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Looking for support - glioblastoma
Hi, My 72 year old wife was recently diagnosed with a grade 4 glioma / glioblastoma. Short history is one hospital wanted to dive right in and do surgery. A 2nd opinion initially ruled it as inoperable after a biopsy. Then they did some tests to determine viability of an "awake" surgical resection.
Hi, My 72 year old wife was recently diagnosed with a grade 4 glioma / glioblastoma. Short history is one hospital wanted to dive right in and do surgery. A 2nd opinion initially ruled it as inoperable after a biopsy. Then they did some tests to determine viability of an "awake" surgical resection.
rlwremo
in
Glioblastoma Support
1 year ago
The human microbiome and its link in prostate cancer risk and pathogenesis
I know that many of you may have probably already read this study but I found the perspective fascinating. It supports the theory that what one eats does matter. Certain diets can cause inflammation and an imbalance of the microbiome in the gut, which may impact risk for developing and/or encouraging
I know that many of you may have probably already read this study but I found the perspective fascinating. It supports the theory that what one eats does matter. Certain diets can cause inflammation and an imbalance of the microbiome in the gut, which may impact risk for developing and/or encouraging
dmt1121
in
Advanced Prostate Cancer
1 year ago
CT results shocking
just get mom CT scan results in 2 month so much things grown, all in abdomen… organs ar clean till now almost all are in lymphs, no ascit but there is some effusion in bursa omentalis i never heared such before… the main thing what disturbs mom is breath problem, when she lies in bed all is ok, but
just get mom CT scan results in 2 month so much things grown, all in abdomen… organs ar clean till now almost all are in lymphs, no ascit but there is some effusion in bursa omentalis i never heared such before… the main thing what disturbs mom is breath problem, when she lies in bed all is ok, but
Inguc_is
in
My Ovacome
1 year ago
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String-y Mucous problems anyone?
Hello everyone Five years ago I had a trans-hiatal oesophagectomy following an endoscopy which revealed high-grade dysplasia cells. (I was being monitored after chemo/radiotherapy for SCC in my oesophagus in 2015) I elected for surgery rather than take the very real risk that the cells would become
Hello everyone Five years ago I had a trans-hiatal oesophagectomy following an endoscopy which revealed high-grade dysplasia cells. (I was being monitored after chemo/radiotherapy for SCC in my oesophagus in 2015) I elected for surgery rather than take the very real risk that the cells would become
Joanna22
in
Oesophageal & Gastric Cancer
1 year ago
Change from HER2 negative to HER2 positive?
Has anyone had a change from HER2 negative to HER2 positive? Taking Ibrance 100mg\monthly Faslodex injections for past 2 years. Tumor marker rise over past couple of months, CT scan showed 2cm met in liver all other bone Mets NED, liver biopsy results - my cancer changed to ER+/HER2+. Prior to biopsy
Has anyone had a change from HER2 negative to HER2 positive? Taking Ibrance 100mg\monthly Faslodex injections for past 2 years. Tumor marker rise over past couple of months, CT scan showed 2cm met in liver all other bone Mets NED, liver biopsy results - my cancer changed to ER+/HER2+. Prior to biopsy
MarshMom
in
SHARE Metastatic Breast Cancer
1 year ago
Ascites
The ascites in my abdomen has now reached such volume that I am unable to move around at home and am fighting for breath constantly.I have an appointment on Tuesday to see if I am suitable for draining. Can anyone who has had this procedure tell me how painful this is, and how likely it is that the ascites
The ascites in my abdomen has now reached such volume that I am unable to move around at home and am fighting for breath constantly.I have an appointment on Tuesday to see if I am suitable for draining. Can anyone who has had this procedure tell me how painful this is, and how likely it is that the ascites
27-359
in
My Ovacome
1 year ago
2 Questions about IVIG
Hi folks, Just wondering: how often should one have their IG numbers checked? Also, if a person were to need/get an IVIG infusion, does that mean they’d pretty much be needing them on repeat forever? Or can one or just a couple be enough? If the questions are annoyingly dumb, sorry! —Dave!
Hi folks, Just wondering: how often should one have their IG numbers checked? Also, if a person were to need/get an IVIG infusion, does that mean they’d pretty much be needing them on repeat forever? Or can one or just a couple be enough? If the questions are annoyingly dumb, sorry! —Dave!
DRM18
in
CLL Support
1 year ago
what treatment usuful?
Hi dear My father diagnosed 4.5 years ago psa 16 Gleason9 He had peostactomy and 1.5 years after radiography psa nadir 1 year later psa 4 he get abiraton astate but not effective and rise psa 12 Zityga it’s not available in my country Dr said chemotherapy and another dr said Lu 177 we try Lu
Hi dear My father diagnosed 4.5 years ago psa 16 Gleason9 He had peostactomy and 1.5 years after radiography psa nadir 1 year later psa 4 he get abiraton astate but not effective and rise psa 12 Zityga it’s not available in my country Dr said chemotherapy and another dr said Lu 177 we try Lu
aidasmt
in
Advanced Prostate Cancer
1 year ago
P-Afib from cancer treatment causes different part of heart to misfire.
Hello Everyone,So I was diagnosed with P-Afib nearly 7 years ago. Beta blockers were a disaster and made me exceedingly ill.....Once on a calcium channel blocker, Verapamil, things however settled down. At the time I was told Ablation isn't an option for me as it could be my heart is misfiring due to
Hello Everyone,So I was diagnosed with P-Afib nearly 7 years ago. Beta blockers were a disaster and made me exceedingly ill.....Once on a calcium channel blocker, Verapamil, things however settled down. At the time I was told Ablation isn't an option for me as it could be my heart is misfiring due to
waveylines
in
Atrial Fibrillation Support
1 year ago
Any advice or help please
hello, My mum did a bowel screening test in January and her result came back positive, she then had a colonoscopy on the 14th February where they diagnosed her with bowel cancer. They found a malignant stenosing colonic tumour and 5mm polyp. The polyp was removed and not cancerous. They were not able
hello, My mum did a bowel screening test in January and her result came back positive, she then had a colonoscopy on the 14th February where they diagnosed her with bowel cancer. They found a malignant stenosing colonic tumour and 5mm polyp. The polyp was removed and not cancerous. They were not able
Art600
in
Colon Cancer Connected
1 year ago
BAT in Argentina
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9934967/ Results A total of 21 asymptomatic patients with mCRPC were included. There was a median of two lines before BAT, with nine patients (42.8%) receiving three or more lines, and 13 patients (61.9%) receiving chemotherapy previously. Previous lines
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9934967/ Results A total of 21 asymptomatic patients with mCRPC were included. There was a median of two lines before BAT, with nine patients (42.8%) receiving three or more lines, and 13 patients (61.9%) receiving chemotherapy previously. Previous lines
pjoshea13
in
Fight Prostate Cancer
1 year ago
Hope For All
Cindy, I am sorry for your loss and wanted to share the prayers of myself and my wife. I, too, have a great caregiver, my wife Lyna, in this my 8th year of the prostate cancer battle; I was originally diagnosed at age 57 with stage 2a. In 2019, it became stage 4 and radiation/chemo/ADT. Thanks be
Cindy, I am sorry for your loss and wanted to share the prayers of myself and my wife. I, too, have a great caregiver, my wife Lyna, in this my 8th year of the prostate cancer battle; I was originally diagnosed at age 57 with stage 2a. In 2019, it became stage 4 and radiation/chemo/ADT. Thanks be
fmh1
in
Advanced Prostate Cancer
1 year ago
can anyone give me any idea in a ct result please ie meaning many thanks
hi I had a recent ct scan which showed good response to my chemo for my cancer and my bones are healing and liver is so small and subtle and remains unchanged but just found something on ct scan that consultant didn’t even mention it say the following lung change mosaic ground glass attenuation (However
hi I had a recent ct scan which showed good response to my chemo for my cancer and my bones are healing and liver is so small and subtle and remains unchanged but just found something on ct scan that consultant didn’t even mention it say the following lung change mosaic ground glass attenuation (However
Sharonpat
in
SHARE Metastatic Breast Cancer
1 year ago
Genetics - Some answers but not all
Received my husband's somatic mutation report from the liver and lymph biopsy. Not clear yet if the MSI test report is back. In the meantime, the lack of good response to hormonal drugs and chemo might be explained by the following. Out of the hundreds of genes tested, they flagged only TP53 and TMPRSS2
Received my husband's somatic mutation report from the liver and lymph biopsy. Not clear yet if the MSI test report is back. In the meantime, the lack of good response to hormonal drugs and chemo might be explained by the following. Out of the hundreds of genes tested, they flagged only TP53 and TMPRSS2
spw1
in
Advanced Prostate Cancer
1 year ago
Re - chemo cocktail, Caelyx and Yondelis.
Good morning , After 5 lines of chemo my doctor has come up with this new regime - 6 x 3 weekly sessions if it proves to be working and if I can cope. I finished the 5th line just over 3 months ago. I’ve had Caelyx before but I’ve never heard of Yondelis. Has any one on this forum had any experience
Good morning , After 5 lines of chemo my doctor has come up with this new regime - 6 x 3 weekly sessions if it proves to be working and if I can cope. I finished the 5th line just over 3 months ago. I’ve had Caelyx before but I’ve never heard of Yondelis. Has any one on this forum had any experience
Erinna72
in
My Ovacome
1 year ago
IVIG after heart surgery and stopping IBRUTIMIB
12 months ago I was on an Ibrutinib clinical trial for my CLL. Ibrutinib worked great for me for years. I found out I needed a triple bypass due to 95% LAD artery blockage. Not good! A stent wasn’t an option in my case due to necessity for blood thinners. Can’t do blood thinners, aspirin and Irbutinib
12 months ago I was on an Ibrutinib clinical trial for my CLL. Ibrutinib worked great for me for years. I found out I needed a triple bypass due to 95% LAD artery blockage. Not good! A stent wasn’t an option in my case due to necessity for blood thinners. Can’t do blood thinners, aspirin and Irbutinib
misterbee
in
CLL Support
1 year ago
Surgery
Hi I was deemed inoperable after 4 rounds of chemotherapy. I had a diagnostic camera, and was sent back to have 2 further chemotherapy treatments. During this time I decided to go for a second opinion with Professor Christine Fotopoulou, as she was recommended to me. Surgery has been agreed but no guarantee
Hi I was deemed inoperable after 4 rounds of chemotherapy. I had a diagnostic camera, and was sent back to have 2 further chemotherapy treatments. During this time I decided to go for a second opinion with Professor Christine Fotopoulou, as she was recommended to me. Surgery has been agreed but no guarantee
Walkingwithcancer
in
My Ovacome
1 year ago
Suggestions needed in East Texas
I live in East Texas. I just turned 80 and have 3 adult kids and 7 grandkids (3 out of college) 1 in college, 3 in high school. I was diagnosed with CLL In 2004. We have been in a W&W period until the fall of last year. My White Count went from 18,000 to 28,700 in Oct 2022. My oncologist suggested
I live in East Texas. I just turned 80 and have 3 adult kids and 7 grandkids (3 out of college) 1 in college, 3 in high school. I was diagnosed with CLL In 2004. We have been in a W&W period until the fall of last year. My White Count went from 18,000 to 28,700 in Oct 2022. My oncologist suggested
512216
in
CLL America Support
1 year ago
Getting Cancer meds changed
Seen my urologist today, he said my psa is creeping up and the Casodex may not doing its job. Psa went from 23 to 32 in 2 months. Wants to take me off the Casodex and start me on Orgovyx . I'm making an appointment to see my oncolgist. Would like to get some input on this. Anyone been taken off casodex
Seen my urologist today, he said my psa is creeping up and the Casodex may not doing its job. Psa went from 23 to 32 in 2 months. Wants to take me off the Casodex and start me on Orgovyx . I'm making an appointment to see my oncolgist. Would like to get some input on this. Anyone been taken off casodex
woppaginny
in
Advanced Prostate Cancer
1 year ago
Docetaxel re-challenge not going so well
Hi all, My father has had 3 rounds going for his 4th round of docetaxel tomorrow. Five years ago at original diagnosis was when he had 6 rounds of docetaxel and it really worked well. This fall Xandi stopped working and his PSA went from Aug 5.3 to Oct 20.9 with a small tumour in his bladder seen on
Hi all, My father has had 3 rounds going for his 4th round of docetaxel tomorrow. Five years ago at original diagnosis was when he had 6 rounds of docetaxel and it really worked well. This fall Xandi stopped working and his PSA went from Aug 5.3 to Oct 20.9 with a small tumour in his bladder seen on
fmoser
in
Advanced Prostate Cancer
1 year ago
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