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Experiences with
Interferon alfa-2a
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Exasperated
I hv been diagnosed for 13 years. Am 52 years old female from India. Due to the cost, have never been on interferons. Had brain lesions when diagnosed. Now had an active lesion in cervical cord, and was administered solumedrol. Present issues are am diagnosed with angina and am on ivabrad 5mg twice and
I hv been diagnosed for 13 years. Am 52 years old female from India. Due to the cost, have never been on interferons. Had brain lesions when diagnosed. Now had an active lesion in cervical cord, and was administered solumedrol. Present issues are am diagnosed with angina and am on ivabrad 5mg twice and
Zapped
in
My MSAA Community
6 years ago
Hospital appointment
Just after some advice went to my follow up haematology appointment today and my platelets were 519, 3 weeks ago they were 552. At diagnosis of PV in December they were over 1000. I am currently on interferon Alpha and have no problems with this. However my haematologist this morning was very negative
Just after some advice went to my follow up haematology appointment today and my platelets were 519, 3 weeks ago they were 552. At diagnosis of PV in December they were over 1000. I am currently on interferon Alpha and have no problems with this. However my haematologist this morning was very negative
Poppy112
in
MPN Voice
6 years ago
Update
Diagnosed some 4 years ago. HCT was 0.612 Platelets 1162, regular venesection, Hydro, aspirin, all came down ok.. About three or 4 months ago, migrating to interferon, reduction in hydro from 5x1000mg plus 2x 500mg a week, HCT went up slightly, so venesection x 3, another last week... So at the moment
Diagnosed some 4 years ago. HCT was 0.612 Platelets 1162, regular venesection, Hydro, aspirin, all came down ok.. About three or 4 months ago, migrating to interferon, reduction in hydro from 5x1000mg plus 2x 500mg a week, HCT went up slightly, so venesection x 3, another last week... So at the moment
shiftzz
in
MPN Voice
6 years ago
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Overactive Bladder - Tolterodine stories?
Hi! I have always been that person who is constantly needing a wee break. I have spoken to my doctors about it before, but its really starting to get in the way of my sleep, needing to get up at least 4 times in the night. They prescribed my Tolterodine Tartrate today and I'd like some opinions? I have
Hi! I have always been that person who is constantly needing a wee break. I have spoken to my doctors about it before, but its really starting to get in the way of my sleep, needing to get up at least 4 times in the night. They prescribed my Tolterodine Tartrate today and I'd like some opinions? I have
Rochyne
in
Bladder Health UK
6 years ago
Interferon for MPN's video - take a look
https://www.patientpower.info/video/the-pros-and-cons-of-interferon-as-an-mpn-treatment?autoplay=1&utm_source=health-topic-alert&utm_medium=email&utm_campaign=MPN020718&utm_content=fa1bb560c5
https://www.patientpower.info/video/the-pros-and-cons-of-interferon-as-an-mpn-treatment?autoplay=1&utm_source=health-topic-alert&utm_medium=email&utm_campaign=MPN020718&utm_content=fa1bb560c5
Jocko
in
MPN Voice
6 years ago
Melanoma Recurrence after 10 Years
Hi everyone, my name is Corey, I'm 31, and have recently found a recurrence of melanoma after almost 10 years NED. In 2008, I had a WLE of a mole removed from my left calf, as well as SLN (which tested positive) and 20 lymph nodes (not positive). I was stage IIIA at this point, and completed the year
Hi everyone, my name is Corey, I'm 31, and have recently found a recurrence of melanoma after almost 10 years NED. In 2008, I had a WLE of a mole removed from my left calf, as well as SLN (which tested positive) and 20 lymph nodes (not positive). I was stage IIIA at this point, and completed the year
coreyanneluck
in
Young Adults with Melanoma
6 years ago
First dose of Interferon
Well, last night I had my first injection of Interferon Roferon A, which was interesting. I took it about 6pm and within an hour was very achey, which led to what can best be described asfull on flu/fever/nausea by 10pm. I took some paracetamol and by the early hours started to feel better. Today I feel
Well, last night I had my first injection of Interferon Roferon A, which was interesting. I took it about 6pm and within an hour was very achey, which led to what can best be described asfull on flu/fever/nausea by 10pm. I took some paracetamol and by the early hours started to feel better. Today I feel
PT99
in
MPN Voice
6 years ago
Interferon v Peginteferon
If one chooses to go this route, which drug is most likely to be prescribed in the UK. I assume INF weekly doses but possibly greater side effects? Peg can be taken every two weeks and meant to better tolerated? Thanks
If one chooses to go this route, which drug is most likely to be prescribed in the UK. I assume INF weekly doses but possibly greater side effects? Peg can be taken every two weeks and meant to better tolerated? Thanks
Paul123456
in
MPN Voice
6 years ago
Interferon alpha frequency
I have been on interferon for about 6 months. Now down to two a week. Finding fatigue day after injection becoming much much worse. I know some people at Liverpool have a weekly injection. At what stage was that started. My behcet is under better control although still got eye problems😕
I have been on interferon for about 6 months. Now down to two a week. Finding fatigue day after injection becoming much much worse. I know some people at Liverpool have a weekly injection. At what stage was that started. My behcet is under better control although still got eye problems😕
sian35
in
Behçet's UK
6 years ago
When to start medication?
Hi all I had a clinic appointment last week and when I got to the hospital, discovered that my usual haem was unfortunately on leave for 6 months. They’d therefore drafted a replacement in whom I saw, who immediately recommended I go on hydroxy or Interferon. Now, my usual haem has seen me for 4 years
Hi all I had a clinic appointment last week and when I got to the hospital, discovered that my usual haem was unfortunately on leave for 6 months. They’d therefore drafted a replacement in whom I saw, who immediately recommended I go on hydroxy or Interferon. Now, my usual haem has seen me for 4 years
PT99
in
MPN Voice
6 years ago
Interferon A
Looking for some advice, I was diagnosed with ET/PV in December JAK2 positive. Am awaiting my BMB results next week to clarify. I was started on Hydroxy straight away due to my platelet count but was changed to Interferon (Roferon A) after this due to my age (which I was happier with). I have been on
Looking for some advice, I was diagnosed with ET/PV in December JAK2 positive. Am awaiting my BMB results next week to clarify. I was started on Hydroxy straight away due to my platelet count but was changed to Interferon (Roferon A) after this due to my age (which I was happier with). I have been on
Poppy112
in
MPN Voice
6 years ago
Fascinating drug comparison table
This has been posted on MPN-Net, not seen it before. Since every specialist seems to have a different viewpoint I’m not sure how reliable it is but definitely food for thought! This Table published by Dr. Hasselbalch earlier this year summarizes the differences between interferon, hydroxyurea, Jakafi
This has been posted on MPN-Net, not seen it before. Since every specialist seems to have a different viewpoint I’m not sure how reliable it is but definitely food for thought! This Table published by Dr. Hasselbalch earlier this year summarizes the differences between interferon, hydroxyurea, Jakafi
Paul123456
in
MPN Voice
6 years ago
Current and future therapies for SLE: obstacles and recommendations for the development of novel treatments
Current and future therapies for SLE: obstacles and recommendations for the development of novel treatments
Zahi Touma and Dafna D Gladman Author affiliations Centre for Prognosis Studies in the Rheumatic Diseases, University of Toronto, Lupus Clinic, Toronto Western Hospital, University Health
Current and future therapies for SLE: obstacles and recommendations for the development of novel treatments
Zahi Touma and Dafna D Gladman Author affiliations Centre for Prognosis Studies in the Rheumatic Diseases, University of Toronto, Lupus Clinic, Toronto Western Hospital, University Health
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
6 years ago
Recently diagnosed.
Hi, I am a 48 year old female who has been recently diagnosed with MPN- ET (JAK2) I had a brain hemorrhage earlier this year and the blood disorder was discovered. I think I must have cried for days when the term cancer was mentioned!! My symptoms are extreme fatigue and pain. I am on Interferon and
Hi, I am a 48 year old female who has been recently diagnosed with MPN- ET (JAK2) I had a brain hemorrhage earlier this year and the blood disorder was discovered. I think I must have cried for days when the term cancer was mentioned!! My symptoms are extreme fatigue and pain. I am on Interferon and
Atlantic5
in
MPN Voice
7 years ago
Interferon dosage?
I have a question for PV patients, being treated with Peg-Interferon. I am a 51 year-old, who was diagnosed 2 years ago. I began taking 45 mcg of Pegasys, seven weeks ago. I was doing very well, as I have had minimal side effects, have been feeling less fatigued, and have had improving blood levels.
I have a question for PV patients, being treated with Peg-Interferon. I am a 51 year-old, who was diagnosed 2 years ago. I began taking 45 mcg of Pegasys, seven weeks ago. I was doing very well, as I have had minimal side effects, have been feeling less fatigued, and have had improving blood levels.
clevemic
in
MPN Voice
7 years ago
Drug Therapy - Interferon
Hey, I would love to hear from any PV patients who have had success with interferon? I have had PV for over 8 years nearly 9 and I was able to fight the fatigue and live a normal life, however, my life seems to be getting smaller and now even exercise has me feeling awful for days so I am avoiding
Hey, I would love to hear from any PV patients who have had success with interferon? I have had PV for over 8 years nearly 9 and I was able to fight the fatigue and live a normal life, however, my life seems to be getting smaller and now even exercise has me feeling awful for days so I am avoiding
Hidden
in
MPN Voice
7 years ago
Haem appointment disappointing
Hello everybody I just want to vent a little, hope that's ok? I have ET/Jak2 and on InterferonAlpha. Went to Haem this week and although the interferon has helped me considerably I have been experiencing severe hip and girdle pain, which I told him about. His response, 'well we'll run out of options
Hello everybody I just want to vent a little, hope that's ok? I have ET/Jak2 and on InterferonAlpha. Went to Haem this week and although the interferon has helped me considerably I have been experiencing severe hip and girdle pain, which I told him about. His response, 'well we'll run out of options
Vennie
in
MPN Voice
7 years ago
Interferon how quick
Been on Pega for about a month, plus reduced Hydro, but my hct is going up.. Does anyone know how long Interferon takes to get some results? Venesection next week and another within 3 weeks.
Been on Pega for about a month, plus reduced Hydro, but my hct is going up.. Does anyone know how long Interferon takes to get some results? Venesection next week and another within 3 weeks.
shiftzz
in
MPN Voice
7 years ago
Hepatitis B
Hello, I found out I have Hepatitis B in December,they test me DNA in January and I had 379 ui/ml,then test me in August,but never get the results,the doctor ask for fibro scan,but now is almost December and the nurse told me she forgot!I been abroad in holiday and test there,my DNA is 3980 ui/ml,and
Hello, I found out I have Hepatitis B in December,they test me DNA in January and I had 379 ui/ml,then test me in August,but never get the results,the doctor ask for fibro scan,but now is almost December and the nurse told me she forgot!I been abroad in holiday and test there,my DNA is 3980 ui/ml,and
Paulika1991
in
British Liver Trust
7 years ago
MPNs and Wine
Has anyone had any problems with Wine, having to restrict intake? Obviously not an ideal supplement to HU or Interferon and all depends on level of consumption but for example, is HU equivalent to say 1 unit of alcohol per day in terms of potential liver damage. Or more toxic/less toxic? Just wondering
Has anyone had any problems with Wine, having to restrict intake? Obviously not an ideal supplement to HU or Interferon and all depends on level of consumption but for example, is HU equivalent to say 1 unit of alcohol per day in terms of potential liver damage. Or more toxic/less toxic? Just wondering
Paul123456
in
MPN Voice
7 years ago
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