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Things have taken a turn for the worse
Where we left off: Part 2: https://healthunlocked.com/advanced-prostate-cancer/posts/150427924/thank-you-everybody-part-2 Where we are: So the pain continued after the second visit and as per plan I checked myself into emergency. Excellent service in and out in three hours. During that time they ran
Where we left off: Part 2: https://healthunlocked.com/advanced-prostate-cancer/posts/150427924/thank-you-everybody-part-2 Where we are: So the pain continued after the second visit and as per plan I checked myself into emergency. Excellent service in and out in three hours. During that time they ran
skiingfiend
in
Advanced Prostate Cancer
5 months ago
carbo/gem chemo
I’ve just been told today I have recurrence and go back in 6 weeks to see my oncologist to see when treatment will start. I’ve read conflicting things about hair loss, my onc said I will only get some thinning to my hair…but I’ve read quite the opposite and that I will have total hair loss. I’ve already
I’ve just been told today I have recurrence and go back in 6 weeks to see my oncologist to see when treatment will start. I’ve read conflicting things about hair loss, my onc said I will only get some thinning to my hair…but I’ve read quite the opposite and that I will have total hair loss. I’ve already
sarah040866
in
My Ovacome
5 months ago
High BLood Pressure, Kidney failure, cause discovered
Super high blood pressure, average 180/110 past two years. OVer 10 different BP meds failed to reduce BP. Kidney GFR dropped from upper 50s two years ago to 22 last week in hospital. After hospital and fluids back up to 31. Kidney biopsy last November showed protein crystals in kidneys. Bone
Super high blood pressure, average 180/110 past two years. OVer 10 different BP meds failed to reduce BP. Kidney GFR dropped from upper 50s two years ago to 22 last week in hospital. After hospital and fluids back up to 31. Kidney biopsy last November showed protein crystals in kidneys. Bone
phebamom
in
High Blood Pressure Support
5 months ago
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IS THIS A PATTERN???? Thoughts and helpful ideas to guide a path
Diagnosed Gleason 9 advanced, PSA 19, mets in pelvis(maybe more???)Had 6 x chemo ,5 X radio to prostate, ADT through out.PSA was down to 0.08 at one point.1 MARCH23 0.29 25 MAY23 0.08 NOV23 0.12 05 DEC23 0.25 12 FEB24 0.44 started feeling bouts of unreasonable tiredness, think maybe active cancer???
Diagnosed Gleason 9 advanced, PSA 19, mets in pelvis(maybe more???)Had 6 x chemo ,5 X radio to prostate, ADT through out.PSA was down to 0.08 at one point.1 MARCH23 0.29 25 MAY23 0.08 NOV23 0.12 05 DEC23 0.25 12 FEB24 0.44 started feeling bouts of unreasonable tiredness, think maybe active cancer???
Mrtroxely
in
Advanced Prostate Cancer
5 months ago
treatment without surgery
hi, I’m new on here. First sorry to read and see what you are all going through, you are all very strong and brave. It’s my mum that has ovarian cancer stage 4, had 6 rounds of chemo then surgery - however the surgeon couldn’t operate as there was too much cancer to remove. My question is, has anyone
hi, I’m new on here. First sorry to read and see what you are all going through, you are all very strong and brave. It’s my mum that has ovarian cancer stage 4, had 6 rounds of chemo then surgery - however the surgeon couldn’t operate as there was too much cancer to remove. My question is, has anyone
Holsgram
in
My Ovacome
5 months ago
Diagnosed under 55
I’m looking specifically for men and partners of men who were diagnosed with de novo stage four prostate cancer at their initial diagnosis. The treatments are different and unfortunately so it the overall outlook. The younger men are diagnosed with PCa, the more aggressive the cancer tends to be.
I’m looking specifically for men and partners of men who were diagnosed with de novo stage four prostate cancer at their initial diagnosis. The treatments are different and unfortunately so it the overall outlook. The younger men are diagnosed with PCa, the more aggressive the cancer tends to be.
Vegasborn
in
Advanced Prostate Cancer
5 months ago
Anybody with good results on Xeloda?
I was on Ibrance and Letrozole, then Verzenio and Faslodex and then Orserdu. Since Orserdu now failed, the next plan is Xeloda. I read here some reports about some bad side effects. My oncologist at Dana Farber gave me some choices and indicated that in my situation, Xeloda might be best. The
I was on Ibrance and Letrozole, then Verzenio and Faslodex and then Orserdu. Since Orserdu now failed, the next plan is Xeloda. I read here some reports about some bad side effects. My oncologist at Dana Farber gave me some choices and indicated that in my situation, Xeloda might be best. The
SMPG
in
SHARE Metastatic Breast Cancer
5 months ago
Questions for those currently on or have tried Olaparib or Rucaparib PARP inhibitors. Recently published study on Rucaparib.
For those of you who have tried or are on PARP inhibitors, which one did you use and at what point did you use them? Was it before chemo or after chemo? Did insurance cover the cost? Looking at the NCCN guidelines, which my husband's MO refers to often, they suggest Olaparib (Lynparrza) before chemo
For those of you who have tried or are on PARP inhibitors, which one did you use and at what point did you use them? Was it before chemo or after chemo? Did insurance cover the cost? Looking at the NCCN guidelines, which my husband's MO refers to often, they suggest Olaparib (Lynparrza) before chemo
mrssnappy
in
Advanced Prostate Cancer
5 months ago
Pelvic Pain and spotting 9+ years post hysterectomy
Hi my mum had a full hysterectomy following a diagnosis of Stage 1C clear cell OC. 6 months of Chemo followed this. Since treatment and op she has been suffering with what has been described as chronic pelvic pain ever since. She had been told she cannot go on HRT as her cancer was Clear Cell. She
Hi my mum had a full hysterectomy following a diagnosis of Stage 1C clear cell OC. 6 months of Chemo followed this. Since treatment and op she has been suffering with what has been described as chronic pelvic pain ever since. She had been told she cannot go on HRT as her cancer was Clear Cell. She
Livkatt90
in
OvaCare
5 months ago
Info about docetaxel
I have been at Stage 4 for 7 1/2 years. and a succession of Xtandi, Nubequa, and Zytega along with Lupron has kept my PSA under two although each has eventually failed (PSA quickly rising above 1.0). My recent blood draw resulted in a jump from 0.78 to 1.29 while I was on the Aberaterone/prednisone protocol
I have been at Stage 4 for 7 1/2 years. and a succession of Xtandi, Nubequa, and Zytega along with Lupron has kept my PSA under two although each has eventually failed (PSA quickly rising above 1.0). My recent blood draw resulted in a jump from 0.78 to 1.29 while I was on the Aberaterone/prednisone protocol
33947
in
Advanced Prostate Cancer
5 months ago
Repeat Lutetium/ Pluvicto treatment
Hello all, I am just curious if anyone has experience doing additional lutetium treatments. I did three lutetium treatments from September 2021 to January 2022. My Denver oncologist is concerned about bone marrow toxicity , but he does not have enough experience with this treatment to say for sure.
Hello all, I am just curious if anyone has experience doing additional lutetium treatments. I did three lutetium treatments from September 2021 to January 2022. My Denver oncologist is concerned about bone marrow toxicity , but he does not have enough experience with this treatment to say for sure.
Eugmn
in
Advanced Prostate Cancer
5 months ago
Long Journey
Hey Guys, I don’t post on here often and I’m afraid this will be a long post. I have had PCa over 18 years. Started with casodex, Lupron. A few months later, brachytherapy then 42 sessions of EBRT. Over the years PSA would rise, and I would be put on Lupron for 18-24 months. In 2017, PSA started rising
Hey Guys, I don’t post on here often and I’m afraid this will be a long post. I have had PCa over 18 years. Started with casodex, Lupron. A few months later, brachytherapy then 42 sessions of EBRT. Over the years PSA would rise, and I would be put on Lupron for 18-24 months. In 2017, PSA started rising
MJCA
in
Prostate Cancer And Gay Men
5 months ago
Pleural Effusion Treatment
I was diagnosed with MBC in 2017, my initial treatment worked very well - no progression for 5 years. Then progression: in bones (l already had multiple bone Mets skull, ribs, sternum . . . spine and hips). . . brain . . . pleural effusion . . . increasing pleural effusion increase in size of lung
I was diagnosed with MBC in 2017, my initial treatment worked very well - no progression for 5 years. Then progression: in bones (l already had multiple bone Mets skull, ribs, sternum . . . spine and hips). . . brain . . . pleural effusion . . . increasing pleural effusion increase in size of lung
NPmary
in
SHARE Metastatic Breast Cancer
5 months ago
Intersitial Lung Disease and Lung Cancer
Dear All, My father has stage 3B Lung Cancer which he was diagnosed just over 18 months ago now. He also has intersitial lung disease (which he didnt realise before treatment) so is limited to treatments. He did have 4 rounds of chemotherapy August to October 2022, and did have a fair amount of
Dear All, My father has stage 3B Lung Cancer which he was diagnosed just over 18 months ago now. He also has intersitial lung disease (which he didnt realise before treatment) so is limited to treatments. He did have 4 rounds of chemotherapy August to October 2022, and did have a fair amount of
Clairebrocks
in
The Roy Castle Lung Cancer Foundation
5 months ago
From a Carer’s Perspective
hello to all in the oesophageal cancer community. not necessarily a community that anyone would particularly choose to be in but also comforting to know others are in the same situation. my husband was diagnosed with stage 2 OG in September 2023. he has had four chemo sessions and is due to have surgery
hello to all in the oesophageal cancer community. not necessarily a community that anyone would particularly choose to be in but also comforting to know others are in the same situation. my husband was diagnosed with stage 2 OG in September 2023. he has had four chemo sessions and is due to have surgery
harveydylan
in
Oesophageal & Gastric Cancer
5 months ago
Which treatment option best for recurrent oligo?
In addition to SBRT for the two mets that make me join the happy recurrent crowd, what would be my best treatment option? I have had no SOC medication for 2.5 years. My T is 4 European scale 110 US scale. 1 Only ADT for seven months. This is what MO recommends, besides SBRT, since stronger/longer
In addition to SBRT for the two mets that make me join the happy recurrent crowd, what would be my best treatment option? I have had no SOC medication for 2.5 years. My T is 4 European scale 110 US scale. 1 Only ADT for seven months. This is what MO recommends, besides SBRT, since stronger/longer
Purple-Bike
in
Advanced Prostate Cancer
5 months ago
Goods news
3 months ago I was informed of a new suspicious nodule in my left lung. Since then I have lived a mental nightmare knowing that its growth on the next scan would mean another cancer or more likely and worst, the distant recurrence of my first lung cancer (resected with my right lower lobe in April
3 months ago I was informed of a new suspicious nodule in my left lung. Since then I have lived a mental nightmare knowing that its growth on the next scan would mean another cancer or more likely and worst, the distant recurrence of my first lung cancer (resected with my right lower lobe in April
Bibicata
in
The Roy Castle Lung Cancer Foundation
5 months ago
enzalutamide
Hi I lost my dad a year ago but enzalutamide slowed the progression and shrunk the met also alleviating pain. This is taken in tablet form and offered as an alternative to chemotherapy. Hope this might help.
Hi I lost my dad a year ago but enzalutamide slowed the progression and shrunk the met also alleviating pain. This is taken in tablet form and offered as an alternative to chemotherapy. Hope this might help.
Pinkpeanuts07
in
Advanced Prostate Cancer
5 months ago
2nd recurrence
Hi Ladies as you know I have already posted that I have started treatment for a 2nd recurrence of my Stage 2 OC. I was diagnosed in 2021 and had surgery and 6 cycles of successful Chemo. I started to feel unwell around October time with upper right back pain. CT and MRI were clear. CA125 did start
Hi Ladies as you know I have already posted that I have started treatment for a 2nd recurrence of my Stage 2 OC. I was diagnosed in 2021 and had surgery and 6 cycles of successful Chemo. I started to feel unwell around October time with upper right back pain. CT and MRI were clear. CA125 did start
Hota
in
My Ovacome
5 months ago
Feeling fed up
Hi, just been told I'm to start chemo again in coupleoif weeks so gutted and fed up. Caelyx this time as carbo taxol didnt last 6 months. How was it? I've always had carboplatin/ packlitaxol up till now Coming up to 4years since I joined the OC club. Had chemo / radical op/ chemo/ olaparib/ more chemo
Hi, just been told I'm to start chemo again in coupleoif weeks so gutted and fed up. Caelyx this time as carbo taxol didnt last 6 months. How was it? I've always had carboplatin/ packlitaxol up till now Coming up to 4years since I joined the OC club. Had chemo / radical op/ chemo/ olaparib/ more chemo
Casamimosa
in
My Ovacome
5 months ago
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