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Interferon alfa-2b
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Post 746 Powerlessness NOT YOU 10 Jul 2021
Good Saturday morning to “YOU” my ms family. “YOU” are faring well today? Your life is progressing in a somewhat planned way, basically, all things considered it is sort of good. Make the effort to make it better, exert your will. Show your ms that “You are not a victim, silly putty in its tentacles
Good Saturday morning to “YOU” my ms family. “YOU” are faring well today? Your life is progressing in a somewhat planned way, basically, all things considered it is sort of good. Make the effort to make it better, exert your will. Show your ms that “You are not a victim, silly putty in its tentacles
RoyceNewton
in
My MSAA Community
3 years ago
Pegasus interferon taking paracetamol before injection
I have just completed my third injection 2 of which I did myself the first by the specialist nurse I am getting a little more confident but wonder if I still need to take 2 paracetamol prior to injecting as advised by the nurse when I had my first injection can anyone advise me thank you
I have just completed my third injection 2 of which I did myself the first by the specialist nurse I am getting a little more confident but wonder if I still need to take 2 paracetamol prior to injecting as advised by the nurse when I had my first injection can anyone advise me thank you
Hughley
in
MPN Voice
3 years ago
Interferon
Just done my 1st injection, simple enough, now hoping any side effects will be minimal.
Just done my 1st injection, simple enough, now hoping any side effects will be minimal.
ciye
in
MPN Voice
3 years ago
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Pegasus interferon injection prepping
Well I have managed to do my first injection st home but had a bit of a problem prepping the injection I couldn’t seem to be able to snap the needle holder in fear of breaking it but a neighbour helped me just hope the new medication works for me.
Well I have managed to do my first injection st home but had a bit of a problem prepping the injection I couldn’t seem to be able to snap the needle holder in fear of breaking it but a neighbour helped me just hope the new medication works for me.
Hughley
in
MPN Voice
3 years ago
Change of treatment!
Hello again. Last time I wrote, I was about to start hydroxy. Started with 500mg a day, Monday to Friday for 4 weeks and then every day. To start with I didn’t have too many side effects but after 7 weeks things got worse. Not only the hot flushes increased drastically, I had mouth ulcers, itchy scalp
Hello again. Last time I wrote, I was about to start hydroxy. Started with 500mg a day, Monday to Friday for 4 weeks and then every day. To start with I didn’t have too many side effects but after 7 weeks things got worse. Not only the hot flushes increased drastically, I had mouth ulcers, itchy scalp
Cokopops
in
MPN Voice
3 years ago
ET - how many of you have this condition and then have it develop into MF or another condition
Hi all I'm new here. A little bit about me, I was diagnosed with ET Jak2 positive in 2018 via a routine blood test when I was pregnant with my 2nd child. It wasn't until after I had my baby that the diagnosis really sunk in that this was a condition that I had to live with and maintain. I was initially
Hi all I'm new here. A little bit about me, I was diagnosed with ET Jak2 positive in 2018 via a routine blood test when I was pregnant with my 2nd child. It wasn't until after I had my baby that the diagnosis really sunk in that this was a condition that I had to live with and maintain. I was initially
vickivicki
in
MPN Voice
3 years ago
Pegasys update
Hi all, So the blood results are in and I’ve had my consultation with my specialist nurse. My platelets after one week have dropped from 450 to 253!! I’ve gained at least 2 hours a day but not energy. My WBC have been compromised so I have a reduced immune system. I'm now dropping my 9 anagrelide
Hi all, So the blood results are in and I’ve had my consultation with my specialist nurse. My platelets after one week have dropped from 450 to 253!! I’ve gained at least 2 hours a day but not energy. My WBC have been compromised so I have a reduced immune system. I'm now dropping my 9 anagrelide
Wyebird
in
MPN Voice
3 years ago
Storage of Pegasus interferon
I started on Pegasus interferon last week and I am very concerned regarding the storage of the syringe in my fridge not being at the correct temperature 2-8 degrees centigrade I have bought a digital fridge thermometer but it fluctuates every time I open the door. Does anyone have any advice regarding
I started on Pegasus interferon last week and I am very concerned regarding the storage of the syringe in my fridge not being at the correct temperature 2-8 degrees centigrade I have bought a digital fridge thermometer but it fluctuates every time I open the door. Does anyone have any advice regarding
Hughley
in
MPN Voice
3 years ago
Introduction of myself, PMF, from China
Hi, I'm Qi, from China, I'm 34 years old this year. I confirmed PMF in 2017. At that time, the splenomegaly was high, but it was not very high, and it was not so high all the time. These symptoms began to happen to me one after another as early as 2013. JAK2V617F gene mutation, there is only one mutation
Hi, I'm Qi, from China, I'm 34 years old this year. I confirmed PMF in 2017. At that time, the splenomegaly was high, but it was not very high, and it was not so high all the time. These symptoms began to happen to me one after another as early as 2013. JAK2V617F gene mutation, there is only one mutation
merlisa
in
MPN Voice
3 years ago
Success
My Haematoligist has agreed to put me on interferon. She has said it may not help with the fatigue, hopefully she is wrong. She also says the breathlessness isn't down to the hydroxcycarbamide despite the fact it's listed on the side effects. I will see how I go while on the interferon.
My Haematoligist has agreed to put me on interferon. She has said it may not help with the fatigue, hopefully she is wrong. She also says the breathlessness isn't down to the hydroxcycarbamide despite the fact it's listed on the side effects. I will see how I go while on the interferon.
ciye
in
MPN Voice
3 years ago
Advice wanted
Hello 1st time on this site but am feeling a bit more positive reading some of the posts. I am JAK positive Myeloproliferative Disorder and Portal Vein Thrombosis. I was diagnosed with Portal Vein Thrombosis in 2005 and MD in 2008. I was initially put on Interferon but could not tolerate the fevers
Hello 1st time on this site but am feeling a bit more positive reading some of the posts. I am JAK positive Myeloproliferative Disorder and Portal Vein Thrombosis. I was diagnosed with Portal Vein Thrombosis in 2005 and MD in 2008. I was initially put on Interferon but could not tolerate the fevers
taytokavo
in
MPN Voice
3 years ago
Ruxolitinib discontinuation in polycythemia vera:
« After discontinuation, only 4 patients (18 %) received subsequent cytoreductive therapy, including hydroxyurea in one patient and pegylated interferon α-2a in three patients »… « discontinuation of ruxolitinib in PV was associated with generally favorable outcomes. However, there is a lack of available
« After discontinuation, only 4 patients (18 %) received subsequent cytoreductive therapy, including hydroxyurea in one patient and pegylated interferon α-2a in three patients »… « discontinuation of ruxolitinib in PV was associated with generally favorable outcomes. However, there is a lack of available
Manouche
in
MPN Voice
3 years ago
Research identifies potential antiviral compound for COVID-19, flu, other viral infection
UMass Medical School scientists Katherine A. Fitzgerald, PhD; Fiachra Humphries, PhD; and Liraz Galia, PhD, working with the British-based pharmaceutical company GlaxoSmithKline, have identified a novel molecule capable of stimulating the innate immune system against SARS-CoV-2 virus. A trigger for the
UMass Medical School scientists Katherine A. Fitzgerald, PhD; Fiachra Humphries, PhD; and Liraz Galia, PhD, working with the British-based pharmaceutical company GlaxoSmithKline, have identified a novel molecule capable of stimulating the innate immune system against SARS-CoV-2 virus. A trigger for the
2greys
in
Lung Conditions Community Forum
3 years ago
Is anyone concerned on the side-effect of taking hydroxyurea for long time?
Is anyone concerned on the side-effect of taking hydroxyurea for long time? I am taking 500mg/day and scared with the toxicity of this medicine in long term. I heard Interferon is much better than HU and has chance to change JAK2 + to negative. Anyone any recommendation? I am JAK2+ with platelets ~600
Is anyone concerned on the side-effect of taking hydroxyurea for long time? I am taking 500mg/day and scared with the toxicity of this medicine in long term. I heard Interferon is much better than HU and has chance to change JAK2 + to negative. Anyone any recommendation? I am JAK2+ with platelets ~600
Sam2022
in
MPN Voice
3 years ago
ASCO presentations on melanoma research this week
1. Iovance (advanced biotech company for use of Adoptive Cell Therapy/Tumor Infiltrating Lymphocytes (TIL) reports data at the 33 month follow up point. Early Intervention with Lifileucel Following Progression on Anti-PD-1 Therapy May Maximize Benefit. https://www.yahoo.com/now/iovance-biotherapeutics-announces
1. Iovance (advanced biotech company for use of Adoptive Cell Therapy/Tumor Infiltrating Lymphocytes (TIL) reports data at the 33 month follow up point. Early Intervention with Lifileucel Following Progression on Anti-PD-1 Therapy May Maximize Benefit. https://www.yahoo.com/now/iovance-biotherapeutics-announces
missyrand
Ambassador
in
Melanoma Caregivers
3 years ago
Testosterone & Covid-19
New study below [1] [2] When the pandemic began, it was quickly noted that a disproportionate number of men were dying from it. Made sense, since women mount a stronger immune response than me with high-normal testosterone [T]. And then the Italian study came out in May (2020) [3]: "Our data suggest
New study below [1] [2] When the pandemic began, it was quickly noted that a disproportionate number of men were dying from it. Made sense, since women mount a stronger immune response than me with high-normal testosterone [T]. And then the Italian study came out in May (2020) [3]: "Our data suggest
pjoshea13
in
Advanced Prostate Cancer
3 years ago
Cytoreductive surgery for Oligometastatic PCa.
New meta-analysis below [1]. "... ten studies were identified that met the conclusion {inclusion?} criteria. The total number of samples was 804; 449 patients underwent cytoreductive surgery, and 355 patients underwent endocrine therapy ... "... we found that between cytoreductive surgery and endocrine
New meta-analysis below [1]. "... ten studies were identified that met the conclusion {inclusion?} criteria. The total number of samples was 804; 449 patients underwent cytoreductive surgery, and 355 patients underwent endocrine therapy ... "... we found that between cytoreductive surgery and endocrine
pjoshea13
in
Advanced Prostate Cancer
3 years ago
Roxadustat and thyroid-stimulating hormone suppression
Just posting this so that it has been posted. I have my doubts it will be relevant to more than a handful - but I could be wrong. [i]
Roxadustat and thyroid-stimulating hormone suppression
Atsuyuki Tokuyama, Hiroyuki Kadoya, Atsushi Obata, Takahiro Obata, Tamaki Sasaki, Naoki Kashihara Clinical
Just posting this so that it has been posted. I have my doubts it will be relevant to more than a handful - but I could be wrong. [i]
Roxadustat and thyroid-stimulating hormone suppression
Atsuyuki Tokuyama, Hiroyuki Kadoya, Atsushi Obata, Takahiro Obata, Tamaki Sasaki, Naoki Kashihara Clinical
helvella
Thyroid UK
in
Thyroid UK
3 years ago
Covid jab and interferon injection
Hi Hope everyone is doing OK. Quick question. I had my second covid jab this morning. Iam due to have my interferon injection this evening. (45MG EVERY OTHER WEEK) wondering if it is OK to still have my injection same day as my covid jab Many thanks
Hi Hope everyone is doing OK. Quick question. I had my second covid jab this morning. Iam due to have my interferon injection this evening. (45MG EVERY OTHER WEEK) wondering if it is OK to still have my injection same day as my covid jab Many thanks
Elab
in
MPN Voice
3 years ago
Interferon side effects?
Hi everyone - I’m new to this community but have been reading your posts for several months and have already learned so much from all of you. Thanks! I was diagnosed with ET at age 58. I’m 62 now and began HU 500mg/day at 60. I also take baby aspirin, one in the morning and one in the evening. My platelets
Hi everyone - I’m new to this community but have been reading your posts for several months and have already learned so much from all of you. Thanks! I was diagnosed with ET at age 58. I’m 62 now and began HU 500mg/day at 60. I also take baby aspirin, one in the morning and one in the evening. My platelets
jevans59
in
MPN Voice
3 years ago
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