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On the merry go round again! I know I’m no poet but just wanted to share!
Time passes, no matter what, Seconds, minutes, days not caught, We have come through a difficult year Some are safe, some no longer here. We still carry on, day by day, Life starts to improve for some in a way. Meeting friends for talk and teas, Getting exercise for feet and knees. Waiting times for
Time passes, no matter what, Seconds, minutes, days not caught, We have come through a difficult year Some are safe, some no longer here. We still carry on, day by day, Life starts to improve for some in a way. Meeting friends for talk and teas, Getting exercise for feet and knees. Waiting times for
Aime
in
MPN Voice
3 years ago
Pain relief
Hi, I have severe endometriosis and am waiting for excision surgery and hysterectomy. I’ve avoided painkillers until now because of side effects particularly on my bowel but I’m really struggling to manage now. I’m not able to do much day to day anymore other than getting showered and dressed and
Hi, I have severe endometriosis and am waiting for excision surgery and hysterectomy. I’ve avoided painkillers until now because of side effects particularly on my bowel but I’m really struggling to manage now. I’m not able to do much day to day anymore other than getting showered and dressed and
Puffling1
in
Endometriosis UK
3 years ago
After some advice and some personal experiences!
Hello, this is actually my first post so apologies if it is a bit long winded! After around 6 years struggling with pelvic related issues (PID, cysts, pain & heavy periods) I am now under gynae having investigations into endo. Over the last couple of years I have had bowel symptoms that have gotten worse
Hello, this is actually my first post so apologies if it is a bit long winded! After around 6 years struggling with pelvic related issues (PID, cysts, pain & heavy periods) I am now under gynae having investigations into endo. Over the last couple of years I have had bowel symptoms that have gotten worse
Matj2580
in
Endometriosis UK
3 years ago
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Pain
Hi another thing I just wanted to ask if anyone else got I asked my doctor for stronger pain killers and was told I can’t have any so what she did was put carers in place for me instead I’m puzzled as to how that com-pastes or even works if any one has any idea and can throw some light on it I would
Hi another thing I just wanted to ask if anyone else got I asked my doctor for stronger pain killers and was told I can’t have any so what she did was put carers in place for me instead I’m puzzled as to how that com-pastes or even works if any one has any idea and can throw some light on it I would
hitman57
in
Fibromyalgia Action UK
3 years ago
Pain
Hi is there any one else gets treated the same by their doctor and hospital as they keep telling me that this condition is just there way of saying it’s all in my mind ? I don’t know how that works as they have put me on painkillers I think the doctors and hospital are being rude and it gets me down
Hi is there any one else gets treated the same by their doctor and hospital as they keep telling me that this condition is just there way of saying it’s all in my mind ? I don’t know how that works as they have put me on painkillers I think the doctors and hospital are being rude and it gets me down
hitman57
in
Fibromyalgia Action UK
3 years ago
left rib pains?
I went into hospital a few nights ago with horrible stabbing pains on my ribs (left side) i'd never felt that much pain ever in my life. At the hospital all my bloods/urine tests etc we're normal. They thought I might have kidney stones as my back was hurting too so they performed a scan but everything
I went into hospital a few nights ago with horrible stabbing pains on my ribs (left side) i'd never felt that much pain ever in my life. At the hospital all my bloods/urine tests etc we're normal. They thought I might have kidney stones as my back was hurting too so they performed a scan but everything
pizza101
in
Endometriosis UK
3 years ago
Leg hip pain
Hi all. I on 6mg and beginning of the week I missed a dose since then from hips legs even side of my feet are painful, sleeping with pillow between legs cause knees and ankles are really bad in morning, but when I take pain killers and use my hot water bottle it not so bad, so if the pain is better with
Hi all. I on 6mg and beginning of the week I missed a dose since then from hips legs even side of my feet are painful, sleeping with pillow between legs cause knees and ankles are really bad in morning, but when I take pain killers and use my hot water bottle it not so bad, so if the pain is better with
Hidden
in
PMRGCAuk
3 years ago
Post-hysterectomy
Hi! I am 4 days post op following my hysterectomy - this was successfully carried out laparoscopicly and my tubes, uterus and cervix were taken. With the exception of one being adhered to something, my ovaries looked relatively healthy so I kept them. For anyone due to have a hysterectomy in the future
Hi! I am 4 days post op following my hysterectomy - this was successfully carried out laparoscopicly and my tubes, uterus and cervix were taken. With the exception of one being adhered to something, my ovaries looked relatively healthy so I kept them. For anyone due to have a hysterectomy in the future
EndoSuckss
in
Endometriosis UK
3 years ago
Hospice Journey 12/10 t 12/17/21
Hello my bothers and sisters. I wish I could say that this week has been better than last, but that would not be true. There have been some areas of encouragement but not many. As I have been writing these posts I have recognized that I haven't shared this level of detail with my family. I certainly
Hello my bothers and sisters. I wish I could say that this week has been better than last, but that would not be true. There have been some areas of encouragement but not many. As I have been writing these posts I have recognized that I haven't shared this level of detail with my family. I certainly
JimBarringer
in
Advanced Prostate Cancer
3 years ago
Positive A&E visit
Don’t really have a question but wanted to let everyone know of my positive trip to A&E. Saw GP on Monday as I had a headache for couple of weeks which had changed to awful pain over left eye and left side of face, which painkillers wouldn’t shift. No jaw pain but slightly blurred vision in left
Don’t really have a question but wanted to let everyone know of my positive trip to A&E. Saw GP on Monday as I had a headache for couple of weeks which had changed to awful pain over left eye and left side of face, which painkillers wouldn’t shift. No jaw pain but slightly blurred vision in left
Baner
in
PMRGCAuk
3 years ago
How do you cope with FMS
How much pain do you enjure before you call the doctor? I weaned myself off all pain pills 6 months ago bit havi g rhe worst flare up ever most nights I'm awake in pain if I fall to sleep I wake in worst pain so sit up all day trying to be active stretching and moving as they tell me if helps to away
How much pain do you enjure before you call the doctor? I weaned myself off all pain pills 6 months ago bit havi g rhe worst flare up ever most nights I'm awake in pain if I fall to sleep I wake in worst pain so sit up all day trying to be active stretching and moving as they tell me if helps to away
Mishka1975
in
Fibromyalgia Action UK
3 years ago
Does anyone else just feel fobbed off all the time?
So I am having a really bad flare up - I am on day 5 and have just been in so much pain. I have been up to the doctors and hospital and sent home with codeine (which actually isn’t that helpful as it causes more issues) and I have been referred to the specialist which is about an 8 week wait. Any tips
So I am having a really bad flare up - I am on day 5 and have just been in so much pain. I have been up to the doctors and hospital and sent home with codeine (which actually isn’t that helpful as it causes more issues) and I have been referred to the specialist which is about an 8 week wait. Any tips
Beth0393
in
Endometriosis UK
3 years ago
Appointment with Rheumatologist and my falling!
Well, yesterday was my visit to the rheumatologist. But let’s go back to Friday when I rang the GP after seeing the pharmacist on Thursday. My right shin and left ankle, which were both badly bruised after a second fall in three weeks, had become swollen and yellow/white inside with what looked like
Well, yesterday was my visit to the rheumatologist. But let’s go back to Friday when I rang the GP after seeing the pharmacist on Thursday. My right shin and left ankle, which were both badly bruised after a second fall in three weeks, had become swollen and yellow/white inside with what looked like
Bowenlady
in
LUPUS UK
3 years ago
Period pains but no pains at other times
Hi everyone I get agonising period pains and always have done, but they have got worse in recent years. I usually have period pains for the first 3 days and they vary from mild cramps to an excruciating pain that cannot be controlled with painkillers. The excruciating pain feels like a heaviness and
Hi everyone I get agonising period pains and always have done, but they have got worse in recent years. I usually have period pains for the first 3 days and they vary from mild cramps to an excruciating pain that cannot be controlled with painkillers. The excruciating pain feels like a heaviness and
Curlygirl13
in
Endometriosis UK
3 years ago
Question for all
Have or any of your on pain pills? Do you all feel like it helps or that it makes you worse? My doctor has me on 5 and I don't feel like it's strong enough I want something for a long something for long term pain any suggestions you suggestions I was thinking about about Asking her about methadone
Have or any of your on pain pills? Do you all feel like it helps or that it makes you worse? My doctor has me on 5 and I don't feel like it's strong enough I want something for a long something for long term pain any suggestions you suggestions I was thinking about about Asking her about methadone
Jackjosh
in
My MSAA Community
3 years ago
After hysterectomy and surgical menopause
Having had a full hysterectomy and coming of hrt and having injections every three months postrap I think endo is back nearly 20 years later(has been going on for at least ten years) So after seeing a colorectal surgeon and a cat scan she said she can see some diverticular,I am not medically
Having had a full hysterectomy and coming of hrt and having injections every three months postrap I think endo is back nearly 20 years later(has been going on for at least ten years) So after seeing a colorectal surgeon and a cat scan she said she can see some diverticular,I am not medically
Shazmo
in
Endometriosis UK
3 years ago
Metastatic prostate cancer chronic lower back and pelvic pain which gets much, much worse at night.
Hi everyone! I have metastatic prostate cancer which has got into my bones. I’m currently on Zoladex long term hormone therapy following a 10 month course of chemotherapy which was not that successful so we’re looking at other options. FYI I have noted quite a lot of muscle wastage as a result of long
Hi everyone! I have metastatic prostate cancer which has got into my bones. I’m currently on Zoladex long term hormone therapy following a 10 month course of chemotherapy which was not that successful so we’re looking at other options. FYI I have noted quite a lot of muscle wastage as a result of long
RobbieSELDN
in
Advanced Prostate Cancer
3 years ago
Update
Hello all! I have read everyone’s wonderful messages - it’s been hard to get back. Ryan is okay. He started ipilimumab on November 23rd, 2021. Onco said we will not see fast results like some other drugs like Keytruda and Taf/Mek. A little nerve racking because of course time isn’t on our side. He has
Hello all! I have read everyone’s wonderful messages - it’s been hard to get back. Ryan is okay. He started ipilimumab on November 23rd, 2021. Onco said we will not see fast results like some other drugs like Keytruda and Taf/Mek. A little nerve racking because of course time isn’t on our side. He has
kellyOd
in
Melanoma Caregivers
3 years ago
Any ideas to help with pain ??
Hi I’m 2 weeks into a really nasty painful relapse ! Steroids 30 mg not doing much and painkillers seem to be doing less. Any suggestions gratefully received . Thank you 😊
Hi I’m 2 weeks into a really nasty painful relapse ! Steroids 30 mg not doing much and painkillers seem to be doing less. Any suggestions gratefully received . Thank you 😊
Sidneydog1
in
PMRGCAuk
3 years ago
My partner's story
Hello to everyone, I've been a silent member of this group for a few weeks and I have found your posts really helpful. I have decided that now is the time to share with you the story so far with my partner and his diagnosis of alcohol related liver disease. He's 43 years old and he's been a daily drinker
Hello to everyone, I've been a silent member of this group for a few weeks and I have found your posts really helpful. I have decided that now is the time to share with you the story so far with my partner and his diagnosis of alcohol related liver disease. He's 43 years old and he's been a daily drinker
Bibbs
in
British Liver Trust
3 years ago
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