Help: Advice please,I have ET,I take interferon... - MPN Voice

MPN Voice

10,445 members14,398 posts

Help

Jbut profile image
Jbut
5 Replies

Advice please,I have ET,I take interferon alpha injections 2 times a week,tonight I took out fridge and it didn't feel cold enough,put thermostat inside checked was 10 should be under 5,so my fridge has been faulty,don't know how long could be weeks, phoned out of hrs they said shouldn't harm me but interferon might not be as affective,worried now getting bloods done tomorrow and phone hospital pharmacy in morning then go from there,been feeling nausea for a few weeks wondering if this could be the cause

Written by
Jbut profile image
Jbut
To view profiles and participate in discussions please or .
Read more about...
5 Replies
fee13 profile image
fee13

Pharmacist is the best person to talk to with your concerns. Most information says store from 2 to 8 degrees Celsius so hopefully 10 may not have affected it too much. As you've said, it won't harm you but can be less effective and it can be left out of the fridge for quite some time (a week or so I think, but can't remember where I read that). Hopefully your blood test comes back with good results and no need to worry. 😊

Jbut profile image
Jbut in reply to fee13

Thank-you for reply,phoned out of hours called in to get bloods done in A and E last night,raised slightly than usual, just got to sort pharmacy today check if am still OK to take interferon,and probably check bloods again next week x

harleydavidson profile image
harleydavidson

Hi jbut, I took interferon that was out of date for six weeks, that was 2 years ago. No lasting effects thank goodness. I wish you well. Mel x

Jawas profile image
Jawas

Hi Jbut,

A similar thing happened to me. I had to buy a new fridge.

The MPN Voice website has comprehensive information the link is as follows:-

mpnvoice.org.uk/documents/t...

It didn't really affect me too badly just slightly higher blood counts until I received the new fridge.

One thing I do is place my meat thermometer on the fridge door with the probe under the interferon, which is safe in a heavy weight plastic bag. This way I can see any problems straight way and address them.

I hope everything goes well for you and don't worry too much you should be fine.

All the best,

Jawas

Jbut profile image
Jbut in reply to Jawas

Thank you jawas I was feeling nausea for a few weeks before I noticed temperature of fridge was faulty ,had bloods done up on what they used to be,but am sorted now with my medication,i was lucky my fridge freezer was insured x

You may also like...

Help to boost immune system?

started on interferon alpha came off because of side effects and now on peg interferon once a week...

help!

discovered high platelets albeit only 465. Have been referred to specialist for testing who has said

Suggestions to help manage fatigue

clots in the liver). I'm now 31 and have been on pegasys interferon and warfarin for the last few...

Medication for ET - HELP

are several concerns, one being wether to do interferon instead but my research looks like it can...

Suggestions for help for insomnia?

waking around 2-3pm. I just feel like if I could fall asleep faster, I could wake up earlier and...