Search
Search
About
Log in
Join
Experiences with
Intron A
Posts
Communities
14,513 public posts
Filter results
Thalassemia: Lessons in Perseverance and Compassion
As I reflect on my life with transfusion-dependent beta-thalassemia (thal), it is easy to become overwhelmed. In short, thalassemia is an inherited blood disorder where the body is unable to produce hemoglobin, which causes severe anemia and endless complications. In 1973, when I was diagnosed at 14
As I reflect on my life with transfusion-dependent beta-thalassemia (thal), it is easy to become overwhelmed. In short, thalassemia is an inherited blood disorder where the body is unable to produce hemoglobin, which causes severe anemia and endless complications. In 1973, when I was diagnosed at 14
AnnaHU
HealthUnlocked
in
HealthUnlocked Blog
8 months ago
High cortisol hashimotos hypothyroid high B12 high magnesium T4 T3 Cushings? Help
Hi I had a load of private bloods done as had to give up work as getting worse. I stopped B12 supplements 5 weeks before test and bloods taken at 9am fasted before taking Levothyroxine and Liothyronine. I self medicate the Liothyronine (T3) as I have the DIO2 gene and not funded in my area. Endocrinologist
Hi I had a load of private bloods done as had to give up work as getting worse. I stopped B12 supplements 5 weeks before test and bloods taken at 9am fasted before taking Levothyroxine and Liothyronine. I self medicate the Liothyronine (T3) as I have the DIO2 gene and not funded in my area. Endocrinologist
HealthySam
in
Thyroid UK
2 months ago
Blood test results in full. Can anyone find a cause in there for my continued fatigue etc?
I still have the same symptoms, although some have improved a bit, but not gone, by any means. Still housebound. I list below Blood test results. Can anyone suggest an issue that may cause my symptoms because my GP says no action, normal. Serum 25 - HO Vit D3 level 135nmol/L 50-174
I still have the same symptoms, although some have improved a bit, but not gone, by any means. Still housebound. I list below Blood test results. Can anyone suggest an issue that may cause my symptoms because my GP says no action, normal. Serum 25 - HO Vit D3 level 135nmol/L 50-174
DandyButch
in
Thyroid UK
2 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
newly diagnosed anemia
Hi. I’m new to HealthUnlocked and to this group. I’m also in America, so I hope it’s OK that I post here. I’ll try to put in all the info I have and follow proper posting guidelines. It’s taken me a while to be able to get this post all typed up due to tiredness and brain fog. I just had 3 month follow-up
Hi. I’m new to HealthUnlocked and to this group. I’m also in America, so I hope it’s OK that I post here. I’ll try to put in all the info I have and follow proper posting guidelines. It’s taken me a while to be able to get this post all typed up due to tiredness and brain fog. I just had 3 month follow-up
SugarMint
in
Thyroid UK
2 months ago
Be Aware To Beware.....FYI
Medications To Be Avoided Or Used With Caution In Parkinson’s Disease The manufacturers of these medications may not list Parkinson’s disease as an absolute contraindication; however, better choices within a medication class may be suggested. Some of these medications alter the brain ‘s dopamine
Medications To Be Avoided Or Used With Caution In Parkinson’s Disease The manufacturers of these medications may not list Parkinson’s disease as an absolute contraindication; however, better choices within a medication class may be suggested. Some of these medications alter the brain ‘s dopamine
beehive23
in
Cure Parkinson's
8 months ago
Help with Thyroid Labs, high cholesterol and low ferritin
Hello, I have been having symptoms of constipation, bloating, leg pain, pain in my feet,tingling in feet at night and my big toes hurt, ankle and tendon issues, bloating, dry skin, tired and more. I am diagnosed with Hashimoto’s hypothyroid and take 120mg or NP Thyroid a day (60 mg in the morning and
Hello, I have been having symptoms of constipation, bloating, leg pain, pain in my feet,tingling in feet at night and my big toes hurt, ankle and tendon issues, bloating, dry skin, tired and more. I am diagnosed with Hashimoto’s hypothyroid and take 120mg or NP Thyroid a day (60 mg in the morning and
Runner95
in
Thyroid UK
2 months ago
Cortisol levels
Hello everyone, I have recently finally come off pramipexole after 6 months weaning off and I appear to be one of the lucky ones that the iron oral therapy has significantly helped my restless legs. However, I am still not sleeping well and have dipped into the hormonal debate… I think I have high cortisol
Hello everyone, I have recently finally come off pramipexole after 6 months weaning off and I appear to be one of the lucky ones that the iron oral therapy has significantly helped my restless legs. However, I am still not sleeping well and have dipped into the hormonal debate… I think I have high cortisol
Jukebox55
in
Restless Legs Syndrome
8 months ago
Please enlighten me!!!
I have not had labs since 2023 and needed new RX. The following are results from 4/11 at which time I had not taken any thyroid meds for one week. I had really been concerned about the possibility of heart issues due to over 6 months of extreme fatigue, inability to do even light excercise, shortness
I have not had labs since 2023 and needed new RX. The following are results from 4/11 at which time I had not taken any thyroid meds for one week. I had really been concerned about the possibility of heart issues due to over 6 months of extreme fatigue, inability to do even light excercise, shortness
milkgoat
in
Thyroid UK
2 months ago
Jaw clenching + Levothyroxine
Hi all, Apologies for the long post. I'd like some advice please regarding jaw clenching when on Levothyroxine. Does anyone else have this issue? I am currently on 87.5mic Teva levothyroxine. I have asked my pharmacy for a different brand to see if it helps, but they tell me that they can only get
Hi all, Apologies for the long post. I'd like some advice please regarding jaw clenching when on Levothyroxine. Does anyone else have this issue? I am currently on 87.5mic Teva levothyroxine. I have asked my pharmacy for a different brand to see if it helps, but they tell me that they can only get
Beeper1
in
Thyroid UK
2 months ago
any advice 🙏🏽
Report Mybirthday1975 profile imageMybirthday1975Sheila_G 1 hour ago Hi I’m new here I have RA I’m (stero positive)I’m having flare after flare in so sick of feeling poorly with it and so tired.I feel like it’s stole my life away from me,I can’t plan as I don’t know how I will feel I’m so fed up.I
Report Mybirthday1975 profile imageMybirthday1975Sheila_G 1 hour ago Hi I’m new here I have RA I’m (stero positive)I’m having flare after flare in so sick of feeling poorly with it and so tired.I feel like it’s stole my life away from me,I can’t plan as I don’t know how I will feel I’m so fed up.I
Mybirthday1975
in
NRAS
6 months ago
Diagnosis at last! Haemochromotosis?
I've posted a few times on this forum but a bit of backstory - hubby, 43 had sudden onset of upper right quadrant pain last December, has some tests for gallstones, found nothing, immediately stopped drinking (had drunk heavily for around 15 years), and after a lot of back and forward was found to have
I've posted a few times on this forum but a bit of backstory - hubby, 43 had sudden onset of upper right quadrant pain last December, has some tests for gallstones, found nothing, immediately stopped drinking (had drunk heavily for around 15 years), and after a lot of back and forward was found to have
RugbyMama
in
British Liver Trust
8 months ago
racing pulse
hi thyroid community. Quick question…I’ve noticed since I’ve been taking Erfa that my pulse races quite often sometimes over 100. Especially when I’m climbing up hill or going up stairs for example. I’ve realised I’ve had this for quite a while (years) and had put it down to being breathless due to
hi thyroid community. Quick question…I’ve noticed since I’ve been taking Erfa that my pulse races quite often sometimes over 100. Especially when I’m climbing up hill or going up stairs for example. I’ve realised I’ve had this for quite a while (years) and had put it down to being breathless due to
Starseed56
in
Thyroid UK
8 months ago
Trying 3 Arrows Iron - UK Test Guide?
Hi I have been struggling to get my ferritin out of the long grass for years. I can force it up a bit now and then but I've never been optimal and often I'm well below optimal. I have come across the excellent SlowDragon posts on 3 Arrows and I'm going to give it a try, for various reasons. But on
Hi I have been struggling to get my ferritin out of the long grass for years. I can force it up a bit now and then but I've never been optimal and often I'm well below optimal. I have come across the excellent SlowDragon posts on 3 Arrows and I'm going to give it a try, for various reasons. But on
FancyPants54
in
Thyroid UK
8 months ago
Cause of RLS - another step
Brain Iron Dysregulation in Iron Deficiency Anemia-Related Restless Leg Syndrome Revealed by Neuron-Derived Extracellular Vesicles: A Case–Control Study Apostolos Manolopoulos, MD ,1 William York, BS,1 Krishna Ananthu Pucha, BS,1 Christopher J. Earley, MBBCh, PhD,2 and Dimitrios Kapogiannis, MD1
Brain Iron Dysregulation in Iron Deficiency Anemia-Related Restless Leg Syndrome Revealed by Neuron-Derived Extracellular Vesicles: A Case–Control Study Apostolos Manolopoulos, MD ,1 William York, BS,1 Krishna Ananthu Pucha, BS,1 Christopher J. Earley, MBBCh, PhD,2 and Dimitrios Kapogiannis, MD1
RLSLearner
in
Restless Legs Syndrome
2 months ago
Low ferritin again
Unsurprisingly my ferritin has fallen back to the very bottom of the range yet again after i ceased iron supplements back in march. Raised a call with the surgery this morning and within 6 minutes of raising the call online it had been closed by the enhanced care practitioner as saying no action required
Unsurprisingly my ferritin has fallen back to the very bottom of the range yet again after i ceased iron supplements back in march. Raised a call with the surgery this morning and within 6 minutes of raising the call online it had been closed by the enhanced care practitioner as saying no action required
Rollercoaster44
in
Thyroid UK
6 months ago
Confirming blood tests needed to diagnose hyperthyroid (asking for my sister-in-law)
My sister-in-law told me that she recently was having trouble with excessive sweating... like, have to go home and change a drenched shirt kind of sweating. So as she said it in her words - She went to the general practitioner doctor, they did blood tests, and the numbers were low and so he's referring
My sister-in-law told me that she recently was having trouble with excessive sweating... like, have to go home and change a drenched shirt kind of sweating. So as she said it in her words - She went to the general practitioner doctor, they did blood tests, and the numbers were low and so he's referring
FallingInReverse
in
Thyroid UK
8 months ago
Advice needed on iron/ferritin levels please
I'd be really grateful if anyone could advise on whether I need to be concerned about my iron/ferritin levels. I'm seeing a neurologist tomorrow and want to be well informed. I have results from my last three blood tests so hopefully that might help. Serum iron level: October 2023 - 7.7 umol/L; January
I'd be really grateful if anyone could advise on whether I need to be concerned about my iron/ferritin levels. I'm seeing a neurologist tomorrow and want to be well informed. I have results from my last three blood tests so hopefully that might help. Serum iron level: October 2023 - 7.7 umol/L; January
Claire_lc
in
Restless Legs Syndrome
2 months ago
iron transfusion
Hi I’m just wondering how long people in the uk have waited for an iron infusion. I requested an iron infusion months and months ago as I can’t tolerate iron orally. Unfortunately my doctor forgot to put me on the waiting list and only amended that about a month ago after I mentioning that I was waiting
Hi I’m just wondering how long people in the uk have waited for an iron infusion. I requested an iron infusion months and months ago as I can’t tolerate iron orally. Unfortunately my doctor forgot to put me on the waiting list and only amended that about a month ago after I mentioning that I was waiting
Heather-rose
in
Restless Legs Syndrome
8 months ago
Iron Deficiency and Iron Deficiency Anemia: Potential Risk Factors in Bone Loss
Members are likely all too familiar with patients being told that they are suffering osteopenia or osteoporosis due to having too much thyroid hormone. And, especially, too much T3. While it is important to realise that there is a case to be made regarding excess thyroid hormone, it is just as important
Members are likely all too familiar with patients being told that they are suffering osteopenia or osteoporosis due to having too much thyroid hormone. And, especially, too much T3. While it is important to realise that there is a case to be made regarding excess thyroid hormone, it is just as important
helvella
Thyroid UK
in
Thyroid UK
6 months ago
Blood test results abnormal. But doctor says normal! How?
Last week I had some blood tests, however, once again, not all blood tests that were requested, were taken!!!I have results of some which are abnormal as follows.... Heaematocrit 0.483 0.37 - 9.47 abnormal Red Blood cell distribution width 16.3%
Last week I had some blood tests, however, once again, not all blood tests that were requested, were taken!!!I have results of some which are abnormal as follows.... Heaematocrit 0.483 0.37 - 9.47 abnormal Red Blood cell distribution width 16.3%
DandyButch
in
Thyroid UK
2 months ago
1
...
45
46
47
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Thyroid UK
7328 results
Pernicious Anaemia Society
1657 results
Restless Legs Syndrome
1457 results
View top 10 communities
Sort by
Most Relevant
Newest