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PBC Foundation
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Multivitamins

I have spent a lot of time searching for the best iron free multivitamin. I know someone here posted that the vit A should be as beta carotene.

Suggestions?

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My daughter researches everything please look up INTRAMAX An organic source of pure vitamins , she ordered it for me , I use to take it a few years ago , i’m sorry I ever stopped , she spoke with the owner of the company and he referred this especially for liver diseases , she told him I had PBC. I’m going to start again .

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Thanks Arlie. Hope you’re feeling better. 🌷

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I think betacarotene has to be converted to vitamin A once taken. People with PBC may not convert it well. I personally take vitamin A derived from cod liver oil and vitamin A palmitate (Pure Encapsulations brand, 10,000 iu per day), and my vitamin A levels look great when lab tested. I quit taking multivitamins and take what I need separately. I had been taking a multivitamin but developed strange painful bruising on the palm side of my fingers. I read about causes and found it could be a vitamin C deficiency. My multi had plenty of vitamin C - if I had been absorbing it. Apparently I wasn't, because when I started taking vitamin C in its own capsule the finger bruising went away and stayed away. I decided that if I wasn't absorbing the vitamin C in the multi, I probably wasn't absorbing the rest of the vitamins either. I seem to be fine when I take individual vitamins and minerals as needed. Just some thoughts!!

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This is true. Plus the older we get, the less the stomach lining absorbs vitamins, according to my Internist. 😊

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Metabolic Maintenance, can purchase on PurFormula

Sunny

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I use that web company...great products, great service and prices...thanks for mentioning

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Hi gwillistexas

I buy Higher Nature Maxi Multi without added iron. I source it from a company in the UK but have looked on Amazon and copy the link below. Perhaps Amazon USA will also be able to supply it if you decide this is for you. Also is the link to the contents of the Maxi Multi from the company that I buy from, as you can see it has Beta Carotene in the content.

amazon.co.uk/Higher-Nature-...

bodykind.com/product/428-ma...

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Thank you😊

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Good Morning my friends! Good topic this morning as it was a reminder for me to start using a particular brand I really like. There is an organic, gluten free, IRON free liquid multivitamin that is available on Amazon. MARY RUTH'S MORNING LIQUID MULTI VITAMIN. You will get a 32 serving bottle for $40. The morning formula is a vitamin, mineral, and amino acid blend. They also make a nighttime formula that is trace minerals.

I've used the morning one and really do not know why I stopped this brand...probably the same reason I switch up cosmetics! I have not used the night time one, but plan to try them when my Clark's trace minerals are finished. I believe this liquid will give a full spectrum for my health. Oh, and the Vitamin A is beta carotene. Be well

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Thank you! Have a great day 🤗

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For sure...same to you. It's a beautiful day here again...expect low 80's and sunshine

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Thanks! Sunny & 65 today. 🌞

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What is the reason you want vitamin without iron?

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The liver stores iron. If we overload, it is deposited into the liver & heart & can cause problems. My ferritin levels are normal, & unless it gets low & im told to take it, I’ll avoid it.

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Hi gwillistexas, this is so true! I didn't realise this and have been taking a multivitamin containing 5mg iron (around a third of the daily recommended dose). When my doctor checked my vitamin levels she panicked as my iron saturation was too high (around 58%) and told me to stop taking the multivitamin straight away. I have been tested for hemochromatosis but she hopes it is just the multivitamin that did it. We do not want to damage our livers anymore than they are already with PBC!

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I attended a support group & the head Of transplant at Baylor Scott & White Ft Worth handed out information. One of the transplant hepatologist said we can do damage to the liver with supplements. His advice is to take multivitamin. The head of transplant said no iron unless our dr recommends it. 😊

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I hope your level returns to normal. Let me know. 🙏🏻

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Thank you so much, I will 😊

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😊

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This has been on my mind too. I pop a one a day women’s vita gummy without even thinking about it and I just checked and it doesn’t have iron so that’s good. I take a vitamin C every day too (my idea not doctors )and 1000 mg vitamin D3 per my doctors orders . I am seeing a new doctor in Boston and for my next round of blood work they want to look at the levels of soluble vitamins in my system. Will report back.

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I take 1,000 D3 per my dr. 400 iu E, & sublingual B complex w/b12 ( but not faithfully 🤫). Sometimes I take C.

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I wonder if testing for soluble vitamins should be one of those routine tests done for us. I have to check with my hep about that.

Not that I want to overload on tests, but doesn’t hurt to ask.

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I just checked my annual labs done by my GP for my physical & she tested for B12, folate, ferritin, iron & iron binding cap. What else needs to be tested in terms of vitamins? My hep tests for vitamin D every 3 months along with all the other routine things he monitors.

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G’morning. At present, I’m only tested for hepatic every 3 months & CMP every 6. My D, B12 & ferritin are not routinely checked. I think some drs check A & K. That’s another reason I’m anxious to see hep. I feel he will check a few more things routinely. 😊

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Thanks. I have to ask about k & a. I think it is probably sensible to check once a year at annual physical.

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I agree. 😊

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My dr told me to take a children’s multi-vitamin. I bought Alive gummies. It does not contain iron but it does contain sugar 3 grams. Bought it in the super market.

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Why a children’s multi vitamin?

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I am not deficient in any vitamins and I eat healthy for the most part so doc said This would be plenty for me. I take 2 a day. Check out the label. It’s fat soluables and B complex. No minerals. No iron.

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Also gluten free but it does have 3 grams of sugar.

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Thanks! I should ask my doctor his opinion next time I see him.

How is your calcium intake?

I have osteopenia & also have to take a separate D vitamin.

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Is that for me ir Ellyne?

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Either one of you! Thanks. 🤗

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I was in osteoporosis but since taking prolia, I am in osteopenia. I do take 2000 D3. I do not take calcium supplements. So, I drink milk eat broccoli etc...

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Thanks. I take a calcium supplement every other day as insurance. I do try to eat well. I use milk to make steel cut oatmeal in lieu of water.

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I have heard other ladies say their dr recommended children’s. Seems would be safe & not too much of anything. 😊

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Exactly.

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Makes sense😊

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