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Interferon
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MF high risk Mutations
(rIFNα) • Intermediate-2 to High risk (by IPSS/DIPSS/DIPSS-plus score) - Allogeneic stem cell transplant (SCT) for eligible patients - First line Ruxolitinib for splenomegaly == #2- INF for MF: What about
Interferon
in Myelofibrosis?
(rIFNα) • Intermediate-2 to High risk (by IPSS/DIPSS/DIPSS-plus score) - Allogeneic stem cell transplant (SCT) for eligible patients - First line Ruxolitinib for splenomegaly == #2- INF for MF: What about
Interferon
in Myelofibrosis?
EPguy
in
MPN Voice
2 years ago
Anyone on Interferon for 5 years or more??
I take HU for PV, 72yo, good control so far, but I am wondering if I should switch to
Interferon
for the possible long term advantages? Any comments, both good and bad would be appreciated. Best to all.
I take HU for PV, 72yo, good control so far, but I am wondering if I should switch to
Interferon
for the possible long term advantages? Any comments, both good and bad would be appreciated. Best to all.
Meatloaf9
in
MPN Voice
2 years ago
Dr Verstovsek on Besremi and Outcomes
https://www.targetedonc.com/view/first-fda-approved-
interferon
-improves-outcomes-in-polycythemia-vera
https://www.targetedonc.com/view/first-fda-approved-
interferon
-improves-outcomes-in-polycythemia-vera
Elizka
in
MPN Voice
2 years ago
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Double-reactive autoantibodies linked to worse SLE disease activity
Genes related to
interferon
(IFN), a protein that’s made by immune cells in response to inflammation, were more active in SLE patients who tested positive for both anti-DNase1L3 and anti-dsDNA autoantibodies.
Genes related to
interferon
(IFN), a protein that’s made by immune cells in response to inflammation, were more active in SLE patients who tested positive for both anti-DNase1L3 and anti-dsDNA autoantibodies.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
2 years ago
ET diagnosed at 85 yrs. Failed HU because of side effects but platelets down to 555. Considering age and quality of life issues..........
He is very concerned about trying the
interferon
shots or other medicines because of the potential side effects. One of the shots had problems with retina issues like retinal detachment which happened to his mother. Has anyone just said, "Hey, I'm 85.
He is very concerned about trying the
interferon
shots or other medicines because of the potential side effects. One of the shots had problems with retina issues like retinal detachment which happened to his mother. Has anyone just said, "Hey, I'm 85.
endlessfun
in
MPN Voice
2 years ago
AE's on interferon
https://mpn-hub.com/medical-information/comparing-responses-of-pegylated-
interferon
-alfa-and-hydroxyurea-in-patients-with-et-and-pv
https://mpn-hub.com/medical-information/comparing-responses-of-pegylated-
interferon
-alfa-and-hydroxyurea-in-patients-with-et-and-pv
EPguy
in
MPN Voice
2 years ago
The Gut Microbiota in Patients with Polycythemia Vera is Distinct from that of Healthy Controls and Varies by Treatment
»Recombinant
interferon
-α2 (IFN) treatment of patients with PV has been shown to be disease-modifying in terms of normalization of elevated blood cell counts in concert with a reduction in the JAK2V617F allelic burden.
»Recombinant
interferon
-α2 (IFN) treatment of patients with PV has been shown to be disease-modifying in terms of normalization of elevated blood cell counts in concert with a reduction in the JAK2V617F allelic burden.
Manouche
in
MPN Voice
2 years ago
Post Covid infection - nearly 4 weeks since positive test and treated with antivirals - have ET and still feel awful
I ended up in and e again last Wednesday night and now waiting to see Gp - I was wondering if anyone had relapsed after covid and had similar symptoms, I have been told it’s covid related and possibly going back in
interferon
too quickly after diagnosis caused the relapse but they don’t know - if anyone
I ended up in and e again last Wednesday night and now waiting to see Gp - I was wondering if anyone had relapsed after covid and had similar symptoms, I have been told it’s covid related and possibly going back in
interferon
too quickly after diagnosis caused the relapse but they don’t know - if anyone
BeckyDing
in
MPN Voice
2 years ago
Interferon injections
Hi folks, Wanted to know,am about to go on
interferon
injections as my iron count is 3.4 & ferritin count is 16. I feel fine but wondered how the injections are going for those taking it and what side effects are mostly common. Many thanks 😊
Hi folks, Wanted to know,am about to go on
interferon
injections as my iron count is 3.4 & ferritin count is 16. I feel fine but wondered how the injections are going for those taking it and what side effects are mostly common. Many thanks 😊
keviekev
in
MPN Voice
2 years ago
Peginterferon with Anagrelide?
Until about 6 mths ago I was taking a mixture of Hydrea and Anagrelide but it was no longer working so well so I switched to
interferon
. I’m on the max dose of 180 weekly but platelets are still 650ish and as an active person I’m struggling with the tiredness and fatigue.
Until about 6 mths ago I was taking a mixture of Hydrea and Anagrelide but it was no longer working so well so I switched to
interferon
. I’m on the max dose of 180 weekly but platelets are still 650ish and as an active person I’m struggling with the tiredness and fatigue.
R_Watson
in
MPN Voice
2 years ago
Mechanism Discovered Behind Strongest Lupus Genetic Risk
Marta Figueiredo, PhD | August 18, 2022 The strongest genetic risk factor of systemic lupus erythematosus (SLE), HLA-DRB1*03:01, generates an abnormal protein that, in the presence of the pro-inflammatory
interferon
gamma (IFN-gamma), activates SLE-related genes and triggers SLE-characteristic cellular
Marta Figueiredo, PhD | August 18, 2022 The strongest genetic risk factor of systemic lupus erythematosus (SLE), HLA-DRB1*03:01, generates an abnormal protein that, in the presence of the pro-inflammatory
interferon
gamma (IFN-gamma), activates SLE-related genes and triggers SLE-characteristic cellular
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
2 years ago
A follow up to my post about switching from hydroxyurea to interferon. Questions about switching to besremi or anagrelide.
I had a phone consultation with my hematologist yesterday and asked him about switching from hydroxyurea to
interferon
. I really appreciated peoples replies about their experiences switching from hydroxyurea to
interferon
.
I had a phone consultation with my hematologist yesterday and asked him about switching from hydroxyurea to
interferon
. I really appreciated peoples replies about their experiences switching from hydroxyurea to
interferon
.
Island-Lady
in
MPN Voice
2 years ago
Covid
Hi I have caught Covid (in Spain)2days ago I was allowed to skip my pegylated
interferon
dose for this holiday ( choir tour) as it’s a tiring week. On return (in 4 days) I have to take my ‘increased’ dose of Peg(60mg) Has anyone taken Peg with Covid and does it increase the side effects much?
Hi I have caught Covid (in Spain)2days ago I was allowed to skip my pegylated
interferon
dose for this holiday ( choir tour) as it’s a tiring week. On return (in 4 days) I have to take my ‘increased’ dose of Peg(60mg) Has anyone taken Peg with Covid and does it increase the side effects much?
Bobadog
in
MPN Voice
2 years ago
Litifilimab Shown to Reduce Number of Swollen Joints in Phase 2 Trial
September 12, 2022 litifilimab reduces number of swollen joints in LILAC trial | Lupus News Today | joint pain illustration of man lying on couch with ice on knee Litifilimab (BIIB059), Biogen’s investigational antibody-based treatment for systemic lupus erythematosus (SLE), significantly reduced the
September 12, 2022 litifilimab reduces number of swollen joints in LILAC trial | Lupus News Today | joint pain illustration of man lying on couch with ice on knee Litifilimab (BIIB059), Biogen’s investigational antibody-based treatment for systemic lupus erythematosus (SLE), significantly reduced the
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
2 years ago
Can anyone recommend a cooler bag for travelling with Interferon in the tropics?
I was looking at Frio bags for insulin but they only maintain temperatures between 18-26deg cent and the
interferon
needs to be 2-8 deg centigrade. Cheers, Josh
I was looking at Frio bags for insulin but they only maintain temperatures between 18-26deg cent and the
interferon
needs to be 2-8 deg centigrade. Cheers, Josh
Huginn
in
MPN Voice
2 years ago
Questions about switching from hydroxyurea to interferon
From my understanding, which is very limited,
interferon
can actually cause remission which is what I would like. From the little bit of reading I’ve done I understand that I would have to stay on a dosage of hydroxyurea while the
interferon
begins to take effect.
From my understanding, which is very limited,
interferon
can actually cause remission which is what I would like. From the little bit of reading I’ve done I understand that I would have to stay on a dosage of hydroxyurea while the
interferon
begins to take effect.
Island-Lady
in
MPN Voice
2 years ago
MPN specialist
Got a second look from an mpn specialist yesterday here in Houston, TX and I am glad I took Hunter’s advice. I was happy with my hemo but just couldn’t get behind the idea of taking hydrea for 30+ years (God willing.) I was told that if treatment ever becomes indicated for me, interferons would be
Got a second look from an mpn specialist yesterday here in Houston, TX and I am glad I took Hunter’s advice. I was happy with my hemo but just couldn’t get behind the idea of taking hydrea for 30+ years (God willing.) I was told that if treatment ever becomes indicated for me, interferons would be
dbus1417
in
MPN Voice
2 years ago
Litifilimab Lessens Skin Disease Activity in Lupus, Trial Data Show
Litifilimab Lessens Skin Disease Activity in Lupus, Trial Data ShowTherapy known as BIIB059 led to 'huge improvements,' researchers say: Marta Figueiredo, PhD | August 22, 2022 Biogen’s experimental therapy litifilimab, also called BIIB059, significantly reduced skin disease activity in adults with
Litifilimab Lessens Skin Disease Activity in Lupus, Trial Data ShowTherapy known as BIIB059 led to 'huge improvements,' researchers say: Marta Figueiredo, PhD | August 22, 2022 Biogen’s experimental therapy litifilimab, also called BIIB059, significantly reduced skin disease activity in adults with
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
2 years ago
Peg jab
It was a breeze although the only slight problem encountered was wrenching the caps off the needle and the
interferon
containers. They were screwed on very tightly.
It was a breeze although the only slight problem encountered was wrenching the caps off the needle and the
interferon
containers. They were screwed on very tightly.
gilded
in
MPN Voice
2 years ago
Questions about AEs on Interferons w.r.t. liver enzymes
Thanks “Pegylated
interferon
alpha – 2a is clinically effective and tolerable in myeloproliferative neoplasm patients treated off clinical trial”, Leukeamia Research 54 (2017) 73-77, coauthored by Rueben Mesa: For the cohort of 75 patients there was “transaminitis at grade 1 in 6 patients (8%) and grade
Thanks “Pegylated
interferon
alpha – 2a is clinically effective and tolerable in myeloproliferative neoplasm patients treated off clinical trial”, Leukeamia Research 54 (2017) 73-77, coauthored by Rueben Mesa: For the cohort of 75 patients there was “transaminitis at grade 1 in 6 patients (8%) and grade
LongETinUS
in
MPN Voice
2 years ago
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