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Pregabalin Journey
Hi Just a quick reach out to the RLS community. I’m still using 150mg of Pregabalin along with daily iron tablets (hard to get infusion on nhs) Iron levels are slowly increasing but it is slow!! I’m at Oain Clinic today as part of Fibromyalgia check up. Whilst pregabalin is keeping my RLS at bay
Hi Just a quick reach out to the RLS community. I’m still using 150mg of Pregabalin along with daily iron tablets (hard to get infusion on nhs) Iron levels are slowly increasing but it is slow!! I’m at Oain Clinic today as part of Fibromyalgia check up. Whilst pregabalin is keeping my RLS at bay
careerSquirrel
in
Restless Legs Syndrome
2 months ago
First time poster overwhelmed with symptoms and considering self-medicating with bovine adrenals & NDT. Asking for advice & recommendations
TLDR: First time poster diagnosed Hashimotos and POI, investigating IBS which is potentially also autoimmune cause. Fatigue, depression and anxiety are ruining my life. Low Adrenal Index Test results so considering self-medicating with Bovine Adrenals. High TSH and anti thyroid antibodies, but low-end-of-normal
TLDR: First time poster diagnosed Hashimotos and POI, investigating IBS which is potentially also autoimmune cause. Fatigue, depression and anxiety are ruining my life. Low Adrenal Index Test results so considering self-medicating with Bovine Adrenals. High TSH and anti thyroid antibodies, but low-end-of-normal
KayNaomi
in
Thyroid UK
2 months ago
Please advise - symptoms worsening
Hi all, As you may remember from previous posts, I’m still borderline anaemic and so I increased my iron dosage as per instructions several weeks ago. My FT3 has also plummeted from a decade average of 6 to now 4.8 (range 3.1-6.8) I’m getting horrific migraines (they start with blinding auras). I stopped
Hi all, As you may remember from previous posts, I’m still borderline anaemic and so I increased my iron dosage as per instructions several weeks ago. My FT3 has also plummeted from a decade average of 6 to now 4.8 (range 3.1-6.8) I’m getting horrific migraines (they start with blinding auras). I stopped
Suzanneharb
in
Thyroid UK
2 months ago
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can gabapentin make RLS worse or cause anxiety attacks?
Hi Friends, me again. I have now been taking 300mg Gabapentin once a day in the evening about two hours before bedtime while still taking my regular o.25mg pramipexole 3X a day. On alternate days I have been taking an iron supplement. I am now near the end of the third week of taking gabapentin with
Hi Friends, me again. I have now been taking 300mg Gabapentin once a day in the evening about two hours before bedtime while still taking my regular o.25mg pramipexole 3X a day. On alternate days I have been taking an iron supplement. I am now near the end of the third week of taking gabapentin with
Kejimkujik
in
Restless Legs Syndrome
2 months ago
When to take iron with T3 multi-dosing
I'm trying to work out when to fit in taking iron (Three arrows) with my T3 doses. I am taking T3 as per my private Dr's schedule which is 3 times per day and 6-7 hours apart. I'm wondering whether to switch to x2 per day or can I close the gap and make it shorter than 6 hours and then take iron before
I'm trying to work out when to fit in taking iron (Three arrows) with my T3 doses. I am taking T3 as per my private Dr's schedule which is 3 times per day and 6-7 hours apart. I'm wondering whether to switch to x2 per day or can I close the gap and make it shorter than 6 hours and then take iron before
PinkSkittles
in
Thyroid UK
2 months ago
Apigenin - Titles of links to studies indicating interference with cancer cell growth
The Therapeutic Potential of Apigenin - PMC Apigenin, a natural flavonoid, promotes autophagy and ferroptosis in human endometrial carcinoma Ishikawa cells in vitro and in vivo - ScienceDirect Apigenin ameliorates di(2-ethylhexyl) phthalate-induced ferroptosis: The activation of glutathione peroxidase
The Therapeutic Potential of Apigenin - PMC Apigenin, a natural flavonoid, promotes autophagy and ferroptosis in human endometrial carcinoma Ishikawa cells in vitro and in vivo - ScienceDirect Apigenin ameliorates di(2-ethylhexyl) phthalate-induced ferroptosis: The activation of glutathione peroxidase
kainasar
in
Fight Prostate Cancer
2 months ago
On T3 mono and Ferritin is 17 below rage
considerationHi I am on T3 mono and have been for quite a few years now and all I can see is people's iron goes up on T3 mono and Im the opposite and have hardly any iron. I had a FiT test so not bleeding I keep getting the runs on the iron tablets and stools have only been dark once I take vitamin
considerationHi I am on T3 mono and have been for quite a few years now and all I can see is people's iron goes up on T3 mono and Im the opposite and have hardly any iron. I had a FiT test so not bleeding I keep getting the runs on the iron tablets and stools have only been dark once I take vitamin
Pascha1
in
Thyroid UK
2 months ago
Where can I get a blood test for 15 year old please 🙏
Hello ☺️ I have Hashimotos myself and I would like to get my daughter tested also plus her key vitamins as her periods are heavy at the moment and lasting 7 days so her iron could be low . I could try GP but doubt they will check everything ! Many thanks , Kelly 💝
Hello ☺️ I have Hashimotos myself and I would like to get my daughter tested also plus her key vitamins as her periods are heavy at the moment and lasting 7 days so her iron could be low . I could try GP but doubt they will check everything ! Many thanks , Kelly 💝
Kisca
in
Thyroid UK
2 months ago
PV Research study
There was a full page article in my local newspaper to be part of an Phase 3 investigational drug study for ppl with PV. The drug is called rusfertide - it says it is designed to control the amount of iron available to make red blood cells. There is no financial compensation to be part of the study
There was a full page article in my local newspaper to be part of an Phase 3 investigational drug study for ppl with PV. The drug is called rusfertide - it says it is designed to control the amount of iron available to make red blood cells. There is no financial compensation to be part of the study
ERei
in
MPN Voice
2 months ago
When To move to Gabapentin
Hi through the wonderful information on this forum - -Thank you - I’ve managed to reduce pramipexole from 3 * 0.08 tablets down to 0.5 of a 0.08 tablet a night using iron every 2nd day. . I’ve also used 50mg Tramadol when symptoms were bad when reducing dose. My question is at what point do I
Hi through the wonderful information on this forum - -Thank you - I’ve managed to reduce pramipexole from 3 * 0.08 tablets down to 0.5 of a 0.08 tablet a night using iron every 2nd day. . I’ve also used 50mg Tramadol when symptoms were bad when reducing dose. My question is at what point do I
Goagal
in
Restless Legs Syndrome
2 months ago
The recent AASM Draft Guidelines
I finally had a chance to look at the recent AASM Draft Guidelines. I was surprised by a number of things. They should have had something between conditional for and conditional against. Why did they choose those particular things? Some don't even have much relevance to improving RLS such as antidepressants
I finally had a chance to look at the recent AASM Draft Guidelines. I was surprised by a number of things. They should have had something between conditional for and conditional against. Why did they choose those particular things? Some don't even have much relevance to improving RLS such as antidepressants
SueJohnson
in
Restless Legs Syndrome
2 months ago
Thyroid meds with calcium?
Hi, I am taking .100T4 and 4.5 T3 in a.m. I take 4.5 T3 at noon and again at mid-afternoon. I have severe osteoporosis--Tscore -4.1. I am having a very hard time fitting in calcium (two 500mg doses), iron, and magnesium, all of which I need and have to be taken apart from each other. I also take
Hi, I am taking .100T4 and 4.5 T3 in a.m. I take 4.5 T3 at noon and again at mid-afternoon. I have severe osteoporosis--Tscore -4.1. I am having a very hard time fitting in calcium (two 500mg doses), iron, and magnesium, all of which I need and have to be taken apart from each other. I also take
marlyn123
in
Thyroid UK
2 months ago
cytomel and food
this is likely a silly question, but do the same rules apply to cytomel as synthroid when it comes to taking on an empty stomach? My synthroid bottle has a warning on it about not taking it with iron or magnesium and taking an hour away from food or drink. My cytomel doesn't have the same warning. Can
this is likely a silly question, but do the same rules apply to cytomel as synthroid when it comes to taking on an empty stomach? My synthroid bottle has a warning on it about not taking it with iron or magnesium and taking an hour away from food or drink. My cytomel doesn't have the same warning. Can
Vernonwendy
in
Thyroid UK
2 months ago
Iron Study - Iron improves RLS
Another study shows that iron improves RLS. We cannot access the full article, but the evidence is mounting. There are now many trials proving that iron treatment helps RLS. If your doctor is still refusing to take full iron panel blood tests, please refer them to the Mayo Clinic Algorithm and the latest
Another study shows that iron improves RLS. We cannot access the full article, but the evidence is mounting. There are now many trials proving that iron treatment helps RLS. If your doctor is still refusing to take full iron panel blood tests, please refer them to the Mayo Clinic Algorithm and the latest
Joolsg
in
Restless Legs Syndrome
2 months ago
POTS help
Hi, I have been diagnosed with Pots for 14 years. I am currently in my mid 20s and I am receiving treatments for pots however I am still have difficulty taking public transportation And doing strenuous activities (long walk, night out, physical labor, more than one day in the office) and sometimes basic
Hi, I have been diagnosed with Pots for 14 years. I am currently in my mid 20s and I am receiving treatments for pots however I am still have difficulty taking public transportation And doing strenuous activities (long walk, night out, physical labor, more than one day in the office) and sometimes basic
AmyMarchfan
in
British Heart Foundation
2 months ago
Ferritin results
i have just received my ferritin results along with iron panel. Slow Dragon had said my results were a little low from my last results. I would appreciate if anyone could advise, apart from eating red meat etc, if there is any medication i can take , and dosage . Thanks ever so much
i have just received my ferritin results along with iron panel. Slow Dragon had said my results were a little low from my last results. I would appreciate if anyone could advise, apart from eating red meat etc, if there is any medication i can take , and dosage . Thanks ever so much
R7vfmbroadway
in
Thyroid UK
2 months ago
Further to my post of 9 months ago
Hi Until December last I was taking 40 mg iron bisglycinate with orange juice every two days. Since this had little impact on my RLS I increased the iron dose to 40mg every day from December until now. As yet I have noticed little change to my RLS symptoms. A blood test this month showed my ferritin
Hi Until December last I was taking 40 mg iron bisglycinate with orange juice every two days. Since this had little impact on my RLS I increased the iron dose to 40mg every day from December until now. As yet I have noticed little change to my RLS symptoms. A blood test this month showed my ferritin
Rameau
in
Restless Legs Syndrome
2 months ago
Urgent please help:(
Dear all, I'm new to the group, and while this might seem like a strange question, any thoughts would be appreciated. I'm currently in Germany, but I started experiencing symptoms five years ago while in Australia. The first obvious symptom was bleeding when I went to the toilet. Then, I began feeling
Dear all, I'm new to the group, and while this might seem like a strange question, any thoughts would be appreciated. I'm currently in Germany, but I started experiencing symptoms five years ago while in Australia. The first obvious symptom was bleeding when I went to the toilet. Then, I began feeling
bethroyle
in
Endometriosis UK
2 months ago
Can anyone help interpret my iron panel results 🙏
I managed to get my doctor to do a full iron panel due to my ferritin being at only 43 (20.0 - 130.0) I have attached a the results of the iron panel test, can anyone interpret these?? I am wondering whether to start back on my ferrous fumarate 210mg tablets…. I stopped these quite a few years back
I managed to get my doctor to do a full iron panel due to my ferritin being at only 43 (20.0 - 130.0) I have attached a the results of the iron panel test, can anyone interpret these?? I am wondering whether to start back on my ferrous fumarate 210mg tablets…. I stopped these quite a few years back
ThyroidObsessed
in
Thyroid UK
2 months ago
BREAKING NEWS. New Draft Guidelines by American Sleep Academy for RLS
https://www.relacshealth.com/media?ss_source=sscampaigns&ss_campaign_id=65f0805ba96cc4630a4616b5&ss_email_id=65f0fe1e0dc01b00c518c64f&ss_campaign_name=Big+News%21+2024+AASM+Guidelines+for+RLS+Have+Been+Released&ss_campaign_sent_date=2024-03-13T01%3A15%3A13Z https://aasm.org/aasm-invites-public-comment-on-draft-guideline-for-the-treatment-of-restless-legs-syndrome-and-periodic-limb-movement-disorder
https://www.relacshealth.com/media?ss_source=sscampaigns&ss_campaign_id=65f0805ba96cc4630a4616b5&ss_email_id=65f0fe1e0dc01b00c518c64f&ss_campaign_name=Big+News%21+2024+AASM+Guidelines+for+RLS+Have+Been+Released&ss_campaign_sent_date=2024-03-13T01%3A15%3A13Z https://aasm.org/aasm-invites-public-comment-on-draft-guideline-for-the-treatment-of-restless-legs-syndrome-and-periodic-limb-movement-disorder
Joolsg
in
Restless Legs Syndrome
2 months ago
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