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Breathing and standing!
Hello. A disparate couple of questions for you with longer term experience of PV please? I'm having a slightly uncomfortable breathing symptom. Have had it before but it goes after a few days/weeks and doesn't stop me exercising; it's just unpleasant. Previously thought it was due to low ferritin
Hello. A disparate couple of questions for you with longer term experience of PV please? I'm having a slightly uncomfortable breathing symptom. Have had it before but it goes after a few days/weeks and doesn't stop me exercising; it's just unpleasant. Previously thought it was due to low ferritin
RoundTheWorld
in
MPN Voice
29 days ago
Using turmeric to lower high ferritin
These are my latest and I’m concerned about high ferritin. It’s been over range at least two years since taking high doses of liquid ionic iron for very low ferritin. Sometimes it’s significantly lower than this but always over, lately Buddy’s post this morning about high dose turmeric piqued my interest
These are my latest and I’m concerned about high ferritin. It’s been over range at least two years since taking high doses of liquid ionic iron for very low ferritin. Sometimes it’s significantly lower than this but always over, lately Buddy’s post this morning about high dose turmeric piqued my interest
Noelnoel
in
Thyroid UK
29 days ago
11yo daughters latest results
Hello All, Here are my daughters latest results. She has been off any B12/folate for 5 weeks but has been taking iron. Her medical history is low platelets but she obviously has hashimotos. Really low FT4 but high FT3 (body flogging itself?), very bizarre. Symptoms: tiredness, lack of stamina, breathlessness
Hello All, Here are my daughters latest results. She has been off any B12/folate for 5 weeks but has been taking iron. Her medical history is low platelets but she obviously has hashimotos. Really low FT4 but high FT3 (body flogging itself?), very bizarre. Symptoms: tiredness, lack of stamina, breathlessness
RachelP03
in
Thyroid UK
29 days ago
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ET Jak2 . Low iron
I’m reaching out to the knowledgeable members of this incredible community from whom I have learned so much… to maybe give me some further insight…. I was diagnosed almost a year ago. Have been on Hydrea 2x500 a day. Have been feeling very ordinary of late… overwhelming fatigue, joint pain, the bloating
I’m reaching out to the knowledgeable members of this incredible community from whom I have learned so much… to maybe give me some further insight…. I was diagnosed almost a year ago. Have been on Hydrea 2x500 a day. Have been feeling very ordinary of late… overwhelming fatigue, joint pain, the bloating
Stargaye
in
MPN Voice
29 days ago
Has T3 made me go overactive? Please help
Hi, I wonder if anyone can help me please. I got tests done to check my iron as I am going to have an iron infusion next week. They also checked my thyroid and the results are a bit high. (See pic) For context, i have Hashimotos and am Hypothyroid. I am on 175mcg daily of Levothyroxine and 5mcg daily
Hi, I wonder if anyone can help me please. I got tests done to check my iron as I am going to have an iron infusion next week. They also checked my thyroid and the results are a bit high. (See pic) For context, i have Hashimotos and am Hypothyroid. I am on 175mcg daily of Levothyroxine and 5mcg daily
sugarbee1981
in
Thyroid UK
29 days ago
half life T3 in NDT
I've read over a period of time that T3 has half-life of anywhere from 2-2.5 days. I have, always, assumed (bad thing!) that was for synthetic T3. Anyone know, if that time-frame is applicable to dessicated T3? My FT3 shot up from 2.7 in late Feb. to 3.85 2 weeks ago. I had increased dose from97.5
I've read over a period of time that T3 has half-life of anywhere from 2-2.5 days. I have, always, assumed (bad thing!) that was for synthetic T3. Anyone know, if that time-frame is applicable to dessicated T3? My FT3 shot up from 2.7 in late Feb. to 3.85 2 weeks ago. I had increased dose from97.5
terebol
in
Thyroid UK
29 days ago
blood tests
hi everyone. First time using this site - just wanted to touch base my first blood test results in a while. Doc wants to speak to me next week over phone some lfts look normal - some moderately high- iron levels very high drink around 30 units a week which I know is too much should I be concerned
hi everyone. First time using this site - just wanted to touch base my first blood test results in a while. Doc wants to speak to me next week over phone some lfts look normal - some moderately high- iron levels very high drink around 30 units a week which I know is too much should I be concerned
Rocco987
in
British Liver Trust
29 days ago
Help please with blood test results
Hi Everyone, Would appreciate some help on some blood test results please. I’m asking on behalf of my niece who was diagnosed with ME when she was a teenager. She is in her forties now and has had a range of health issues over her life. She has suffered many tummy issues and she believes she now has
Hi Everyone, Would appreciate some help on some blood test results please. I’m asking on behalf of my niece who was diagnosed with ME when she was a teenager. She is in her forties now and has had a range of health issues over her life. She has suffered many tummy issues and she believes she now has
Bookworm63
in
Thyroid UK
29 days ago
T3 starting dose too high?
Hi all, looking for some advice. Have had hashi's for 3 years and my GP has had me undermedicated for all of that time (25mg Levo rising to 50mg after about 1. years and only 7 weeks ago he allowed me to increase to 75mg at weekends and 50mg during the week). My results in February were: FT4: 14.6
Hi all, looking for some advice. Have had hashi's for 3 years and my GP has had me undermedicated for all of that time (25mg Levo rising to 50mg after about 1. years and only 7 weeks ago he allowed me to increase to 75mg at weekends and 50mg during the week). My results in February were: FT4: 14.6
Hippocamp
in
Thyroid UK
30 days ago
Partners ALP gradually increasing.
Hi all, My partner is in the interim of moving to NHS after being diagnosed with liver disease on private . He has hemochromatosis and the disease from this. His next appointment isn't until November and his last was in February. He and myself are worried as we've noticed his ALP has risen in the last
Hi all, My partner is in the interim of moving to NHS after being diagnosed with liver disease on private . He has hemochromatosis and the disease from this. His next appointment isn't until November and his last was in February. He and myself are worried as we've noticed his ALP has risen in the last
ARM8
in
British Liver Trust
1 month ago
Confused about my results and advice on Thuroid specilist
Hi All. I have finally spoken to my Gp regarding my latest results and the appointment was just useless. I've been give Iron tablets for my low iron. Couldn't tell me why it's low. And didn't seem bothered about my low throid , he said recheck in 3 months. I said even though now it's been low since
Hi All. I have finally spoken to my Gp regarding my latest results and the appointment was just useless. I've been give Iron tablets for my low iron. Couldn't tell me why it's low. And didn't seem bothered about my low throid , he said recheck in 3 months. I said even though now it's been low since
Tinkerbell_84
in
Thyroid UK
1 month ago
Assisted Living
Hi everyone, I need advice on my son who is 31 years old and has Asperger syndrome. He has struggled all his life from the age of 4 years old. He never got a diagnosis until he was 11 years old, I was even told by one specialist? that he was an odd child and he will grow out of it. Well what a thing
Hi everyone, I need advice on my son who is 31 years old and has Asperger syndrome. He has struggled all his life from the age of 4 years old. He never got a diagnosis until he was 11 years old, I was even told by one specialist? that he was an odd child and he will grow out of it. Well what a thing
Imagine1
in
Mencap
1 month ago
Progress is being made!
Good morning everyone, I apologize in advance. I've let too much time go by without sharing needed updates. Due to the amazing feedback, I have received from this forum, MANY changes have been made in a short time and I'm truly in awe at the results so far. Last night I was reviewing and consolidating
Good morning everyone, I apologize in advance. I've let too much time go by without sharing needed updates. Due to the amazing feedback, I have received from this forum, MANY changes have been made in a short time and I'm truly in awe at the results so far. Last night I was reviewing and consolidating
Leeserann
in
Restless Legs Syndrome
1 month ago
Good news,I hope !
My GP has just called to say that she had received a letter from the Neurologist. They have agreed that I can start to reduce the Ropinerole by 0.25 and start on 50 mg of Pregabalin while I'm still on the waiting list for the iron infusion. I told the GP what Sue Johnson had advised ( thank you Sue
My GP has just called to say that she had received a letter from the Neurologist. They have agreed that I can start to reduce the Ropinerole by 0.25 and start on 50 mg of Pregabalin while I'm still on the waiting list for the iron infusion. I told the GP what Sue Johnson had advised ( thank you Sue
Coopersmum
in
Restless Legs Syndrome
1 month ago
Follow up
I had a follow up appt with my Dr yesterday. Told her I am down from 10 mg ropinorole to 3 mg with the help of 25 mg tramadol when needed. She thought that was great but does not want me to use tramadol. She said it causes Rls. She gave me gabapentin 300 mg. to try instead of Tramadol. I asked about
I had a follow up appt with my Dr yesterday. Told her I am down from 10 mg ropinorole to 3 mg with the help of 25 mg tramadol when needed. She thought that was great but does not want me to use tramadol. She said it causes Rls. She gave me gabapentin 300 mg. to try instead of Tramadol. I asked about
ParisianTN55
in
Restless Legs Syndrome
1 month ago
It's been a while... new results
Hi all I haven't posted in a [u]very long time.[/u] I would greatly appreciate some help with my latest results which I had a nurse draw for me as my Thriva results kept saying 'not enough blood' ...so I wasn't getting full results. So this time I feel I got a complete picture. Image shows all results
Hi all I haven't posted in a [u]very long time.[/u] I would greatly appreciate some help with my latest results which I had a nurse draw for me as my Thriva results kept saying 'not enough blood' ...so I wasn't getting full results. So this time I feel I got a complete picture. Image shows all results
KBA22
in
Thyroid UK
1 month ago
My doctors won’t investigate
Typically I suffer with chronic symptoms of low B12 but all my results seem to be ignored by GP. My ferritin is 35 ug/L (indeterminate), vitamin b12 is 157ng/L (low) and in my FBC my MCV is 95.5 (just below higher cut off) and MCH is 32.1 (slightly high - comment on blood test is ‘no action despite having
Typically I suffer with chronic symptoms of low B12 but all my results seem to be ignored by GP. My ferritin is 35 ug/L (indeterminate), vitamin b12 is 157ng/L (low) and in my FBC my MCV is 95.5 (just below higher cut off) and MCH is 32.1 (slightly high - comment on blood test is ‘no action despite having
Lorynne
in
Pernicious Anaemia Society
1 month ago
Anaemia caused by PRD?
I had pelvic/abdominal radiotherapy treatment almost 50 years ago and started to suffer problems with digestion about 20 years ago, put down at the time, to IBS. In 2017, I underwent a hemicolectomy and the surgeon told me at the time that my small bowel was quite damaged commenting that she was surprised
I had pelvic/abdominal radiotherapy treatment almost 50 years ago and started to suffer problems with digestion about 20 years ago, put down at the time, to IBS. In 2017, I underwent a hemicolectomy and the surgeon told me at the time that my small bowel was quite damaged commenting that she was surprised
David39
in
Pelvic Radiation Disease Association
1 month ago
I want to give up. I have no energy to keep going.
Hi all, I've been suffering for the past many years. Since 2022 everything went downhill and I had to quit my job as I can't function. I'm 40 years old. I was tested for everything under the sun and everything is down to thyroid. I have Hashis. I have tried many med combos, everything fails on me. Recently
Hi all, I've been suffering for the past many years. Since 2022 everything went downhill and I had to quit my job as I can't function. I'm 40 years old. I was tested for everything under the sun and everything is down to thyroid. I have Hashis. I have tried many med combos, everything fails on me. Recently
Incoguto
in
Thyroid UK
1 month ago
Thyroid test results - 15 wks pregnant
[i]Please see results and my comments below. Appreciate some advice, particularly on the vitamin levels. MT x[/i] [i] [/i]
[u]Inflammation [/u]
CRP HS
3.510 mg/L (Range: < 3) - [i]no idea why this is raised[/i]
[u]Iron Status [/u]
Ferritin
40.60 ug/L (Range: 30 - 169) - [
[i]Please see results and my comments below. Appreciate some advice, particularly on the vitamin levels. MT x[/i] [i] [/i]
[u]Inflammation [/u]
CRP HS
3.510 mg/L (Range: < 3) - [i]no idea why this is raised[/i]
[u]Iron Status [/u]
Ferritin
40.60 ug/L (Range: 30 - 169) - [
Molly161018
in
Thyroid UK
1 month ago
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