Experiences with

Interferon alfa-2a

For the last 60 years I have been a vigilant weight watcher, daily exerciser and have watched my calorie intake. When I commenced treatment for my Essential Thrombocytosis in January 2021, my weight was 53.5kg. Three years later this has ballooned to 60.3kg, despite my efforts to control any

"Interferon alfa (Intron® A, BESREMi® [alfa-2b], and Roferon®-A [alfa-2a]), and sustained-release preparations of these called Peg-Intron and Pegasys® [peginterferon alfa-2a])".

Hola! I'm new to this group and newly diagnosed with essential thrombocythemia. The treatment prescribed is peginterferon alfa-2a. So far I have done one treatment and wow does it suck! I haven't seen anyone else talking about this course of treatment. Is anyone else doing this? I sure could use some

Hi all, I've beed recently diagnosed with Essential Thromcythemia and have been presented with two treatment options, I guess it will all be around side effects and was looking for information on peoples experiences. I understand it will come down to my personal reaction, has any one been on both? I'm

Hello, I am very grateful for this forum. By reading the many posts I have gained much better insight into the disease. I was diagnosed with PV 2 years ago. I am 52 years old and have no history of thrombosis. As a result I belong to the low risk group and I only started with aspirin and phlebotomy.

I've had quite the journey since April with what I call Cluster Migraines. I'm 63, ET JaK2 V617F. Aspirin daily, 90mcg Pegysis Interferon every 8 weeks Had migraines since a teenager. I was diagnosed in 2016 ET while seeing Migraine specialist with more frequent migraines. 1 or 2 a month usually. Then

apologies, I have posted this under another thread but just felt I had to reach out for advice: I’ve been suffering from an iron deficiency anemia since 2021. Since then my platelets have almost normalised (ET). I haven’t seen a consultant since the start of Covid. It’s always been phone appointments

I have ET JAK2 2 with slight scarring . Also developed PE along the way . I am on interferon 135mcg weekly for the last one year and has been tolerating it well except mild nausea . This has controlled my platelets well . I am also on Abixaban . Of late I have been experiencing lots of abdominal issues

Hi just looking for advice from anyone on this latest blood tests platelets 950 no treatment for this as shortage of interferon and doc is happy enough to Hold off for a while and see but to monitor I've had no history of clots or stroke thankfully and I'm cal r but my question I've been put on hrt patch

Hi everyone A story has happened to me that has troubled my mind. I have been using interferon for about 4 years. At the beginning of using interferon, until we reached the desired dose, I became anemic after using a high dose, and small amounts of teardro RBC plus other abnormal shaped rbcs were

Had my 1/4ly consultation. My HCT has been hovering above 0.45 for about a year, see above. My JAK2 test has come back negative, after being positive for some years but at a low percentage. They have decided that my interferon to be changed from 10 days to 14 days, it was originally 7 days.

Hi It was suggested today that interferon isn't the right drug for me. The symptoms / side effects are heightened rather than improving and my platelets are decreasing in very small amounts. It's being discussed by a panel who will get back to me in a week. I've been on it for 5- 6 months Does anyone

Professor Hasselbach said. "To prevent progression of MPN, early and aggressive treatment with interferons that act directly on bone marrow cells is essential to achieve a microscopic residual disease (MRD) status."  « We studied the feasibility of interferon discontinuation in 469 patients with myeloproliferative

This Forum is amazing and I depend on it. I'm interested in others who may have had something similar with auto-immune issues on Besremi. Apologies for the saga. Diagnosed with PV August 2021, AB 22%, put on Hydroxy for a year, then Besremi for the past 20 months, gradually increased from 50 to 450

Has anyone, with Hashimoto's, had any adverse side effects while using Pegasys? Ever since I was switched from Hydroxyurea to Pegasys, my body has had an explosion of pain, ranging from headaches to GERD to sinus issues and beyond. Trying to figure out if it's the combination of the thyroid disorder

Hi All I live in Herts UK and have just taken a call from my Haematology Team to advise that there is a worldwide shortage of Pegylated Interferon due to a change in factories, which won’t be up and running until next year! And my only option is Angagrelide, have tried Hydroxycarbamide which didn’t

Tks to everyone for ther advice on me possibly having to move from interferon to hydrea cause of shortage imi to consultant later today so hopefully all will be well and this shortage will also end soon

I've just been prescribed an SSRI for anxiety and noticed in the info leaflet that it can increase your bleeding risk. I'm prescribed clopidogrel and interferon, and I'm just wondering if others out there are on a similar regime (I just want to feel reassured prior to starting that I'm not putting myself

I have a swollen knee. It came on all of a sudden yesterday (after a round of golf). No pain or stiffness. Dr Google says (I know, but I’m away at the moment and access to anything else is tricky) it could be a bleed in the joint. Has anyone experienced this? I am putting ice on, resting it as much

Sustained serious right leg and thigh injury last week with bruises that would win gold medal at the Olympics,and it’s now 3 times the size of the left knee. Haha! Hospital took X-ray and bloodtest. No fractures. Hospital gave me a walking stick. I had gone to get the car serviced and the return journey