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Interferon alfa-2a
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Switch from IntronA to Peg Interferon? Anyone had experience of this?
I wondered if there was anyone out there that has experience of switching from IntronA to Peg interferon. I have PV jak 2 positive. I'm struggling terribly with side effects. Excruciating bone and muscle pain that sometimes takes my breath away. I have mentioned this to the haematology department
I wondered if there was anyone out there that has experience of switching from IntronA to Peg interferon. I have PV jak 2 positive. I'm struggling terribly with side effects. Excruciating bone and muscle pain that sometimes takes my breath away. I have mentioned this to the haematology department
1965_SB_2015
in
MPN Voice
8 years ago
Struggling to cope :(
I'm new here, so apologies if this is the wrong way to go about things! My partner has PCV with low iron, we've recently been told his prospects are not very good. He's requested Interferon but they have refused to give it to him because he is only 32. He's been diagnosed since he was 15. Every time
I'm new here, so apologies if this is the wrong way to go about things! My partner has PCV with low iron, we've recently been told his prospects are not very good. He's requested Interferon but they have refused to give it to him because he is only 32. He's been diagnosed since he was 15. Every time
KatQuinzel
in
MPN Voice
8 years ago
Hepatitis C - Doctor - Profound ignorance
I have Hepatitis C from 2011, I was treated with Ribavirin and interferon for 6 months. After this HCV was undetectable. In November 2014, my GP tells me that Hepatitis C is back in my body. They send me to a specialist after 5 months. The specialist, without to do any investigation, told me that took
I have Hepatitis C from 2011, I was treated with Ribavirin and interferon for 6 months. After this HCV was undetectable. In November 2014, my GP tells me that Hepatitis C is back in my body. They send me to a specialist after 5 months. The specialist, without to do any investigation, told me that took
costumespectacol
in
HepNS
8 years ago
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Rintatolimod
Chronic fatigue syndrome/ Myalgic encephalomyelitis (CFS/ME) is a poorly understood seriously debilitating disorder in which disabling fatigue is an universal symptom in combination with a variety of variable symptoms. The only drug in advanced clinical development is rintatolimod, a mismatched double
Chronic fatigue syndrome/ Myalgic encephalomyelitis (CFS/ME) is a poorly understood seriously debilitating disorder in which disabling fatigue is an universal symptom in combination with a variety of variable symptoms. The only drug in advanced clinical development is rintatolimod, a mismatched double
Babylon5
in
Ramsays Disease
8 years ago
Itching
The major effect my MPN has on me beside fatigue is itching. I have itched since before first diagnosis in 1994. Have tried so many drugs . Numerous anti-histamines, cimetidine, paroxetine, steroids ,thalidomide, interferon ( made it worse). The only thing that helped was very large doses of PUVA but
The major effect my MPN has on me beside fatigue is itching. I have itched since before first diagnosis in 1994. Have tried so many drugs . Numerous anti-histamines, cimetidine, paroxetine, steroids ,thalidomide, interferon ( made it worse). The only thing that helped was very large doses of PUVA but
skodaguy
in
MPN Voice
8 years ago
Ian
Hi all, I'm someone who has been interacting with ghe Liver trust for some time. I'm just about to start my 3rd round of interferon, ribravarin based meds covering 2 years of my life. First time I was non detectable at 48weeks but it didn't stick on my 3 month check. Next up I did rib' and int' in conjunction
Hi all, I'm someone who has been interacting with ghe Liver trust for some time. I'm just about to start my 3rd round of interferon, ribravarin based meds covering 2 years of my life. First time I was non detectable at 48weeks but it didn't stick on my 3 month check. Next up I did rib' and int' in conjunction
ianmacdonagh
in
British Liver Trust
8 years ago
Platelets rising whilst on hydroxycarbamide?
Does anyone have any experience of their platelets rising whilst on a relatively high (1.5g) daily dose of hydroxycarbamide? If so which alternative drug did you go for, & how do you feel (tolerate) it? I suspect I will plump for interferon b (analagride SE's don't sound very nice)? Any help advice would
Does anyone have any experience of their platelets rising whilst on a relatively high (1.5g) daily dose of hydroxycarbamide? If so which alternative drug did you go for, & how do you feel (tolerate) it? I suspect I will plump for interferon b (analagride SE's don't sound very nice)? Any help advice would
Bill_E
in
MPN Voice
8 years ago
Interferon, low mood and 5htp....
So I've been on interferon for a few months for ET. And whilst the physical side effects are unpleasant they are improving. The mental/emotional ones are really starting to get hard. I am painfully aware that I need to give the whole thing time to settle and work. So quitting (although is an option)
So I've been on interferon for a few months for ET. And whilst the physical side effects are unpleasant they are improving. The mental/emotional ones are really starting to get hard. I am painfully aware that I need to give the whole thing time to settle and work. So quitting (although is an option)
Rochyne
in
MPN Voice
8 years ago
HCV patients should get treatment with or without cirrhosis on NHS
Treatment using Harvoni There are some genotypes that aren't so easy to treat...but, if you have Hepatitis C the NHS are obliged to treat you according to the final guidelines published by NICE November 2015. If you are not aware of this and are waiting treatment & wondering... Read this link: http
Treatment using Harvoni There are some genotypes that aren't so easy to treat...but, if you have Hepatitis C the NHS are obliged to treat you according to the final guidelines published by NICE November 2015. If you are not aware of this and are waiting treatment & wondering... Read this link: http
art4949
in
British Liver Trust
8 years ago
cryoglobunemia
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2569912/pdf/1750-1172-3-25.pdf Had i read this (page 11) before being treated with interferon maybe i would have thought twice. At the least i would have had more blood tests and discussed them with my hep doctor before starting.!
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2569912/pdf/1750-1172-3-25.pdf Had i read this (page 11) before being treated with interferon maybe i would have thought twice. At the least i would have had more blood tests and discussed them with my hep doctor before starting.!
Alvess123
in
British Liver Trust
8 years ago
Harvoni ribavirin
Hi can anyone offer me some reassurance, had hep c 35 years. Stage 4 fibrosis, non respond interferon. Have just completed 12 week Harvoni / Ribavirin VL at start 2.5 million after 2 weeks 100, after 4 weeks 27,after 8 weeks 12, was hoping for undetected, but now kind of worried that the last 4 weeks
Hi can anyone offer me some reassurance, had hep c 35 years. Stage 4 fibrosis, non respond interferon. Have just completed 12 week Harvoni / Ribavirin VL at start 2.5 million after 2 weeks 100, after 4 weeks 27,after 8 weeks 12, was hoping for undetected, but now kind of worried that the last 4 weeks
fenderjazz
in
British Liver Trust
8 years ago
Getting things sorted
Tuesday I go in for an USS on the bile duct & gall bladder. Wednesday retest for diabetes, Tuesday I finally have my dietician appt. Once I have checked all of the boxes I am moving forward on my quest for Harvoni. I do not want to take anything else. I have failed treatment on interferon and my
Tuesday I go in for an USS on the bile duct & gall bladder. Wednesday retest for diabetes, Tuesday I finally have my dietician appt. Once I have checked all of the boxes I am moving forward on my quest for Harvoni. I do not want to take anything else. I have failed treatment on interferon and my
Estiebargle
in
British Liver Trust
8 years ago
HFI Patient Connect Request
In 1981, Wendy F. received a blood transfusion during hip surgery and contracted hepatitis C. She was diagnosed in 1991. Wendy underwent two attempts to rid her body of the virus which included interferon and then interferon plus ribavirin which failed. Wendy continued therapy and a 3rd attempt with
In 1981, Wendy F. received a blood transfusion during hip surgery and contracted hepatitis C. She was diagnosed in 1991. Wendy underwent two attempts to rid her body of the virus which included interferon and then interferon plus ribavirin which failed. Wendy continued therapy and a 3rd attempt with
HFIAdmin
in
HFI Connect - Hepatitis
8 years ago
Hi all
Have not been on here for awhile, been very down and depressed. In December I went to an MPN expert at John Hopkins for a second opinion on my ET and HU and basically because every forum for ET says you should at least once a year see an expert and actually my GP agreed and referred me to him. I have
Have not been on here for awhile, been very down and depressed. In December I went to an MPN expert at John Hopkins for a second opinion on my ET and HU and basically because every forum for ET says you should at least once a year see an expert and actually my GP agreed and referred me to him. I have
mickey64
in
MPN Voice
8 years ago
First post ....
Hi, so I am kind of new here... so here's a bit about me... I'm 23, and was diagnosed with ET a few years ago. My platelet level varied between 1100 and 1600 and recently the doctors found out that my Von Willebrand factor is low, so on top of being at risk of clots, I also bleed strangely.... so on
Hi, so I am kind of new here... so here's a bit about me... I'm 23, and was diagnosed with ET a few years ago. My platelet level varied between 1100 and 1600 and recently the doctors found out that my Von Willebrand factor is low, so on top of being at risk of clots, I also bleed strangely.... so on
Rochyne
in
MPN Voice
8 years ago
Interferon
I was treated and cured from hepC 4 years ago. Until I discovered I had the condition my health was fine. As soon as I started treatment my health plummeted and I have been ill ever since. Interferon has destroyed my life, I have cryoglobunemia, aches, pains, brain fog and extreme fatigue. I was
I was treated and cured from hepC 4 years ago. Until I discovered I had the condition my health was fine. As soon as I started treatment my health plummeted and I have been ill ever since. Interferon has destroyed my life, I have cryoglobunemia, aches, pains, brain fog and extreme fatigue. I was
Alvess123
in
British Liver Trust
8 years ago
pegylated interferon?
Hello all, I have ET since I was 27 (41 now) and JAK2+. In last year I have been on HU, as well as my usual aspirin and warfarin (I am high risk; had liver transplant in '06 due to clotted hepatic vein - last year the hepatic artery clotted). Yesterday, I saw my amazing haematologist. She would like
Hello all, I have ET since I was 27 (41 now) and JAK2+. In last year I have been on HU, as well as my usual aspirin and warfarin (I am high risk; had liver transplant in '06 due to clotted hepatic vein - last year the hepatic artery clotted). Yesterday, I saw my amazing haematologist. She would like
Karol_Rua
in
MPN Voice
8 years ago
Hydroxycarbamide v Pegasys Interferon
Hi I am due to start having treatment for PV, so far have just been having aspirin daily and venesections when needed. My haematological thinks it's time to start with treatment and I have been fortunate to have been offered the choice between the two. I am leaning towards interferon but am worried as
Hi I am due to start having treatment for PV, so far have just been having aspirin daily and venesections when needed. My haematological thinks it's time to start with treatment and I have been fortunate to have been offered the choice between the two. I am leaning towards interferon but am worried as
MicheleL
in
MPN Voice
8 years ago
Why am I always tired and sad? What can I do?
Hello, This is the first time I'm sharing something private on the internet. Usually I'm not a fan of discussions in forums, but maybe this is a good place. It's kind of hard for me to put what I feel into written words which many others will read, but I'll give it a try. So actually I'm a happy person
Hello, This is the first time I'm sharing something private on the internet. Usually I'm not a fan of discussions in forums, but maybe this is a good place. It's kind of hard for me to put what I feel into written words which many others will read, but I'll give it a try. So actually I'm a happy person
Hidden
in
Mental Health Support
8 years ago
Out of date Interferon
I discovered that my Intron A interferon was 3 months out of date when I went to give myself my jab last night. Does anyone know if this is dangerous? Thanks Mel x
I discovered that my Intron A interferon was 3 months out of date when I went to give myself my jab last night. Does anyone know if this is dangerous? Thanks Mel x
harleydavidson
in
MPN Voice
9 years ago
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