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General question
Hello All, Sorry to disturb you. Have few questions; appreciate if someone has suggestions/advise. I have pain when I pee some times, few bubbles and as well back pain. Did ultrasound and found 2 very small non obstructing stones, this is beginning of Jan 2021. From them I always felt I was tired ,
Hello All, Sorry to disturb you. Have few questions; appreciate if someone has suggestions/advise. I have pain when I pee some times, few bubbles and as well back pain. Did ultrasound and found 2 very small non obstructing stones, this is beginning of Jan 2021. From them I always felt I was tired ,
Anxoiusguy
in
Early CKD Support
3 years ago
IBS
I had my kidney transplant 3 1/2 years ago . I now have IBS with a very bad order. I’m very embarrassed by this. Any information to stop this Thanks
I had my kidney transplant 3 1/2 years ago . I now have IBS with a very bad order. I’m very embarrassed by this. Any information to stop this Thanks
11642
in
Kidney Transplant
3 years ago
How long to wait for a tracheotomy
Hello. So my brother has been weaned off sedation abit. However he has been becoming distressed- not surprising as he has a tube down his throat and the nurses have told him where he is. He is still not fully unsedated - his partner is struggling as she showed him a picture of their daughter but he was
Hello. So my brother has been weaned off sedation abit. However he has been becoming distressed- not surprising as he has a tube down his throat and the nurses have told him where he is. He is still not fully unsedated - his partner is struggling as she showed him a picture of their daughter but he was
paris2021
in
ICUsteps
3 years ago
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Medication loosing its effectiveness
I’ve been taking Prucalopride for a year now & it has been loosing its effectiveness slowly during this time , I’m now on 4 mg per day & also I’ve had to start taking Bisacodyl 20 mg as well over the past 6 months to keep things moving . I go to the toilet to some extent everyday , but it’s getting
I’ve been taking Prucalopride for a year now & it has been loosing its effectiveness slowly during this time , I’m now on 4 mg per day & also I’ve had to start taking Bisacodyl 20 mg as well over the past 6 months to keep things moving . I go to the toilet to some extent everyday , but it’s getting
Gardenlover2020
in
IBS Network
3 years ago
Anyone’s gfr from their labs differ from gfr calculators?
My labs show a different gfr than what the calculators show. Is it bc there’s other blood related factors that get equated? Bc my creatinine has remained at 1.10 and bun 20 for over 10 years but over the years my blood labs show my gfr going from 96-70 in about 10 years. Note I didn’t get labs done
My labs show a different gfr than what the calculators show. Is it bc there’s other blood related factors that get equated? Bc my creatinine has remained at 1.10 and bun 20 for over 10 years but over the years my blood labs show my gfr going from 96-70 in about 10 years. Note I didn’t get labs done
FThomp
in
Early CKD Support
3 years ago
BK Virus
I am one month post kidney transplant however I have a BK virus that is freaking me out I do labs twice a week and it went from 0 to 57 to 461 to 12,000 haven’t got results from today but would greatly appreciate if anyone can share their experience with me to help me understand what to expect. Thank
I am one month post kidney transplant however I have a BK virus that is freaking me out I do labs twice a week and it went from 0 to 57 to 461 to 12,000 haven’t got results from today but would greatly appreciate if anyone can share their experience with me to help me understand what to expect. Thank
Alkaline1
in
Kidney Transplant
3 years ago
Kidney Transplant Evaluation
I'm scheduled for a kidney transplant evaluation in a few days. I was told that the appointment can take 4 or 5 hours. Can anyone please tell me what is involved with the evaluation?
I'm scheduled for a kidney transplant evaluation in a few days. I was told that the appointment can take 4 or 5 hours. Can anyone please tell me what is involved with the evaluation?
annulla
in
Kidney Transplant
3 years ago
Tacrolimus Supply Problem?
Dear All, I have been 'on' Tacrolimus since my Kidney Transplant, way back, in July 2013. Recently however my regular Chemist- Rowlands- has had Trouble/ a Problem 'getting' this- however, it appears that NO-ONE else has! My Doctor's has been Great, about this, and has written the Prescription for this
Dear All, I have been 'on' Tacrolimus since my Kidney Transplant, way back, in July 2013. Recently however my regular Chemist- Rowlands- has had Trouble/ a Problem 'getting' this- however, it appears that NO-ONE else has! My Doctor's has been Great, about this, and has written the Prescription for this
AndrewT
in
Vasculitis UK
3 years ago
UTI and E.Coli
I’ve been ill for 12 weeks so been off my methotrexate. I’ve had 4 loads of blood tests done and 3 urine infections where I was really ill. Vomiting, fever, nausea, chronic fatigue, I’ve lost 10kilos! Turns out I had a kidney infection and it was resistant to the antibiotics the GP prescribed. I spoke
I’ve been ill for 12 weeks so been off my methotrexate. I’ve had 4 loads of blood tests done and 3 urine infections where I was really ill. Vomiting, fever, nausea, chronic fatigue, I’ve lost 10kilos! Turns out I had a kidney infection and it was resistant to the antibiotics the GP prescribed. I spoke
marie66
in
NRAS
3 years ago
New here curios and confused lol
Hi my name is Rick I was diagnosed with adpkd on 5th jan 2022 I have never had any cases of pkd in my family before me and only discovered I had it while investigating high blood pressure I’m 38 and bar the blood pressure have had no symptoms until now , I constantly have to p during the night and am
Hi my name is Rick I was diagnosed with adpkd on 5th jan 2022 I have never had any cases of pkd in my family before me and only discovered I had it while investigating high blood pressure I’m 38 and bar the blood pressure have had no symptoms until now , I constantly have to p during the night and am
Chappy1708
in
PKD Charity for Autosomal Dominant PKD
3 years ago
Besremi versus Pegasys
This question was raised by Flynn2107 months ago. I looked into it and replied there but it seems worth a new post with the recent FDA approval. PEG and Ropeg (Besremi) use polyethylene glycol (PEG) to control the release of the INF molecule. The earliest INFs had less of a control element and more
This question was raised by Flynn2107 months ago. I looked into it and replied there but it seems worth a new post with the recent FDA approval. PEG and Ropeg (Besremi) use polyethylene glycol (PEG) to control the release of the INF molecule. The earliest INFs had less of a control element and more
EPguy
in
MPN Voice
3 years ago
Leg ache - side effect metronidazole
Hi I have had 2 days of metronidazole for dental 400mg twice a day - advised to stop it due to side effect - leg pain in calf muscles - has anyone experienced this and if so how long do these symptoms last - has anyone had similar problems
Hi I have had 2 days of metronidazole for dental 400mg twice a day - advised to stop it due to side effect - leg pain in calf muscles - has anyone experienced this and if so how long do these symptoms last - has anyone had similar problems
Impega
in
Pain Concern
3 years ago
Kidney Jokes
Thought I would do something admirable this holiday season and donate a kidney I got nothing but grief from the Salvation Army bell ringer who's bucket I was trying to shove it in ~~~~~~ So I got a kidney shaped pool... It has a stone in it... ~~~ Did you hear about the man who got a brain transplant
Thought I would do something admirable this holiday season and donate a kidney I got nothing but grief from the Salvation Army bell ringer who's bucket I was trying to shove it in ~~~~~~ So I got a kidney shaped pool... It has a stone in it... ~~~ Did you hear about the man who got a brain transplant
Sophiebun11
in
Kidney Disease
3 years ago
creatine ?
I have a question please - have tried, but without success to find an answer : I have a good eGFR result, but my creatine is high - I am sticking to a low protein diet which has helped raise my eGFR but has no affect on my high creatine level? What can I do to bring my creatine level down ? Also,
I have a question please - have tried, but without success to find an answer : I have a good eGFR result, but my creatine is high - I am sticking to a low protein diet which has helped raise my eGFR but has no affect on my high creatine level? What can I do to bring my creatine level down ? Also,
barneyfrances
in
Early CKD Support
3 years ago
UTI I've had a UTI .
I've had a UTI infection every month since August ,just flared up again ,last two months it's been on my third week after chemo ,so ruins my two good weeks ,has anyone else had this problem ,if so is there a solution , I've had a seven day course of antibiotics for the last four months . Cheryl
I've had a UTI infection every month since August ,just flared up again ,last two months it's been on my third week after chemo ,so ruins my two good weeks ,has anyone else had this problem ,if so is there a solution , I've had a seven day course of antibiotics for the last four months . Cheryl
fendweller
in
My Ovacome
3 years ago
Mom recurrence after 4 years remission
Still i am in stress… my mom had OC 2017, that 4 years silent, and may 2021 it was back. throughout the abdomen and lymph nodes of the abdomen, around the liver, she was treated with the same platinum chemo. Do anyone have in first recurrence have same chemo as in first time? I think it worked very good
Still i am in stress… my mom had OC 2017, that 4 years silent, and may 2021 it was back. throughout the abdomen and lymph nodes of the abdomen, around the liver, she was treated with the same platinum chemo. Do anyone have in first recurrence have same chemo as in first time? I think it worked very good
Inguc_is
in
My Ovacome
3 years ago
My husband hasCKD. I’m so scared
Hello everyone! I’m really scared for my husbands life. He is 45 years old and his primary has just diagnosed him with CKD. He has GFR of 70. Doctor really scared us by telling us that at his age he would properly require Dialysis and a kidney transplant. We have an appointment to see a specialist
Hello everyone! I’m really scared for my husbands life. He is 45 years old and his primary has just diagnosed him with CKD. He has GFR of 70. Doctor really scared us by telling us that at his age he would properly require Dialysis and a kidney transplant. We have an appointment to see a specialist
Dianamillo
in
Early CKD Support
3 years ago
Mom with 11 yr old son that had Kidney Transplant at 18 months old.
Hello, I’m new to this community so grateful to have found this. Wish it was around 10 yrs ago when we were dealing with my sons transplant… Just looking for parents with children that may have gone through a transplant. My son is 11 now and just going through a huge change physically, emotionally,
Hello, I’m new to this community so grateful to have found this. Wish it was around 10 yrs ago when we were dealing with my sons transplant… Just looking for parents with children that may have gone through a transplant. My son is 11 now and just going through a huge change physically, emotionally,
Tulip00
in
Parents of Children with Kidney Disease
3 years ago
Unexplained deterioration of GFR
Good morning, I’m a 43 year old female and am awaiting for my blood results taken to try and understand why my GFR has fallen from 73 which it was this time last year. It had dropped to 56 in July and now it’s 53. These are the only numbers I have. My urine isn’t showing any protein at the moment.
Good morning, I’m a 43 year old female and am awaiting for my blood results taken to try and understand why my GFR has fallen from 73 which it was this time last year. It had dropped to 56 in July and now it’s 53. These are the only numbers I have. My urine isn’t showing any protein at the moment.
Lau12
in
Early CKD Support
3 years ago
Covid-19
Has anyone with kidney transplant and Covid shots caught Covid? If so how did you do? This is my fear as I don’t know how my body will react. I am very scared to go out for fear of losing my donated kidney.
Has anyone with kidney transplant and Covid shots caught Covid? If so how did you do? This is my fear as I don’t know how my body will react. I am very scared to go out for fear of losing my donated kidney.
Beachvibe
in
Kidney Disease
3 years ago
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