Hi everyone, thanks for having me.
I've had Sjogrens since interferon treatment 10 years ago and recently needed a troublesome parotid gland removed due to unidentified lumps and chronic pain and swelling.
Am awaiting biopsy results, I've previously had mediastinal lymphoma.
I was also recommenced on low dose hydroxychloroquine in an effort to slow the systemic symptoms and preserve the other salivary glands.
Anyone find hydroxychloroquine useful for slowing progression?
Anyone experience of parotid removals?
PS I'm in the UK so hope it is OK to post as you are the only Sjogrens Group on Health Unlocked.