Good Saturday morning to “YOU” my ms family. “YOU” are faring well today? Your life is progressing in a somewhat planned way, basically, all things considered it is sort of good. Make the effort to make it better, exert your will. Show your ms that “You are not a victim, silly putty in its tentacles to be pulled apart, trodden on, thrown into a dark cold corner. NO, do not do that. Show your ms that “YOU” are a power to be reckoned with. Whatever ms may do to “YOU”, “YOU” can come to terms with. Adapt too, like the bamboo I have mentioned before. “YOU” will bend, bend hard, but “YOU” will not break.
Yes, we all know that ms can be very challenging at times, but deep within you is a fire that is burning. A fire that gives “YOU” strength a will to carry on. 20, 30 years ago there was nothing to help “YOU” slow this disease. Today in 2021 we have a great array of different Disease-Modifying Therapies (DMT), take one and slow down your disease progression. It is my opinion, taking some sort of action against the illness gives “YOU” some small feeling of power. “YOU” are not a total victim to your ms. “YOU” are doing something, something to slow its progression, something to give “YOU” some power.
Back in the day, when I was on Beta 1b interferon, each needle I used to imagine. The medicine going into my bloodstream and flowing around my body. Building barriers, repairing damage that ms had caused. Not getting all the damage, but some. My body with the medicine was doing its best to keep me upright and functioning. Of course it was fighting a losing battle, ms is strong and very sneaky, BUT, today in 2021 I am standing, walking down the street, going to the gym and walking around my house. I do not drive, I do not own a car. She who must be obeyed does and I do not want to anyway. Like all good people with ms, sex is but a memory but I most certainly have memories. I was not quite so ??? in my youth.
It all leads back to what do “YOU” want from your life with ms? Do “YOU” want to be pitied, hopeless a victim of everybody else’s whims. OR do “YOU” want to have some little bit of power. Some control? This is your decision to make. “YOU” can have it, it may take some perseverance. A will and determination to make your life the best that “YOU” possibly can. Do not surrender and give away all your power to somebody else. Be polite but learn a particular two-letter word, NO and do not be afraid to use it, NO NO NO. Feels good, doesn’t it?
Royce (your ms writer and Brother)
Do something to give yourself some power.
