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Interferon alfa-2b
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Side effects of PEG
In discussing the pros/cons of moving from Hydroxy Urea to PEG Interferon, my MPN specialist citied one side effect of PEG as the possibility of activating latent autoimmune diseases that could be “brewing” in one’s system such as rheumatoid arthritis. This really surprised me as I thought the only side
In discussing the pros/cons of moving from Hydroxy Urea to PEG Interferon, my MPN specialist citied one side effect of PEG as the possibility of activating latent autoimmune diseases that could be “brewing” in one’s system such as rheumatoid arthritis. This really surprised me as I thought the only side
jevans59
in
MPN Voice
3 years ago
Interferon Rash
Hi guys I am on my second weekly injection of Interferon. When I went to inject into my tummy area I noticed the site of my first injection was a red circular rash. It wasn’t itchy or sore, just a red rash. I injected on the other side of my tummy this time and sure enough a red rash appeared. The
Hi guys I am on my second weekly injection of Interferon. When I went to inject into my tummy area I noticed the site of my first injection was a red circular rash. It wasn’t itchy or sore, just a red rash. I injected on the other side of my tummy this time and sure enough a red rash appeared. The
jillydabrat
in
MPN Voice
3 years ago
Texas MPN Workshop 2021 | Promising trials in polycythemia vera
Abdulraheem Yacoub, MD, MBBS, The University of Kansas, Westwood, KS, discusses upcoming trials investigating the treatment of polycythemia vera, namely trials exploring pegylated interferons and hepcidin inhibitors which have reported promising preliminary clinical outcomes. https://www.vjhemonc.com
Abdulraheem Yacoub, MD, MBBS, The University of Kansas, Westwood, KS, discusses upcoming trials investigating the treatment of polycythemia vera, namely trials exploring pegylated interferons and hepcidin inhibitors which have reported promising preliminary clinical outcomes. https://www.vjhemonc.com
Manouche
in
MPN Voice
3 years ago
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ET - Pregnancy
I’m new to forum. Diagnosed in 2017 with ET, JAK2+. Baby aspirin. Recently had my check 6 month review and all ok. My platelets are stable at ~850. We’re trying for another baby, which is a rollercoaster in itself. I don’t know anyone’s pregnancy that was quite so complicated as mine. Seems quite daunting
I’m new to forum. Diagnosed in 2017 with ET, JAK2+. Baby aspirin. Recently had my check 6 month review and all ok. My platelets are stable at ~850. We’re trying for another baby, which is a rollercoaster in itself. I don’t know anyone’s pregnancy that was quite so complicated as mine. Seems quite daunting
Anniepops112
in
MPN Voice
3 years ago
Breathlessness
Struggling with breathlessness, I was hoping interferon would help this, but doesn't seem to be. I have ET and has no says it's not a symptom.
Struggling with breathlessness, I was hoping interferon would help this, but doesn't seem to be. I have ET and has no says it's not a symptom.
ciye
in
MPN Voice
3 years ago
Booster shots?
Hi all, I’m curious on the consensus regarding a third booster shot given the recent recommendation for the immunosuppressed. Does ET treated with the max interferon dose count, do you think? I am thinking that it is better to err on the side of caution and get one. I would love to hear of any recommendations
Hi all, I’m curious on the consensus regarding a third booster shot given the recent recommendation for the immunosuppressed. Does ET treated with the max interferon dose count, do you think? I am thinking that it is better to err on the side of caution and get one. I would love to hear of any recommendations
Purple478273
in
MPN Voice
3 years ago
Two Questions. Interferon and JAK %
Had by 3 monthly consultation yesterday, bloods all ok, but my cough is still there.. The consultants are unaware of any possible link to interferon and have referred me back to my GP, the GP has ordered a chest X ray, clear, changed my BP pills, so he has very little else to go on... The consultants
Had by 3 monthly consultation yesterday, bloods all ok, but my cough is still there.. The consultants are unaware of any possible link to interferon and have referred me back to my GP, the GP has ordered a chest X ray, clear, changed my BP pills, so he has very little else to go on... The consultants
shiftzz
in
MPN Voice
3 years ago
Advances in the Polycythemia Vera Paradigm Signal Hope for Providers in Pennsylvania Cluster Area
« The interferons are our older agents, but they're being studied in new ways. As we have molecular data available to us and as we have better tools to look at the marrow more closely, to assess what's happening, what we're finding is that some of these agents including the interferons, may be altering
« The interferons are our older agents, but they're being studied in new ways. As we have molecular data available to us and as we have better tools to look at the marrow more closely, to assess what's happening, what we're finding is that some of these agents including the interferons, may be altering
Manouche
in
MPN Voice
3 years ago
Interferon journey started with ET JAK+ at platelets counts 550
I start interferon journey yesterday after taking 4 months of hydroxyurea. My initial blood platelets was as high as ~950 in April, then gradually decreases to ~550 till yesterday when I switched to interferon. Although I don't have any severe side-effects on HU except I felt soar knee, I decided to
I start interferon journey yesterday after taking 4 months of hydroxyurea. My initial blood platelets was as high as ~950 in April, then gradually decreases to ~550 till yesterday when I switched to interferon. Although I don't have any severe side-effects on HU except I felt soar knee, I decided to
Sam2022
in
MPN Voice
3 years ago
Change to Interferon
Hi my MPN family. Today I had my first weekly -Interferon injection after being on Hydroxy for 6 years for my PV. What, if anything, can I expect to feel or not with this new course of treatment. I am still awaiting my antibody test results from Hematology. If I am found to have Lupus then I will
Hi my MPN family. Today I had my first weekly -Interferon injection after being on Hydroxy for 6 years for my PV. What, if anything, can I expect to feel or not with this new course of treatment. I am still awaiting my antibody test results from Hematology. If I am found to have Lupus then I will
jillydabrat
in
MPN Voice
3 years ago
Pegasus interferon injection
I have just done my 7th injection and so pleased to say it went well. I was originally having problems with the prepping but thanks to all the advice different mpners on this site have given me I am feeling more confident now thank you . I have my next blood tests next Monday so keeping my fingers crossed
I have just done my 7th injection and so pleased to say it went well. I was originally having problems with the prepping but thanks to all the advice different mpners on this site have given me I am feeling more confident now thank you . I have my next blood tests next Monday so keeping my fingers crossed
Hughley
in
MPN Voice
3 years ago
Lupus Foundation of America Celebrates FDA Approval of Saphnelo™ (Anifrolumab-fnia) as a New Treatment for Lupus
August 2, 2021 This type I interferon receptor antagonist demonstrated early and sustained benefits for people with moderate to severe systemic lupus erythematosus. The U.S. Food and Drug Administration (FDA) has approved Saphnelo™ (anifrolumab-fnia) as a treatment for adults with systemic lupus erythematosus
August 2, 2021 This type I interferon receptor antagonist demonstrated early and sustained benefits for people with moderate to severe systemic lupus erythematosus. The U.S. Food and Drug Administration (FDA) has approved Saphnelo™ (anifrolumab-fnia) as a treatment for adults with systemic lupus erythematosus
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
3 years ago
More variants TLR7 gene found in young healthy men with severe Covid-19.
Spanish-Dutch research has revealed two new mutations in the TLR7 gene in healthy young men who became seriously ill with severe Covid-19. It’s becoming increasingly plausible that such mutations undermine a sufficient immune response against SARS-CoV-2, the researchers write in Frontiers in Immunology
Spanish-Dutch research has revealed two new mutations in the TLR7 gene in healthy young men who became seriously ill with severe Covid-19. It’s becoming increasingly plausible that such mutations undermine a sufficient immune response against SARS-CoV-2, the researchers write in Frontiers in Immunology
2greys
in
Lung Conditions Community Forum
3 years ago
Taken off Hydrea effects
Hi all. I was hoping there might be someone out there that might be in the same position. I was on Hydrea for over two years. In the last six months I was also placed on Interferon. First a small amount and now the full the injection. My Hematologist is happy with my results and has taken me off Hydrea
Hi all. I was hoping there might be someone out there that might be in the same position. I was on Hydrea for over two years. In the last six months I was also placed on Interferon. First a small amount and now the full the injection. My Hematologist is happy with my results and has taken me off Hydrea
vegas22
in
MPN Voice
3 years ago
Pegasus interferon injection
I have just done my 5th injection and it’s the preparing that causes me a problem I can snap the needle out without a problem but having difficulties after attaching the needle to the syringe taking the needle cover off in fact today jabbed my finger has anyone got any hints how to make it easier. The
I have just done my 5th injection and it’s the preparing that causes me a problem I can snap the needle out without a problem but having difficulties after attaching the needle to the syringe taking the needle cover off in fact today jabbed my finger has anyone got any hints how to make it easier. The
Hughley
in
MPN Voice
3 years ago
Taking interferon in hot weather
Quick question, I took interferon on Saturday night and have been suffering since - very achy and then cold shivers at night... (Although periods of feeling normal too). Taken many covid tests, all negative... Previous post about heat and PV was very reassuring but I just wondered if I've made symptoms
Quick question, I took interferon on Saturday night and have been suffering since - very achy and then cold shivers at night... (Although periods of feeling normal too). Taken many covid tests, all negative... Previous post about heat and PV was very reassuring but I just wondered if I've made symptoms
hansyhand
in
MPN Voice
3 years ago
ALTERNATIVE TO RUXONLITINIB
Good afternoon After five years of excellent treatment on Ruxonlitinib to treat myelofibrosis and recent surgery to remove an aggressive SCC from my forehead , I am under consideration to crossover to an alternative treatment , namely interferon. I would be grateful for any accounts you may have on
Good afternoon After five years of excellent treatment on Ruxonlitinib to treat myelofibrosis and recent surgery to remove an aggressive SCC from my forehead , I am under consideration to crossover to an alternative treatment , namely interferon. I would be grateful for any accounts you may have on
kevinbros
in
MPN Voice
3 years ago
Greater Understanding of PV, ET Drives Potential New Treatment Options
“Continued high-impact research may soon foster the development of disease-modifying therapies for PV and ET and satisfy this need for the optimal management of patients with these MPNs,” they said. Researchers are also determining how to best optimize current treatment options, including JAK inhibitors
“Continued high-impact research may soon foster the development of disease-modifying therapies for PV and ET and satisfy this need for the optimal management of patients with these MPNs,” they said. Researchers are also determining how to best optimize current treatment options, including JAK inhibitors
Manouche
in
MPN Voice
3 years ago
Post 746 Powerlessness NOT YOU 10 Jul 2021
Good Saturday morning to “YOU” my ms family. “YOU” are faring well today? Your life is progressing in a somewhat planned way, basically, all things considered it is sort of good. Make the effort to make it better, exert your will. Show your ms that “You are not a victim, silly putty in its tentacles
Good Saturday morning to “YOU” my ms family. “YOU” are faring well today? Your life is progressing in a somewhat planned way, basically, all things considered it is sort of good. Make the effort to make it better, exert your will. Show your ms that “You are not a victim, silly putty in its tentacles
RoyceNewton
in
My MSAA Community
3 years ago
Pegasus interferon taking paracetamol before injection
I have just completed my third injection 2 of which I did myself the first by the specialist nurse I am getting a little more confident but wonder if I still need to take 2 paracetamol prior to injecting as advised by the nurse when I had my first injection can anyone advise me thank you
I have just completed my third injection 2 of which I did myself the first by the specialist nurse I am getting a little more confident but wonder if I still need to take 2 paracetamol prior to injecting as advised by the nurse when I had my first injection can anyone advise me thank you
Hughley
in
MPN Voice
3 years ago
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