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Shingrix vaccine for immunosuppressed people aged 50+
I thought I would just post this from the gov.uk website because I have just a bit of struggle convincing our surgery that I was eligible, so maybe other people haven't been invited either. The full list is on chrome-extension://efaidnbmnnnibpcajpcglclefindmkaj/https://assets.publishing.service.gov.uk
I thought I would just post this from the gov.uk website because I have just a bit of struggle convincing our surgery that I was eligible, so maybe other people haven't been invited either. The full list is on chrome-extension://efaidnbmnnnibpcajpcglclefindmkaj/https://assets.publishing.service.gov.uk
Sharitone
in
PMRGCAuk
9 months ago
liver gal
I have had a liver transplant June 29, 2023 and the hair loss won’t stop? And info on will it stop?!
I have had a liver transplant June 29, 2023 and the hair loss won’t stop? And info on will it stop?!
Livergal
in
British Liver Trust
9 months ago
Dilated Cardiomyopathy/ Heart Transplant
I was diagnosed with Dilated Cardiomyopathy in November 2022 after suffering shortness of breath and always being tired and breathless. I quickly deteriorated and when I went back to see my Cardiologist in January I was told I was now critical and needed to be admitted and put on the urgent transplant
I was diagnosed with Dilated Cardiomyopathy in November 2022 after suffering shortness of breath and always being tired and breathless. I quickly deteriorated and when I went back to see my Cardiologist in January I was told I was now critical and needed to be admitted and put on the urgent transplant
Jobby85
in
British Heart Foundation
9 months ago
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Coopersmummy7
Hi,I am new to this awful condition.Had nearly a year of being undiagnosed and finally rushed into hospital Dec.22 with GCAand loss of sight in one eye.Long story short,2 relapses,yo yo ing of f prednisilone,could not tolerate Metho, or leflunomide,and now looks like I will be starting on Tocilzumab.Am
Hi,I am new to this awful condition.Had nearly a year of being undiagnosed and finally rushed into hospital Dec.22 with GCAand loss of sight in one eye.Long story short,2 relapses,yo yo ing of f prednisilone,could not tolerate Metho, or leflunomide,and now looks like I will be starting on Tocilzumab.Am
Angelsmummy
in
PMRGCAuk
3 months ago
Diagnosis at last! Haemochromotosis?
I've posted a few times on this forum but a bit of backstory - hubby, 43 had sudden onset of upper right quadrant pain last December, has some tests for gallstones, found nothing, immediately stopped drinking (had drunk heavily for around 15 years), and after a lot of back and forward was found to have
I've posted a few times on this forum but a bit of backstory - hubby, 43 had sudden onset of upper right quadrant pain last December, has some tests for gallstones, found nothing, immediately stopped drinking (had drunk heavily for around 15 years), and after a lot of back and forward was found to have
RugbyMama
in
British Liver Trust
9 months ago
just advice support
I don’t really know what I want from this post only that it’s nearly 2am and I feel completely broken and wanted to put it down somewhere. I feel like I am breaking and I don’t want to upset anyone else with my worries, because they are worrying to and I don’t want sympathy from people I love because
I don’t really know what I want from this post only that it’s nearly 2am and I feel completely broken and wanted to put it down somewhere. I feel like I am breaking and I don’t want to upset anyone else with my worries, because they are worrying to and I don’t want sympathy from people I love because
Helpplease_
in
ICUsteps
9 months ago
Lympahdinitis
Lymphdinitis in neck in kidney transplant patient..in FAnc reporr No TB detected or cancer only it says
Necrotizing Lympahdinitis
.. .after taking antibiotic and antinflameter ..for 8 days it reduce ..the size of lymph node ..but no it again increased and further on e another arise up..plz
Lymphdinitis in neck in kidney transplant patient..in FAnc reporr No TB detected or cancer only it says
Necrotizing Lympahdinitis
.. .after taking antibiotic and antinflameter ..for 8 days it reduce ..the size of lymph node ..but no it again increased and further on e another arise up..plz
bal_123
in
Kidney Transplant Patient Support
9 months ago
RA and live flu vaccine
HiMy daughter has rung to say my 2 year old grandson has just had a live flu vaccine. She said the GP has said to avoid people with very compromised immune systems, eg. they said, having bone marrow transplants, for a week. She asked if it was safe for them to see me and was told they had no guidance
HiMy daughter has rung to say my 2 year old grandson has just had a live flu vaccine. She said the GP has said to avoid people with very compromised immune systems, eg. they said, having bone marrow transplants, for a week. She asked if it was safe for them to see me and was told they had no guidance
Julia31
in
NRAS
10 months ago
Post stem cell transplant vaccinations
Hi. I am 11 months post transplant (AML). I am due to have my childhood vaccines next week. Just worried about reactions etc and it not being in the safety of the hospital.
Hi. I am 11 months post transplant (AML). I am due to have my childhood vaccines next week. Just worried about reactions etc and it not being in the safety of the hospital.
Platelets2022
in
Leukaemia Support
10 months ago
Vasculitus, a promising road ahead- let’s hope so!
https://www.thelancet.com/journals/lanrhe/article/PIIS2665-9913(24)00094-8/fulltext?dgcid=raven_jbs_aip_email ‘…Biologics have come to the forefront as glucocorticoid-sparing agents. After the seminal GiACTA trial, tocilizumab is now recommended as a first-line therapy for giant cell arteritis in combination
https://www.thelancet.com/journals/lanrhe/article/PIIS2665-9913(24)00094-8/fulltext?dgcid=raven_jbs_aip_email ‘…Biologics have come to the forefront as glucocorticoid-sparing agents. After the seminal GiACTA trial, tocilizumab is now recommended as a first-line therapy for giant cell arteritis in combination
Exflex
in
PMRGCAuk
3 months ago
Question on PMR and Temporal Arteritis
Does anyone know: would an MRI show Temporal Arteritis or would a person need a biopsy to determine if Temporal Arteritis was present? Asking for a person newly diagnosed with PMR and in the ER dept was told she had Temporal Arteritis. Yesterday she went to the rheumatologist and was told she definitely
Does anyone know: would an MRI show Temporal Arteritis or would a person need a biopsy to determine if Temporal Arteritis was present? Asking for a person newly diagnosed with PMR and in the ER dept was told she had Temporal Arteritis. Yesterday she went to the rheumatologist and was told she definitely
Musiclady18
in
PMRGCAuk
4 months ago
Lee75glom
I currently am undergoing evaluation for a kidney transplant a major transplantation center, Perelman Center for Advanced Medicine. I passed the first stage by the transplant committee. I am wondering about how patients who have received a kidney transplant deal with transportation to their center
I currently am undergoing evaluation for a kidney transplant a major transplantation center, Perelman Center for Advanced Medicine. I passed the first stage by the transplant committee. I am wondering about how patients who have received a kidney transplant deal with transportation to their center
Lee75glom
in
Kidney Transplant
9 months ago
October 15, 1999 - 2023
I am now 24 years out from my kidney transplant. I remember it as if it were yesterday! Getting the "call" at 2:30 AM and having to be at transplant center by 5:30...and then not taken to surgery till 3:00 PM. Had a lot of time to "stress out". Picture is of me hiking in Arches National Park in September
I am now 24 years out from my kidney transplant. I remember it as if it were yesterday! Getting the "call" at 2:30 AM and having to be at transplant center by 5:30...and then not taken to surgery till 3:00 PM. Had a lot of time to "stress out". Picture is of me hiking in Arches National Park in September
WYOAnne
NKF Ambassador
in
Kidney Disease
10 months ago
new transplant
I am new to this sight. Just want to say I am feeling incredibly grateful for my kidney transplant that occurred on Oct 4. My daughter was my donor and we were both released 2 days later. I was the first robot assisted kidney transplant at Mayo Clinic. I have to say it was fantastic. I have about a 2
I am new to this sight. Just want to say I am feeling incredibly grateful for my kidney transplant that occurred on Oct 4. My daughter was my donor and we were both released 2 days later. I was the first robot assisted kidney transplant at Mayo Clinic. I have to say it was fantastic. I have about a 2
Pjpanning
in
Kidney Transplant
10 months ago
Likelihood of liver transplantation
Hello everyone, hoping you can provide your experience and knowledge to help guide us. Our dad (57) has been a heavy drinker for the past 25 years, was always in denial and refused any help until he became hospitalised at the start of this year. He had developed severe ascites requiring drainage, has
Hello everyone, hoping you can provide your experience and knowledge to help guide us. Our dad (57) has been a heavy drinker for the past 25 years, was always in denial and refused any help until he became hospitalised at the start of this year. He had developed severe ascites requiring drainage, has
GranolaLover87
in
British Liver Trust
10 months ago
Patients with higher apolipoprotein A-I levels at greater risk for giant cell arteritis
https://www.healio.com/news/rheumatology/20240315/patients-with-higher-apolipoprotein-ai-levels-at-greater-risk-for-giant-cell-arteritis
https://www.healio.com/news/rheumatology/20240315/patients-with-higher-apolipoprotein-ai-levels-at-greater-risk-for-giant-cell-arteritis
perceptual63
in
PMRGCAuk
4 months ago
My Recovery so far post Stem cell Transplant
Sorry I've been absent for so long, my stem cell transplant journey has been a difficult one to be honest and only now do I feel able to be able to tell the story so far. Thank you to everyone who kindly messaged me to see how I was and apologies for asking so long to respond. I really appreciated
Sorry I've been absent for so long, my stem cell transplant journey has been a difficult one to be honest and only now do I feel able to be able to tell the story so far. Thank you to everyone who kindly messaged me to see how I was and apologies for asking so long to respond. I really appreciated
Jm954
Administrator
in
CLL Support
11 months ago
Kidney transplant
Hi Everyone, I just joined. My kidneys are at 10-12 EGFR and I am striving to find a living donor. I have some resources to do so, but I am wondering what others have done to search for a living donor. I also wonder what others in this situation have done for transportation to a major transplant
Hi Everyone, I just joined. My kidneys are at 10-12 EGFR and I am striving to find a living donor. I have some resources to do so, but I am wondering what others have done to search for a living donor. I also wonder what others in this situation have done for transportation to a major transplant
Lee75glom
in
Kidney Disease
10 months ago
Anyone had a coronary sinus reducer?
I haven't been on here in a long while. My medical history is pretty complex, I'm seen locally at the Bristol Heart Institute but also under the care of the Cardio-oncology team at the Royal Brompton which a forum member told me about years ago thankfully. Basically my bone marrow transplant and other
I haven't been on here in a long while. My medical history is pretty complex, I'm seen locally at the Bristol Heart Institute but also under the care of the Cardio-oncology team at the Royal Brompton which a forum member told me about years ago thankfully. Basically my bone marrow transplant and other
SomersetJo
in
British Heart Foundation
11 months ago
Tapering
Just a quick question about tapering Prednisolone. I have had GCA since Aug 22. Have tapered down to 5mg but had the beginnings of a flare. My rheumatologist told me to go up to 7.5mg. The flare abated. I then got an infection/virus and on the advice of the rheumatology nurses increased to 10mg for a
Just a quick question about tapering Prednisolone. I have had GCA since Aug 22. Have tapered down to 5mg but had the beginnings of a flare. My rheumatologist told me to go up to 7.5mg. The flare abated. I then got an infection/virus and on the advice of the rheumatology nurses increased to 10mg for a
Noni71
in
PMRGCAuk
5 months ago
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