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Kesimpta and IVIG?
I have had many infections over the last 4 months. I have been on Kesimpta for 2years. Anyone else have that problem? Any luck with immuno therapy? Thank you!
I have had many infections over the last 4 months. I have been on Kesimpta for 2years. Anyone else have that problem? Any luck with immuno therapy? Thank you!
pihokken
in
My MSAA Community
8 days ago
Success stories/advice after multiple miscarriages
Hi, I’ve had it confirmed today that I’m having a missed miscarriage. Should have been 7+5 weeks but the gestational sac was empty (I’ve had multiple scans over the past 12 days so it’s definitely over). This is now my third miscarriage so I can add the 1% recurrent miscarriage statistic to all these
Hi, I’ve had it confirmed today that I’m having a missed miscarriage. Should have been 7+5 weeks but the gestational sac was empty (I’ve had multiple scans over the past 12 days so it’s definitely over). This is now my third miscarriage so I can add the 1% recurrent miscarriage statistic to all these
Ctk123
in
Fertility Network UK
8 days ago
Follow up T3 question
Okay, so, it has only recently reached my consciousness that the fact that my thyroid "died" (I got a goiter and my TSH was only barely above "normal" so at first they didn't want to treat me even though I gained 30lbs in a month and lost all my body hair and on and on) at the exact same moment (literally
Okay, so, it has only recently reached my consciousness that the fact that my thyroid "died" (I got a goiter and my TSH was only barely above "normal" so at first they didn't want to treat me even though I gained 30lbs in a month and lost all my body hair and on and on) at the exact same moment (literally
BlueGreenWordyDoc
in
Thyroid UK
22 days ago
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Raised TNF alpha? Any advice
hi all Is this raised tnf my clinic haven't said it is they said I need ivig for my pgs embryo transfer. Looking at my results above are my TNF not elevated? If so what treatment or tests did you have to help you get your bfp? Thanks
hi all Is this raised tnf my clinic haven't said it is they said I need ivig for my pgs embryo transfer. Looking at my results above are my TNF not elevated? If so what treatment or tests did you have to help you get your bfp? Thanks
Poop84
in
Fertility Network UK
29 days ago
CLL + Bladder cancer + prostate cancer
I've been diagnosed with Cll since 2016 and been on Acalabrutinib for 2 years which is working really well along with monthly plasma ivig infusions. I'm 63 and male and fit and active. I just got diagnosed with Bladder cancer with a medium grade carcinoma. My uroligist has burnt the 2 spots she found
I've been diagnosed with Cll since 2016 and been on Acalabrutinib for 2 years which is working really well along with monthly plasma ivig infusions. I'm 63 and male and fit and active. I just got diagnosed with Bladder cancer with a medium grade carcinoma. My uroligist has burnt the 2 spots she found
Brucex100
in
CLL Support
1 month ago
High IgM and other markers
Hi, just had some more blood tests and my globulin and IgM levels are high. I understand they're linked with autoimmune and inflammatory conditions. Has anyone else experienced this after a recent PA diagnosis? Thanks.
Hi, just had some more blood tests and my globulin and IgM levels are high. I understand they're linked with autoimmune and inflammatory conditions. Has anyone else experienced this after a recent PA diagnosis? Thanks.
Myoldcat
in
Pernicious Anaemia Society
1 month ago
Intralipids, IVIG experience?
Hi, is there any of you who suffered from a number of implantation failures and finally achieved successful pregnancy by using intralipids / IVIG? Any good (or bad) experiences of using them?
Hi, is there any of you who suffered from a number of implantation failures and finally achieved successful pregnancy by using intralipids / IVIG? Any good (or bad) experiences of using them?
WaitingforGabriel
in
Fertility Network UK
1 month ago
IVIg infusion clinic help
hello, I have been advised to do both intralipid and Ivig infusion for my next FET with immunotherapy. Our doctor is ok for us to do IVIG elsewhere to save money. I’m based in London and prices for IVIg are scary. I’ve read of people who travelled to do it abroad: where did you go? What countries/
hello, I have been advised to do both intralipid and Ivig infusion for my next FET with immunotherapy. Our doctor is ok for us to do IVIG elsewhere to save money. I’m based in London and prices for IVIg are scary. I’ve read of people who travelled to do it abroad: where did you go? What countries/
Oumil
in
Fertility Network UK
2 months ago
Help with rehab at home after acute phase of autoimmune encephalitis for my 16 year old
I am mum to a 16 year old daughter who has recently been diagnosed with autoimmune encephalitis. After several weeks in and out of A&E and several other departments, where they thought it was psychological, we were referred to the neurologists by the psychiatrist who after several tests diagnosed AE
I am mum to a 16 year old daughter who has recently been diagnosed with autoimmune encephalitis. After several weeks in and out of A&E and several other departments, where they thought it was psychological, we were referred to the neurologists by the psychiatrist who after several tests diagnosed AE
Cat29red
in
Encephalitis Society
2 months ago
Advice needed
Hi everyone - after a bit of advice from the collective brain :) We are incredibly lucky enough to have a little boy from our 6th transfer in 2021, and had 5 frozen embryos at the clinic should we decide to try for a sibling. We've now done 2 FETs with exactly the same protocol (steroids / intralipids
Hi everyone - after a bit of advice from the collective brain :) We are incredibly lucky enough to have a little boy from our 6th transfer in 2021, and had 5 frozen embryos at the clinic should we decide to try for a sibling. We've now done 2 FETs with exactly the same protocol (steroids / intralipids
Millbanks
in
Fertility Network UK
2 months ago
Lupus or another Autoimmune Disease?
I’m 50 yr old female with issues, RLS, Hashimotos, Autoimmune Atrophic Chronic Gastritis, intestinal Metaplasia, Iron Deficiency Anemia w/transfusions, B12 deficiency, and now this horrible hip and joint pain. I know if you have one Autoimmune Disease you’re likely to have more. I’ve had a full work
I’m 50 yr old female with issues, RLS, Hashimotos, Autoimmune Atrophic Chronic Gastritis, intestinal Metaplasia, Iron Deficiency Anemia w/transfusions, B12 deficiency, and now this horrible hip and joint pain. I know if you have one Autoimmune Disease you’re likely to have more. I’ve had a full work
Milescircus
in
LUPUS UK
2 months ago
IVIG with CALR ET
Has anyone with ET/MPN ever received IVIG? I have ET and my platelets are in the mid to high 500k range on 1000mg HU daily. IVIG has a risk for blood clots but it appears to be one of the few things that might help with a severe neuropathy I’ve developed. My docs think I will be ok but I am quite nervous
Has anyone with ET/MPN ever received IVIG? I have ET and my platelets are in the mid to high 500k range on 1000mg HU daily. IVIG has a risk for blood clots but it appears to be one of the few things that might help with a severe neuropathy I’ve developed. My docs think I will be ok but I am quite nervous
George1976
in
MPN Voice
2 months ago
High globulin and immunoglobulin A
Hello all! Newly diagnosed Hashimoto’s, 24 yr old female here. My endocrinologist and I have been running a host of I guess what are initial blood work ups to understand my body - most recently got back results where my globulin was high (3.9 g/dl). On a separate celiac panel, I have no celiac related
Hello all! Newly diagnosed Hashimoto’s, 24 yr old female here. My endocrinologist and I have been running a host of I guess what are initial blood work ups to understand my body - most recently got back results where my globulin was high (3.9 g/dl). On a separate celiac panel, I have no celiac related
musicandmemories
in
Thyroid UK
1 year ago
return of immune system
I achieved remission in May 2022 after a year of O & V. My immune system has still not returned and I’ve thankfully been given IVIG infusions to help me out. I was told my immune system would return one year after the completion of Obinutuzumab infusions and those ended in September of 2021. Has anyone
I achieved remission in May 2022 after a year of O & V. My immune system has still not returned and I’ve thankfully been given IVIG infusions to help me out. I was told my immune system would return one year after the completion of Obinutuzumab infusions and those ended in September of 2021. Has anyone
Cllinmaryland
in
CLL Support
3 months ago
Monoclonal components
Dears, I have a question. I am in treatment for my CLL (13q, not mutated, with monoclonal component in gamma zone) with 2 cps of Ibrutinib. Since the beginning my IgG, IgM, IgA are quite low, but I never got any treatment because I had no issues with that. The result of the treatment with Ibrutinib
Dears, I have a question. I am in treatment for my CLL (13q, not mutated, with monoclonal component in gamma zone) with 2 cps of Ibrutinib. Since the beginning my IgG, IgM, IgA are quite low, but I never got any treatment because I had no issues with that. The result of the treatment with Ibrutinib
grazia50
in
CLL Support
3 months ago
arrhythmia and the flu and Covid vaccine
Hi all! I had a physical on Wednesday and since I hadn’t received my flu and Covid vaccine yet this year went ahead and got them. I came home and did a workout and felt fine until evening when fever and chills hit along with some mild sporadic heart arrhythmia. I took it easy the next couple days and
Hi all! I had a physical on Wednesday and since I hadn’t received my flu and Covid vaccine yet this year went ahead and got them. I came home and did a workout and felt fine until evening when fever and chills hit along with some mild sporadic heart arrhythmia. I took it easy the next couple days and
CoCoLuna11
in
CLL Support
3 months ago
Advice for managing adenomyosis
Hello fellow IVF warriors 💗 I wondered if anyone can give me some advice on how to manage adenomyosis whilst going through IVF? A bit of background on me: I started the IVF process in May 2022 after a year and half of trying naturally for our second child, who would be a sibling to our baby
Hello fellow IVF warriors 💗 I wondered if anyone can give me some advice on how to manage adenomyosis whilst going through IVF? A bit of background on me: I started the IVF process in May 2022 after a year and half of trying naturally for our second child, who would be a sibling to our baby
Sophia_Mama
in
Fertility Network UK
3 months ago
Brukinsa and Skin
I'm posting just for input from our group on a simple issue. I started Brukinsa on January 1, and I'm also on IVIG infusions once every four weeks since October 1. Last week from January 15 through January 20 I was in Boston for a two week blood and check up post the Jan 1 start on Brukinsa for three
I'm posting just for input from our group on a simple issue. I started Brukinsa on January 1, and I'm also on IVIG infusions once every four weeks since October 1. Last week from January 15 through January 20 I was in Boston for a two week blood and check up post the Jan 1 start on Brukinsa for three
wizzard166
in
CLL Support
3 months ago
Blood Tests
Good morning to you all, I am speaking with my Dr in two weeks time and would like to ask advice on what blood tests to request , as you probably remember I had a bad ultra sound and a bad ct scan followed by a really bad fibro scan, I was not followed up or referred and because of this I worry what
Good morning to you all, I am speaking with my Dr in two weeks time and would like to ask advice on what blood tests to request , as you probably remember I had a bad ultra sound and a bad ct scan followed by a really bad fibro scan, I was not followed up or referred and because of this I worry what
Sophia1968
in
British Liver Trust
8 months ago
low Immunoglobulins
Hello Everyone, My CLL is actually under control with normal labs, except low immunoglobulins. IGA and IGM basically nothing, IGG 401. Taken off Zanubrutinib when I got Covid in July 2022, been off since then. Continually tired, some days exhausted. With lower extremity pain, feels like inflammation
Hello Everyone, My CLL is actually under control with normal labs, except low immunoglobulins. IGA and IGM basically nothing, IGG 401. Taken off Zanubrutinib when I got Covid in July 2022, been off since then. Continually tired, some days exhausted. With lower extremity pain, feels like inflammation
Davidcara
in
CLL Support
8 months ago
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