Hello MPN friends.
I have primary MF and CKD stage 3, on Jakavi for almost 1 year. I was told by the hematologist that Jakavi + age contribute to worthening the kidney function. I was wondering if any of you are having kidney problems due to MF and if you have any advise on how to treat, diet, cope with it. Thank you all in advance and wish you all well!
Hello Arami. I have primary MF and have been told my kidney function is not as good as it should be. I was on Jakavi for about 10 years. Apparently now I'm told my kidneys look ok though are being squashed a bit by an enlarged spleen and liver. I have never received any treatment for my kidneys. I tend to eat a Mediterranean diet on the whole.
Sorry this is probably not particularly helpful to you but I just thought I'd share my experience. Hilary
This may not be helpful because I am the only one that is concerned about my kidneys. But because I am a PA I know my GFR should be better. And it started when I got diagnosed. So I just don’t want it to get worse. On my own I started eating more fruit including apples, berries and salads and I cut out protein for breakfast and lunch. I drink 4-5 bottles of water most everyday. And I avoid a lot of dairy and no heavily processed meats. No one told me to do this but I know it is good for my kidneys and it makes me feel better. Even though they are “good”, they still should in my opinion be better and I don’t want it to get worse. My aunt has been at 3a renal disease for over a decade. I hope this helps!
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