Stressed ill be taken off active list

[Calebzztop]

I have been listed for a third kidney transplant and have had two transplant evaluations in the last 6 months ..I have a third Nov 2nd, along with a cardiac stress test ..I have multiple appointments scheduled every week for the next 4 months, all pre transplant testing. Yesterday I had a virtual appointment with Infectious Disease and I missed the appointment by 35 minutes! I woke feeling sick with cough,stuffy nose,sore throat, stomach issues and lethargy. I had the laptop and phone beside me in bed ,ready for my virtual appointment but I ended up falling asleep!!! I woke in a complete panic ,looked at the time and immediately called the clinic when I saw i was 35 min late...the receptionist said the Dr was still there and to hold..when she got back on the phone she said my appt was rescheduled for Dec 17th....Since then I have been sick with anxiety that missing this one appt will be looked at as non compliant and I will be removed from active on the wait list. My donors are both not matches but have both decided to participate in the paired exchange program and have completed all of their testing....I have not missed any other appointments but I am still petrified that on November 2nd or even before I will be told because of that missed appointment they will not transplant me. I can't stop thinking about it and how awful it would be to lose my chance at transplant because I fell asleep and missed such a important appointment when I never sleep during the day too!! I have appointments Tues Wed and Thurs this coming week and I just keep praying that they will understand this accidentally falling asleep while I was sick and that I will set measures to make sure that this never happens again...multiple alarm clocks,phone calls from family as reminders etc.

I have been eating a very healthy diet and hired a personal trainer and have been working out 3x a week with them,yoga once a week at home and walking everyday to keep as healthy and strong as possible.

I'm going to continue to pray they do not take away my chance at another transplant because of this one mistake. I have had my current transplant 19 years next month. Any prayers would be greatly appreciated! Thanks to anyone who took the time to read this post . I hope and pray for the best for all of you!

[Darlenia]

Hi Caleb. Please be at ease. I don't think you'll be rejected for being noncompliant for this one incident. The hospital that recently transplanted my hubby has a "3 strikes and you're out" policy. (It says so on their video that anyone who wants to get on their list has to view.) Your center probably has a similar policy since they've already scheduled you for another interview. So don't dwell on it or throw it up for lots of discussion - simply a sincere thank you for the rescheduled appointment should suffice. They know you took very good care of the prior transplants. So things happen - traffic, illness, etc. Surely one miss won't end the game.

[Calebzztop in reply to Darlenia]

Thank you Darlenia! I hope your hubby is feeling well and his transplant lasts for many many years. Your words were very helpful and eased my anxiety. Take care!

[Megan024]

Hello, while I can certainly understand why your stressed , I don’t think they will look at this one time as no compliant. It sounds like your doing everything right . When you pray ask God to swell every area of your heart where there is anxiety with peace . I believe they will be forgiving . If you still have anxiety about it . I would call and talk to them about it . It’s not healthy to be under so much stress. Blessings and best wishes!

[Calebzztop in reply to Megan024]

Thank you Megan024. Your words were very helpful. Sometimes just to have another listen and say a few kind words is all we need. And of course I will continue to pray and ask God to fill my heart with peace where there is anxiety. Blessings to you and take care!

[Megan024]

Hi I completely understand! I will be praying for you that all goes well for you!!! Now go have a great day knowing Gods got this and you don’t need to worry! Remember he is bigger than our kindney disease and can do anything when we ask.

[Transplant2018]

You wouldn't have had a kidney for almost 19 years without being highly compliant with your meds and clinic appointments!

[Calebzztop]

Just wanted to thank everyone Transplant2018 ,Megan024 ,Darlenia for being so supportive..I had a call and my appointment was scheduled a couple of days after my post and it went great! The Infectious Disease Doctor was wonderful and even said it would be ok for me to travel to The South of France in February as long as my numbers remain stable ! I'm so relieved everything went well and I'm on the path to my third transplant