinine
MSTAUF
in
Early CKD Support
1 year ago
Catheter
good day to all you wonderful ladies I hope the sun is shining on you all My question is I have been having ureteric stents for the past 5yrs two weeks ago I had my stent changed to a Memokath stent (metal) others were plastic the metal stent lasts up to 10yrs where as the plastic need changing every
good day to all you wonderful ladies I hope the sun is shining on you all My question is I have been having ureteric stents for the past 5yrs two weeks ago I had my stent changed to a Memokath stent (metal) others were plastic the metal stent lasts up to 10yrs where as the plastic need changing every
1946val
in
My Ovacome
1 year ago
stopping mycophenalate when you are unwell?
hi all i’ve got lupus nephritis, sle and lupus profundus. I’ve been advised to stop mycophenalate by rheum for 7 days due to gastro problem. I should also have Antonio but they are out of stock at the moment, Stopping mycophenalate feels very scary as have never done this. Have you ever had to stop mycophenalate
hi all i’ve got lupus nephritis, sle and lupus profundus. I’ve been advised to stop mycophenalate by rheum for 7 days due to gastro problem. I should also have Antonio but they are out of stock at the moment, Stopping mycophenalate feels very scary as have never done this. Have you ever had to stop mycophenalate
Andfiona
in
LUPUS UK
1 year ago
Scared
I’ve been feeling a bit rubbish very tired ,had some tests showing elevated ALT ranging between 47 and 76 this year also raised ferritin around 300 . Diagnosed by this and a fibroscan showed f4 fibrosis /early Cirrosis and fatty liver disease . Awaiting full bloods but I know 30 years ago they saw
I’ve been feeling a bit rubbish very tired ,had some tests showing elevated ALT ranging between 47 and 76 this year also raised ferritin around 300 . Diagnosed by this and a fibroscan showed f4 fibrosis /early Cirrosis and fatty liver disease . Awaiting full bloods but I know 30 years ago they saw
Kikidee08
in
British Liver Trust
1 year ago
Red face / flushing. Possible rosacea
Hi I am 200 plus days post stem cell transplant. Since then I get flushed very easily. I have suffered with this in the past and still have it now but maybe worse I take a few medications still which may or may not help and wondered on any good way of controlling it my consultant has recommended me
Hi I am 200 plus days post stem cell transplant. Since then I get flushed very easily. I have suffered with this in the past and still have it now but maybe worse I take a few medications still which may or may not help and wondered on any good way of controlling it my consultant has recommended me
Kraskie1915
in
CLL Support
1 year ago
Is there anything I can take to lower antibodies
hi everyone, is there a way that I can lower my antibodies? Got my results back for kidney doctor (nephrologist) , all my bloods came back better GFR of 85 (so she was happy with that), and scan was good, but she said my antibodies were high which I knew eBay from my thyroid l. So she said she
hi everyone, is there a way that I can lower my antibodies? Got my results back for kidney doctor (nephrologist) , all my bloods came back better GFR of 85 (so she was happy with that), and scan was good, but she said my antibodies were high which I knew eBay from my thyroid l. So she said she
Thyroid36
in
Thyroid UK
1 year ago
Urine Calcium Test tips?
As my GP has me down as a hypochondriac malingerer I need some evidence to force testing of calcium properly. I can’t afford a £150 6 hour round trip London clinic test so some internet research led me to a £25 set of 10 dipsticks. I’m ready for the ‘waste of time’ responses and see an endo responses
As my GP has me down as a hypochondriac malingerer I need some evidence to force testing of calcium properly. I can’t afford a £150 6 hour round trip London clinic test so some internet research led me to a £25 set of 10 dipsticks. I’m ready for the ‘waste of time’ responses and see an endo responses
Regenallotment
in
Thyroid UK
1 year ago
I Feel like I should be grateful to be on the waiting list for a new liver. But I really don’t feel grateful to towards the kind doctors.
I hate the way I feel about the thought of a new liver transplant. I have made it know to doctors about my feeling towards a new liver transplant. I feel great at the moment and I only on one type of tablet a day. For my liver condition. After I have a new liver transplant I will be on 27 different
I hate the way I feel about the thought of a new liver transplant. I have made it know to doctors about my feeling towards a new liver transplant. I feel great at the moment and I only on one type of tablet a day. For my liver condition. After I have a new liver transplant I will be on 27 different
LucyBarrett
in
British Liver Trust
1 year ago
I really don’t want a liver transplant but do not know how to get of the list for good.
I really don’t want a liver transplant. Last year in December I was out on the liver transplant list. I got called in within less then a week after being put on the transplant list. 14th December 2021 to be more precise. But it never happened. And just felt the whole excise was a trial run. I been attending
I really don’t want a liver transplant. Last year in December I was out on the liver transplant list. I got called in within less then a week after being put on the transplant list. 14th December 2021 to be more precise. But it never happened. And just felt the whole excise was a trial run. I been attending
LucyBarrett
in
British Liver Trust
1 year ago
What do you do and what support do you get if you really don’t want a liver transplant
I really don’t want a liver transplant. Last year in December I was out on the liver transplant list. I got called in within less then a week after being put on the transplant list. 14th December 2021 to be more precise. But it never happened. And just felt the whole excise was a trial run. I been attending
I really don’t want a liver transplant. Last year in December I was out on the liver transplant list. I got called in within less then a week after being put on the transplant list. 14th December 2021 to be more precise. But it never happened. And just felt the whole excise was a trial run. I been attending
LucyBarrett
in
British Liver Trust
1 year ago
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