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Infective conjunctivitis
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Medicare won't cover Paxlovid twice within 6 months
I figured this is worth sharing - as I was shocked to have gone through this, but I found a solution worth sharing that even my pharmacist didn't know about. Yes, I think we all know by now that if you have CLL its important to get Paxlovid if you get COVID (and it really works well). I had COVID in
I figured this is worth sharing - as I was shocked to have gone through this, but I found a solution worth sharing that even my pharmacist didn't know about. Yes, I think we all know by now that if you have CLL its important to get Paxlovid if you get COVID (and it really works well). I had COVID in
xpetes
in
CLL Support
2 months ago
Post lurgy and niggles - update
Well Covid got me and the runs had to take a back seat for a while. I tried a short run the week after and it was such a puffer I had a word with myself and took another week off for recovery. When I next set out for a 20 minute session at a slow plod (I should say, even slower than usual 😀), I started
Well Covid got me and the runs had to take a back seat for a while. I tried a short run the week after and it was such a puffer I had a word with myself and took another week off for recovery. When I next set out for a 20 minute session at a slow plod (I should say, even slower than usual 😀), I started
Fionamags
Graduate10
in
Bridge to 10K
2 months ago
THANK YOU TO ALL RE: Covid Anti Viral Meds.
Thank you for all your helpful replies. As I had telephone appointment already scheduled I spoke to Haematologist about getting Anti viral meds. Apparently things have changed and these Covid meds cannot now be sourced through Haematology. On ringing my GP the receptionist understood right away and went
Thank you for all your helpful replies. As I had telephone appointment already scheduled I spoke to Haematologist about getting Anti viral meds. Apparently things have changed and these Covid meds cannot now be sourced through Haematology. On ringing my GP the receptionist understood right away and went
azaelea
in
MPN Voice
2 months ago
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Gut problems with Pavlovid
hiya, never posted before but just seeking advice. I have GPA was diagnosed at the start of COVID. I currently take azathioprine. After avoiding it for all this time COVID finally got me and I’ve finished a course of Paxlovid. Despite some residual symptoms mainly breathing difficulties I have recovered
hiya, never posted before but just seeking advice. I have GPA was diagnosed at the start of COVID. I currently take azathioprine. After avoiding it for all this time COVID finally got me and I’ve finished a course of Paxlovid. Despite some residual symptoms mainly breathing difficulties I have recovered
Sweetpea0508
in
Vasculitis UK
2 months ago
COVID
I have Covid! I don't recommend it -- I feel terrible. I hope it doesn't cause a flare. I am down to zero prednisone and my adrenals suddenly caught up so I was feeling normal. Still on the Kevzara, however.
I have Covid! I don't recommend it -- I feel terrible. I hope it doesn't cause a flare. I am down to zero prednisone and my adrenals suddenly caught up so I was feeling normal. Still on the Kevzara, however.
Paulagcl
in
PMRGCAuk
2 months ago
Covid Update
Hi all, a quick update to my previous post. I have had a couple of days of negative tests for Covid so holiday plans are going ahead as planned (as at this time!). It's been an "interesting" few days but I am feeling a huge amount better than I was, not 100% by any means but leaps and bounds better
Hi all, a quick update to my previous post. I have had a couple of days of negative tests for Covid so holiday plans are going ahead as planned (as at this time!). It's been an "interesting" few days but I am feeling a huge amount better than I was, not 100% by any means but leaps and bounds better
Bcol
in
PMRGCAuk
2 months ago
Covid. Do we still have to receive Antiviral medication?
I have just tested positive with Covid after Husband started with symptoms. I went onto NHS website to report it but it informs that this is no longer necessary. I wonder if we still have to request Antiviral treatment through 111 or GP. I have ET JAK2 Pos.
I have just tested positive with Covid after Husband started with symptoms. I went onto NHS website to report it but it informs that this is no longer necessary. I wonder if we still have to request Antiviral treatment through 111 or GP. I have ET JAK2 Pos.
azaelea
in
MPN Voice
2 months ago
bronciectis is
glad to b back it helps to read all the help you all give covid as done my chest in bronciectis is playing up and im feeling so week because of the last COVID
glad to b back it helps to read all the help you all give covid as done my chest in bronciectis is playing up and im feeling so week because of the last COVID
Redrum46
in
Lung Conditions Community Forum
2 months ago
To share interesting experience!
Good morning my MPN family, Yesterday my husband tested positive for Covid, then I decided to take test too and was positive. After that I went to contact my MPN team and request antiviral Paxlovid medication. I was not able to get through my MPN team as I was hoping then I called 111 and as I was talking
Good morning my MPN family, Yesterday my husband tested positive for Covid, then I decided to take test too and was positive. After that I went to contact my MPN team and request antiviral Paxlovid medication. I was not able to get through my MPN team as I was hoping then I called 111 and as I was talking
light
in
MPN Voice
2 months ago
"Oral Nirmatrelvir–Ritonavir [ Paxlovid ] as Postexposure Prophylaxis for Covid-19" -- does not do much
"... In this placebo-controlled trial, postexposure prophylaxis with nirmatrelvir-ritonavir for 5 or 10 days
did not significantly reduce the risk of symptomatic SARS-CoV-2 infection
." [That sort of has been the suspicion since the very beginning.] https://pubmed.ncbi.nlm.nih.gov/39018532/
"... In this placebo-controlled trial, postexposure prophylaxis with nirmatrelvir-ritonavir for 5 or 10 days
did not significantly reduce the risk of symptomatic SARS-CoV-2 infection
." [That sort of has been the suspicion since the very beginning.] https://pubmed.ncbi.nlm.nih.gov/39018532/
70s-80s-overlander
in
CLL Support
2 months ago
Probably nearing treatment -some questions
My haematologist has sent a letter to my GP that she will be asking me to meet with her in several weeks time "with a view to starting treatment given the evidence of cutaneous progression." I missed my last appointment with her because she was ill, so had a phone appointment with another of the consultants
My haematologist has sent a letter to my GP that she will be asking me to meet with her in several weeks time "with a view to starting treatment given the evidence of cutaneous progression." I missed my last appointment with her because she was ill, so had a phone appointment with another of the consultants
JEEA
in
CLL Support
2 months ago
💬 Discussion Topic: How do you feel healthcare providers support patients in managing their fears about COVID-19?
In recent weeks, COVID-19 has seen an increase in cases. How do you feel healthcare providers support patients in managing their fears about COVID-19?
In recent weeks, COVID-19 has seen an increase in cases. How do you feel healthcare providers support patients in managing their fears about COVID-19?
AnnaHU
HealthUnlocked
in
Research Opportunities
2 months ago
Covid booster
hi looking for some information/ advice please. 3 months ago I paid for a private Covid vaccine and received the Novavax . I was not in the age group for a free vaccine and paid to protect my partner who has vasculitis. The clinic rang me today and offered me a booster as it was 3 months since I received
hi looking for some information/ advice please. 3 months ago I paid for a private Covid vaccine and received the Novavax . I was not in the age group for a free vaccine and paid to protect my partner who has vasculitis. The clinic rang me today and offered me a booster as it was 3 months since I received
Main1234
in
PMRGCAuk
2 months ago
Do Covid symptoms last longer with us?
I got my first case of covid last Thursday. Started Paxlovid immediately and din't get very sick. I tested Tuesday, thinking I would be negative but still positive. Do CLL'ers take longer to shed the virus?
I got my first case of covid last Thursday. Started Paxlovid immediately and din't get very sick. I tested Tuesday, thinking I would be negative but still positive. Do CLL'ers take longer to shed the virus?
Tangolover
in
CLL Support
2 months ago
covid
hi all I've recently tested positive for covid along with partner and 5 month old, my oldest is negative. We have never had covid before. is there anything I need to do for my baby? she seems okay in herself just coughing, I started with shakes and sweating and couldn't stay awake I felt that weak,
hi all I've recently tested positive for covid along with partner and 5 month old, my oldest is negative. We have never had covid before. is there anything I need to do for my baby? she seems okay in herself just coughing, I started with shakes and sweating and couldn't stay awake I felt that weak,
AngelMum1
in
Pregnancy and Parenting Support
2 months ago
COVID
There has been a lot of covid around lately i know so many people that have had it including my wife and eldest son, i don't think iv had it but my tinnitus has got much worse so i wonder if i have had covid with out knowing and its just effected my T have any body else had anything similar
There has been a lot of covid around lately i know so many people that have had it including my wife and eldest son, i don't think iv had it but my tinnitus has got much worse so i wonder if i have had covid with out knowing and its just effected my T have any body else had anything similar
777john
in
Tinnitus UK
2 months ago
Is there a link between covid and bronchiectasis?
Has anyone here developed bronchiectasis apparently as a result of covid infection?
Has anyone here developed bronchiectasis apparently as a result of covid infection?
Seagullcity
in
Lung Conditions Community Forum
2 months ago
Do you stop Methotrexate whilst you have Covid?
Hi lovely people, I have Covid and am wondering if I should miss my Methotrexate out this week. I was given antivirals, but had to stop because of an allergic reaction after 24 hours. What have you done in the same position please? My Rheumatoid is well controlled at the moment.
Hi lovely people, I have Covid and am wondering if I should miss my Methotrexate out this week. I was given antivirals, but had to stop because of an allergic reaction after 24 hours. What have you done in the same position please? My Rheumatoid is well controlled at the moment.
Lotttie4
in
NRAS
2 months ago
Flirt covid
Haa anyone else been suffering badly withethe latest covid virus. Constant nausea and fatigue. I've lost more weight. My heart beating irregular when I'm vomiting. Had to call an ambulance sunday. When they came they said I was better off at home as they are full of covid patients. This is miserable
Haa anyone else been suffering badly withethe latest covid virus. Constant nausea and fatigue. I've lost more weight. My heart beating irregular when I'm vomiting. Had to call an ambulance sunday. When they came they said I was better off at home as they are full of covid patients. This is miserable
Toby14
in
Lung Conditions Community Forum
2 months ago
When We Have CLL, Why We Need Particularly need an Immunome. (Why neutrophil and immunoglobulin counts don't measure immunity all that well)
What if our doctors could recommend IgG replacement therapy (IGIV or subcutaneous IgG) [u]
before
[/u] we became seriously ill, preventing that risk to our health, even our life? Or proactively recommend vaccination boosters or prophylactic antibiotics or antivirals? This is what a CLL specific
What if our doctors could recommend IgG replacement therapy (IGIV or subcutaneous IgG) [u]
before
[/u] we became seriously ill, preventing that risk to our health, even our life? Or proactively recommend vaccination boosters or prophylactic antibiotics or antivirals? This is what a CLL specific
AussieNeil
Partner
in
CLL Support
2 months ago
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