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Home blood testing
Hi, I am new to this forum so it is nice to meet you all. Just have a quick question, I have had an ultrasound and found to have a fatty liver (falls just inside acceptable apparently) and a simple cyst. I only found out this from the nurse as I had gone to see her about something else. My GP now
Hi, I am new to this forum so it is nice to meet you all. Just have a quick question, I have had an ultrasound and found to have a fatty liver (falls just inside acceptable apparently) and a simple cyst. I only found out this from the nurse as I had gone to see her about something else. My GP now
Lisell
in
British Liver Trust
3 years ago
To do KT or not?
To those of you that has had a kidney transplant, do you think it is worth to do it, given all the possible complications and the high risk of developing cancer by taking immunosuppressants ? I am contemplating on undergoing pre- emptive KT but with of these possibilities , I am so nervous. Thanks
To those of you that has had a kidney transplant, do you think it is worth to do it, given all the possible complications and the high risk of developing cancer by taking immunosuppressants ? I am contemplating on undergoing pre- emptive KT but with of these possibilities , I am so nervous. Thanks
Dina0210
in
Kidney Disease
3 years ago
New here
Hi, I was diagnosed with Primary Peritoneal Cancer stage 4b Sept 2020 my Ca125 was 1640. I also had 2 drains for fluid in the abdomen. After 3 rounds of carboTaxol I responded well enough for debulking surgery on Xmas eve. This was successful and in Feb 2021 my scan showed NED, was then put on a maintenance
Hi, I was diagnosed with Primary Peritoneal Cancer stage 4b Sept 2020 my Ca125 was 1640. I also had 2 drains for fluid in the abdomen. After 3 rounds of carboTaxol I responded well enough for debulking surgery on Xmas eve. This was successful and in Feb 2021 my scan showed NED, was then put on a maintenance
Ab59
in
My Ovacome
3 years ago
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Change of Plan?
When my PSA took off in 2021 following an APC diagnosis in the January, SBRT to 3rd rib and T1 failing to prevent new mets (6 to spine on PSMA PET scan) I was referred to an MO for systemic treatment. He recommended SOC as: Degarelix Chemo Abiraterone RO said she would consider radiation therapy to
When my PSA took off in 2021 following an APC diagnosis in the January, SBRT to 3rd rib and T1 failing to prevent new mets (6 to spine on PSMA PET scan) I was referred to an MO for systemic treatment. He recommended SOC as: Degarelix Chemo Abiraterone RO said she would consider radiation therapy to
Brysonal
in
Advanced Prostate Cancer
3 years ago
The Queens first steps inside the Dialysis Center
Hi everyone. I went to dialysis education yesterday. It was the very first time I went inside a building I have past a million times knowing it was where people got dialysis. Going in I felt a wealth of emotions none greater than sadness. It felt suffocating and surreal to be honest. Me and my mom
Hi everyone. I went to dialysis education yesterday. It was the very first time I went inside a building I have past a million times knowing it was where people got dialysis. Going in I felt a wealth of emotions none greater than sadness. It felt suffocating and surreal to be honest. Me and my mom
HipHopQueen
in
Kidney Dialysis
3 years ago
Severe, 45-minute long leg cramps
When I'm falling asleep, I get terrible leg cramps where both the extending and the contracting leg muscles freeze for about 45 min. until my muscles "remember" where they belong. And then and only then I can put my foot on the floor. I'm scheduled for a kidney transplant and hoping that the cramps will
When I'm falling asleep, I get terrible leg cramps where both the extending and the contracting leg muscles freeze for about 45 min. until my muscles "remember" where they belong. And then and only then I can put my foot on the floor. I'm scheduled for a kidney transplant and hoping that the cramps will
PurpleKatisha
in
Kidney Disease
3 years ago
Covid safety rules to stop !
Had enough now ! feel like myself as RA Imunecompromised and my husband severe Immunecompromised Kidney transplant will never get our life back or be safe ! Boris knows there are still vulnerable and exstremely vulnerable people they are a disgrace and act as if everyone is ok !!!
Had enough now ! feel like myself as RA Imunecompromised and my husband severe Immunecompromised Kidney transplant will never get our life back or be safe ! Boris knows there are still vulnerable and exstremely vulnerable people they are a disgrace and act as if everyone is ok !!!
trace58
in
NRAS
3 years ago
Why do others think I'm stupid for helping our family member
Hello I have a brother in the hospital recovering from covid thank God he will make a good recovery he's only allowed 1 visitor for 1 hour everyday. I went to see our brother to just try & spend some time with him his wife beat me to it a few minutes earlier. He's going to require dialysis I think twice
Hello I have a brother in the hospital recovering from covid thank God he will make a good recovery he's only allowed 1 visitor for 1 hour everyday. I went to see our brother to just try & spend some time with him his wife beat me to it a few minutes earlier. He's going to require dialysis I think twice
Drawi
in
Kidney Dialysis
3 years ago
What to do when dad gets home from hospital
My dad 79 and a veteran, just started kidney dialysis in the hospital. I live an hour and I am hoping they can setup rides to dialysis when he gets home. I am worried about his new diet plan. Because of my health I can only get there once a week. Any tips are appreciated. I am new to this, and I am
My dad 79 and a veteran, just started kidney dialysis in the hospital. I live an hour and I am hoping they can setup rides to dialysis when he gets home. I am worried about his new diet plan. Because of my health I can only get there once a week. Any tips are appreciated. I am new to this, and I am
dadinfo
in
Kidney Dialysis
3 years ago
Help for my sister
My sister is on the transplant list in Birmingham, AL but every live donor who has came forward has been rejected and she hasn't received one call from the Transplant Center for a deceased donor. My 3 brothers and I all have received deceased donor kidney transplants but live in KY. My sister will
My sister is on the transplant list in Birmingham, AL but every live donor who has came forward has been rejected and she hasn't received one call from the Transplant Center for a deceased donor. My 3 brothers and I all have received deceased donor kidney transplants but live in KY. My sister will
bowlingpkd
in
Kidney Transplant
3 years ago
Hyperparathyroidism diagnosis plz help!
Hi Everyone, I had my kidney transplant 8months ago after being on dialysis for almost 6years. My dr. Just told me I have a severe hyperparathyroidism and that’s mainly because I was on dialysis for so long. He prescribed Cinacalcet to be taking once a day. My question is did anyone of you experienced
Hi Everyone, I had my kidney transplant 8months ago after being on dialysis for almost 6years. My dr. Just told me I have a severe hyperparathyroidism and that’s mainly because I was on dialysis for so long. He prescribed Cinacalcet to be taking once a day. My question is did anyone of you experienced
Tuna14
in
Kidney Transplant
3 years ago
Yellow skin under eyes?
Are there any causes of slightly yellow skin under your eyes when pregnant besides jaundice/cholestasis? Apart from slightly itchy skin on my bump and being tired (which could just be normal), I don't really have any other symptoms of anything. I'm going to try to get through to the midwife to ask anyway
Are there any causes of slightly yellow skin under your eyes when pregnant besides jaundice/cholestasis? Apart from slightly itchy skin on my bump and being tired (which could just be normal), I don't really have any other symptoms of anything. I'm going to try to get through to the midwife to ask anyway
GeorgiaMac
in
Pregnancy and Parenting Support
3 years ago
Please join us tomorrow Tuesday, February 8th for our monthly Gathering HOPE social hour!
Hello and happy February! I am looking forward to seeing you all at our Gathering HOPE social hour, one of our favorite new community programs. We’ve been having so much fun connecting and getting to know each other every month, and I would love for you to join us at our next event: Tuesday, February
Hello and happy February! I am looking forward to seeing you all at our Gathering HOPE social hour, one of our favorite new community programs. We’ve been having so much fun connecting and getting to know each other every month, and I would love for you to join us at our next event: Tuesday, February
Michelezeh
Partner
in
Lung Cancer Support
3 years ago
Newly-discovered Micro-Mets: What would you do?
Recent (my first) PSMA Pylarify scan shows I've acquired 9-10 tiny lymph node metastases scattered in the common iliac, mediastinal, and left supraclavicular regions of my body. I'm still hormone-sensitive, but would prefer not to go back on ADT if possible (history of heart concerns). Area radiation
Recent (my first) PSMA Pylarify scan shows I've acquired 9-10 tiny lymph node metastases scattered in the common iliac, mediastinal, and left supraclavicular regions of my body. I'm still hormone-sensitive, but would prefer not to go back on ADT if possible (history of heart concerns). Area radiation
SeattleDan
in
Advanced Prostate Cancer
3 years ago
its getting hard.
Hello - I am really struggling with this. I got a letter from a treatment provider where I was having treatment for depression - RTMS. They have discharged me from the programme as it didn't work for me. My depression score was really high due to the stress with my renal function. She basically wrote
Hello - I am really struggling with this. I got a letter from a treatment provider where I was having treatment for depression - RTMS. They have discharged me from the programme as it didn't work for me. My depression score was really high due to the stress with my renal function. She basically wrote
fartikins
in
Kidney Disease
3 years ago
Weight management
If anyone is in any doubt if Keto works alongside our blood sugar issues, I’ve been on Keto for just under 4 weeks now and have lost 1 stone and 3 lb. By back pain has disappeared as has my left knee pain. My bowel issues have disappeared. I’ve stopped going to the loo more than 5 or 6 times a day.
If anyone is in any doubt if Keto works alongside our blood sugar issues, I’ve been on Keto for just under 4 weeks now and have lost 1 stone and 3 lb. By back pain has disappeared as has my left knee pain. My bowel issues have disappeared. I’ve stopped going to the loo more than 5 or 6 times a day.
Singr
in
PMRGCAuk
3 years ago
Adrenaline bursts
I have been experiencing ,what has now become several times daily, bursts of adrenaline for a few months now and wondering if it could be related to my endo or some kind of hormone issue. I get short rushes of adrenaline from out of nowhere, I could just be sitting watching TV, for example. It's gone
I have been experiencing ,what has now become several times daily, bursts of adrenaline for a few months now and wondering if it could be related to my endo or some kind of hormone issue. I get short rushes of adrenaline from out of nowhere, I could just be sitting watching TV, for example. It's gone
Jane884
in
Endometriosis UK
3 years ago
Just to let you know my aunt donated her liver and kidney (lost the other kidney to cancer a few years ago) ❤️
Donor
Donor
Foxdud
in
British Liver Trust
3 years ago
Dad Airlifted back to Mayo Clinic W/ Covid Complications, After Kidney Transplant And Mother is in a downward spiral, "Self Medicating"
Sorry guy's I really need to vent. I live in different states from my dad and family and can't see him right now because of the restrictions. Today My dad got Airlifted to Arizona for covid related complications. A little over a Month ago things were totally different after him being on dialysis for
Sorry guy's I really need to vent. I live in different states from my dad and family and can't see him right now because of the restrictions. Today My dad got Airlifted to Arizona for covid related complications. A little over a Month ago things were totally different after him being on dialysis for
Luna_Love143
in
Anxiety and Depression Support
3 years ago
NEW GFR POST TRANSPLANT
I was wondering how quickly after transplant the GFR starts showing some normalcy. From my blood test I had yesterday, thursday, I received the results and I was shocked to learn that the day of the surgery, my GFR was down to 8. So after the transplant on January 25th, my GFR is now 57! I am just
I was wondering how quickly after transplant the GFR starts showing some normalcy. From my blood test I had yesterday, thursday, I received the results and I was shocked to learn that the day of the surgery, my GFR was down to 8. So after the transplant on January 25th, my GFR is now 57! I am just
TaffyTwoshoes27
in
Kidney Dialysis
3 years ago
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